As a group of organisations who support vulnerable children and young people, many with autism and a learning disability, we would add our support to concerns relating to a delay in a Scottish Government commitment to establish a commissioner to promote and protect the rights of autistic people.
Currently too many of those with autism and learning disabilities are struggling to get the support needed, with their human rights breached, and a commissioner is vital to help them fight their corner.
However, with a delay in public consultation on this until late 2023, there is a real concern that the delivery of a commissioner is simply not being prioritised.
While not by any means a panacea, a commissioner for autism and learning disability would be the first of its kind in the world, established in law to champion the human rights of autistic people and people with a learning disability.
It would be a powerful voice, improving access to services and advocating on people’s behalf when they cannot. A commissioner would also close the current gap between what the law says and what actually happens, delivering improvements. Importantly people would also have recourse when the system falls short and fails to deliver for them.
Many of those with autism and learning disabilities feel invisible, and such a role can help people live good lives with choice and control, free from discrimination. We would urge the Scottish Government to develop a sense of urgency on this vital matter.
ENABLE Scotland, National Autistic Society Scotland and Scottish Autism have today launched the ‘Our Voice Our Rights’ Campaign calling on the major political parties to commit to a Commissioner for autistic people and people with a learning disability at the forthcoming Holyrood election.
The ‘Our Voice Our Rights’ campaign aims to make Scotland the best country in the world for the 56,000 autistic people, the 120,000 people with a learning disability and their families in Scotland. A country where human rights are respected and upheld; everyone has equal access to the services and support they need throughout their lives; and where autistic people and people with a learning disability are active citizens and fully supported to fulfil their potential.
While there have been many ambitious and well-intentioned strategies over the years from Government and partners, and an extensive regulatory framework, the charities hear day in day out how too many people are struggling to access their human rights to education, work, a family life, healthcare, to high quality social care services, and to be free from discrimination in their communities.
Many individuals and their families are exhausted from fighting tooth and nail to get the much-needed support and status as equal citizens. A fight that sadly, they often lose, leaving many in crisis, something brought into sharp focus by the pandemic and the pressures on the system.
In the lead up to the Scottish Parliamentary Elections in May 2021 the three charities are standing together with autistic people and people who have a learning disability to say ‘enough is enough’ and calling on all the major political parties in Scotland to commit to a Commissioner to ensure real change.
The Commissioner would be the first of its kind in the world, established in law to champion the human rights of autistic people and people with a learning disability.
They would be a powerful voice, improving access to services and advocating on people’s behalf when they cannot and importantly helping people have the choice and control to live a good life, free from discrimination.
They would close the current gap – between what the law says and what actually happens in reality. They would lead improvements and importantly people would also have recourse when the system falls short and fails to deliver for them.
The charities have launched the campaign alongside autistic people, people with a learning disability and families including the broadcaster Stuart Cosgrove.
A website is now live with a series of videos featuring people from across Scotland making the case for change. People are also being encouraged to get involved and to contact the party leaders to call for a Commissioner for autistic people and people with a learning disability to be included in their election manifestos.
Peter McMahon who has a learning disability and is a member of ENABLE Scotland said: “We need a Commissioner for Learning Disability and Autism so that people who have a learning disability like me aren’t put on the back burner or forgotten about.
“With a Commissioner working with us we can improve access to services and speak up for people when they cannot. Most importantly we can help people live good lives with choice and control and free from discrimination. People with learning disabilities feel invisible, we don’t want to be the invisible people any more and feel a Commissioner would help us.”
Broadcaster Stuart Cosgrove who has an autistic son said: “This campaign has the capacity for real positive change – As a family we’ve been lucky in that Jack got his autism diagnosis early on as a child but like all parents I worry about what happens when he grows up and leaves school.
“We of course want him to be independent, have his own place, a relationship, a job, all the usual things that parents hope for, but we also know those are likely to be challenging for him – he’s going to need that bit extra help and support.
“I believe by and large Scotland has a caring culture but establishing a Commissioner at a national level with a legal obligation to look into the different aspects of public life would make a huge difference. It would help Scotland lead the way to creating a society that fully includes and values autistic people.”
