New Centre for Blood Cancer Patients at Western General

Philanthropy opens doors for Haematology patients

A £13 million investment has transformed services for blood cancer patients across South East Scotland at the newly opened Edinburgh Haematology Centre.

Located at the Western General Hospital, the centre has been rebuilt, expanding and improving day ward facilities, and enabling a major service redesign to enhance the range of treatments on offer.

Now patients can benefit from intensive chemotherapies and innovative treatments, such as outpatient bone marrow transplants saving them up to a three week stay in hospital. A new relatives’ suite and buddy beds also help to better support inpatients.

The majority of funding (£12.3 million) was gifted by a private donor, who wishes to remain anonymous, to significantly improve the experience at the centre for patients, carers and staff.

“This was an amazingly generous donation which will benefit patients and staff for many years to come”, explains Dr Peter Johnson, a Consultant Haematologist who led on the refurbishment.

“The vision was to create a welcoming, calm, clinically excellent and aesthetically pleasing environment that would help patient wellbeing and was representative of the quality of healthcare being delivered. We are extremely grateful to the donor for this exceptional donation.”

NHS Lothian, and its official charity – Edinburgh and Lothians Health Foundation (ELHF), worked with patients and staff on the redesign and to develop an inspirational arts and therapeutic design programme.

A series of bespoke artworks and installations made by specialist artists and makers are displayed throughout the centre, helping to create a sense of calm and visual interest.

Jane Ferguson, Director of Edinburgh and Lothians Health Foundation explains: “We can’t thank the donor enough for their generous charitable donation, which has enabled us to take forward creative and innovative techniques to enhance and really elevate the space.

“Being diagnosed with a serious illness is a traumatic experience so we wanted to create an environment that was warm and comforting and would help reduce some of that anxiety and stress. The end result is truly beautiful and the difference in experience for patients now and in the future will be transformational.”

Fiona Smith, Senior Charge Nurse of Haematology Day Treatment added: “The changes have really made a huge difference. Care is much more than treatments and medicines. 

“Being able to provide privacy and a calming environment helps to relax patients and having more space and cutting-edge equipment helps us to do our job even better.”

Neil Clifton is one of the patients benefitting from the new centre. He recently received a stem cell transplant as an outpatient for treatment of Myeloma.  He says: “It really doesn’t feel like going into a hospital anymore. The centre is much brighter and more pleasant.

“Having a private room for my treatment in the day unit really helped to make me feel safe and comfortable and being able to receive it as an outpatient is much more convenient.”

The Edinburgh Haematology Centre forms part of a wider masterplan at the Western General Hospital site to improve patient services including significant investment in cancer care and facilities.

NHS Lothian also has a vision to build a new Regional Cancer Centre at the hospital site designed to be a world leader for cancer research and innovation.

Statement on historical links with Atlantic slave trade

A joint statement from NHS Lothian and Edinburgh and Lothians Health Foundation:

We are aware that hospitals across Lothian have benefited from funds realised from the Atlantic slave trade.

With colonialism and slavery being central to the national economy from the 17th to the 19th centuries, both Edinburgh and Lothians Health Foundation and NHS Lothian can be considered as joint descendants of the legacies of these donations and endowments.

We do not believe that there is a limitation period on such contributions and have a responsibility to address this legacy of colonialism, racism and slavery and use this learning to help remove inequality and shape a positive future for all.

We have made a commitment to research, understand and acknowledge our history so that we can learn from it and act. We will:

  • create a consultative advisory group, with representation from staff, patient, and community groups, to help guide and shape the research, learning and related outputs.
  • fund a research post to review archive evidence and secondary sources to compile a thorough documented history of the links between the old Royal Infirmary of Edinburgh and the Atlantic slave trade. (Funded by Edinburgh and Lothians Health Foundation)
  • use the research to guide outcomes and outputs and make recommendations for action to the NHS Board
  • seek to work alongside other institutions (such as the University of Edinburgh) who are undertaking similar reflective exercises.   

The impact of the roots of the slave trade is evident in the inequalities that we see today, with COVID-19 exacerbating and giving a public spotlight to these inequalities.

As an employer and healthcare provider we state without reservation that all staff and patients must be treated equally, irrespective of skin colour, culture, religion, sexuality, age, disability or gender.

We support the fundamental need for equality and inclusion at the heart of what we stand for. It is important that all staff and representatives of NHS Lothian, treat one another with care, compassion, dignity, and respect. These are a key part of our organisation values.

Working to embed diversity, equity and inclusion in everything we do

We believe better health for all is within our reach and in no way condone the actions of historical donors. Acknowledging and understanding this history and using this learning to inform our corporate objectives will support us to become a more diverse and inclusive organisation and help us to tackle racism, discrimination and inequality.

Though we have much to learn and more work to do, ongoing reviews of our internal processes and systems have already led to positive, practical changes in the way we work.

The following examples outline work that is already taking place:

  • Staff Networks
    We have established four Equalities Staff Networks, and committed to increasing support for them, and potentially further networks in the coming year.  At present we have vibrant groups as follows;
    • Black & Ethnic Minority Staff Network
    • Disabled Employee Network
    • LGBT+ Staff & Allies Network
    • Youth Staff Network
       
  • Corporate Objective and Workplans
    Our Corporate Objective 2021 – 22 on race ethnicity and diversity demonstrate our commitment to act now – starting with a facilitated series of one to one and group discussions involving our Corporate Management Team and Staff Network members
  • Our detailed Advancing Equality Action Plan 2021-22 was devised and agreed with members of all our staff networks over a series of workshops in Spring 2021
  • 360 Visions – Managed by Edinburgh and Lothians Health Foundation’s Tonic Arts programme, 360 Visions uses theatre, storytelling, music and filmmaking to understand NHS Lothian BME staff experiences of the COVID-19 pandemic from an equalities perspective and explores the multi-faceted challenges faced not only by BME staff, but also by Disabled, LGBT+ and Youth staff members. The aim is to help open a door for all colleagues to gain awareness of the difficulties faced on a daily basis, both in and outside of work, and why change needs to happen. It bridges a gap to enable staff to further educate themselves about the daily struggles, in order to create a culture of inclusivity, diversity and acceptance which allows positive changes to be achieved. NHS Lothian has come a long way to improve culture and diversity, but COVID-19 has reinforced that there is still work to be done. As part of this ongoing work, the 360 Visions creative programme will help provide a platform for diverse viewpoints to be voiced and heard, celebrating the incredible work and diversity of NHS Lothian.
  • Reflecting Diversity in our Art Collection – Our Art Collection plays an important role in the improved health and wellbeing of staff, patients and visitors with over 2,750 artworks displayed across over 40 NHS Lothian sites. We have undertaken a review of our collection to ensure this is reflective of a wide and diverse culture.
  • Review of EDI practices within our funded programmes
    Edinburgh and Lothians Health Foundation’s Tonic Arts team is working with Knowledge Bridge to help embed EDI as a core part of the Tonic Arts programme. Knowledge Bridge is working with the Tonic Arts team to review the current programme and develop an inclusive strategy, advising on how to develop a more diverse and inclusive Arts in Health programme for NHS Lothian.  

NHS Lothian launches Youth Navigator initiative

Medics against Violence, a charity founded and led by senior clinicians, are partnering with NHS Lothian and Edinburgh and Lothians Health Foundation to deliver Youth Navigator, a Youth work based community outreach service which will be based in the Acute Receiving Unit at the Royal Hospital for Children and Young People and St John’s Hospital, Livingston.  

Youth Navigator aims to support young people through a joined-up hospital and community youth work approach with some of the life challenges they face that can bring them into contact with health services.

Presentation to hospital at a time of crisis is known to be a ‘reachable moment’. This is when people are more open to accepting support. The Youth Navigator will work alongside the medical and nursing staff to make sure that those important opportunities are not missed. 

Dr Christine Goodall, Director of Medics against Violence said: “We are really looking forward to being able to offer the Navigator service to younger people.

“We will also have the opportunity, with the adult and youth Navigator services co-located in Lothian, to offer holistic support to the whole family should they need it.”

Tam Begbie National Co-Ordinator for the Navigator service said: “Starting up a Youth Navigator service just makes sense to us, we’ve seen many people within the adult service who would really have benefitted from this had it been available to them when they were younger.

“We hope it will give the young people who are supported by the service the connections and tools for a happier and healthier future.”

Sanjay Singh, Head of Funding Programmes at Edinburgh and Lothians Health Foundation, said: “We are delighted to be partnering with NHS Lothian and Medics against Violence to provide match funding for this innovative programme.

“Having the Youth Navigator service available at such a critical point will really benefit vulnerable young people, particularly during these times of increased stress and anxiety.”

Dr Alison McLuckie, Lead Clinician for Youth Navigator in NHS Lothian said: “We are really excited to be able to offer this new service to our adolescent patients which will build on the success of the adult Navigator service and be based around the ethos of one trusted adult and community based outreach to provide the right care at the right time.”

Proclaimers reissue Sunshine on Leith to support NHS Lothian staff

NHS Lothian’s official charity, Edinburgh and Lothians Health Foundation (ELHF), have been proud to work with Hibernian FC, Warner Music and The Proclaimers on the reissue of Sunshine on Leith which was announced last week.

This special edition, pressed for the first time on 7″ clear green vinyl, is due for release on 29 January 2021 – pre-orders opened on 3 December.

The money they raise will help Edinburgh and Lothians Health Foundation continue to provide additional support for NHS Lothian staff during one of the largest global health crises of our lifetime.

It will also enable them to put in place a programme of longer-term, sustainable wellbeing support that will address the lasting effects of the pandemic, both in the recovery phase and beyond. In aid of this, The Proclaimers also released 100 limited edition signed copies, exclusively through Hibernian Direct.

Jane Ferguson, Foundation Director of Edinburgh and Lothians Health Foundation, said: “We are delighted that The Proclaimers and Warner Music have re-released Sunshine on Leith to support our partnership with Hibs and help our amazing NHS Lothian staff as they respond to the ongoing challenges of the Coronavirus pandemic.

“Funds raised will enable Edinburgh and Lothians Health Foundation to continue to provide additional support for our NHS Lothian colleagues, providing a fast and flexible response to meet any urgent and emerging needs, as well as supporting them in their long term recovery from the profound impact of the virus on their physical and emotional health and wellbeing.”

In a statement Craig and Charlie Reid said: “We’re very happy to be supporting NHS Lothian during this challenging time for our people and health service.

“The NHS is very much loved by both of us and we have much reason to be grateful to it.”

Hibernian Captain and Scottish Cup hero David Gray added: “”Sunshine on Leith is a phenomenal club anthem and I’ll never forget it ringing out around the east stand of Hampden during the celebrations of the Scottish cup final in 2016, it was a proper hairs on the back of your neck moment.

It’s such a powerful track and whenever I hear it I always get a buzz thinking back to that day.

“This limited edition version of the track is a fantastic gesture from The Proclaimers in support of The NHS and Edinburgh and Lothian’s Health Foundation and it’s great to see them partner with the club for such a great cause. Our NHS heroes have been brilliant during this pandemic and even before then and we wear the ‘Thank You NHS’ message on our shirts with pride.

“I’m sure our fans will snap up this limited edition version and raise plenty money for the charity. I’ll be after one as well!”