Tag: carers

Carers Rights Day: Carers urged to check for financial help

Thousands of unpaid carers could be missing out

This Carers Rights Day (Thursday 21 November 2024), unpaid carers across the country are being encouraged to check their eligibility for financial support from Social Security Scotland.

It is estimated that there are around 800,000 unpaid carers, including 30,000 under the age of 18, providing care for a family member, friend or neighbour in Scotland.

Research also suggests that many do not see themselves as a carer, meaning they do not take up support they are entitled to.

There are three payments delivered by Social Security Scotland dedicated to supporting unpaid carers.

Carer Support Payment is replacing Carer’s Allowance in Scotland and is now available for new applications Scotland-wide.

Young Carer Grant and Carer’s Allowance Supplement are only available in Scotland. There has been a 26% increase in Young Carer Grant applications from those aged 16-18 in the 12 months to September 2024 compared to the same period the previous year.

Cabinet Secretary for Social Justice, Shirley-Anne Somerville said: “The Scottish Government has supported around 164,000 unpaid carers through social security payments since 2018. We understand their important role and that many may be juggling caring with work, study or family commitments.

“That is why we’ve been working closely with carers and organisations that represent them, to develop a better social security system in Scotland. This includes improving the application process and providing two payments that are only available for carers here in Scotland.

“This Carers Rights Day, I urge everyone who carries out a caring role to find out more about the financial help available. And if you know an unpaid carer, whether a student, work colleague, friend or even someone caring for you, let them know support is available.”

As part of Carers Rights Day, Social Security Scotland has organised a pop-up event at South Lanarkshire College to help raise awareness amongst students about the financial support available and to support them with applying.

Head of Student Services, Rose Harkness, said: “South Lanarkshire College proudly support carers of all ages who provide unpaid assistance to loved ones facing illness, disability, mental health challenges, or addiction.

“Our inclusive environment enables carers to achieve qualifications without barriers through tailored guidance, course and funding advice, and support with completing applications.

“Working in partnership with Social Security Scotland has encouraged more of our carers to check eligibility and apply for funding to help in their caring role.  We are committed to empowering carers for both academic success and personal growth.”

To find out more about the financial support available for unpaid carers visit:  mygov.scot/browse/benefits/carers

Background

  • Carer Support Payment is available to people providing care for 35 hours or more a week, earning a maximum weekly income of £151 after tax, National Insurance and expenses, to someone who receives disability benefits. It replaces Carer’s Allowance in Scotland and is a payment of £81.90 per week. Carer Support Payment is also available to some carers in education. This includes full-time students aged 20 or over and students under 20 in advanced or higher education. Students aged 16-19 in non-advanced education e.g. studying for National Certificates, Highers and Advanced Highers, may also be eligible. Carers in Scotland who are already receiving Carer’s Allowance don’t need to apply for Carer Support Payment. Their benefits will be automatically transferred. This process is due to complete in spring 2025.
  • Young Carer Grant is a yearly payment of £383.75 and is available for carers age 16, 17 or 18 who provide support for an average of 16 hours a week to someone receiving certain benefits. The money can be spent on whatever the young person wants.  
  • Carer’s Allowance Supplement is an automatic payment made twice a year to unpaid carers receiving Carer Support Payment from Social Security Scotland or Carer’s Allowance from the Department for Work and Pensions (DWP). The next payment of £288.60 will be paid on Friday 6 December for those who were paid Carer Support Payment or Carer’s Allowance on 7 October 2024.  The Scottish Government has committed to replace six monthly lump sum Carer’s Allowance Supplement payments with more regular payments alongside Carer Support Payment once case transfer is complete.
  • Information on other support for carers is available at Help if you’re a carer – mygov.scot 

Carer Support Payment is now Scotland-wide

Tens of thousands of carers can now apply for support as benefit roll-out complete 

Tens of thousands more unpaid carers in Scotland can apply for a new benefit from today (4 November). 

Carer Support Payment, which is a payment of £81.90 per week paid by Social Security Scotland, has been introduced in phases since November 2023. 

It has been extended to people living in 19 more local authority areas including Glasgow, Edinburgh, Orkney and the Scottish Borders. 

It is now available in every local authority in the country, marking the completion of the roll-out of Scotland’s 14th benefit. 

It is for unpaid carers who provide 35 or more hours of care a week to someone who gets disability benefits.  Carer Support Payment, is the replacement in Scotland for Carer’s Allowance which is delivered by the Department for Work and Pensions (DWP). 

Unlike Carer’s Allowance, Carer Support Payment is available to some carers in education. This includes full-time students aged 20 or over and students under 20 who are in advanced or higher education. 

In June, eligibility was extended to carers aged 16-19 in non-advanced education. This includes those studying for National Certificates, Highers and Advanced Highers, who meet certain criteria, for example, not having any parental support. 
 
As part of the roll out, new backdating rules were introduced meaning that some carers – mostly full-time students – living in the new areas can apply to have their payments backdated to when Carer Support Payment was introduced. 

Cabinet Secretary for Social Justice, Shirley-Anne Somerville said: “The importance of the role of unpaid carers should not be underestimated. Their work is vital to the people they look after and to society as a whole.  

“I am delighted that Carer Support Payment is now available in every local authority in Scotland. Many students will now be able to get this financial support for the first time, thanks to changes made by the Scottish Government. 

“I urge anyone who thinks they might be eligible to find out more.” 

According to Carers Trust Scotland, it is estimated that there are around 35,000 unpaid carers attending college or university in Scotland. Paul Traynor,

Head of External Affairs at Carers Trust Scotland, welcomes the national roll out. He said:  “The immense contribution of unpaid carers to society cannot be understated, providing vital caring roles to their family and friends, and helping to hold society together.    

“Over 100,000 unpaid carers in Scotland are living in poverty and we hear all too often of the financial pressures of juggling studying and caring, where supplementing their income through employment is extremely challenging or not possible. Research highlights that student carers can be up to four times more likely to drop out of college or university and financial struggles are often one of the key reasons for this.    

“The national roll out of Carer Support Payment will help make a significant difference to many carers’ lives and support more student carers to remain and succeed in education.” 

Carer Support Payment opened for new applications in further areas on 4 November.

Unpaid carers in Argyll & Bute, Clackmannanshire, Dumfries & Galloway, East Dunbartonshire, East Lothian, East Renfrewshire, Edinburgh, Falkirk, Glasgow, Highland, Inverclyde, Midlothian, Orkney Islands, Renfrewshire, Scottish Borders, Shetland Islands, Stirling, West Dunbartonshire and West Lothian can now apply.

Carers can find out more, and apply at https://www.mygov.scot/carer-support-payment 

Leading Scottish artist to head up Edinburgh & Lothian art initiative for unpaid carers

Scottish charity Art in Healthcare has appointed renowned artist Juliana Capes to run its Caring Spaces project, an innovative initiative which supports unpaid carers.

Juliana, a multi-disciplinary visual artist and filmmaker, has recently shown her work at the Edinburgh Art Festival, Alchemy Film Festival and CCA, Glasgow.

In this new role, she will lead the latest series of monthly online sessions which provide participants with some respite from their day-to-day caring responsibilities by offering them a safe and relaxed space to learn about and develop their passion for art while building peer support. 

Along with her strong artistic pedigree, Juliana brings direct experience to the role as a parent carer of two children with intellectual disabilities.

Caring Space is an innovative project which AiH has developed over several years with VOCAL (Voice of Carers across Lothian). This existing programme, delivered in Musselburgh, Dalkeith, Leith and online, brings carers together through monthly online art sessions and in-person visits to galleries.

Commenting on the new position, Juliana said: “It’s great to be appointed as the Caring Spaces artist for this latest project where I am connecting with other carers and support organisations.

“I’m delighted to bring my own experiences, both as an artist and as a parent carer of two children with additional support needs, to help the participants maximise the wonderful experience this programme has to offer.”

Jeanne Marie Lee, Carer Training Officer, VOCAL Edinburgh said: “Caring Spaces is one of our most popular courses.

“Our carers love the opportunity to get creative with new materials and techniques. With that in mind, it is incredibly exciting to have Juliana joining us in this programme to inspire and delight the group with her ideas.”

Iona McCann, Associate Director (Communities), Art in Healthcare said: “We are really excited to work with Juliana and see what she brings to the Caring Spaces programme.

“Working with someone with lived experience of caring was incredibly important to us as she has a deep understanding of the challenges unpaid carers face. As an organisation, we also want to learn on how we can best support unpaid carers within our team.”

The Edinburgh Practice launches a city-wide art competition in partnership with Alzheimer Scotland

Mental healthcare specialists, The Edinburgh Practice, has announced a city-wide art competition, entitled ‘Memory: Your Perspective’ in collaboration with its 2023 charity partner, Alzheimer Scotland, which will be officially unveiled at the opening of its new 6,500sq ft multi-purpose, custom built 26 room clinic in Waverley Square this summer.

The company, founded by Dr Fiona Wilson in 2017, has outgrown three sites in the city due to exponential growth over the last two years and is counting down to opening its new clinic which will include new specialist services for older adults including the provision of dementia assessments through the practice’s new Memory Clinic.

The competition, which has five categories; primary school pupils, secondary school pupils, adults aged 18-65, adults aged 65 plus, and people living with dementia, (or caring for someone with dementia) ties in with the range of new services for older adults and will also help raise awareness of the support offered by Alzheimer Scotland.

The theme for the competition is about encapsulating people’s interpretation of memory, which can range from a fond memory of quality time with grandparents or memorable past experiences of places, people and moments. Entries can be submitted in A0, A1, A2 or A3 format and be submitted digitally by emailing ella@edinburghpractice.com by 5pm on Friday 19th May 2023.

The winning artist in each category will receive a £100 voucher for the St James’ Centre, and their artwork will be displayed for one year in the new practice at Waverley Square.

Dr Fiona Wilson said: “Supporting the wider community is very important to us at The Edinburgh Practice and I am thrilled to announce that our 2023 charity partner is Alzheimer Scotland. 

“The charity is doing tremendous work in supporting people with dementia and carers, as well as creating awareness about brain health across the life span. 

“We hope that our ‘Memory: Your Perspective’ art competition will stimulate awareness and discussions among all age groups in the community as to how important brain health is to preserve our memory for as long as possible.

“We are very much looking forward to unveiling the winning artworks in each category at our launch event in the summer.”

Josh Munns, Stakeholder Engagement Leader at Alzheimer Scotland, commented: “We are delighted to be the charity partner for The Edinburgh Practice who are helping to raise crucial funds and vital awareness for Alzheimer Scotland.

“People living with dementia and those who love them continue to be disproportionately affected by the legacy of the pandemic and the effects of the cost-of-living crisis so it’s essential that we continue to be there to make sure no one faces dementia alone.

“Without the support of organisations like The Edinburgh Practice we wouldn’t be able to support the 90,000 people living dementia, their families and carers”.

Research highlights the challenges for unpaid carers aged 65 and above across Scotland

Carers Trust Scotland today is releasing research about the lived experiences of older adult unpaid carers in Scotland. Over 450 participants shared their experiences and the unique challenges they face as an unpaid carer.

The impact of caring unpaid on one’s health and wellbeing was highlighted in the report, with 80% of participants stating that their physical health, and 87% of respondents stating their mental health and wellbeing, had been affected by their caring role. 

65% of respondents said that they experience feelings of loneliness some of the time, and a further 19% said they often felt lonely.

“My health is deteriorating quite rapidly and I am afraid as to what may happen to loved ones should I die.”

The report also explores the support available for older adult unpaid carers. 18% of respondents feel as though they have no time for themselves.

Furthermore, a quarter of respondents (25%) reported having difficulty being able to find the support they need as an unpaid carer. By not having the adequate support in place to support their caring role, it prevents many from being able to have break. Our research found that in the past 12 months, 18% reported that they had tried to take a break but had not been able to.  

As well as an impact on health, many older adult unpaid carers experience financial difficulty, with 82% of respondents feeling as though their caring role has financially impacted them.

Challenges in retaining employment and developing a career alongside a caring role were highlighted by unpaid carers. Also, older adult unpaid carers with an underlying entitlement to Carer’s Allowance but no longer in receipt of the benefit due to receiving a full State Pension expressed their anger and frustration, with many feeling they are financially penalised due to their age whilst maintaining a substantial caring role.

“Not getting Carer’s Allowance is shocking. I care 24/7 non-stop. I would get State Pension anyway caring or not. Pension is not a benefit. When one needs the funds for caring, it stops. State Pension is there for me, not to supplement the caring role. I have not had Carer’s Allowance in 15 years.”

The report also explores the impact of the ongoing cost-of-living crisis, with many older adult unpaid carers sharing ways in which they have tried to save money over the past 12 months.

  • 37% have used less gas/electricity in their homes.
  • 35% have cut back on essentials.
  • 19% have skipped meals, and 16% have used a food bank.
  • 27% have used their pension pot for everyday expenses.

In addition to publishing the lived experiences of older adult unpaid carers in Scotland, the research report also puts forward recommendations for support for unpaid carers and carer services and staff.

Among its recommendations, Carers Trust Scotland is calling for:

  • Scottish Government extend Carer Support Payment to older adult unpaid carers with underlying entitlement who are receiving State Pension.
  • Health and Social Care Partnerships and local authorities provide ringfenced funding to local carer organisations dedicated to providing physical and mental health support for older adult unpaid carers. Additionally, develop specific programmes aimed at combatting social isolation and loneliness amongst older adult unpaid carers.
  • Scottish Government creates a dedicated section in the Older Adult Framework on older adult unpaid carers.
  • Scottish Government ensures there is a dedicated section on unpaid carers in the upcoming Dementia Strategy, with particular focus on where to turn to for support.

Jim Guyan, an unpaid carer from Shetland, said: “This report highlights the continuing lack of recognition and support given to elderly unpaid carers by the establishment. 

“It also makes recommendations that require action immediately.”

Becky Duff, Director of Carers Trust Scotland, comments: “The changes in demographic trends in Scotland has seen our population begin to age over recent decades. It is therefore vital that we understand the challenges facing unpaid carers aged 65 and above which will be key in helping us support them.

“The research report highlights that older adult unpaid carers across Scotland experience numerous impacts to their everyday lives, including in health, finances and support in their caring role.

“Many older unpaid carers have also faced challenges with employment, whether that is throughout their career and not having the same opportunities as those who don’t have caring roles, or in having to give up employment early due to their caring role.

“We are pleased to publish this report and believe every effort should be made to support the implementation of the report’s recommendations, which we believe will support older adult unpaid carers across Scotland.”

New Carers Trust report highlights increasing pressure on our carers

New Carers Trust survey reveals devastating double whammy of cost-of-living crisis and increasing intensity of caring responsibilities on children and young adults

“I’d love to have kid problems. Instead, I’m saving up to try and pay our rent and to see if I can squeeze in some food at the end of it.”  

  • 66% of young carers and young adult carers in Scotland told Carers Trust’s survey the cost-of-living crisis is always or usually hitting them and their family adversely
  • 36% say they always or usually face additional costs because they are an unpaid carer
  • 54% say the time they spend caring has increased in the past year
  • 52% always or usually feel stressed because they are an unpaid carer.

A new Carers Trust survey released yesterday (9th March) shows the devastating double whammy of the cost-of-living crisis and the increasing intensity of caring responsibilities shouldered by children and young people providing unpaid care to family members.

The report, released a week ahead of Young Carers Action Day (15 March), an annual event led and organised by national charity Carers Trust, aims to raise awareness of the devastating impact on young people of fulfilling their caring role without sufficient support.

The UK-wide survey of 1,109 young carers (aged under 18) and young adult carers (aged 18-25), including 181 living in Scotland, showed alarming findings, with many young people contributing to or managing the family finances.

The survey found that 36% of respondents in Scotland said they always or usually face additional costs because they are a young carer or young adult carer and 66% said the cost-of-living crisis is always or usually affecting them and their family.  

One young adult told the survey: “I’d love to have kid problems. Instead, I’m saving up to try and pay our rent and to see if I can squeeze in some food at the end of it.”  

The survey also found a significant intensification of their caring role. More than half (59%) of those surveyed in Scotland report caring for between 20 and 49 hours, while also balancing their studies, work and lives outside of caring.  However, as many stated in the survey, this does not reflect the extra time they spend worrying about the needs of the person they care for and the true figure may be much higher.

In total, 54% of young carer and young adult carer respondents in Scotland said the time they spend caring has increased in the last year and 36% said they now care for more people than they used to. 

One young adult told the survey: “Caring never stops. Especially when it’s time to sleep, your brain constantly worries about how tomorrow will be, hospital appointments, money etc. It’s in overdrive.” 

Time spent caring hits education and wellbeing

A higher proportion of those caring for more hours per week reported problems with money, not having time to socialise, feeling stressed and worried and not getting enough rest, sleep or time for themselves.

In terms of education, 49% of respondents in Scotland said that they never or do not often get help in school, college or university to balance caring and education work, with a third of overall respondents saying they usually or always struggle with that balance. They also report a lack of support from schools, with 32% of Scotland respondents saying there is ‘not often’ or ‘never’ someone at their school, college or university who understands about them being a carer.

For those who work, 50% ‘always’ or ‘usually’ struggle to balance caring with paid work in Scotland.

One young adult said: “There is a lot of pressure on me, to the detriment of my own health, wellbeing, success, happiness and future.”

The findings suggest these pressures are having a devastating effect on mental health. Many struggle with emotional wellbeing and feel stressed, overwhelmed or drained. The survey revealed that 52% of young carer and young adult carer respondents in Scotland ‘always’ or ‘usually’ feel stressed.

Illustrating the overwhelming nature of being a young carer, one said: “You don’t get to have bad days. If you have a bad day, the whole house can fall into disarray. It’s exhausting and traumatic.” 

Young and young adult carers say the key things they need are support around: mental health, money and finances, education and a break from caring.

Among its recommendations, Carers Trust is calling for:

  • All schools, colleges and universities to appoint a Young Carers Champion with strategic responsibility and oversight for identifying and implementing appropriate support.
  • Scottish Government to introduce a fully resourced right to short breaks for all unpaid carers with dedicated funding.
  • Improved access to financial support for young carers and young adult carers, including extending Carer’s Support Payment (currently Carer’s Allowance) eligibility to unpaid carers in full-time education.
  • Scottish Government to increase the level of funding for young carer and young adult carer support and ring-fence it.

Louise Morgan, Director of Carers Trust Scotland comments: “These shocking survey results show young people caring for their loved ones are being hit by a perfect storm of increasing intensity in their caring responsibilities and the spiralling cost of living.

“It cannot be right that children and young adult carers are having to take on the burden of dealing with stretched household finances and caring for ever longer hours, to the detriment of their education and wellbeing.

“These young people and the local organisations that support them need radical action from local and nation governments. Young people also tell us they urgently need support with mental health and access to breaks. It’s high time we gave them the help they so sorely need.”

LifeCare: Free Movement Therapy sessions for unpaid carers

Are you an unpaid carer looking after a loved one? Or know someone who is? LifeCare is launching a series of classes and activities that are FREE for unpaid carers and the person they care for.

Starting on the 25th January at 11am in our Boardroom, come along to movement therapy designed to spark memories, have fun and boost your physical and mental wellbeing.

If you would like to attend, please submit your name on the following form:

https://forms.office.com/Pages/DesignPageV2.aspx…

Time to Live grant scheme: Shared Care Scotland report published

Shared Care Scotland is the national carer organisation focused on improving short breaks for all of Scotland’s unpaid carers.  

Research is an essential part of this work: it helps ensure that short breaks policy and provision is better informed by the experience of carers and cared-for people and that those responsible for the commissioning and delivery of short breaks have access to the current best evidence on ‘what works’.

Shared Care Scotland recently worked with Iriss to hear directly from carers about the impact that the Short Breaks Fund ‘Time to Live’ grant scheme had on their lives during the Covid-19 pandemic.  

The final report and a collection of carer stories has been published this week in Rethinking Personalised Short Breaks for Unpaid carers during COVID-19.

The report shows that taking a person-centred approach – supporting carers to have choice and control in short breaks – brings sustainable benefits and can improve their financial, physical and mental wellbeing as well as providing similar benefits to those they care for. 

What also emerges from the report is that it is not just the break itself that can lead to positive outcomes, but the process of accessing support can also achieve additional benefits. This includes reducing isolation, helping carers feel valued, and providing that essential preventative support that can help to sustain the caring role.

It is hoped that the report provides important evidence to help reinforce good practice.  Above all, it is to show that supporting carers to embed pockets of respite throughout their days can be fundamental in helping them have ‘Time to Live’.

You can read the report here.

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