Scottish charity Art in Healthcare has appointed renowned artist Juliana Capes to run its Caring Spaces project, an innovative initiative which supports unpaid carers.
Juliana, a multi-disciplinary visual artist and filmmaker, has recently shown her work at the Edinburgh Art Festival, Alchemy Film Festival and CCA, Glasgow.
In this new role, she will lead the latest series of monthly online sessions which provide participants with some respite from their day-to-day caring responsibilities by offering them a safe and relaxed space to learn about and develop their passion for art while building peer support.
Along with her strong artistic pedigree, Juliana brings direct experience to the role as a parent carer of two children with intellectual disabilities.
Caring Space is an innovative project which AiH has developed over several years with VOCAL (Voice of Carers across Lothian). This existing programme, delivered in Musselburgh, Dalkeith, Leith and online, brings carers together through monthly online art sessions and in-person visits to galleries.
Commenting on the new position, Juliana said: “It’s great to be appointed as the Caring Spaces artist for this latest project where I am connecting with other carers and support organisations.
“I’m delighted to bring my own experiences, both as an artist and as a parent carer of two children with additional support needs, to help the participants maximise the wonderful experience this programme has to offer.”
Jeanne Marie Lee, Carer Training Officer, VOCAL Edinburgh said: “Caring Spaces is one of our most popular courses.
“Our carers love the opportunity to get creative with new materials and techniques. With that in mind, it is incredibly exciting to have Juliana joining us in this programme to inspire and delight the group with her ideas.”
Iona McCann, Associate Director (Communities), Art in Healthcare said: “We are really excited to work with Juliana and see what she brings to the Caring Spaces programme.
“Working with someone with lived experience of caring was incredibly important to us as she has a deep understanding of the challenges unpaid carers face. As an organisation, we also want to learn on how we can best support unpaid carers within our team.”
Sit back, relax, and enjoy summer at our carers’ summer picnic on Wednesday 26 July at Granton Community Gardeners. Meet other carers, enjoy some tasty food and find out more about this fantastic community resource in the city.
Mental healthcare specialists, The Edinburgh Practice, has announced a city-wide art competition, entitled ‘Memory: Your Perspective’ in collaboration with its 2023 charity partner, Alzheimer Scotland, which will be officially unveiled at the opening of its new 6,500sq ft multi-purpose, custom built 26 room clinic in Waverley Square this summer.
The company, founded by Dr Fiona Wilson in 2017, has outgrown three sites in the city due to exponential growth over the last two years and is counting down to opening its new clinic which will include new specialist services for older adults including the provision of dementia assessments through the practice’s new Memory Clinic.
The competition, which has five categories; primary school pupils, secondary school pupils, adults aged 18-65, adults aged 65 plus, and people living with dementia, (or caring for someone with dementia) ties in with the range of new services for older adults and will also help raise awareness of the support offered by Alzheimer Scotland.
The theme for the competition is about encapsulating people’s interpretation of memory, which can range from a fond memory of quality time with grandparents or memorable past experiences of places, people and moments. Entries can be submitted in A0, A1, A2 or A3 format and be submitted digitally by emailing ella@edinburghpractice.com by 5pm on Friday 19th May 2023.
The winning artist in each category will receive a £100 voucher for the St James’ Centre, and their artwork will be displayed for one year in the new practice at Waverley Square.
Dr Fiona Wilson said: “Supporting the wider community is very important to us at The Edinburgh Practice and I am thrilled to announce that our 2023 charity partner is Alzheimer Scotland.
“The charity is doing tremendous work in supporting people with dementia and carers, as well as creating awareness about brain health across the life span.
“We hope that our ‘Memory: Your Perspective’ art competition will stimulate awareness and discussions among all age groups in the community as to how important brain health is to preserve our memory for as long as possible.
“We are very much looking forward to unveiling the winning artworks in each category at our launch event in the summer.”
Josh Munns, Stakeholder Engagement Leader at Alzheimer Scotland, commented: “We are delighted to be the charity partner for The Edinburgh Practice who are helping to raise crucial funds and vital awareness for Alzheimer Scotland.
“People living with dementia and those who love them continue to be disproportionately affected by the legacy of the pandemic and the effects of the cost-of-living crisis so it’s essential that we continue to be there to make sure no one faces dementia alone.
“Without the support of organisations like The Edinburgh Practice we wouldn’t be able to support the 90,000 people living dementia, their families and carers”.
Carers Trust Scotland today is releasing research about the lived experiences of older adult unpaid carers in Scotland. Over 450 participants shared their experiences and the unique challenges they face as an unpaid carer.
The impact of caring unpaid on one’s health and wellbeing was highlighted in the report, with 80% of participants stating that their physical health, and 87% of respondents stating their mental health and wellbeing, had been affected by their caring role.
65% of respondents said that they experience feelings of loneliness some of the time, and a further 19% said they often felt lonely.
“My health is deteriorating quite rapidly and I am afraid as to what may happen to loved ones should I die.”
The report also explores the support available for older adult unpaid carers.18% of respondents feel as though they have no time for themselves.
Furthermore, a quarter of respondents (25%) reported having difficulty being able to find the support they need as an unpaid carer. By not having the adequate support in place to support their caring role, it prevents many from being able to have break. Our research found that in the past 12 months, 18% reported that they had tried to take a break but had not been able to.
As well as an impact on health, many older adult unpaid carers experience financial difficulty, with 82% of respondents feeling as though their caring role has financially impacted them.
Challenges in retaining employment and developing a career alongside a caring role were highlighted by unpaid carers. Also, older adult unpaid carers with an underlying entitlement to Carer’s Allowance but no longer in receipt of the benefit due to receiving a full State Pension expressed their anger and frustration, with many feeling they are financially penalised due to their age whilst maintaining a substantial caring role.
“Not getting Carer’s Allowance is shocking. I care 24/7 non-stop. I would get State Pension anyway caring or not. Pension is not a benefit. When one needs the funds for caring, it stops. State Pension is there for me, not to supplement the caring role. I have not had Carer’s Allowance in 15 years.”
The report also explores the impact of the ongoing cost-of-living crisis, with many older adult unpaid carers sharing ways in which they have tried to save money over the past 12 months.
37% have used less gas/electricity in their homes.
35% have cut back on essentials.
19% have skipped meals, and 16% have used a food bank.
27% have used their pension pot for everyday expenses.
In addition to publishing the lived experiences of older adult unpaid carers in Scotland, the research report also puts forward recommendations for support for unpaid carers and carer services and staff.
Among its recommendations, Carers Trust Scotland is calling for:
Scottish Government extend Carer Support Payment to older adult unpaid carers with underlying entitlement who are receiving State Pension.
Health and Social Care Partnerships and local authorities provide ringfenced funding to local carer organisations dedicated to providing physical and mental health support for older adult unpaid carers. Additionally, develop specific programmes aimed at combatting social isolation and loneliness amongst older adult unpaid carers.
Scottish Government creates a dedicated section in the Older Adult Framework on older adult unpaid carers.
Scottish Government ensures there is a dedicated section on unpaid carers in the upcoming Dementia Strategy, with particular focus on where to turn to for support.
Jim Guyan, an unpaid carer from Shetland, said: “This report highlights the continuing lack of recognition and support given to elderly unpaid carers by the establishment.
“It also makes recommendations that require action immediately.”
Becky Duff, Director of Carers Trust Scotland, comments: “The changes in demographic trends in Scotland has seen our population begin to age over recent decades. It is therefore vital that we understand the challenges facing unpaid carers aged 65 and above which will be key in helping us support them.
“The research report highlights that older adult unpaid carers across Scotland experience numerous impacts to their everyday lives, including in health, finances and support in their caring role.
“Many older unpaid carers have also faced challenges with employment, whether that is throughout their career and not having the same opportunities as those who don’t have caring roles, or in having to give up employment early due to their caring role.
“We are pleased to publish this report and believe every effort should be made to support the implementation of the report’s recommendations, which we believe will support older adult unpaid carers across Scotland.”
New Carers Trust survey reveals devastating double whammy of cost-of-living crisis and increasing intensity of caring responsibilities on children and young adults
“I’d love to have kid problems. Instead, I’m saving up to try and pay our rent and to see if I can squeeze in some food at the end of it.”
66% of young carers and young adult carers in Scotland told Carers Trust’s survey the cost-of-living crisis is always or usually hitting them and their family adversely
36% say they always or usually face additional costs because they are an unpaid carer
54% say the time they spend caring has increased in the past year
52% always or usually feel stressed because they are an unpaid carer.
A new Carers Trust survey released yesterday (9th March) shows the devastating double whammy of the cost-of-living crisis and the increasing intensity of caring responsibilities shouldered by children and young people providing unpaid care to family members.
The report, released a week ahead of Young Carers Action Day (15 March), an annual event led and organised by national charity Carers Trust, aims to raise awareness of the devastating impact on young people of fulfilling their caring role without sufficient support.
The UK-wide survey of 1,109 young carers (aged under 18) and young adult carers (aged 18-25), including 181 living in Scotland, showed alarming findings, with many young people contributing to or managing the family finances.
The survey found that 36% of respondents in Scotland said they always or usually face additional costs because they are a young carer or young adult carer and 66% said the cost-of-living crisis is always or usually affecting them and their family.
One young adult told the survey: “I’d love to have kid problems. Instead, I’m saving up to try and pay our rent and to see if I can squeeze in some food at the end of it.”
The survey also found a significant intensification of their caring role. More than half (59%) of those surveyed in Scotland report caring for between 20 and 49 hours, while also balancing their studies, work and lives outside of caring. However, as many stated in the survey, this does not reflect the extra time they spend worrying about the needs of the person they care for and the true figure may be much higher.
In total, 54% of young carer and young adult carer respondents in Scotland said the time they spend caring has increased in the last year and 36% said they now care for more people than they used to.
One young adult told the survey: “Caring never stops. Especially when it’s time to sleep, your brain constantly worries about how tomorrow will be, hospital appointments, money etc. It’s in overdrive.”
Time spent caring hits education and wellbeing
A higher proportion of those caring for more hours per week reported problems with money, not having time to socialise, feeling stressed and worried and not getting enough rest, sleep or time for themselves.
In terms of education, 49% of respondents in Scotland said that they never or do not often get help in school, college or university to balance caring and education work, with a third of overall respondents saying they usually or always struggle with that balance. They also report a lack of support from schools, with 32% of Scotland respondents saying there is ‘not often’ or ‘never’ someone at their school, college or university who understands about them being a carer.
For those who work, 50% ‘always’ or ‘usually’ struggle to balance caring with paid work in Scotland.
One young adult said: “There is a lot of pressure on me, to the detriment of my own health, wellbeing, success, happiness and future.”
The findings suggest these pressures are having a devastating effect on mental health. Many struggle with emotional wellbeing and feel stressed, overwhelmed or drained. The survey revealed that 52% of young carer and young adult carer respondents in Scotland ‘always’ or ‘usually’ feel stressed.
Illustrating the overwhelming nature of being a young carer, one said: “You don’t get to have bad days. If you have a bad day, the whole house can fall into disarray. It’s exhausting and traumatic.”
Young and young adult carers say the key things they need are support around: mental health, money and finances, education and a break from caring.
Among its recommendations, Carers Trust is calling for:
All schools, colleges and universities to appoint a Young Carers Champion with strategic responsibility and oversight for identifying and implementing appropriate support.
Improved access to financial support for young carers and young adult carers, including extending Carer’s Support Payment (currently Carer’s Allowance) eligibility to unpaid carers in full-time education.
Scottish Government to increase the level of funding for young carer and young adult carer support and ring-fence it.
Louise Morgan, Director of Carers Trust Scotland comments: “These shocking survey results show young people caring for their loved ones are being hit by a perfect storm of increasing intensity in their caring responsibilities and the spiralling cost of living.
“It cannot be right that children and young adult carers are having to take on the burden of dealing with stretched household finances and caring for ever longer hours, to the detriment of their education and wellbeing.
“These young people and the local organisations that support them need radical action from local and nation governments. Young people also tell us they urgently need support with mental health and access to breaks. It’s high time we gave them the help they so sorely need.”
Are you an unpaid carer looking after a loved one? Or know someone who is? LifeCare is launching a series of classes and activities that are FREE for unpaid carers and the person they care for.
Starting on the 25th January at 11am in our Boardroom, come along to movement therapy designed to spark memories, have fun and boost your physical and mental wellbeing.
If you would like to attend, please submit your name on the following form:
Shared Care Scotland is the national carer organisation focused on improving short breaks for all of Scotland’s unpaid carers.
Research is an essential part of this work: it helps ensure that short breaks policy and provision is better informed by the experience of carers and cared-for people and that those responsible for the commissioning and delivery of short breaks have access to the current best evidence on ‘what works’.
Shared Care Scotland recently worked with Iriss to hear directly from carers about the impact that the Short Breaks Fund ‘Time to Live’ grant scheme had on their lives during the Covid-19 pandemic.
The report shows that taking a person-centred approach – supporting carers to have choice and control in short breaks – brings sustainable benefits and can improve their financial, physical and mental wellbeing as well as providing similar benefits to those they care for.
What also emerges from the report is that it is not just the break itself that can lead to positive outcomes, but the process of accessing support can also achieve additional benefits. This includes reducing isolation, helping carers feel valued, and providing that essential preventative support that can help to sustain the caring role.
It is hoped that the report provides important evidence to help reinforce good practice. Above all, it is to show that supporting carers to embed pockets of respite throughout their days can be fundamental in helping them have ‘Time to Live’.
Extra £1 million will help people shape the services they need
A £1 million investment over two years will fund work with people with dementia and their families to design and shape the support they need following diagnosis.
The funding, part of the £120 million Mental Health Recovery and Renewal fund, will see the Scottish Government working with Age Scotland to enhance support giving people a bigger say in what works for them.
COVID-19 has had a disproportionate impact on people with dementia. Through this partnership with Age Scotland, the Scottish Government will grow the community support that have been so critical to people and their families during the pandemic.
Early investment will be focused on building community capacity with a small grant programme, with a broader community grant programme to follow in the second year.
Social Care Minister Kevin Stewart said: “During the latest phase of the pandemic I have listened to people with dementia and their families about the need for additional flexible support and investment to help address some of the particular challenges they are facing.
“COVID-19 has impacted all of us but I know just how challenging it has been for people living with dementia, their families and carers.
“Trying to reduce this impact is the basis of our Dementia and Covid Action Plan, which we have worked with a wide range of partners to implement, since its publication in December 2020.
“There is a lot of positive work to point to, and the pandemic has particularly highlighted the importance of community-led work, responding to local need. I want to build on this work and enable more local people and communities to design and shape the support they need.
“Through this partnership with Age Scotland we will invest an extra £1 million over two years to support local communities to do that.”
Brian Sloan, Chief Executive of Age Scotland, said: “We’re delighted to be working with the Scottish Government to deliver this funding, which will support the development of dementia-friendly communities across Scotland.
“The pandemic has compounded challenges faced by people living with dementia and their unpaid carers. This funding will help address some of these challenges by shaping communities that work for those who have lived experience of dementia.
“Our role is to bring the voices of carers and people living with dementia to the forefront as plans are developed, ensuring those voices are heard at every stage of the design and delivery process. By doing so, we can build communities that truly support and empower people living with dementia and those who care for them.”
Tens of thousands of unpaid carers will receive a double payment of the Carer’s Allowance Supplement this winter under legislation passed unanimously by the Scottish Parliament last night.
Recognising the additional pressures unpaid carers face as a result of the pandemic, the December payment of the Carer’s Allowance Supplement will be doubled to £462.80, benefitting more than 91,000 people.
This extra investment, forecast to be £21 million, will be the second time the Scottish Government has doubled a Carer’s Allowance Supplement payment.
The Carer’s Allowance Supplement (Scotland) Bill will also give Ministers powers to provide eligible carers with additional financial support in future if the need arises.
Social Security Minister Ben Macpherson said: “We introduced the Carer’s Allowance Supplement in September 2018 to address the fact that Carer’s Allowance was the lowest of all working age benefits. The £230 payment is in addition to the Carers Allowance in recognition of the role carers play in society.
“In recognition of the additional pressures caused by the pandemic, tens of thousands of unpaid carers will now receive another additional payment of more than £230 through our Carer’s Allowance Supplement this winter. This additional payment means that this year carers in Scotland will get £694.20 more in support than carers in the rest of the UK.
“We also made a double payment last year, so over the past two years we have invested over £120 million from our own budget to support around 91,000 unpaid carers. The Carer’s Allowance Supplement is unique in the UK and is one of seven new benefits we have introduced.
“The Scottish Government will always consider if additional payments are needed in the future, bearing in mind the broad range of support we provide across society and taking account of our limited tax and borrowing powers.
Sebastian Fischer, Chief Executive of VOCAL, which supports and empowers unpaid carers in Edinburgh said: “As we emerge from the pandemic, the Coronavirus Carers’ Allowance Supplement is a welcome measure and we are delighted that the Bill has passed. This will support carers who have faced, and continue to face, enormous challenges due to Covid-19.
“Unpaid carers have propped up the health and social care sector, and it is vital that they are recognised in ways that deliver real positive impact. We look forward to seeing further measures from our new government which value the role of carers as equal partners.”
