A group of charities is urging for the approval of a drug that can treat an underlying genetic cause of a life-limiting muscle-wasting condition.
Duchenne muscular dystrophy (DMD) primarily affects boys and causes muscles to weaken and waste over time, with most of those affected needing to use a wheelchair by the age of 12. The life-limiting condition also causes other severe health problems to the heart and breathing muscles.
The drug Translarna, however, can help treat cases of a version of Duchenne that is caused by nonsense mutations.
Today, Muscular Dystrophy UK, Action Duchenne, Duchenne Family Support Group and Duchenne UK are appearing before the Scottish Medicines Consortium (SMC) to represent patients who could benefit from Translarna and to seek its approval for use on the NHS in Scotland.
In its joint submission to the SMC ahead of today’s meeting, the charities outlined evidence from a survey conducted earlier this year.
They provided evidence that highlights clear improvements to quality of life reported by those receiving the drug. Significantly, many families of children receiving Translarna say they retained the ability to walk for longer than expected, and that this gave their child greater independence to complete daily tasks and take part in activities with friends.
Families also reported huge behaviour improvements at school and home, as well as positive mental health outcomes.
If SMC approves the submission, Translarna would be the first treatment routinely available through the NHS in Scotland that addresses an underlying genetic cause of Duchenne muscular dystrophy.
One parent who took part in the survey, and whose thoughts were included as evidence in the submission, explained: “For our son knowing that he has a medication to help his muscles is a massive boost to him.
“We believe that every time we receive our Translarna it lifts his spirits in this fight. We never for a moment take for granted how lucky we are to be receiving this drug and feel it’s something in our corner as we face this battle head on.”
If approved, Translarna would be given in addition to the current standard treatments on the NHS in Scotland.
A spokesperson for the four charities said: “Every day is a race against time to slow down Duchenne muscular dystrophy, a progressive condition that robs children of their ability to walk and their independence.
“Muscular Dystrophy UK, Action Duchenne, Duchenne Family Support Group and Duchenne UK are pleased to have represented the voices of patients in our joint submission to the SMC.
“We believe our submission highlights both the physical and mental health benefits of Translarna, a drug that has the potential to improve lives for so many families living with Duchenne. We very much look forward to hearing the SMC committee’s thoughts on our submission.”
Sixteen frontline charities have formed a new partnership to encourage those with long-term health conditions and their carers to get the COVID-19 vaccine.
Sixteen charities will work together to help save lives through the vaccine roll out
Those with underlying health conditions and adult carers in cohort 6 encouraged to take up the jab
Organisations will help promote access to important advice and information on vaccines
Organisations including The British Heart Foundation, Macmillan Cancer Support and Mencap are joining with the government and NHS to promote vaccine uptake among those the charities support every day.
Since 15 February those in cohort 6 – people with certain underlying health conditions and their carers – have been receiving invites from their GP practice to come forward for life saving vaccinations to protect them from COVID-19.
Working with the government on the UK’s largest ever medical deployment, the charities will use the combined strength of their networks to reassure people with long-term health conditions about the safety and effectiveness of the vaccine.
Health and Social Care Secretary Matt Hancock said: “The incredible success of our vaccination programme has only been possible by working in partnership with the NHS, health and care professionals, local partners and our volunteers.
“Having the support of the charities who work every day to support the very people we are reaching out to in cohort 6 is a great boost for the rollout which continues to show what we can achieve when we pull together as one.
“Their help, encouragement and links with communities next in line for the jab will help make sure everyone can get access to the life-saving protection the vaccine provides and help protect those with underlying conditions and their carers.”
The organisations which have signed up so far to become members of the coalition are:
African Caribbean Leukaemia Trust (ACLT)
Asthma UK
British Heart Foundation
British Liver Trust
British Lung Foundation
Cancer Research UK
Carers UK
Diabetes UK
Epilepsy Action
Kidney Care UK
Lupus UK
MacMillan Cancer Support
Mencap
MS Society
Sickle Cell Society
Terrence Higgins Trust
These charities support those included in priority vaccination categories, including cohort 6 which covers individuals aged 16 to 64 with certain long-term conditions identified by the Joint Committee on Vaccination and Immunisation as being at higher clinical risk from COVID-19.
These conditions include chronic respiratory, heart, kidney, liver disease and neurological conditions, including MS and epilepsy, vascular disease, diabetes mellitus, immunosuppression, asplenia or dysfunction of the spleen, morbid obesity, severe mental illness, as well as sickle cell, lupus and those on GP learning disability registers.
Following the government meeting its target of offering a first dose vaccine to the top four priority groups by 15 February, all those in cohort 6 are now eligible to get the jab and should be receiving their invitation for their first dose.
Minister for Vaccines, Nadhim Zahawi, said: “The vaccine is our way out of this pandemic and offers the chance to protect yourself and others – that’s why it’s vital that people get their jab when called to come forward.
“The rollout is a truly UK wide effort which is why having the support of these fantastic and trusted charities as we work to ensure everyone eligible gets their vaccine is so important.
“I would like to thank them all for backing this life-saving campaign and offering their expertise and assistance to support the largest medical deployment in British history.”
Cohort 6 also includes carers who are eligible for a carer’s allowance, or those who are the sole or primary carer of an elderly or disabled person who is at increased risk of COVID-19 mortality and therefore clinically vulnerable.
The charities will support the campaign by sharing content across their channels, including a new campaign video featuring people in cohort 6 getting their jab, and putting forward both those who represent the charities and those the charities work with to encourage others to take up the vaccine.
Chris Askew OBE, Chief Executive of Diabetes UK, said: “We are incredibly proud to be working with other leading voices in the charity sector to encourage people to get their COVID-19 vaccine.
“People with diabetes have been disproportionately affected by the pandemic and have a higher risk of becoming seriously ill if they develop coronavirus.
“For people living with diabetes, the best protection against coronavirus is to get the vaccine and take whichever vaccine you are offered.”
People in group 6 who are at higher clinical risk from coronavirus and have not already been contacted will be invited for a vaccine by their local GP team.
Co-Founder and Chief Executive of ACLT, Orin Lewis, said: “The ACLT feels compelled to ensure we do all we can to guarantee any decisions made regarding the COVID-19 vaccine, is done with knowledge of the verified facts and the science behind the vaccine.
“Far too many lives have already been lost, however now there is a real opportunity for positive change especially on behalf of patients with immunosuppression systems linked to stem cell, blood and organ related disorders.
“We feel extremely passionately people should seriously consider protecting themselves, their loved ones and society at large.
When they do make that decision, they need to ensure it’s an informed one based upon verified facts and not myths, fears and taboos.”
Sixteen charities have already joined the campaign and more are welcome to help boost the vaccine drive and save lives.
ENABLE Scotland, National Autistic Society Scotland and Scottish Autism have today launched the ‘Our Voice Our Rights’ Campaign calling on the major political parties to commit to a Commissioner for autistic people and people with a learning disability at the forthcoming Holyrood election.
The ‘Our Voice Our Rights’ campaign aims to make Scotland the best country in the world for the 56,000 autistic people, the 120,000 people with a learning disability and their families in Scotland. A country where human rights are respected and upheld; everyone has equal access to the services and support they need throughout their lives; and where autistic people and people with a learning disability are active citizens and fully supported to fulfil their potential.
While there have been many ambitious and well-intentioned strategies over the years from Government and partners, and an extensive regulatory framework, the charities hear day in day out how too many people are struggling to access their human rights to education, work, a family life, healthcare, to high quality social care services, and to be free from discrimination in their communities.
Many individuals and their families are exhausted from fighting tooth and nail to get the much-needed support and status as equal citizens. A fight that sadly, they often lose, leaving many in crisis, something brought into sharp focus by the pandemic and the pressures on the system.
In the lead up to the Scottish Parliamentary Elections in May 2021 the three charities are standing together with autistic people and people who have a learning disability to say ‘enough is enough’ and calling on all the major political parties in Scotland to commit to a Commissioner to ensure real change.
The Commissioner would be the first of its kind in the world, established in law to champion the human rights of autistic people and people with a learning disability.
They would be a powerful voice, improving access to services and advocating on people’s behalf when they cannot and importantly helping people have the choice and control to live a good life, free from discrimination.
They would close the current gap – between what the law says and what actually happens in reality. They would lead improvements and importantly people would also have recourse when the system falls short and fails to deliver for them.
The charities have launched the campaign alongside autistic people, people with a learning disability and families including the broadcaster Stuart Cosgrove.
A website is now live with a series of videos featuring people from across Scotland making the case for change. People are also being encouraged to get involved and to contact the party leaders to call for a Commissioner for autistic people and people with a learning disability to be included in their election manifestos.
Peter McMahon who has a learning disability and is a member of ENABLE Scotland said: “We need a Commissioner for Learning Disability and Autism so that people who have a learning disability like me aren’t put on the back burner or forgotten about.
“With a Commissioner working with us we can improve access to services and speak up for people when they cannot. Most importantly we can help people live good lives with choice and control and free from discrimination. People with learning disabilities feel invisible, we don’t want to be the invisible people any more and feel a Commissioner would help us.”
Broadcaster Stuart Cosgrove who has an autistic son said: “This campaign has the capacity for real positive change – As a family we’ve been lucky in that Jack got his autism diagnosis early on as a child but like all parents I worry about what happens when he grows up and leaves school.
“We of course want him to be independent, have his own place, a relationship, a job, all the usual things that parents hope for, but we also know those are likely to be challenging for him – he’s going to need that bit extra help and support.
“I believe by and large Scotland has a caring culture but establishing a Commissioner at a national level with a legal obligation to look into the different aspects of public life would make a huge difference. It would help Scotland lead the way to creating a society that fully includes and values autistic people.”
Charities working with children and families on low incomes will receive a share of £3.3 million to help meet the needs of those affected by poverty at Christmas and in the new year.
The money forms part of the £100 million winter support package announced by the First Minister last month – of which £22 million is to specifically support low income families. The £3.3 million committed will support those most in need of help, including lone parents, families with a disabled child or young person, kinship carers, care leavers and families with a loved one in prison.
Nine charities will receive funding to support their work, or to distribute to grass-roots organisations. The money will go to help with essential items such as food, warm clothing and nappies, heating, bedding and furniture and white goods, and to support a scheme giving gifts to disadvantaged children who might otherwise go without a present on Christmas Day.
The charities benefiting are the STV Appeal, Cash for Kids, Aberlour, Barnardo’s, Action for Children, Family Fund, Families Outside, Who Cares? Scotland and One Parent Families Scotland.
Communities Secretary Aileen Campbell said: “The Winter Plan for Social Protection, announced by the First Minister on 30 November 2020, already includes a one-off £100 per child payment for those in receipt of Free School Meals who are on low incomes, to be paid by Christmas.
“Whilst this is an important boost to family incomes we also want to help families with children of pre-school age.
“This funding will strengthen the help available to families across Scotland – supporting people during the festive period and throughout the winter months.
“We have taken unprecedented action to support people affected by the impact of COVID, with over £500 million committed for social protection since the onset of the pandemic. This latest investment is part of wider support available to people including increased funding for the Scottish Welfare Fund, Discretionary Housing Payments, and through wider third sector and councils action.”
Margaret Ford, Chair of STV and STV Children’s Appeal, said: “Amidst the seasonal festivities, it’s sometimes easy to lose sight of the fact that winter is one of the most difficult times of the year for so many families across Scotland, and the economic impact of Covid-19 will be an additional issue this year.
“We work closely with dozens of charities and projects across the country to help the most vulnerable in society, and this new support package will go some way in doing that. We’re pleased to be helping to distribute these funds, so that essential food, clothing, shelter and heating can be provided to those who need it most in this particularly challenging period between now and the spring.”
The charities to be supported by this funding include:
Charities across the country split prize fund awarded for work to transform communities
Three charities with bases in Scotland have been named among the winners and runners-up of this year’s ScottishPower Foundation Awards, taking home their share of a £30,000 prize fund.
The Awards celebrate benevolent work in local communities throughout the UK, with organisations judged in four categories for the Innovation Award, the Education Award, the Community Engagement Award and the Charity Champion Award, which gives special recognition to the outstanding contribution made by an exceptional employee or volunteer who exemplifies what their organisation stands for.
Winners in each category receive an additional £5,000 funding boost, with runners-up receiving £2,500.
The Education Award was won by Spina Bifida Hydrocephalus Scotland, based in Glasgow, for its work to help children with spina bifida and hydrocephalus be fully included in education and the learning experience.
The judges recognised the charity’s work to support each child individually and to tailor its support to their bespoke needs. For example, it worked with partner organisations to ensure one child who required crutches to get around was able to fully participate in sporting activities at his school.
The charity was also praised for its work to celebrate what makes the children it supports unique and ensure they all have the best possible start in life.
Donna Mackey, from The Sporting Memories Foundation Scotland, based in East Lothian, was crowned the Charity Champion for her work with isolated older people during the pandemic.
Donna mapped out bespoke exercise programmes that were originally to be carried out in person, but due to the virus had to be taken online through Zoom meetings. Donna single-handedly produced videos to encourage members to carry out physical activities at home.
As well as this, she created a new ‘Keep in Touch’ bag, which contained physical equipment to help people participate and DVDs of exercises for those who don’t have access to online video calls. The judges noted Donna’s ability to adapt to what was needed and tailor her work to individuals, putting on quizzes or catch-up chats for those who didn’t want to participate in exercise.
Lucy Abbeels, 12, from Edinburgh, was named runner-up in the Charity Champion category for raising over £6,000 for Spina Bifida Hydrocephalus Scotland while receiving ongoing support from the charity herself.
Lucy’s fundraising journey began with the Cumbernauld Victory Mile in 2012. Since then, she has completed numerous Kiltwalks – “go Team Lucy!” Even lockdown couldn’t stop her; in May, Lucy took part in the 2.6 Challenge, raising £1,000 for the charity.
Starcatchers Productions was named runner-up in the Community Engagement Award category for supporting families who are most negatively impacted by the pandemic and more likely to experience greater levels of isolation.
The charity set up a menu of digital creative play activities and helped deliver over 2,000 creative play parcels for families living in poverty.
Melanie Hill, Executive Officer and Trustee of the ScottishPower Foundation, said: “Huge congratulations to the winners and runners-up of this year’s ScottishPower Foundation Awards, who are all real beacons of light in these challenging times. We’re so proud of their achievements and pleased to further recognise their tremendous efforts to change lives for the better.
“What’s especially pleasing is the wide range of activities and support services these Awards celebrate – whether keeping older people connected, supporting disabled young people to live full and fulfilling lives, providing key support to children affected by domestic abuse, or taking a whole community approach to addressing homelessness and hardship. However, the one thing they all have in common is the incredible difference they make to the lives of others.
“We’re honoured to recognise all our winners, runners-up and finalists who bring the values of the ScottishPower Foundation Awards to life every day.”
The awards are open to recipients of this year’s ScottishPower Foundation funding, which saw £1.2m awarded to 21 charities delivering projects across England, Scotland, Wales, and Northern Ireland. Due to social distancing restrictions, the winners were announced on ScottishPower’s Twitter channel – @ScottishPower.
This year’s judging panel was made up of a host of experts from ScottishPower, the third sector, education and communications including Arthur McIvor, Senior Client Manager for Energy & Utility Skills; Juliet Simpson, Founder and CEO of Stripe Communications; Sheila Duncan, Human Resources Director for ScottishPower; and Melanie Hill, Executive Officer and Trustee of the ScottishPower Foundation.
The ScottishPower Foundation was established in 2013 to make a significant and lasting contribution to society, enhancing the lives of people living in communities throughout the UK. It provides funding to help support the advancement of education, environmental protection, arts and culture and citizenship. It also supports charities who aim to provide relief from poverty, disability, or other disadvantages.
The winners and runners up this year are outlined below:
Based in North Tyneside and Northumberland, the Acorns Project offers a range of services to support families affected by domestic abuse such as counselling, first response and adult support services.
Whizz-Kidz aims to transform the lives of disabled children across the UK, supporting them to become confident and independent young adults by providing the equipment, support, and life skills they need in order to develop their full potential.
Bangor University (Reaching Wider North and Mid Wales Partnership) works alongside primary and secondary school pupils as well as adults with no formal qualifications to increase higher education participation among lower socio-economic groups.
South Tyneside Churches KEY Project works with young people and their families to help develop the skills they need to live independently, become good citizens, and reach their full potential.
Starcatchers is Scotland’s National Arts and Early Years organisation specialising in creating performances and exploring creative activity for babies, toddlers and young children aged 0-5 and the adults who care for them.
When the COVID-19 pandemic hit, Donna sprang to action to ensure that support for the elderly participants, many of whom living with long-term conditions such as dementia and depression, would continue. Donna set up weekly Zoom session and single-handedly produced exercise videos featuring her own grandmother for the participants to follow at home. Sporting Memories Foundation tackles dementia, depression, and loneliness through the power of sports reminiscence by bringing together older adults, as well as providing social and physical activities.
Lucy has been raising money for Spina Bifida Hydrocephalus Scotland since she was 4 years old, and to-date has raised over £6000 while receiving support from the charity herself. Spina Bifida Hydrocephalus Scotlandseeks to increase public awareness and understanding of individuals with spina bifida, hydrocephalus and allied conditions. It aims to support all those affected to identify their needs and to empower them to make informed choices and decisions.
48% of Scottish charities reported a decrease in income this year, as a result of the pandemic
Almost two thirds (61%) of Scottish charities experienced an increase in demand this year, more than the UK average of 55%
Almost a half (47%) of Scottish charities anticipate further demand over Christmas
Across the UK, homelessness/refuge charities saw an 81% increase in demand since the pandemic, followed closed by mental health service charities (77%)
According to the latest report by leading match-funding charity, the Big Give, half of Scotland’s charities would usually secure more than a quarter of their voluntary income during the Christmas period, while a staggering 22% would typically raise between 50 – 75%.
But this year, it’s a very different story as demand will outweigh donations, as almost half (49%) expect donations this year, and over the next 12-months, to be lower than usual.
“We run a Giving Tree at Christmas, ensuring that children who ordinarily would not get a gift do. Last year we handed out over 10,000 gifts to children in the North East of Scotland, we expect demand for this [charity service] to increase this year, as more people are pushed into poverty and having to make real choices, do we eat, do we pay bills or do we buy our children gifts.” – reported one of the Scottish charities which took part in the survey
Christmas is a critical time for charity fundraising, this year more than ever before.
The Big Give saw a 24% increase in applications for their annual match funding campaign, the Christmas Challenge, which offers the public the opportunity to have their donations matched between 1-8 December.
This year charity income was badly impacted by Coronavirus, as high street charity shops have been closed and fundraising events cancelled. The report, in which over 1,000 UK charities were surveyed, reveals that almost half (48%) of Scottish charities reported an income decrease.
“During Lockdown, we had to close our shops, which is our source of income, in order to support our charitable work and the foodbank …” – reported one of the charities which took part in the survey.
Christmas has always been a critical point in the year for vital fundraising, as 50% of the Scottish charities who participated in the survey said that they usually raise a quarter of their annual voluntary income in December, while 22% raise a staggering 50-75% of their income.
Donations aren’t meeting demand
During the year, almost two thirds (61%) of Scottish charities saw an increased demand in their services. And sadly, it’s only predicted to get worse, as the pandemic puts a further strain on charity resources; almost half (47%) anticipate an increase in demand for their services during the Christmas period.
“Our foodbank remained open and we delivered food parcels to those who were isolating. The demand has grown hugely. In order to reopen we had to spend money on ensuring that our shops were safe for customers to return to and for our staff and volunteers to work in. We have reduced the amount of stock in the shops so that we can make them safe, therefore reducing our income.” – reported one of the charities which took part in the survey
Charities are using a variety of tactics to cope but thousands could close
More than one in 10 (13%) of Scottish charities have had to make staff redundancies, while over a quarter (26%) will be restructuring the charity, as preservation measures.
In the UK, 60 of the 1,000 surveyed (6%), are considering mothballing or closing completely. Extrapolated across the sector, this could mean the closure of around 10,000 charities. Smaller charities are particularly vulnerable.
“We are teetering on the edge of collapse if we can’t raise enough funds this Christmas.” – Reported a London-based child welfare charity
James Reed, Chairman and Chief Executive of recruitment company REED, and Trustee of The Big Give,commented:“The disruption caused by Covid-19 is hugely challenging for the charity sector. We are approaching an alarming crunch point where many worthwhile organizations might fail for lack of funds. Now, more than ever, both charities and their beneficiaries need and deserve our support.
Reed added: “Charitable campaigns, such as The Big Give’s Christmas Challenge, provide a vital lifeline for charities and this report clearly highlights why giving this year, no matter how small your donation, is more important than ever.”
Homelessness and refuge charities, and those supporting people’s mental health are particularly vulnerable this Christmas.
While almost a third (31%) of charities across the sector in the UK have already experienced a “double whammy” of decreased voluntary income and increased demand for services since the pandemic, homelessness/refuge charities saw the greatest demand, up 81% since the pandemic hit, followed closed by mental health service charities (77%)
Tom Kerridge, Michelin-starred chef, author and TV presenter, who is backing this year’s campaign, through the charity Only a Pavement Away, commented: “Christmas highlights how important friends and family are and this year more than ever, the idea of not being able to spend it with your loved ones is sad for everyone.
“So imagine being homeless, having no close friends or family to spend it with and that sense of loneliness on what should be a day surrounded by love. This year more than ever, the plight of homeless people is so important and charity is key at this time of year.”
The net effect of Coronavirus has been a decrease in volunteering
Almost half (43%) of Scottish charities reported a decrease in volunteering since the pandemic, likely linked to the lockdown and the social distancing measures put in place. Only 13% of charities have reported an increase, despite community morale being at an all time high, the circumstances of the year has made physical support extremely difficult.
Volunteering at Christmas is likely to be affected as well. The worst-affected sector across the UK this year is Cancer, with charities reporting an 82% reduction in income), followed by hospitals/hospices (79%), animal welfare (67%) and older people (64%).
“As our schemes require face-to-face contact with volunteers, approximately two-thirds of our current volunteers have been unable to volunteer over this period. Our greatest need at present is for new volunteers without underlying health conditions who will be able to volunteer and meet the increasing demand for our services.” – reported Open Homes Nottingham, who provide accommodation for homeless 16 – 25-year-olds
Smaller charities are hardest hit
The decrease in income has hit smaller charities hardest, with the smallest (income under £100k) reporting an average decrease of around half (51%) of their total income. With those charitable cause sectors experiencing the largest drops in income so far, being Armed Forces/veterans causes, sports/recreation, cancer and older people.
Some areas have been worse affected than others, with charities in the South West (76%), East Midlands (69%) and Wales (69%) reporting the greatest reduction in income.
The report was compiled following a survey of 1,011 UK charities was conducted as part of research for the Big Give Christmas Challenge, the UK’s largest online match funding campaign. Since 2008, the Big Give has raised over £135m for charities through match funding. At a critical time for the sector, the 2020 campaign will support over 750 charities across a broad range of sectors, geographies and size.
A number of Scottish charities are participating in the campaign including:
This year, the Big Give Christmas Challenge has been endorsed by more than 20 celebrities, including Jo Brand, Sue Perkins, Sir Michael Palin, Tom Kerridge and Sophie Ellis-Bextor, to name a few, all of whom feature in the campaign’s official video – https://youtu.be/nTO-NsK__Gc
For further information on the Big Give Christmas Challenge, or to donate, visit: theBigGive.org.uk
Aldi is once again embracing the season of goodwill by calling on charities, community groups and food banks in Edinburgh and the Lothians to register now to receive surplus food donations this Christmas Eve.
Last Christmas, Aldi donated nearly 48,000 meals to good causes throughout Scotland, and expects to increase this number for Christmas 2020. The meals will support those in need at a time when more households are experiencing financial hardship and food insecurity as a result of the pandemic.
Thanks to Aldi’s successful partnership with Neighbourly, a community engagement platform that links businesses to food banks and charities, all of Aldi’s 92 Scottish stores now donate surplus food seven days a week, all year round.
Christmas provides an opportunity for even more charities to benefit from the initiative, and any charities and community groups in Edinburgh and the Lothians with the resource to help can get in touch to register for a festive food donation from Britain’s fifth largest supermarket.
Charities will be paired with local Aldi stores and can collect fresh and chilled food products that are near the end of their shelf life – including fruit, vegetables, fresh meat, fish and bread – ahead of stores closing on Christmas Eve.
Luke Peech, Managing Director of Corporate Responsibility at Aldi UK, said: “Our Christmas food donations scheme plays a big role in supporting those in need during the festive period and is something we are very passionate about. This is our fourth year running the initiative and we look forward to working with local charities in Edinburgh and the Lothians once again.
“Last year we were able to help thousands of people across Scotland, and this year we’re hoping to extend this even further in what has been a challenging year for so many.”
Steve Butterworth from Neighbourly, added: “Sadly, charities and local causes are expecting record demand for their services this Christmas because of the pandemic and its impact on communities up and down the country.
“We’re sure there are lots more groups out there that could put the food to good use, so we’d encourage them to get in touch.”
Organisations do not need to be a registered charity to apply but must:
Have a level two hygiene certificate gained in the last two years
Be able to transport and store chilled food products after collecting them on Christmas Eve at 5pm
Those interested in working with Aldi this Christmas should contact Neighbourly at aldichristmas@neighbourly before 7th December 2020.
Scottish charities call to cut deaths from our biggest killers
Dear Editor,
Heart disease, cancer, stroke, chronic lung disease and diabetes are responsible for around two thirds of all deaths in Scotland – around 39,000 every year – and are among the world’s biggest killers. And yet sadly deaths from these conditions are often preventable. The burden of these diseases on families and on our society cannot be underestimated.
This week, as a global campaign takes place raising awareness of the impact of these non-communicable diseases (NCDs), we have come together – representing ten of Scotland’s leading health charities – to call for action.
We believe many of these deaths and lost healthy years of life are preventable through addressing modifiable and societal risk factors. Official statistics estimate that each year around 14,000 deaths in Scotland could be prevented through public health interventions.
As a collective, we have set out a series of priorities to tackle three of the biggest risk factors that affect people today – tobacco use, alcohol consumption and unhealthy diets – to improve the health of everyone in Scotland.
Evidence shows the environment around us heavily influences whether we smoke, the amount of alcohol we drink and what we eat. The visibility of products on our high streets and the way they are marketed all contribute to Scotland having one of the lowest healthy life expectancies in Western Europe.
This is particularly true in our most deprived communities where levels of smoking, harmful alcohol use and overweight and obesity are often at their highest. Research shows us that this is in part due to the higher presence of outlets in these areas selling alcohol, tobacco and unhealthy food and drink. We must act now to ensure that the healthy choice is an easy choice for everyone in Scotland.
Covid-19 has also provided a wake-up call on these issues. We are becoming aware of possible links between smoking, alcohol intake and obesity on the severity of Covid-19 infections, highlighting the need to take action now more than ever as we continue to tackle the Covid-19 pandemic.
Scotland has been a pioneer in public health. It was the first country in the UK to ban smoking in enclosed public spaces and the first in the world to introduce a minimum unit price for alcohol.
In this week of awareness, we are calling on all political parties to place the prevention of Scotland’s biggest killers as a priority and to give a strong commitment, ahead of next year’s Scottish Parliamentary elections, to work with us to create a step change in the health of the nation.
Yours sincerely,
Alison Douglas, Chief Executive, Alcohol Focus Scotland Shelia Duffy, Chief Executive, ASH Scotland Lorraine Tulloch, Programme Lead, Obesity Action Scotland Lindsay Paterson, Interim Director, SHAAP Joseph Carter, Head of the Devolved Nations, Asthma UK and the British Lung Foundation Dr Charmaine Griffiths, Chief Executive, British Heart Foundation Michelle Mitchell OBE, Chief Executive, Cancer Research UK Andrea Cail, Scotland Director, Stroke Association Angela Mitchell, National Director, Diabetes Scotland
Almost 58% of people in Scotland do not have a will, a new survey has revealed.
A poll carried out by will-writing campaign Will Aid found that nationally 56% of the population did not have paperwork protecting their loved ones in the event of their death.
But the statistics demonstrated that in Scotland the problem was even greater.
Peter de Vena Franks, campaign director for Will Aid, said: “It can be very difficult for some people to have conversations about death and dying but with this comes a sense of peace because you are making important decisions that can protect your loved ones when you die.
“The last year has shown us how fragile life can be and the survey has revealed just how much of an impact the coronavirus pandemic has had on the mindset of people. We have all had to learn lessons about how to protect ourselves better – with handwashing, mask-wearing and social distancing. A will is just an extension to this.
The study showed that coronavirus had prompted more than 55% of Britons to confront the inevitability of death and think about ways to protect their loved ones after they are gone by either writing a will or reviewing their existing will.
Fifteen per cent of those interviewed said they had written a will or made changes to their will this year as a result of the pandemic. A further 35% said they were actively looking to get a will drawn up this year or make changes to their existing paperwork as a result of the Covid-19 outbreak.
Mr de Vena Franks said: “Will Aid provides the perfect opportunity for people to get their paperwork in order. Not only does it bring peace of mind, it also directly helps to fund the life-saving work of nine of the UK’s best-loved charities.”
Will Aid runs for the month of November. Solicitors volunteer their time to charity to write wills for members of the public. Instead of paying the usual fee for the will, the recipient is asked to make a voluntary donation to Will Aid.
The suggested voluntary donation for a basic Will Aid will is £100 for a single will and £180 for a pair of mirror wills.
Will Aid raises money for nine of the UK’s best-loved charities: ActionAid, British Red Cross, Christian Aid, NSPCC, Save The Children, Sightsavers, Age UK, SCIAF (Scotland) and Trocaire (Northern Ireland).
Mr de Vena Franks said: “There are still so many people in the UK who do not have a will and this does need to be addressed. After all, a will is the best way for a person to make an active choice about inheritance and estates, not to mention make decisions on the guardianship of underage children.”
According to the research, 56% of adults don’t have a will in the UK. More than half of all parents with children under the age of 18 also have no will which means, in the event of their death, a court would make decisions on the guardianship of their children.
Of those interviewed, twice as many people would make a will as a result of a health scare than they would as a result of having a child.
Those who wish to book an appointment with a solicitor to make a will in November can do so from September onwards via our website or by calling us on 0300 0309 558.
Will Aid solicitors will be following the most up-to-date government health advice to ensure that face-to-face meetings remain safe. Many firms will be able to write wills at a distance via a phone or online consultations. Some firms will only be offering their services remotely. Participating firms can be contacted directly for more information.
For the first time, 10 UK charities are uniting to respond against the impact that COVID-19 is having on the charity sector by staging The Massive Get Together – an online charity event comprising of celebrity entertainment, performance, prize draws and lots of laughs, in a bid to raise £500,000!
This special collaborative, relaxed, and fun variety event, the brainchild of one of the UK’s leading charities Volunteering Matters, will be hosted live from London by TV and radio presenters Gaby Roslin and Amanda Byram.
Streaming live and online on Thursday 17th September at 20:00 to an anticipated audience of more than 20,000, these 10 incredible charities are inviting us to ‘take the night off’ and relax with them to enjoy their fun online event which promises to have ‘something for everyone’ – including no 1 hits, comedy, and surprise special guest appearances.
UK charities are facing over £12bn1 loss in income due to the COVID-19 restrictions as critical funding and crucial fundraising events ceased overnight. This means that the UK voluntary sector is expected to face a colossal funding shortfall by the end of the year.
Chief Executive of Volunteering Matters and Founder of the Massive Get Together Paul Reddish said: “This year the nations’ charities have been critical to so many. They’ve been at the heart of much of the COVID-19 response – from delivering food to supporting those most isolated in every community throughout the UK.
“Their staff and volunteers continue to provide these vital services, such as end of life care and key support for the vulnerable, despite of the ongoing conditions created by this pandemic.”
Charities have seen demand rise, and the sector is expecting to see over £12bn loss over the course of 2020. One in 10 charities2 are at risk of closure if things continue as they are. Charities and organisations that do manage to survive will face major constrictions and capabilities to operate the way they once did. Even with the gentle easing of restrictions, large scale fundraising events will not be able to function for many months to come.”
The unique aspect of this campaign is the cooperation and unity of all 10 charities who have seamlessly united together for a common goal of responding to the ongoing challenges and impact COVID-19 is having on their sector.
In the face of coronavirus, charities are #NeverMoreNeeded for the essential support they provide in crisis and beyond, and how they shape our society for the better.
Paul continued: “We thought if leading members of the charity sector could come together and join forces, then collectively we could unite and help each other respond on mass to the impact of COVID-19. That’s the thinking behind the Massive Get Together – When charities unite, to entertain us all.”
The Massive Get Together will provide an evening of entertainment and variety, surprise and intrigue, whilst fundamentally facilitating valuable fundraising for the 10 amazing charities involved – Marie Curie, The Children’s Trust, FareShare, St John Ambulance, Royal Voluntary Service, Love Your Neighbour, Crisis , The Conservation Volunteers, Thames Hospice and Volunteering Matters.
For just £10 audiences will be supporting all 10 incredible UK charities, making a positive difference within action against homelessness and hunger, protecting the vulnerable, connecting communities, supporting end of life care and volunteer provision, as well as helping emergency and crisis response services.
Tickets for The Massive Get Together go live today – people can access the event by donating just £10 to help 10 charities at www.crowdfunder.co.uk/the-massive-get-together.
The Massive Get Together online event will be hosted live from London by TV & radio broadcasters Gaby Roslin and Amanda Byram.
Gaby Roslin said “The Massive Get Together is a really unique online event, with charities coming together to put on a fabulous variety show. The past few months have been challenging for everyone, and this evening will offer entertainment that people can enjoy from the comfort of their own home, whilst raising much-needed money for 10 vital charities.
“I’m grateful to have the opportunity to present The Massive Get Together with Amanda, and do my bit to help these charities, who have all been affected by the impact of COVID-19.”
Amanda Byram said “We find ourselves living in extraordinary times and I think it’s incredible that charities are coming together in this way to support each other. It is such a feel-good event and I am so honoured to be a part of it and also over the moon to be working with the wonderful Gaby for this very special online evening.”
