Environmental campaigners say bold action to limit polluting traffic is needed as a new report showing the links between air pollution and dementia is released.
The report, published yesterday (25 July 2022) by COMEAP, the UK Government’s Committee on the Medical Effects of Air Pollutants, suggests the most likely way that pollution impacts cognitive impairment is through circulation. Air pollutants, particularly small particles, can affect the heart and blood vessels, including the brain.
Environmental campaigners say that the Scottish Government and local councils are not taking enough action to reduce pollution from transport and other sources. Earlier this year, research by Friends of the Earth Scotland showed that Scotland breached air quality limits in 2021 after a historic low in 2020 due to the pandemic.
Friends of the Earth Scotland’s transport campaigner Gavin Thomson said: “Today’s report from the UK Government is further evidence that air pollution is devastating for human health, and it’s really worrying to see the links with dementia being strengthened.
“We have known for a long time that traffic fumes cause asthma and heart conditions, and evidence has been growing about the risk that tiny particles – from exhaust fumes, tyres and brakes – pose to our cognitive health. It is particularly dangerous for young children, the elderly, and people with pre-existing health conditions.
“Four cities in Scotland will soon have small clean air zones limiting polluting vehicles from the city centre. This is the first action we’ve seen to tackle air pollution but it’s nowhere near enough. To improve air quality in our communities and neighbourhoods, we need significant investment in public transport so that everyone can access it, while providing more space for walking, wheeling and cycling.”
Extra £1 million will help people shape the services they need
A £1 million investment over two years will fund work with people with dementia and their families to design and shape the support they need following diagnosis.
The funding, part of the £120 million Mental Health Recovery and Renewal fund, will see the Scottish Government working with Age Scotland to enhance support giving people a bigger say in what works for them.
COVID-19 has had a disproportionate impact on people with dementia. Through this partnership with Age Scotland, the Scottish Government will grow the community support that have been so critical to people and their families during the pandemic.
Early investment will be focused on building community capacity with a small grant programme, with a broader community grant programme to follow in the second year.
Social Care Minister Kevin Stewart said: “During the latest phase of the pandemic I have listened to people with dementia and their families about the need for additional flexible support and investment to help address some of the particular challenges they are facing.
“COVID-19 has impacted all of us but I know just how challenging it has been for people living with dementia, their families and carers.
“Trying to reduce this impact is the basis of our Dementia and Covid Action Plan, which we have worked with a wide range of partners to implement, since its publication in December 2020.
“There is a lot of positive work to point to, and the pandemic has particularly highlighted the importance of community-led work, responding to local need. I want to build on this work and enable more local people and communities to design and shape the support they need.
“Through this partnership with Age Scotland we will invest an extra £1 million over two years to support local communities to do that.”
Brian Sloan, Chief Executive of Age Scotland, said: “We’re delighted to be working with the Scottish Government to deliver this funding, which will support the development of dementia-friendly communities across Scotland.
“The pandemic has compounded challenges faced by people living with dementia and their unpaid carers. This funding will help address some of these challenges by shaping communities that work for those who have lived experience of dementia.
“Our role is to bring the voices of carers and people living with dementia to the forefront as plans are developed, ensuring those voices are heard at every stage of the design and delivery process. By doing so, we can build communities that truly support and empower people living with dementia and those who care for them.”
Alzheimer Scotland’s winter fundraising appeal launches this week to spread a little bit of magic
The campaign called ‘Magic’ asks for donations to help them continue their work
Danny McDonald and his wife Catherine from Clydebank, West Dunbartonshire, have shared their story to highlight the campaign
Every penny raised in Scotland stays in Scotland to fulfil Alzheimer Scotland’s mission that nobody faces dementia alone
Alzheimer Scotland has launched a winter campaign this week to help them continue their work to make sure that nobody faces dementia alone.
The charity provides support and information to people with dementia, their carers and families, and campaigns for the rights of people with dementia and fund vital dementia research.
Alzheimer Scotland Chief Executive, Henry Simmons, said: “We simply could not provide the level of support we do without such dedicated supporters – thank you to each and every person who make it possible for us to support people with dementia and their families and carers.”
Danny McDonald (57) from Clydebank in West Dunbartonshire was diagnosed with vascular dementia five years ago when he was 52. He is a member of the Scottish Dementia Working Group, a campaigning group run by people with dementia and funded by Alzheimer Scotland and the Scottish Government.
Danny said: “My diagnosis was quite earth shattering for us. The first thing that came into my mind was how was this going to change our lives?
“My outlook was just to be the best husband and father that I could be regardless of the diagnosis because inside I’d not really changed.”
Danny’s wife Catherine added: “We got quite a blunt diagnosis. Danny was told, ‘you’ve got memory problems and you’ve had a stroke so therefore we’re giving you a diagnosis of dementia. We’ll see you again in six weeks‘.”
“So we left and sat in the car and we both had a cry and asked ‘what’s just happened? Where do we go from here? “
They phoned their local Dementia Resource Centre to get some information and the Dementia Advisor offered to visit them the next day.
Danny said: “The Dementia Advisor’s support was excellent, there’s always someone you can talk to. Life would be very difficult for us without Alzheimer Scotland, they’ve had such a positive impact in our life. The Dementia Resource Centre is like my second home.”
Can a healthy lifestyle combat undernutrition and dementia?
The PROMED-COG (PROtein enriched MEDiterranean diet to combat undernutrition and promote healthy neuroCOGnitive ageing) Consortium brings together unique expertise to better understand how the balance between diet and physical activity could reverse undernutrition during ageing and, ultimately, prevent dementia.
The research led by Queen’s University Belfast will provide new and critical insight into the role of undernutrition in cognitive health. It will explore how diet and exercise can work to combat undernutrition and the effect of factors – such as age, gender, and genetics -on the risk of dementia in older age.
One in ten adults aged 60 years+ are undernourished, which means that they have low levels of proteins, calories, vitamins, and minerals caused by reduced food intake or because the body does not process food properly.
Undernutrition has a negative impact on the health of older people as it leads to weight loss and increases the risk of dementia in later life.
PROMED-COG project co-ordinator, Dr Claire McEvoy from the Centre for Public Health at Queen’s University Belfast, said: “Weight loss increases the risk of dementia by up to 40% but occurs a decade or more before the symptoms of memory loss become apparent.
“This gives us an opportunity to intervene early with preventative strategies to counteract undernutrition and, potentially, the onset of cognitive impairment.”
Dementia is a major health priority. It already affects around seven million people in Europe, a figure set to double by 2030, with socioeconomic costs rising to over €250 billion.
While factors, such as age and genetics, influence the onset of dementia and cannot be changed, some lifestyle changes could make a difference. PROMED-COG will use existing datasets in Italy to study the links between undernutrition, cognitive decline, and dementia.
The project will also test the effect of adopting a diet and exercise intervention over six months on undernutrition and cognition in older adults living in Northern Ireland. This will inform the recommendations developed to slow down cognitive decline and prevent dementia in older European citizens.
Dr McEvoy added: “Dementia is a huge problem affecting our ageing population. There is a significant lack of research in this area and this new grant will bring together a range of European experts to develop evidence-based recommendations for the prevention of undernutrition and cognitive impairment during ageing.
“This will not only prolong the period of life spent in good health but will also reduce the societal and economic burden of dementia.”
The European Horizon 2020 Joint Programming Initiative “A Healthy Diet for a Healthy Life”, and ERA-NET Cofund ERA-HDHL (GA N° 696295) has awarded a grant of over 680,000 euros to the PROMED-COG consortium. Led by Queen’s University Belfast, the Consortium includes The National Research Council Italy, The University of Padova, University College Dublin, Wageningen University, and The Friedrich-Alexander-Universität Erlangen-Nürnberg.
Police Scotland is encouraging the friends and family of people living with dementia to sign up to the Herbert Protocol.
On Tuesday – International Alzheimer’s Day – Police Scotland adopted a single national process to help officers quickly obtain information about a vulnerable missing person who has dementia, saving vital time in the early stages of an investigation.
The national implementation of the Herbert Protocol has been developed in partnership with Police Scotland, Health and Social Care Scotland, Alzheimer Scotland and the Scottish Government.
The form is completed in advance and generally kept in the person’s home or with relatives. It holds personal details, a description, a recent photograph, languages spoken, as well as previous addresses, places of employment and other significant locations in someone’s life. This can include their old school, a church, or a favourite walking route, plus their medical history and information about past incidents of going missing.
While the Herbert Protocol is in use in a number of Scottish policing divisions, a single form is now available nationwide to optimise the police response to locate the person and return them home, safe and well, as quickly as possible.
The Herbert Protocol form can be used together with Alzheimer Scotland Purple Alert, a free app designed to help finding missing people with dementia. If someone is missing, users will get notified via the app and can help with local searches.
Assistant Chief Constable Gary Ritchie(Partnerships, Prevention and Community Wellbeing) said: “When a person goes missing, the first hour is vitally important. Previously, we would have spent a significant amount of time gathering information from family, friends or carers, but being able to give officers a completed Herbert Protocol form saves valuable minutes and hours.
“We hope that families who choose to complete a form will never have to use them. But if they do, having that completed form to hand gives relatives or carers peace of mind that they’re providing the police with detailed, relevant information to enable us to send officers to places where your loved one may be.
“We are completely committed to protecting vulnerable people from harm and having the Herbert Protocol in place Scotland-wide is a significant step towards keeping people safe.
Morag Francisis a carer for her mum, who has a dementia diagnosis. Her family has already completed a Herbert Protocol form.
Morag explained: “We did it as a little project with Mum, because it was about her life, so it turned into a bit of a reminiscence session, so we could pinpoint areas that were still important to her.
“We could guess most of them because she did talk a lot about the past, but we wanted to make sure we’d thought of all the areas she might turn up at because that’s where she remembered.
“To me it’s my insurance document, because I appreciate if we couldn’t find her the levels of stress would be incredible and we wouldn’t really be able to think straight.
“Everyone in the family who’s on the form as a contact has the Herbert Protocol saved in their emails, so if something did happen we would have very quick and easy access to it on our phones and we could email it to whoever needed it.
“Having that ready to go is very reassuring to me as her daughter. It’s really important to have it there, just in case.”
Alzheimer Scotland Deputy Director Joyce Gray said: “Alzheimer Scotland is fully committed to our partnership with Police Scotland, and delighted to endorse any opportunities to support families to use the Herbert Protocol.
“The Herbert Protocol and Purple Alert will help us to make people living with dementia safer in Scotland. We are proud of the partnership and in these world leading initiatives which help support our communities.”
Kevin Stewart, Minister for Mental Wellbeing and Social Care, said: “Having a loved one with dementia go missing is a very stressful time for families, friends and carers and the priority is to find the person safe and well and as quickly as possible.
“The Herbert Protocol is a straight-forward way for families and carers to provide all the necessary information easily and efficiently in one form which will save vital time in missing person enquiries.
“I welcome the national roll-out of this partnership which is being taken forward by Police Scotland, Health and Social Care Scotland, Alzheimer Scotland, Scottish Care and the Scottish Government.”
Judith Proctor, chair of the Chief Officers’ Group, Health and Social Care Scotland, said: “We are delighted to be a key partner supporting the national roll out of the Herbert Protocol.
“Care professionals across health and social care partnerships in Scotland will be encouraging and supporting family and friends of people at risk of going missing to complete and hold onto this simple form. It’s another proactive way we can all work together in our communities, helping to keep people safe.”
L to R: ACC Gary Ritchie, Ch Supt Linda Jones, Tommy Petillo (Alzheimer Scotland), Supt Norrie Conway, Karen Thom (Edinburgh Health & Social Care Partnership)
Alzheimer’s Research UK champion Karen Penny is set to complete her amazing 11,000 mile coastal walk around the UK and Ireland on World Alzheimer’s Day, 21 September, in the Shetland Islands.
Karen, 54, had been travelling since January 2019 on foot from her home in the Gower, South Wales around the entire coastline of the UK and Ireland, only returning home when forced to by the COVID-19 pandemic.
She had reached the small island of Muckle Flugga in the Shetlands (one of 110 islands that she has walked around as part of her journey), where she planted a flag before returning to her South Wales home for lockdown.
Inspired to support the UK’s leading dementia charity after both of her in-laws were affected by different forms of dementia, Karen has raised nearly £100,000 to fund vital research.
Karen says: “I can’t believe that my walk is coming to an end. I was so sad to have to leave the beautiful Shetland Islands last March because of COVID-19 restrictions, and I am now really excited to be returning to Muckle Flugga. I wonder if my Alzheimer’s Research UK flag is still where I left it!
“The last two and a half years have been wonderful. Although it has sometimes been hard going, I have met so many great people, and heard so many heart-rending stories of the impact of Alzheimer’s disease and the other diseases that cause dementia on families.
“It has made me all the more determined to do whatever I can to raise awareness and raise money for Alzheimer’s Research UK, so that in future families can be spared the fear, harm and heartbreak that so many are currently experiencing.”
Hilary Evans, Chief Executive of Alzheimer’s Research UK, said: “We are so grateful to Karen for the amazing fundraising and awareness-raising that she has done, with such commitment, since the beginning of 2019.
“As Karen has found with all the people who have shared their experiences with her on her journey, one in two people know someone affected by dementia. Through research, we can keep people connected to their families, their worlds and themselves for longer.
“Research has the power to make breakthroughs possible and Alzheimer’s Research UK is at the forefront of these efforts. We rely on public donations to fund our crucial research and it’s thanks to the commitment of people like Karen that we are able to increase the profile of dementia research and continue our important work.”
Newpartnership launches new website for carers of people with dementia
This week a partnership between Edinburgh charity Hearts & Minds, Designed by Society, Wee Culture and Edel Roddy launched a new website with valuable resources for unpaid and professional carers of people with dementia and anyone who has an interest in care for people in the later stages of dementia.
All of the partners have direct experience of working in the area of later stage dementia and developing resources. The project was funded by Dementia Series Development Trust.
The Treasure We Seek Project is based on the principles of the work of Hearts & Minds Elderflowers who use the art of therapeutic clowning to encourage moments of engagement, communication and movement with ladies and gents with dementia. The project took those principles and developed two sets of resources ‘Valuables’ and ‘Treasure Hunt’
Project LeadEdel Roddy explained: “The Treasure We Seek website was launched this week offering two free resources for people to feel connected to people living with later stage dementia.
“The resources have been developed with the hope they will be useful across a range of settings including schools, community groups, carers organisations and care settings, and we were thrilled with people’s responses.
“Initial feedback highlighted that people have started to develop ideas about how they will try out the resources, and potentially make them their own, with friends, family and in work settings. Attendees at the launch even helped us think about other contexts in which these resources could be used, the possibilities of which feel exciting.
“If you missed the launch you can find the resources on www.thetreasureweseek.net and we’d like to hear from anybody who tests them out or has thoughts or ideas about this work they’d like to share.”
These resources will help relatives and professionals to cope and care and also to evaluate how they feel and take notice of their own wellbeing so they don’t feel stressed or isolated.
Hearts & Minds is an award winning Scottish charity that works in collaboration with paediatric healthcare units, respite centres, schools for learners with complex additional support needs and Dementia units to deliver laughter, friendship and support to those who need it most.
Our Clowndoctors Programme supports children and young people to cope with life in a hospital, hospice or respite care setting and in schools for learners with complex additional support needs.
Our Elderflowers Programme helps people living with dementia or dementia-related conditions in hospitals and residential care homes.
Through playfulness, smiles and laughter, we help all of these vulnerable people to deal with the anxiety, fear, confusion and sadness that their situations and conditions may bring.
Dr Gayle Rice is an experience researcher and designer for Designed by Society. Her research background is qualitative and creative and focuses on people’s current and desired experiences. Her design practice involves designing to enable improvements in people’s experiences of social interactions.
Wee Culture
Belinda Dewar is a registered nurse, researcher, educator and practice developer with a career spanning over 30 years. She is currently Director of Wee Culture which aims to support people to explore and enhance culture.
She previously held the position of Professor of Practice Improvement at the University of the West of Scotland and the Lead for My Home Life Scotland.
The Dementia Series Development Trust
Dementia Series Development Trust is a charity with a vision to improve the lives of those living with dementia through the funding of activities which support this aim.
The Principles which guide the work of the DSDT are:
Proactive
Pump priming
Partnership
The Disruption Award funds projects which strive to disrupt some of the old ways that people think about dementia, and communicate new ideas that reframe it.
Participants can choose to walk where they like across the country, celebrating those they love
Connect with other supporters in an online group full of amazing people with a shared mission
Every penny raised in Scotland stays in Scotland to fulfill Alzheimer Scotland’s mission to ensure that nobody faces dementia alone
Edinburgh residents are being asked to sign up to Alzheimer Scotland’s Memory Walk this year to raise funds and vital awareness of dementia in Scotland.
Scotland’s Memory Walk takes place on 18 & 19 September and a new fundraising platform has been launched to ensure that people taking part can feel connected and share their experience as one big community.
The idea behind Scotland’s Memory Walk is simple. People can choose where they want to walk, and with whom.
That means participants can choose somewhere that has a special meaning for them at a time that suits them over the weekend.
And with so many great places to choose from nearby such as Calton Hill or Arthur’s Seat you can create special memories with friends and family that will last a lifetime.
The distance doesn’t matter, whether it’s 1km, 5km or 500km. It might even be a lap of the garden.
Best of all, it’s free of charge for everyone who takes part, although everyone is encouraged to raise as much as they can.
Participants will have the option to create a team with friends, family or colleagues and fundraise via their own personalised Memory Walk page.
Everyone who supports the campaign will also be able to earn rewards and badges, there are also prizes and medals up for grabs this year.
Every penny raised as a result of Scotland’s Memory Walk will go directly towards the support Alzheimer Scotland offers across Scotland, including their 24 hour Freephone Dementia Helpline (0808 808 3000).
Margaret Northedge (62) from Drumnadrochit near Loch Ness, who lives with dementia, said: “I didn’t want to get involved with Alzheimer Scotland’s groups at the start, but once I was there they made me so welcome and I looked forward to going again.
“When I was diagnosed, I was actually lost, it was a very sad time for me, so being able to receive support from the Dementia Centre and other people was a lifeline, because I was going down a slippery slope of depression.”
Dementia Advisor for Edinburgh, Elizabeth Campbell, said: “My role is fully funded through fundraised money and Scotland’s Memory Walk is one of the biggest fundraising events we have.
“But it’s not just about the fundraising. Scotland’s Memory Walk brings communities together, children, adults and older adults.
“Many participants have something in common; they are walking for someone they care about, a person living with dementia, a carer or in memory of a loved one.
“We hope Scotland’s Memory Walk gives people the chance to honour their loved ones and feel connected to the dementia community across the country.
“It doesn’t matter where you are, or your ability, you can take part and help us to fulfil Alzheimer Scotland’s mission to make sure nobody faces dementia alone.”
Dementia is a fact of life for thousands of Scots and their families – but what does it actually feel like to suffer from the disease?
That’s what some staff at the Beatson West of Scotland Cancer Centre tried to discover, as part of Dementia Awareness Week.
The aim of Dementia Awareness week (3-9th June 2019) is to encourage people and organisations to help in raising awareness of the disease and the impact it has on people and those around them.
At the Beatson, staff have been doing their bit too.
Nicky Donnelly, Cancer Clinical Educator said: “ To mark Dementia Awareness Week myself and a colleague wore the Dementia simulation suits and went on a walk round of the building to engage with staff about how it felt to be wearing this resource.
The Dementia Simulation suit helps to simulate ageing and impairs the movement of those wearing it, simulating some of the typical difficulties that people experience in older age, showing you how tiring it is not to be able to move fully, stopping you being able to freely move your joints, making it difficult to feel and move your hands and fingers and grip things.
Nicky added: “It also has a back piece that gives you a curvature of the spine so you can’t stand up and googles that give you a yellowing vision to replicate loss of sight and peripheral vision, typically associated with cataracts, while ear plugs can impair your hearing and awareness of your surroundings.”
“Our experience of wearing the suit was quite revealing as you truly appreciate the cognitive changes that people with Dementia experience; it really highlights the impact on people with this condition that without the suit you wouldn’t be able to understand.
“The wider staff enjoyed the experience of seeing us in the suits they were very engaged in asking vital questions of the Care of the Older Person Nurse who has been instrumental in raising awareness of the issues people with Dementia face.”
Hearts & Minds charity launched their short film What Do I Need?: Carers Voices online yesterday.
This is the culmination of their PLAY COPE CARE Workshop Project for carers at home, which they developed developed with carers organisations across Scotland, and with funding from BUPA UK Foundation.
Speakers at the event were Kaye Ramage, Glasgow East End Community Carers, Claire Baker-Mosley, Head ofCommunity at BUPA UK Foundation and Rachel Colles, Project Lead for Hearts & Minds.
Hearts & Minds shared their new short film created with carers from Glasgow East End Community Carers who talked about their own personal experiences and thoughts of being a carer at home for a person living with dementia or chronic illness.
Hearts & Minds also shared the outcomes from the Play Cope Care project and discussed their programmes for people living with dementia and their carers.
Carers have had to face unimaginable adversity over the last year. Isolation, loneliness, lack of support and vital services as well as feelings of feeling forgotten by society have been acute during the pandemic.
Through conversations with carers groups, Hearts & Minds realised that they wanted to make something to make carers feel seen and heard, for their feelings to be validated, for their resilience and playfulness in the face of extreme adversity to be celebrated, and for their huge contribution to society to be recognised.
The film is based on Hearts & Minds Play Cope Care workshops for unpaid carers and features the voices of the carers.
The film is available to carers organisations to share and provide 6 minutes of respite to carers who might be feeling alone, at a loss or invisible and act as a reminder they are connected to a huge network of remarkable people who know exactly what they are going through.
The launch of this film is timely as we approach Carers Week 2021, 7 – 13 June.
