New research into Type 1 Diabetes

NHS Lothian’s diabetes research teams based at the Western General Hospital (WGH) and the Royal Infirmary of Edinburgh (RIE) have launched a number of exciting new trials to help us understand what might cause type 1 diabetes and how to prevent it.

These new studies include INNODIA, a Europe wide study recruiting people with newly diagnosed type 1 diabetes and unaffected family members. As diabetes affects 1 in 18 people in Scotland, with around 5,000 people with type 1 and 37,000 with type 2 diabetes in the NHS Lothian region, research to improve patient care and develop new treatments is vitally important.

Key to the success of the research are the volunteers who take part in studies. An easy way for people to participate is to join the NHS Research Scotland Diabetes research register.

Alison Sudworth, Diabetes Specialist Research Nurse in the RIE, said: “Getting more people involved in diabetes research will help make inroads into understanding the disease and create new treatments. For instance, one part of our GoDarts study is looking at genetics.”

Diabetes can damage the heart, blood vessels, nerves, eyes and kidneys and the WGH team have two trials that aim to improve the health of patients with complications.

Lesley Steven, Specialist Research Nurse at WGH said: “Recruitment in clinical trials is often challenging, particularly in diabetes renal studies. Renal patients often have limited treatment options, so trials in this area are vital to allow access to new drugs that would otherwise not be available to them.”

For more information contact: WGH 0131 537 3327 or RIE 0131 242 1456. 

Any diabetes research project can make use of the NHS Research Scotland Diabetes research register, contact administrator-sdrn@dundee.ac.uk or phone 01382 383595 for more information.

Courage and perseverance: living with diabetes

Kay Malloch, Diabetes Specialist Nurse, recently presented 91 year-old Evelyn Emslie, who has diabetes, with the John MacLeod Medal. This was awarded by Diabetes UK in recognition of the courage and perseverance required to live with diabetes for 70 years. Continue reading Courage and perseverance: living with diabetes

Scottish Courier delivers story of life-saving dog

A PROGRESSIVE Lothians courier firm is helping to raise awareness of one of the country’s lesser known chronic conditions. Bathgate-based Eagle Couriers has teamed up with Fringe act Katie & Pip to help spread the word about type 1 diabetes and the effect it can have on the lives of young people in the UK. Continue reading Scottish Courier delivers story of life-saving dog

More than half of diabetics have been treated for mental health problems, says new study

The dark side of diabetes: More than half of people living with diabetes have been treated for mental health problems, according to a new study by leading mental health provider. Continue reading More than half of diabetics have been treated for mental health problems, says new study

Healthy Hibee Scott tackles diabetes head on

‘Around 4% of the population of Lothian have diabetes – which although is a life-long condition, as Scott has proved, it does not need to stop you living a full and normal life’ – Dr Alan Jaap

ScottAllan

Hibernian midfield star Scott Allan inspired young people with diabetes at a special event at Easter Road on Monday. Scott was diagnosed with Type 1 diabetes as a child, and the recently-named SPFL Championship Player of the Year is the perfect person to prove that the condition need not stand in the way of a successful sporting career.

The event, the first in a series of health promotion activities planned by the Hibernian Community Foundation and NHS Lothian, saw around 100 children who have been diagnosed with diabetes and their families hear Scott talk about how he manages his condition as a sportsman.

Scott said: “I am delighted to be asked to provide positive messages to young people with diabetes. If they can draw some extra energy from meeting with me and having a conversation about how I manage my diabetes then that is fantastic. The fact that so many people want to come along is really humbling.”

Leeann Dempster, Chief Executive of Hibernian FC and a Director of the Hibernian Community Foundation, said: “Scott is a high profile professional athlete and sportsman who has managed to build a successful career despite being diagnosed with diabetes.

“He manages the condition very successfully, even during matches, and because of the help and support he has received is keen to help children and young people with diabetes understand the condition, how it can be managed better, and how much can be achieved despite it. Scott approached us to say he was keen to help in any way that he could, and to raise awareness of diabetes.”

Dr. Alan Jaap, Consultant in Diabetes, NHS Lothian, said: “Around 4% of the population of Lothian have diabetes – which although is a life-long condition, as Scott has proved, it does not need to stop you living a full and normal life. I’m sure Scott will act as an inspiration and positive role model for all of the youngsters attending.”

Scott has always had to consider his type 1 diabetes when playing football – his diagnosis came when he was just three-years-old, and he learned how to manage his condition playing football at school.

Diabetes should be no barrier to young people considering a career in sport, Scott insists. “As long as you manage your diabetes you can do whatever you want”, he said. “There have been a lot of athletes throughout the years that have been at the top of the game with diabetes. You need to live as much of a normal life as possible – don’t let people tell you otherwise.”

The event is part of ‘Healthy Hibs Messages’ – a series of health promotion events undertaken as part of the new GameChanger Public Social Partnership, the first Public Social Partnership launched by a football club in Scotland, and supported by Hibernian FC, Hibernian Community Foundation and NHS Lothian. This unique partnership has seen more than 70 different organisations signing up to work together with the joint aim of making Scotland’s population healthier.​

New guidance issued during National Diabetes Week

Type 1 Diabetes cases continue to rise

diabetes week

New guidance will be issued to schools and parents from this week to help them support children with Type 1 diabetes. It comes as the annual Scottish Diabetes Survey, published this weekend, shows the number of cases of Type 1 diabetes continues to rise. The number of people with Type 1 diabetes has increased from 26,294 in 2006 to 29,251 in 2014 – an increase of 11.3 per cent.

The new guidelines – ‘Supporting Children and Young People with Type 1 Diabetes in Education’ – set out the responsibilities of local councils, schools, parents and young people. It includes advice on exam planning, injecting and storing insulin, blood glucose monitoring, eating, and physical activity in school.

The guidance brings together, for the first time, some of the best policies that are in place around Scotland. It has been produced in collaboration with teachers, parents, young people and healthcare professionals, and will be distributed to schools and colleges throughout Scotland. It will also be available online.

The booklet has been produced by the Childhood & Adolescent Subgroup of the Scottish Diabetes Group and Diabetes Scotland, with funding from the Scottish Government.

According to the Scottish Diabetes Survey there were 3,733 under 20s with Type 1 diabetes in Scotland at the end of 2013, and 1,860 under 15. The total number of people with diabetes is 268,154, of which 29,261 have type 1, 10.9 per cent of the total.

The increase of Type 1 cases reflects the rising incidence in children, and that people with the condition are now living longer. Type 1 is primarily an inherited condition.

The Scottish Government is taking a number of steps to deal with the increased cases of Type 1 diabetes, mainly focused on early diagnosis and improving access to insulin treatments.

Michael Matheson, Minister for Public Health, said: “This new set of guidelines is a clear and accessible way for teachers and parents to get the information they need about how to care for children with Type 1 diabetes.

“There’s no reason why a child with diabetes shouldn’t play a full and active role in school life. However, it’s vital that teachers, parents and young people know how to prevent any problems, and that’s why these guidelines will be so useful.

“Cases of Type 1 diabetes are rising in most western countries, and Scotland is no exception. That’s why this document, and all our other work in this area, is so important in improving the health of people living with type 1 diabetes in Scotland.

Claire Judson, National Director of Diabetes Scotland, said “It is a human right for children to be able to access education and not miss a day’s school. The care of children with Type 1 diabetes is a team effort, which requires all participants to play an active part in ensuring that that the child or young person has the best possible start in life and can succeed for the future. This document highlights the responsibilities of each of the partners involved to give a complete picture of what is needed so that children and young people with Type 1 diabetes are healthy and safe.

“I hope that all schools and local authorities will use this guidance in collaboration with children, parents and paediatric diabetes teams, so that children can manage their condition and receive the appropriate provision of care. Education is the gateway to a healthier adult life and creating opportunities for the future.”