Foundation Scotland’s crisis support surpasses £6 Million

Over 1.3 million people reached to date and essential ‘winter-ready’ funding available

Foundation Scotland, Scotland’s community foundation, has announced the total amount distributed through their dedicated crisis fund now exceeds £6 million to date. 

This significant level of funding breaks all its previous records and illustrates the continued and growing needs coming from groups supporting those most vulnerable throughout the country.

The community foundation is today stressing that the Response, Recovery and Resilience fund remains open. 

Foundation Scotland is now particularly eager to support groups to get ‘winter-ready’, so they’re better equipped to deliver essential services through the darker, colder, winter months ahead.

For example, to enable groups to extend counselling and wellbeing services remotely, to purchase all-weather protective clothing, to create virtual energising activities through the cold dark months or to offer phone-based companionship for the isolated.

Helen Wray, Head of Programmes at Foundation Scotland, said: “It’s been a long seven months since the crisis began, we hoped we’d be able to get back to a little more normality by now.  However, it looks unlikely that restrictions will ease any time soon and we’re painfully aware the next few months will bring even more significant challenges as the nights get longer, darker and colder.

“The emotional, physical and financial impacts of lockdown are becoming increasingly problematic, lives have been turned upside down.  Sadly, there are even more people in Scotland experiencing extreme hardship, isolation, loneliness and fear.  

“However, we’re always encouraged by the resilience and strength we see in our communities.  Groups across the country are coming together to urgently deliver essential and critical services to those most in need.  

“We understand our support is needed more than ever. Crisis grants enable dedicated groups to offer vital services in protecting the most vulnerable from long-term impacts.  Therefore, our fund will remain open to applications for support where it is needed most.   

“For example, wellbeing services like virtual counselling and befriending will be even more important. Volunteers might need all-weather protective clothing to support those in need safely and awnings and heaters to provide services outside.  We are, however encouraging groups to apply as soon as they can.” 

The community foundation’s Response, Recovery and Resilience fund, delivered in partnership with the National Emergencies Trust, has to date supported over 1.3 million people across Scotland. 

A total of £4.6 million in small grants have been distributed to 1,188 dedicated organisations delivering vital support to some of the most isolated and vulnerable people across the country.  A further £1.4 Million has been invested in strategic grants to national charities such as Cruse Bereavement Care Scotland, Shelter Scotland and the Scottish Association for Mental Health (SAMH) to deliver higher-level strategic support throughout the pandemic.

With the pandemic likely to impact on services well into 2021, the Foundation is now preparing to enter the Resilience phase of the fund. 

From 1st December the fund’s renewed focus will be on providing support to organisations to look even further ahead, to future proof their services more long term.

The continued restrictions will undoubtedly increase demand for many services delivered by small organisations, so it’s vital they’re equipped to continue meeting the needs of their local communities. More details on the Resilience phase will be available on the Foundation’s website in the coming weeks.

Since launching the dedicated Response, Recovery & Resilience Fund in March, the Foundation Scotland team have worked hard to assess an overwhelming level of applications ensuring vital support reaches those most in need as quickly as possible. 

Recent figures revealed that since the start of the crisis the Scottish funder has received almost the same number of applications in the last six months as it received in the whole of the previous financial year.

The Foundation Scotland Response, Recovery & Resilience Fund continues to welcome applications between £1,000-£5,000 from constituted community groups and registered charities. 

The funder is eager to distribute funds quickly and is appealing to eligible groups to apply as soon as they can.  Unlikely many other funding streams previous applicants are eligible to reapply to access further support needed. 

For more details, eligibility criteria and to apply online visit https://www.foundationscotland.org.uk/

Culture Collective Fund launched

New £1.5million initiative launched 

Deadline for Expressions of Interest:  5pm, Wed 18 Nov 2020 

A new £1.5million Scottish Government initiative launches today to establish a network of creative practitioners, organisations and communities to respond to the impact of COVID-19. 

The initiative will also provide employment opportunities and actively engage people in shaping the future cultural life of their community. 

Grants of between £100,000 and £300,000 are available to organisations from the Culture Collective programme through Creative Scotland.  

Culture Secretary Fiona Hyslop said: “We recognise that culture is more important than ever to Scotland’s collective wellbeing and prosperity.

“And place – where people, location and resources combine to create a sense of identity and purpose – is at the heart of realising the full potential of communities across Scotland and supporting them to respond creatively to the challenges posed by COVID-19. 

“The national Culture Collective pilot programme’s approach to establish a network of creative practitioners, organisations and communities reflects the ambition both of our Programme for Government and the Culture Strategy for Scotland.” 

Iain Munro, Chief Executive of Creative Scotland said: “The Culture Collective will spark new thinking and promote collaboration locally and across Scotland as we respond to the impacts of COVID-19 on the sector and communities.  

“Through the support provided by the Scottish Government, cultural organisations, local partners and creative practitioners will have the opportunity to work together, establishing important employment opportunities and developing new models of creative community engagement and participation.” 

Funding guidance and full information is available on the Creative Scotland website. 

Creative Scotland will be hosting an online Information Session about the initiative on Thursday 12 Nov, 15:30 – 16:30. 

Registration is available via the Culture Collective Programme page on Creative Scotland’s website. 

The Culture Collective programme is part of a Scottish Government package of COVID-19 emergency funds for creativity and culture being administered through Creative Scotland: 

  • £3.5million additional funds for Creative Scotland’s Open Fund which is open for applications to individuals and organisations on a rolling basis. 
  • £3million Youth Arts funding package comprising of at least £1.2million through the Access to Youth Arts Fund open to applications until Thursday 12 November; the £700,000 Small Grants Scheme which was  open to applications until Monday 2 November; £50,000 assigned to the Time to Shine Nurturing Talent Fund, and anadditional £1,050,000 allocated to support a number of targeted national and local area youth music and wider youth arts organisations. These organisations were invited to apply for the Youth Arts Targeted Fund by Tuesday 13 October. 

Previously announced funds from the Scottish Government are: 

Updates on all emergency funds are being published regularly on the Creative Scotland website and publicised through media and social media communications. 

£15 million to help young people’s mental health through the pandemic

Funding of £15 million is being made available to respond to children and young people’s mental health issues, with a focus on those  brought about by the coronavirus (COVID-19) pandemic.

The funding will be distributed to local authorities to support a local response for five to 24-year-olds, their families and carers.

Of this, £11.25 million will be for services in response to the pandemic, such as support for children who are struggling emotionally due to returning to school under new restrictions.

The remaining £3.75 million will be the first instalment of an annual £15 million fund to provide new and enhanced community mental health and wellbeing services. These new services will have a focus on prevention, early intervention and the treatment of distress.

Minister for Mental Health Clare Haughey said: “The pandemic has been very hard for everyone, but for many children and young people it has been particularly difficult.

“Families have told us they need more support for mental and emotional distress and for their wellbeing and resilience, delivered in a community setting. By providing funding to tackle the impacts of the pandemic, alongside a separate fund to provide long term mental health and wellbeing support, we aim to deliver help where it is needed.

“This funding is in addition to supporting the recruitment of an additional 80 mental health professionals to work with children and young people, and our recent announcement of a further £3.6 million to help provide more than 80 additional counsellors in every college and university in Scotland over the next four years. We are also ensuring that every secondary school will have access to a counsellor.”

COSLA Spokesperson for Children and Young People Cllr Stephen McCabe said: “The wellbeing of our children and young people is of upmost importance to local authorities and has been a particular priority in recent months due to the impact of the COVID-19 pandemic.  

“This funding will allow local authorities to continue their work to support  young people’s mental health and wellbeing needs arising as a result of the pandemic, and to implement new and enhanced services, providing early support for children and young people experiencing wellbeing issues, and their families. These actions will help ensure the best outcomes for our children and young people in the short and longer term.”

Joanna Barrett, NSPCC Scotland policy and public affairs manager, said: “We know that many children in Scotland have suffered difficult and traumatic experiences over the past few months.

“During lockdown, we saw a rise in contacts to Childline about mental and emotional health issues, with some children saying they had experienced suicidal thoughts. Our counsellors heard from children struggling with family relationships, sharing that arguments, increased parental stress levels and abusive home environments had impacted their mental health.

“So this investment by the Scottish Government to address these issues is crucial for the recovery of our younger generation. But it is important we also remember and support our very youngest and most vulnerable members of society, those under five, who cannot voice the impact the pandemic has had on their mental wellbeing.”

Supporting emergency services this winter

Additional funding for more ambulances and staff

Additional funding of up to £11 million is being given to the Scottish Ambulance Service to help improve capacity and resilience this winter.

Up to £10.5 million will be used to put 148 new staff in place across the country before the end of the year. It will also provide 24 extra vehicles for the service in Scotland, including 8 ambulances which will be stationed in Glasgow and Lothian – two of the busiest areas.

The funding will also help reduce the need for staff to be on stand-by in some of the more rural areas, with £500,000 being used to ensure priority stations including Aviemore, Golspie and Oban have crews available 24/7.

Health Secretary Jeane Freeman said: “Our ambulance staff continue to work extremely hard under difficult circumstances which are being experienced across our healthcare services. I am extremely grateful for their dedication and commitment.

“This additional investment will allow the Scottish Ambulance Service to put additional capacity in place in two of the busiest areas in the country, as well as supporting staff in some of the more rural areas through increases in staffing and reduction of requirement for staff to work on-call shifts.

“We continue to support the service and ensure they have the right resources in place across Scotland to continue to deal with increasing demand.”

 Chief Executive of the Scottish Ambulance Service Pauline Howie said: “This £11 million funding is fantastic news and will allow us to boost capacity in two of the busiest regions in Scotland through investment in new staff, new ambulances and new specialist vehicles.

“It will also allow us to support staff in some of our more rural areas though increased staffing and a reduction in on-call shift working.

“This winter is expected to see increased demand on healthcare services across the country and our top priority continues to be our patients and staff.

“These additional resources will ensure we continue to deliver the very best patient care to communities while supporting our fantastic staff who have been doing an amazing job each day in the most challenging of circumstances.

“We continue to recruit at pace across the country to strengthen our dedicated workforce – a workforce who have all been remarkable this year.”

Arts organisations act to broaden diversity

New opportunities to help broaden socio-economic diversity in the cultural sector 

Seven Scottish arts organisations are to host year-long paid creative fellowships designed to broaden socio-economic diversity in the arts as part of the Weston Jerwood Creative Bursaries programme. 

Thanks to £100,000 funding from The National Lottery through Creative Scotland, the Bursaries will support early-career development of creative professionals such as artists, curators and producers from a variety of socio-economic backgrounds, across Scotland. 

The seven host organisations and the roles being offered in Scotland are: 

Applications for the Bursaries for Edinburgh Printmakers and The Workroom/Tramway are now live, while Aberdeen Performing Arts, ATLAS Arts, Eden Court and Red Note will launch their application dates soon with updates posted on their websites and social channels. 

Lilli Geissendorfer, director of Jerwood Arts, commented: “I’m delighted that Weston Jerwood Creative Bursaries Fellows will be hosted across Scottish arts and cultural organisations. 

“They all applied to be part of the programme before COVID-19 had been identified, so it is heartening that making their organisations more diverse and inclusive is still high on their agenda despite the additional challenges they are facing.

“It speaks to the resilience I have been inspired by from all corners of the arts and cultural sector in recent months to find the silver linings in the bleakest of times and commit to creating a stronger sector that everyone will benefit from.” 

Shân Edwards, CEO, Edinburgh Printmakers said: “We are excited to be taking part in the Fellowship programme at this time. As we emerge from the shock of lockdown and begin to rebuild our programmes, we need to reconnect across boundaries and tackle inequality.

“Edinburgh Printmakers has a strong track record in training and development, and it has never felt more urgent to overcome a lack of accessible, quality, professional experiences and opportunities.”  

Previous Scottish host organisations includeNational Theatre of Scotland, Dundee Rep & Scottish Dance Theatre, The Common Guild, Glasgow International and the Royal Lyceum Theatre. 

Joan Parr, Director of Arts & Engagement, Creative Scotland said: “Fair access to careers in the arts is a pressing issue facing the sector, and hearing diverse voices enriches us all.

“With support from The National Lottery these transformative opportunities are being made possible from Skye to Edinburgh, Aberdeen to Inverness, and go some way to ensuring that the most talented people, regardless of background, are given the chance to succeed and contribute to a more vibrant arts sector for us all.” 

Photograph: Felicity Cranshaw. Simone Kenyon, Into the Mountain (2019) produced by Scottish Sculpture Workshop.

Restriction-affected Capital businesses encouraged to apply for coronavirus funds

Edinburgh businesses that have been affected by the current closures and restrictions can now apply for relief from the Coronavirus Restrictions Business Fund.

  • Businesses can apply for Scottish Government relief through Business Closure and Business Hardship Funds from 9am Tuesday 20 October
  • Scottish Government has made £40m available nationally to Scottish businesses impacted by the most recent set of restrictions that saw licensed premises close across Edinburgh

This follows the Scottish Government’s announcement on 9 October that £40m would be made available through one-off grants to support businesses directly impacted by the most recent set of restrictions.

Local businesses can apply online with the grants distributed by the City of Edinburgh Council.

The Business Closure Fund is a grant of up to £3,000 available to hospitality and other eligible businesses required to close (except for takeaways) by these new regulations. Up to £1,500 is available to businesses that are able to remain open but have been significantly impacted by the restrictions through the Business Hardship Fund.

The first round of applications for both funds is open to hospitality businesses that are required to close or operate in a restricted way due to the regulations and are able to evidence a minimum 25% reduction in turnover during the brake period.

Scottish producers or wholesale businesses supplying primarily short-life goods or products to hospitality businesses and some gyms that can show the same reduction in turnover will also be able to apply for the Business Hardship Fund.

Retail and businesses that provide takeaway food as the core and established basis of their operations are not eligible for these closure or hardship funds.

The Scottish Government will also work with business and sector representative organisations to provide additional support through a new £11 million contingency fund for businesses that need support but do not qualify for either of the new Funds.

Council Leader Adam McVey said: “Our local businesses have been fantastic during the last seven months but there’s no getting away from how difficult this situation is and now more than ever it is imperative that we continue to support Edinburgh’s local traders.

“This funding is to help our businesses survive and to enable them to thrive when they’re able to trade again as normal. Our team are ready to process applications quickly to make sure businesses get this support as fast as possible.

“As well as helping our local businesses access the Scottish Government Funds, we’re looking at other actions we can take to build on the continued support we have been providing since the start of the lockdown.

“Again, I encourage everyone to support where they can: visit your local cafes and unlicensed premises, look out for your neighbours and continue to follow the public health guidance provided.”

Depute Leader Cammy Day said: “Edinburgh’s local economy has been hard hit and we need to do everything we can to support them during this incredibly difficult time.

“We are working with the Scottish Government to help our affected local businesses access the funding that has been made available to them and will continue working with them and other partners throughout our ongoing response to and recovery from Covid-19.

“We have to double down on our efforts to support local industries, businesses and jobs in the best way we can: by coming together as one Team Edinburgh and supporting our local businesses and communities.”

The Council has taken previous steps to promote a sustainable economic recovery and support small businesses throughout the pandemic, including:

  • Awarding £112.5m in more than 9,000 Government funded Coronavirus Business Support Grants to local businesses
  • Supporting businesses to gradually reopen safely with a ‘Ready, Set, Go’ advice service, including guidance provided to 20,000 business owners
  • A more flexible approach to licensing to help more businesses apply to use outdoor space
  • Accelerating plans to use the Council’s supply chains to better support local business and stimulate economic growth
  • Creating more space for people to travel to businesses safely and enjoyably through the Council’s Spaces for People initiative, with priority being given to support walking, cycling, wheelchair use and prams
  • Working with the Edinburgh Tourism and Action Group and other partners to support the #ForeverEdinburgh campaign which will gradually market the City as an attractive place for shopping, dining out and visiting with a £55,000 contribution from the Council. 

£30million package to support Scots facing hardship

A £30 million package of funding is being made available to local authorities to support people facing financial hardship as a result of coronavirus (COVID-19), including money to provide free school meals over the school holidays.

Local authorities will be given flexibility to use £20 million, previously held in reserve for the Scottish Welfare Fund, to support people in their communities.

A further £10 million has been made available so councils can continue providing free school meals through the winter breaks with future funding confirmed to extend support over Easter.

Cabinet Secretary for Social Security and Older People Shirley-Anne Somerville said: “No one should be struggling to put food on the table, keep the lights on, or stay warm at home in the midst of this pandemic.

“With continuing uncertainty around Brexit and the furlough scheme being scaled back we are doing all we can to ensure the right support gets to people at the right time in the right way.

“We know a healthy meal during the school day helps children to learn – but right now it’s an essential to support families at such a difficult time. This money will offer nutritious free meals for children or allow families to get food they desperately need.

“Those experiencing financial hardship can currently apply to the Scottish Welfare Fund and seek advice on which benefits they can receive. However, this will not be suitable for everyone: some people are not eligible for crisis grants or already receive the full benefits they are entitled to, while others may need immediate support with food and essentials.

“We are giving local authorities greater flexibility over funding held in reserve for the Scottish Welfare Fund, to support local action and address people’s needs. This may include supplementing local budgets for the Scottish Welfare Fund to meet demand, providing financial support to tackle food insecurity or to meet fuel costs, or boosting local funding for Discretionary Housing Payments.

“Additionally we are making further resource available to continue the provision of Free School Meals over forthcoming holidays, including Easter.”

Chair of the Poverty and Inequality Commission Bill Scott, said: “We welcome this much needed additional help for low income families and individuals. The funding for Free School Meals during the Christmas, February and Easter breaks will come as a great relief for many hard pressed parents.

“We would urge local authorities to use the flexibility given to them by Scottish Government to ensure that every penny of extra help available gets to those who need it most.”

COSLA’s spokesperson for Resources Councillor Gail Macgregor, and spokesperson for Community Wellbeing Councillor Kelly Parry said: “The impacts of the virus have not been felt equally across society and we welcome this funding which can be used flexibly by councils, enabling them to provide more support for those who need it most in our communities.

“Local authorities will deploy it in ways that best meets local circumstance, to provide the most effective support to those experiencing financial hardship, for example through grants, addressing food insecurity, or support for fuel costs.

“We know that as winter arrives and the furlough scheme draws to a close unfortunately more adults and children are likely to need assistance to ensure they are fed and warm. Local Government is the anchor in our communities and is able to provide advice, support and assistance to those that need it.”

Shared Lives Plus wins £50,000 Movement for Good award

Shared Lives Plus, which is launching its Homeshare scheme in Scotland, is one of ten charities to receive £50,000 as part of Ecclesiastical Insurance’s Movement for Good awards.

The awards, set up by specialist insurer Ecclesiastical, have seen a total of £1million given to charities across the UK this summer. 500 charities have already been awarded donations of £1,000 and now 10 charitable organisations will benefit from £50,000 grants.

Shared Lives Plus, which aims to build communities where everyone lives a full life by sharing lives and homes, was one of 10 charities1 selected from over 1,000 entries.

The fund will allow the charity to develop its Homeshare scheme in Scotland, a project that carefully matches someone in need of support to live independently with someone who has a housing need and can provide care. The project fosters mutually beneficial and enriching relationships across communities.

Each of the £50,000 awards are designed to support the advancement of education, skills, arts, culture and heritage, as well as citizenship or community development. Applications were assessed against four key areas; impact and effectiveness, sustainability, innovation, and care and compassion.

Mark Hews, Group CEO of Ecclesiastical, said: “Our Movement for Good awards have been met with an overwhelming response. A huge number of charities have submitted projects for the £50,000 grant and it’s clear that charitable organisations are in need of support now more than ever.

“We believe this financial boost will create long-lasting improvements for communities and support charity workers during what is an incredibly testing time for many.

“Ecclesiastical is a unique financial services group. Owned by a charity, our core purpose is to contribute to the greater good of society. Charitable giving is at the heart of our business and we are proud to be able to give all available profits to the good causes which are important to our customers.

“We know that £50,000 can make a huge difference to the life-changing work that charities do and we are looking forward to seeing how these awards will help make people’s lives better.”

Ben Hall, Development Manager at Shared Lives Plus, added: “I didn’t expect to win at all and when we were told, I was delighted! For us, this project would not be taking place in the coming year without the award from Ecclesiastical’s Movement for Good. It really is as simple as that.

“Homeshare will be a new idea in Scotland and it is vital that we raise its profile. Our goal is that we want to bring shared living to more people and create a kinder and stronger society. This grant allows us to create those plans.”

An amazing 253,879 people around the UK supported the Movement for Good awards during its first phase earlier this year, with over 13,695 charitable causes up and down the country receiving votes. The 500 winning charities were picked at random from those nominated.

Phase two saw 1,059 project submissions for the £50,000 awards. Following a review of all the applications, a panel of judges made their final selection of the winning projects2.

For further information on the Movement for Good Awards and for a full list of the winning charities phase visit: www.ecclesiastical.com/movement-for-good

1.     Full list of 10 winning charities:

Breast Cancer UK Limited – Digital Learning to Prevent Breast Cancer

Shared Lives Plus Limited – Developing Homeshare in Scotland

Tastelife UK – Youth Track Development

Power2 – Teens and Toddlers

The Challenger Trust – My Journey: Challenger Trust in Birmingham Schools

The Lily Mae Foundation – Baby Loss Support Service Enhancement

The Linskill and North Tyneside Community Development Trust – Project Langley

Thomas’s Fund – Kettering General Hospital, Pen Green Children’s Centre and Community & Family Connections scheme

Parents Plus Company Limited by Guarantee – Transforming Intellectual Disability Services across the U.K. and Ireland with The Parents Plus Special Needs programme

Tackling Awareness of Mental Health Issues – Resilient Active Youth

Winning charity videos:

Breast Cancer UK Limited

Shared Lives Plus Limited

Tastelife UK

Power2

The Challenger Trust

The Lily Mae Foundation

The Linskill and North Tyneside Community Development Trust

Thomas’s Fund

Parents Plus Company Limited by Guarantee

Tackling Awareness of Mental Health Issues

New fund to support local shopping

A new £1 million ‘Scotland Loves Local’ fund will provide grants of between £500 and £5,000 to hundreds of projects to promote town centre and online businesses.

The funding aims to support small scale improvements that will help motivate people to shop, eat and relax within their community whilst ensuring public health safety.

Grants can be put towards providing safe shopping information for residents and tourists, the installation of public health infrastructure such as protective screens, physical distancing markers, hand sanitising equipment and PPE.

Communities Secretary Aileen Campbell said: “We know money spent locally is more likely to stay in the local economy and support local jobs. The Scotland Loves Local campaign encourages people to think how they can safely support this.

“This fund will help initiatives supporting businesses, such as projects to encourage safe shopping, business and leisure opportunities, promoting and advertising local providers of online shopping or enhancing visitor appeal.

“We all have a part to play in Scotland’s economic recovery and can do so, whilst we look out for one another and follow the FACTS guidance.”

Chief Officer of Scotland’s Towns Partnership Phil Prentice said: “This is an exceptional opportunity for local communities – a chance to get the funding that will unlock some brilliant creativity.

“We’ve seen throughout the Scotland Loves Local campaign that people all over the country want to back their local towns and places – we’re looking forward to seeing some brilliant ideas take shape. Our campaign is highlighting that money spent locally stays local for longer. This new fund will be a real boost for communities across the country.”

The funding is being provided by the Scottish Government, and administered by Scotland’s Towns Partnership.

Applications to the fund open today, Sunday October 18th and close on Friday November 25th.

Support for people with neurological conditions

Projects which support people with neurological conditions are to benefit from the latest round of funding announced as part of a five-year action plan.

The investment of £492,535 is focussed on initiatives where partnership working is key. Many of the 17 funded activities see NHS Boards, Health and Social Care Partnerships and Third Sector organisations joining forces to achieve better outcomes for people living with neurological conditions.

Funding recipients include Pain Association Scotland who will develop online courses to support the wellbeing of unpaid carers and the MS Society who will deliver online and telephone sessions to support the physical and emotional wellbeing of people living with MS in response to the pandemic.

‘Neurological care and support: framework for action – 2020 to 2025’ aims to ensure people get access to personalised care and support regardless of their condition or where in Scotland they live.

Public Health Minister Joe FitzPatrick said: “Around one million people in Scotland live with a neurological condition ranging from common conditions such as migraines to life-limiting illnesses such as Motor Neurone Disease.

“We recognise the scale, variety and context of neurological conditions and how distressing they can be for the person with the condition and their family and the framework for action aims to support those responsible for providing care and support to people affected.

“This latest round of funding will ensure this vital work not only continues but is strengthened despite the challenges faced during the pandemic.”

PSPA provides information and support to people affected by Progressive Supranuclear Palsy (PSP) and Corticobasal Degeneration (CBD).

CEO Andrew Symons said: “Neurological Care and Support Framework Funding will allow us to map provision for PSP and CBD in Scotland, simultaneously highlighting the information and support that we can offer from PSPA.

“This will contribute to the aim of earlier diagnosis of these rare conditions and reduce the time spent by people in the wrong part of the system with the result they can benefit from the provisions of the Framework as soon as their disease is recognised.”