Patient reveals critical issues with current Edinburgh Eye Pavilion

A patient at the Princess Alexandra Eye Pavilion, has come forward to offer their insight into the shocking failings in the hospital.

Peter Scobie has been attending the Eye Pavilion for 18 years, after being diagnosed with Lebers hereditary optic neuropathy (LHON).

He lost his sight just before the pandemic and has been blind for 4 years now.

Peter has revealed the absence of specialists in the hospital, as his specialist is a paediatric doctor from the sick kids, who only comes to the Pavilion on Tuesdays.

A further issue with the hospital comes down to geographic issues, as he has previously been sent to Newcastle for an appointment while the closest specialist is even further south in Cambridge. 

He has also highlighted the absurd situation of those needing to receive sight loss assessments must go to the most inaccessible part of the building to receive the check.

Campaigners for a new Eye Pavilion, based at the Royal Infirmary were disappointed when the Scottish Government made no mention of the project in the budget late last year.

This is despite Michael Matheson telling campaigners that a decision would be made around the budget.

Health boards then discovered that there would be a two-year freeze on all capital spending and projects. They are also required to make 6.8% savings.

If this stays in place, there is no way that the Eye Pavilion will be built in the near future. This will force Peter, and other patients like him, to rely on services that the NHS themselves deemed not fit for purpose 10 years ago.

Commenting on Peter’s case, Labour Lothians MSP Sarah Boyack said: “Peter has helped to highlight the unacceptable condition of the current Princess Alexandra Eye Pavilion.

“Patients should have facilities that support them through their difficulties, not hinder them further.

“Eye Pavilion staff do their best but without a new building and facilities they have one hand tied behind their back.

“The Scottish Government needs to listen to patients like Peter and realise that maintaining the current building is bad for patients, bad for NHS Lothian, and bad for Edinburgh.”

Sight Scotland added: “In Peter’s case, an absence of specialist doctors that are trained in his condition means it is difficult for him to get the correct treatment he needs.

“With the closest specialist for his condition based in Cambridge, a new eye hospital could be an opportunity to provide a training ground for ophthalmologists.

“The hospital’s inaccessible layout means that Peter and many others seeking essential services, such as collecting prescriptions and visiting patient support on the top floor, struggle to do so.

“More needs to be done to ensure accessible access to quality eye healthcare.”

Edinburgh talking PANTS tomorrow!

Campaign being launched in Edinburgh to help keep children safe from sexual abuse

A campaign to help protect young children from sexual abuse is being launched in Edinburgh tomorrow with an online event for professionals who work with children and families in the city.

The year-long campaign is being delivered by NSPCC Scotland, the Edinburgh Child Protection Committee and a wide range of partners across the city to spread the NSPCC’s Talk PANTS message.

Talk PANTS gives parents, carers and professionals advice on how to have simple, age-appropriate conversations with children to help keep them safe from sexual abuse.

With the help of a colourful animated dinosaur, called Pantosaurus, it helps children understand that their body belongs to them, that they have a right to say no and they should tell a safe adult they trust if anything makes them feel upset or worried. 

Over the coming year, local PANTS champions will be trained to deliver the campaign messages and resources to other professionals and families through webinars and workshops, and awareness raising events will be held across Edinburgh for parents, carers and children.

The online launch, which will run from 2pm to 4pm on Thursday, October 5, will explore how we can better prevent and respond to child sexual abuse, using PANTS, and the next steps of the campaign.

The online event is open to all professionals who work with children and families in Edinburgh, and it will take place on Microsoft Teams.

NSPCC Scotland’s Assistant Director Karen Head will introduce the event, and this will be followed with the personal story from a mum whose daughter was sexually abused. There will also be speeches from Stuart Allardyce, Director of Lucy Faithfull Foundation / Stop It Now! Scotland, Laura Brown, Edinburgh Child Protection Lead Officer and NSPCC Scotland’s Local Campaigns Manager Carla Malseed.

Carla Malseed, Local Campaigns Manager at the NSPCC, said: “Each year in Scotland, Police record more than 5,000 sexual offences committed against children. It is crucial that we do all we can to help prevent abuse from happening in the first place.

“The Talk PANTS campaign is about helping start difficult, but vital, conversations with children from a young age about sexual abuse and their right to be safe. 

We don’t talk about sex or use scary words but focus on rules that help children understand important messages, like their body belongs to them and they should tell an adult if they’re upset or worried.”

NSPCC Scotland’s Assistant Director Karen Head, said: “We are delighted to be launching this campaign in Edinburgh to help prevent sexual abuse and keep children across the city safer.

“The Talk PANTS message and Pantosaurus animation makes it much easier for parents, carers and professionals to tackle this topic in a straightforward, fun and light-hearted way that children can understand and easily put into practice.”

Lillian Cringles, Chair of the Edinburgh Child Protection Committee, said: “This campaign will help families and professionals have these important conversations with children about their bodies and help keep them safe. I urge as many professionals, parents and carers as possible to come along to our events in Edinburgh over the next few months.”

The first event for parents, carers and children aged 3-11, will be held at the McDonald Road Library on Tuesday, October 17 from 3 to 4.30pm. Also, a PANTS coffee morning will be held at the new NSPCC Community Hub in Leith on Wednesday, November 1, from 10.30am until 11.30am.

Other events throughout the year will promote the campaign materials and resources for parents, which includes a British Sign Language PANTS video, a Talking PANTS with Makaton guide which is designed to be used to deliver the PANTS message to children with Additional Support Needs and a Pantosaurus film. There are also resources for teachers to use in primary schools.

To book a place at the online launch event, visit: Edinburgh, Talk PANTS launch event for professionals Tickets, Thu 5 Oct 2023 at 14:00 | Eventbrite

Find out more about Edinburgh Talk PANTS here.

Parents and professionals can also find out how to Talk PANTS here. The adult guides include ones for foster carers and parents with learning disabilities.

Anyone with concerns about the welfare of a child can call the NSPCC’s free and confidential helpline on 0808 800 5000 for advice.

Police Scotland launches campaign targeting sexual perpetrators

Police Scotland in partnership with Stop It Now! Scotland has launched a new campaign targeting sexual perpetrators who groom and abuse children online.

The #GetHelpOrGetCaught campaign targets men who are either already offending or at risk of offending and directs them to support to help them stop.

Reports of online child abuse continue to increase, with nearly 2,000 crimes recorded by Police Scotland between 1 April 2022 – 31 March 2023.

During this same period, Police Scotland carried out 700 investigations resulting in 500 arrests, and 800 children were protected.

And so far this year, (1 April and 31 August), specialist officers have investigated 290 online child sexual abuse cases resulting in 149 arrests and 269 children protected.  

Featuring a film produced by the charity Stop It Now! Scotland, the campaign highlights the consequences of offending for perpetrators and urges them to stop and seek help by contacting Stop It Now! Scotland.

Launching the campaign, Detective Chief Superintendent Martin MacLean from Police Scotland, said: “Tackling online child abuse remains a key priority for Police Scotland, and this includes working with partners to prevent abuse and divert potential perpetrators from committing offences.

“Online child sexual abuse is not virtual; its repercussions are real, for the victims of these horrific crimes, but also for perpetrators. Grooming, indecent communication and causing children to participate in sexual activity, are all serious criminal offences.

“We continue to build our cyber capability and expertise to identify child victims. Offenders need to understand they will be identified, arrested and will face the consequences of their actions: not just a conviction but the potential loss of family, reputation and livelihood.

“Abusers are responsible for their actions, it is up to them to take action and stop, to get help or get caught.”

Police Scotland consulted with Stop It Now! Scotland on the campaign.

Stuart Allardyce, Director of Stop It Now, Scotland, said: “There is help to stop. It is easier for people to successfully change their behaviour through support than trying to change on their own.

People who are worried about their sexual behaviour online can call us on our helpline. They can remain completely anonymous. We provide non-judgemental, confidential support to help someone stop their behaviour and keep children safe online.

“From the many people we work with and our research, we know that their frequent use, over long periods of time, of online legal pornography escalated to barely legal or extreme types of pornography and the viewing of illegal sexual images of children.

“Some of the people we work with discuss becoming more desensitised to adult pornography as time went on. Often, they feel trapped in a cycle of behaviour and require help with their mental health as well as their compulsive behaviours to take positive actions to break this cycle.

“If this is happening for you, don’t leave it until it’s too late to call. Many individuals who are arrested for this type of offence tell us they wish they had known there was support to help.

“We also work with families and friends impacted by the arrest of a loved one for viewing illegal images or engaging in illegal conversations online.

“From our experience, we know the devastation that can ensue once someone is arrested and the number of lives that can be changed forever.” 

Edinburgh march joins global calls for fast and fair transition away from fossil fuels

Climate campaigners will march through Edinburgh today (16 /9/ 23) to demand the UK and Scottish Governments develop a plan for a fair and fast transition away from fossil fuels. 

The protestors are demanding action to phase out oil and gas in the UK including a halt to controversial projects like the Rosebank oil field and a new gas-fired power station in Peterhead, Aberdeenshire. 

Organisers say there must be a fair and fast transition for the workers and the communities most affected by the move away from fossil fuels and these people should be at the heart of planning this transition to ensure it meets their needs.  

The march is one of 400 actions taking place around the world with millions of people involved this weekend ahead of a UN Climate Ambition Summit of world leaders in New York next week.

Scientists, energy experts and climate campaigners agree that there must be no new investment in oil, gas or coal anywhere if the world is to limit further climate breakdown. Despite this the UK Government wants to “max out” new North Sea oil and gas and grant over 100 new licences for further oil and gas exploration. 

The march is organised by a coalition of groups including Edinburgh Climate Coalition, Friends of the Earth Scotland, Fridays for Future, Climate Justice Coalition, War on Want, Extinction Rebellion Edinburgh, Scot.E3, Greenpeace Edinburgh and Youth in Resistance. 

Steve Gray, a delegate of Aberdeen Trades Union Council who will speak at the rally after the march said: “Aberdeen Trades Union Council welcomes the opportunity to march in solidarity with the climate justice movement and thanks everyone for their support for a just transition for workers employed by the fossil fuel industries.

“The tragic deaths caused by the Stonehaven trail derailment during a storm showed the devastating impacts of a changing climate. Aberdeen Trades Union Council, alongside our STUC allies, recognise that we cannot allow these hazards to multiply and threaten our communities.

“All our gains from free school education to votes for working people and equal pay for women have been won through collective struggles. We can once again win this shared fight and secure decent jobs for people building climate resilient communities in Scotland and around the world.”

Lucia Harrington, Lead Organiser of Fuel Poverty Action who campaign for insulated homes and clean, affordable energy for all commented: “Our households’ resources, and the earth’s resources, are being exploited by the profiteering fossil fuel industry, and this is driving fuel poverty and climate disaster.

“

One of the leading causes of the cost of living crisis was that fossil fuel powered energy companies were allowed to make record profits at the expense of millions of people who are forced to go without heating, hot water and electricity.

“We need a just transition now to an energy system that works for people and the planet. Many workers in the fossil fuel industry want to be part of this transition without losing their jobs and falling into fuel poverty.”

Friends of the Earth Scotland’s oil and gas campaigner Freya Aitchison said: “Millions of people will be in the streets around the world because politicians are failing to deliver the fast and fair transition away from the fossil fuels that are fuelling climate breakdown.

“

The near daily climate disasters we are witnessing from Libya, to Greece to China are driven by the burning of fossil fuels yet politicians are still cheerleading for fossil fuel companies. Rishi Sunak’s plan to ‘max out’ oil and gas will maximise climate destruction while the Scottish Government is considering approving a new gas plant at Peterhead in Aberdeenshire which will lock us into burning fossil fuels for decades to come.”  

“Marchers in Edinburgh are calling for a properly planned transition away from oil and gas which is led by the workers and communities most affected. A credible plan to switch to renewables can deliver huge benefits to people such as more affordable energy, secure green jobs, warm homes and a safe climate.”

Scotland’s rural education charity launches school campaign – The Journey of Food: Sheep & Wool

Calling all farmers and the wider agri sector! Can you help get behind the new school campaign?

Rural education charity, the Royal Highland Education Trust (RHET) is delighted to launch ‘The Journey of Food: Sheep and Wool’. 

From this September through to the end of June next year, working in partnership with RNCI, QMS, NSA, and British Wool, RHET will provide a variety of free educational opportunities and experiences for school pupils throughout Scotland.

The resources and events will focus on the important role sheep, lamb, and the uses of wool play in our economy, communities, and creative Scotland. From the rugged hills of the Highlands and Islands, across the central belt and into the Borders, lamb production is woven into our culture and history, from the drovers of years ago to modern-day mixed farming.  

This campaign has developed a range of free accessible resources for use in schools. Teachers have been signing up for two in-person training days, over 70 teachers will attend the first session at Ingliston this weekend and the next in Inverness on 23rd September.  These sessions are also open to volunteers where the resources will be demonstrated and tips on classroom speaker topics to cover. 

The highlight of the calendar is RHET’s popular week-long, online Talk to Farmer event, taking place  in March 2024, where over 5,000 children are expected to join live and have a chance to chat with some wonderful volunteers about their work, their animals, and their passion for farming. 

RHET is delighted to work closely with partners from the sheep industry on this exciting campaign to help bring the Scottish sheep sector to life for pupils all linked to their learningWith help from the wider industry, whether it’s financial support, volunteering, or spreading the word, the campaign needs your help.  

All resources produced and people’s time are FREE for schools to access, and the RHET Team will do all they can to get as many schools as possible on board. 

What can YOU do to help?! 

  • MAKE A DONATION – If are able to support us, please contact the project leads, Sheila or Fran at rhetinfo@rhass.org.uk 
    Become a supporter | Royal Highland Education Trust (rhet.org.uk)
  • Follow and share RHET social media posts, this will help us to spread the word!
  • If you can help by volunteering your time to speak with school children (and teachers) about sheep farming and or wool that would be GRHET!
  • Maybe help by making a short video, sharing photos or stories – any help at all would be appreciated.
  • We need our sector to be energised and doing everything to be talking about this campaign positively.

Fran Matheson, RHET Highland Project Coordinator, and one of the leads on the project, comments: “‘The passion and dedication of Scottish farmers helps produce some of the best quality lamb in the world in accordance with the highest welfare standards that we are all extremely proud of.

‘This campaign is an opportunity to teach children across Scotland about lamb and the role of sheep farming in our communities, the season-by-season work on sheep farms, education about the animals on farm, including its biodiversity, and the traditions handed down through the generations.

“We will also focus on how wool can be used sustainably in so many products with the hope of encouraging more of us to embrace this remarkable material. RHET has, with the help of some very passionate volunteers, created lots of wool crafting activities for school pupils to enjoy and learn in the classroom.

“We are very excited to be sharing this campaign with you all and hope you will help us.’

If you would like to know more about what is coming up during the year or how you could get involved locally, please visit the RHET website (rhet.org.uk) or contact rhetinfo@rhass.org.uk/ call 0131 335 6627 where someone on the team will be more than happy to help.

The launch video is available on the RHET You Tube channel and teachers can register their interest in the RHET resources now:

 https://www.rhet.org.uk/teachers/the-journey-of-food-sheep-and-wool/  

Scottish Government announces Public Inquiry into ‘butcher’ surgeon

Actions of Sam Eljamel and NHS Tayside to be examined

Health Secretary Michael Matheson has announced a Public Inquiry will take place into the conduct of former neurosurgeon Sam Eljamel.

Mr Matheson said that in light of the last week’s Due Diligence Review, published by NHS Tayside, he has now concluded a Public Inquiry is needed to get the answers to the questions patients have about the surgeon, who worked in Tayside between 1995 and 2013.

Individual former patients who have ongoing concerns will also be able to request an independent clinical review of their care and treatment by Mr Eljamel.

Mr Matheson said: “Many former patients still live with the consequences of being treated by Mr Eljamel and still have many unanswered questions.

“The report presented last week to the board of NHS Tayside outlines a number of failings that I believe can only be examined thoroughly by a public inquiry. It also brings forward significant information not previously known to the Scottish Government. Given the length of time since the first concerns were raised about Mr Eljamel, this raises real concerns.

“It is now clear that the Board’s governance obligations were not consistently met in respect of how reviews of concerns about Mr Eljamel were actioned.

“I consider that this now means that commissioning a full public inquiry under the terms of the Inquiries Act 2005, with the powers to compel witnesses, is the only route to determine what happened, what contributed to the failures described by NHS Tayside and what can be done to prevent this happening again.

“A full public inquiry will not necessarily answer the individual clinical questions of each former patient about their own particular circumstances. For that reason I do still consider that an individual clinical review of patients’ individual cases, where that is what individual patients want, remains necessary.

“This will allow a person-centred, trauma-informed review of each patient’s own clinical case, addressing their individual needs and circumstances and attempting to offer answers in a bespoke and personalised way that an inquiry may not.”

Further details of the Public Inquiry and the process for arranging individual clinical care reviews will be announced in due course.

BPS supports Essentials Guarantee

BPS SUPPORTS CAMPAIGN TO MAKE UNIVERSAL CREDIT ENOUGH FOR PEOPLE TO AFFORD TO COVER ESSENTIALS

The British Psychological Society has joined the Joseph Rowntree Foundation (JRF), the Trussell Trust, and other leading health and care organisations and charities to call for an “Essentials Guarantee”, a new law to make sure Universal Credit’s basic rate is always at least enough for people to afford the essentials. 

The organisations are warning that so many people are routinely going without the essentials it poses a serious risk to the UK’s health.

Together, they have written to the Prime Minister to express their worry that, as the high prices of everyday essentials like food and housing persist, too many people are expected to live with what can be devastating knock-on consequences. 

JRF’s own analysis shows the weekly Universal Credit standard allowance is £35 less than the cost of essential items for a single person, contributing to millions of people forced to use food banks because they can’t make ends meet.

Dr Roman Raczka, President-Elect of the British Psychological Society, and Chair of its Division for Clinical Psychology, said: “Nobody should be in a position of being unable to afford the essentials they and their families need to sustain their health and wellbeing, and it’s clear the current level of Universal Credit falls woefully short.  

“Poverty is one of the major risk factors for the development of physical and mental health problems, and we know that children growing up in poverty are three-to-four times more likely to develop mental health problems, which also leads to long-term impacts upon their education, life chances and quality of life.

“If the government is truly committed to preventing health inequalities from widening further, tackling poverty, and reducing pressure on our already stretched and underfunded public services, it must commit to the Essentials Guarantee to protect this generation, and generations to come.”

About the Essentials Guarantee

The Essentials Guarantee would embed in our social security system the widely supported principle that, at a minimum, Universal Credit should protect people from going without essentials.

Developed in line with public attitude insights and focus groups, this policy would enshrine in legislation:

  1. an independent process to regularly determine the Essentials Guarantee level, based on the cost of essentials (such as food, utilities and vital household items) for the adults in a household (excluding rent and council tax);
  2. that Universal Credit’s standard allowance must at least meet this level; and
  3. that deductions (such as debt repayments to government, or as a result of the benefit cap) can never pull support below this level.

The UK Government would be required to set the level of the Essentials Guarantee at least annually, based on the recommendation of the independent process. JRF analysis indicates that it would need to be at least around £120 a week for a single adult and £200 for a couple.

Eyre Place planning application: MSP hails ‘power of community’

A Scottish Government Reporter appointed to consider the Eyre Place planning application has dismissed the developer’s appeal and refused planning permission.  

Nearly 400 objections to the planning application 22/0384/FUL (Student Accommodation) 72-74 Eyre Place were received from residents. The residents were largely concerned with the overall scale of the development, its overbearing presence blocking natural light for neighbours, and dense accommodation which would overburden local infrastructure and amenities. 

Many local residents, therefore, felt the proposal was not compatible with the character of the area in terms of use or design and could also increase noise and disturbance due to plans that the top storey of the flats would be dedicated to ‘entertainment’ and karaoke booths. 

On 11 January 2023, it was unanimously agreed by The City of Edinburgh Council’s Planning and Development Management Sub-Committee that a hearing would be held, so that local residents and developers could make their case in the Council chambers, before a final vote was held.

However, the developers, CA Europe Operating Company, appealed, and a Reporter, (a lawyer appointed by Scottish Government Ministers), instead was tasked to decide on the merits of the planning application. 

Foysol Choudhury, list MSP for Lothian, raised deep concerns at the time about the fact that the public hearing would not take place and that the voices of local residents would not be heard, with local democracy being sidelined by the developer’s appeal. 

Responding to the news that the Reporter has now dismissed the developer’s appeal and that planning permission has been denied, Foysol Choudhury MSP said: “My constituents are overjoyed at this result and they should be congratulated for all their hard work in organising as a community, to ensure their concerns about this planning application were heard by elected officials. 

“Many of my constituents told me that the community was in despair, not just because of the proposed development but because they felt the decision to sideline the public hearing led to their voices being silenced. 

“The developers attempted to bypass local democracy and failed in their appeal, which is of course a relief for my constituents, but we must learn lessons so that local democracy is not circumvented like this again in the future.  

“Nevertheless, I am glad that this deeply unpopular planning application has been denied. It’s great to see what can be achieved through the power of community!” 

Local resident, Hannah Edwards, said: Our community is delighted with the Reporter’s decision. It reflects what was obvious to so many when we first saw this aggressive proposal 18 months ago.

“A development of this size on a constrained site would have had a really negative impact on the lives of so many. We’re eternally grateful to each and every person who fought so hard to get the result we were so dearly hoping for.” 

Calls for capital’s LGBTQ+ community to take part in pioneering campaign

A HISTORIC new project is calling on young people from the LGBTQ+ community to share their life experiences for a first of its kind project.

The campaign, (Un)Seen (Unheard), a pioneering social history project to capture young people’s lived experience and preserve it in the national archives, comes to Edinburgh Pride on 24th June and Porty Pride on 8th July.

LGBT Youth Scotland working in partnership with the National Library of Scotland, will be hosting Past, Present and Proud workshops across the country during pride which aims to encourage people from a range of different generations to share messages of hope to their younger or older selves.

Ali Kerr, Head of Partnerships at LGBT Youth Scotland believes that this project is an important way for young people to be a valuable part of history in the making. She said: “It has never been more important to give LGBTQ+ young people hope and a sense of pride in who they are.

Writing a message to their past or future self will allow them. to communicate their lived experiences on a national level and feel like an equal part of Scotland’s heritage.

“Bridging the past and present through stories will not only place LGBTQ+ experiences at the heart of local communities, but it will also help us all make Scotland a place where all young people can flourish and thrive.

“Our hope is that this project will not only connect with a new audience but will also inspire not-so-young people to get involved and foster intergenerational relationships within Scotland’s LGBTQ+ community.”

This year marks LGBT Youth Scotland’s 20th anniversary as an independent charity, priding itself in playing a leading role in the provision of quality youth work to LGBTQ+ young people, promoting health and wellbeing.

The campaign will have presence at three other pride events in Scotland over the coming months: Mardi Gla (Glasgow), Highland Pride (Inverness) and Pride Outside (Glasgow). Each with stalls and opportunities to engage with the archive project.

Along with collating stories from these pride events, the charity launched a campaign video on 1st June that showcases conversations between young and older members of the community, reflecting on what has changed and what we could still do better.

LGBT Youth Scotland is Scotland’s national charity for Lesbian, Gay, Bisexual, Transgender, Queer & Questioning and Intersex (LGBTQ+) young people aged 13-25. LGBTQ+ young people face unique and additional barriers to realising their potential and that is why LGBT Youth Scotland exists.

They believe Scotland can be a place where all young people can thrive and flourish, and they work alongside young people to remove those barriers; working with young people individually, and amplifying their collective voices to influence change.

If you are interested in submitting your story to the (Un)seen, (Un)heard archive or would like to know more about the project, email unseenunheard@lgbtyouth.org.uk.

For more information on LGBT Youth Scotland, visit: https://www.lgbtyouth.org.uk/

I Care! Join Carers Week campaign

Ask your MP to support carers this Carers Week

Dear supporter,

This Carers Week, we’re calling for greater UK Government support for unpaid carers.

To raise awareness of Carers Week and our campaign, please click the button below and take a couple of minutes to write to your local MP to ask them to support our campaign for greater cross-Government action in support of carers.

We have provided a template letter and ask that you add your own personal experience of caring to this, before sending it. Please forward any response you receive from your MP to policy@carersuk.org so that we can follow up with them, if you are happy to do so.

Click here to write to your MP:

https://technology-trust-news.org/15AY-8B1GO-9R7IOT-55U34F-1/c.aspx

Thank you in advance for your support and for taking part in Carers Week 2023!

Best wishes,

The Carers Week team

19 million people in the UK have provided unpaid care – but haven’t identified as a carer

  • Polling shows nearly three quarters of people (73 per cent) who currently provide unpaid care, or have provided care in the past, have never identified as or called themselves a carer
  • Eight million people who have provided unpaid care have also seen their health and wellbeing suffer
  • Seven charities supporting Carers Week call for cross-Government action and a funded National Carers Strategy

Carers UK, along with six charities, carried out the polling of the general public to coincide with the start of Carers Week. They found that 73% of people in the UK who are providing, or have provided, unpaid care in their lifetime – roughly 19 million people – have not identified themselves as a carer.

The polling also suggests eight million people (31 per cent) in the UK with experience of providing care have seen their health and wellbeing suffer.

The findings demonstrate the need for Government and all areas of society to play a role in supporting millions of people to identify their caring role and get help.

The polling reveals that the vast majority of carers could be missing out on important information, support or advice that could make a real difference to their day-to-day lives.

Nearly half of those who took longer to identify themselves as a carer (46%) said they missed out on financial support as a result of not knowing they were a carer, and 35% missed out on practical support.

This lack of support can leave unpaid carers isolated; unable to take breaks from caring, struggling to look after their physical and mental health, stay in work or education, or manage financially.

Helen Walker, Chief Executive of Carers UK commenting on behalf of the Carers Week charities said: “The fact that the large majority of people who have cared for a friend or family member in the UK haven’t identified or called themselves a carer shows that there is so much to be done to raise awareness of unpaid care and its impact on individuals, whether that be to their finances or physical or mental health.

“Eight million people with experience of care seeing their health suffer is concerning and shows the need for targeted action to support carers.

“Healthcare professionals, employers and wider society have an important responsibility to help people with caring responsibilities get the right support when they need it.

“The Government needs to show that it recognises and values unpaid carers by stepping up cross-government action to support them, alongside a funded National Carers Strategy.”

Providing care is a common experience – the polling shows that 50 per cent of the public have at some point in their life provided unpaid care to a family member or friend with a disability, illness, mental health condition or who needs extra help as they grow older.

The YouGov Poll found that women are significantly more likely to be providing unpaid care than men and are more likely to identify as or call themselves a carer.

People providing unpaid care often fail to identify their caring role because they see themselves primarily as a family member or friend, or the process of taking on a caring role is very gradual as the condition of the person being cared for deteriorates over time. Other barriers include carers being too busy to realise the role they’re undertaking, or not feeling like the amount of support being provided is enough to be identified as a carer.

They may be missing out on Carer’s Allowance, the main benefit for those caring 35 hours or more each week and earning under £139, support from their local council to take a break, or practical support from their local carer organisation.

Running from 5 June to 11 June, the charities supporting Carers Week 2023 are Carers UK, Age UK, Carers Trust, MND Association, Rethink Mental Illness, Oxfam GB and The Lewy Body Society.

Together, they are calling on Government for better recognition of unpaid carers across society so that they can access the vital support they need to carry out their caring role.