Ukraine needs unwanted crutches

Does anyone have unneeded crutches to give away for free? Ewa from the Nasz Dom Foundation is collecting mobility crutches, unwanted by you and NHS, for soldiers and people in Ukraine.

The equipment is then transported free of charge to the city of Poznań in Poland, from where the local Nasz Dom Foundation once a month transports the most necessary items in a van to Ukraine, especially wheelchairs, crutches, dressings (compression bandages, bandages in general, etc.), underwear for soldiers, medicines, etc.

Here is a message from Ewa:

I have heard that people sometimes have old crutches and don’t know what to do with them, NHS doesn’t want them back, so – after consulting with all the saints – I thought that here in Edinburgh we could help by collecting unwanted crutches.

Two transports are already in Ukraine – and from what Voytek – the organizer – said, they are very much expected and very needed. (A lot of people with amputations). These transports are delivered directly to one of the hospitals and to soldiers from the frontline.

Please contact Ewa by emailing edinburghpilton@gmail.com or contacting NASZ DOM – Projekt dla Ukrainy

Open letter urges: Save Lammermuir!

This festival cannot be allowed to disappear’

  • The Lammermuir Festival 2023 came to a close this week while urgently working to secure its future.
  • Nicola Benedetti and Sir James MacMillan add their support for Lammermuir Festival.
  • Open Letter to Creative Scotland signed by 362 musicians, composers, educationalists, politicians, participants, supporters, audience members and local businesses.

The Lammermuir Festival closed its 14th festival earlier this week, one of its most successful yet. The programme was met with great acclaim cited by some music critics as the best programme presented.

Audiences flocked with over 80% of tickets sold, over 30% of which were to new customers. Initial analysis indicates that a little over half of those audiences were local with the remaining travelling to East Lothian to enjoy one of the UK’s best loved classical music events.

This successful edition was set against the backdrop of the festival finding out just days before it opened that Creative Scotland was not supporting its 14th festival, having invested in the event for thirteen years.

Losing the cultural funder’s support this year leaves the festival in an urgent financial position, working hard to find a secure future.

Many of Scotland’s leading musicians have lent their support to the festival’s campaign, most recently Nicola Benedetti and Sir James MacMillan.

Nicola Benedetti said: “Being able to share the best, world-class music making with audiences not residing in our cities but in rural areas is a really important part of our nation’s cultural fabric.

“An aspect we must support and nurture. The Lammermuir Festival has done this brilliantly over the last 14 festivals creating acclaimed events that also enable young artists to develop in the industry, and engage young people in the region to give them deep and extraordinary experiences.

“It would be tragic for Scotland’s music scene if this festival wasn’t supported to continue this work which benefits so many.”

An Open Letter to Creative Scotland has been signed by 362 musicians, composers, education workers, participants, supporters, audience members and local businesses including Steven Obsorne, Andrea Baker, Sean Shibe, Stuart MacRae, Dinis Sousa, Ryan Corbett, Sue Baxendale, Craig Hoy MSP, Douglas Alexander, Martin Brabbins, Sian Edwards, Ruth Ellis, Monica Wilkinson and Alfonso Leal del Ojo.

James Waters, Chief Executive and Joint Artistic Director of the Lammermuir Festival said: “The support and affection for Lammermuir Festival that we have seen pouring in from musicians, education providers, local businesses, supporters and audiences across Scotland and beyond has been incredible.

“We have never been more proud of the festival and what it brings to so many and we will continue to do everything we can to secure its future.”

Letter from supporters of Lammermuir Festival

To Iain Munro, Chief Executive of Creative Scotland and its Chair, Robert Wilson,

We the undersigned appeal to you to save what one audience member has described as a ‘precious jewel of originality and joy’.

According to the panels judging Open Fund applications at Creative Scotland, Lammermuir Festival does not sufficiently align to your priorities.

This is despite having the full support of the Music Officers at Creative Scotland who approved its application and strongly recommended funding without conditions.

This is one of the most acclaimed classical music festivals in the UK, recipient of an RPS award, the highest accolade in its field, and giving work to 350 musicians a year, many of them Scottish. It has a proven record of achievement, appeals to ever-growing audiences and supports performers at all stages in their careers.

It is also a festival which returns £750,000 in economic benefits for East Lothian, on top of its social and cultural benefits, bringing visitors to a region which is underserved for arts, offering audiences international quality music performances and participation opportunities.

If the festival were to not exist, neither would its work with McOpera which engaged 1,700 children, young people and adults as participants and audience through their outreach strand over the last two years. This proved a formative part of so many young musicians’ lives in East Lothian.

This strand of the festival’s work reached out to multiple and diverse local community groups, nurturing children and young people from across 31 different schools, supporting the growth of an Instrumental Music Service and creative organisations (such as Dunbar Voices), bringing to the region international conductors and Scottish creatives, composers, singers and instrumentalists.

It has also regularly provided career placements to students from Edinburgh College, Queen Margaret University, Edinburgh and Edinburgh Napier Universities, National Youth Orchestra of Scotland and the Royal Conservatoire of Scotland.

This decision by Creative Scotland flies in the face of the expressions of support for culture in Scotland, and in particular for festivals, that the First Minister Humza Yousaf, Cabinet Secretary for Wellbeing Economy, Fair Work and Energy Neil Gray, and Cabinet Secretary for the Constitution, External Affairs and Culture Angus Robertson have made in recent days.

The Open Fund process appears to have no strategic overview of provision, and no clear artistic, quality or geographic priorities.

Your process places huge pressure on organisations. Lammermuir Festival was invited to make multiple applications for the same activity with funding decisions taking their nerves to the wire – in this case Creative Scotland passed their verdict on a third application just 16 days before the festival started.

The system needs to change. As it stands it places Scotland’s cultural ecology on a downward trajectory.

Without Creative Scotland’s support the Lammermuir Festival’s future is under threat. Your decision not to fund the 2023 festival, destabilises the organisation and undermines the festival’s ability to plan for or run a festival in 2024 and beyond. In order to secure the future of this festival beyond 2023, urgent support is needed.

As musicians, educators, audience members, supporters, participants, businesses in East Lothian, and community leaders we are utterly appalled at your decision and urgently appeal to Creative Scotland to reverse it in order to save this cultural gem.

This festival cannot be allowed to disappear.

362 signatures which can be viewed on the Lammermuir Festival website: 

https://www.lammermuirfestival.co.uk/open-letter-from-supporters-of-lammermuir-festival-to-creative-scotland/

cc’d

First Minister Humza Yousaf

Cabinet Secretary for the Constitution, External Affairs and Culture Angus Robertson

Minister of Culture Christina McKelvie

Cabinet Secretary for Wellbeing Economy, Fair Work and Energy Neil Gray

Heartbroken mum’s plea: Discuss organ donation with loved ones

A mother who made the brave decision to save the lives of three other people and give another the gift of sight has urged more people to discuss organ donation with their families.

Debbie Young, 53, from Edinburgh, made the courageous decision to donate her daughter’s organs when she died two years ago.

Her daughter, Raechel Waterston was just six days away from her 21st birthday when she suffered a fatal seizure.

Debbie’s decision in the moments that followed saved and transformed the lives of four other people.

Now, as part of Organ and Tissue Donation Week, Debbie is encouraging others to decide which organs they would donate and speak to their loved ones about their decision.

Debbie, a support worker and mum of four, said: “I wish Raechel was here beside me every single day, but it’s a comfort that I could honour her love of helping others even at the end of her life.

“Raechel had learning difficulties and autism and she was sunshine in human form and she thought everyone was her best friend. She loved bowling, films, wearing costumes and interpretative dance. If everyone was like my daughter, the world would be an amazing place.”

Raechel was rushed to the Royal Infirmary of Edinburgh Hospital after the seizure, but the medical teams confirmed that there was no brain activity.

Despite facing the overwhelming loss of her daughter, Debbie bravely asked doctors whether Raechel could become an organ donor.

The specialist nurses in organ donation supported Raechel and her family while transplant teams scanned patient waiting lists across the country to find matching recipients and located three patients who were in desperate need of a transplant.

Raechel’s heart and kidneys saved three people’s lives and her eyes were given to another to help restore their sight. Her lungs were also donated to medical research.

Debbie said: “Raechel would usually sit on my bed while I was getting ready for work. She hadn’t come in which was unusual, so I went into her room and she was lying on the ground unresponsive and her lips and fingers had a blue tinge to them.

“Her favourite film character was Wednesday Addams, so my family and I chose to say goodbye to her on Wednesday at 10pm which was her bedtime. We wished her goodnight and told her we loved her like we usually did. I was the last one to leave the room and it was the hardest thing I ever had to do – to walk away while she was still breathing.”

Two years on, Debbie is still struggling to come to terms with the death of her daughter, but recently wrote a letter to all of Raechel’s organ recipients.

Debbie said: “I wrote a letter to tell them a little about my daughter and I warned them that they might start liking High School Musical because she was obsessed with it! I’ve heard from one recipient, and it’s been such a relief knowing that Raechel saved someone’s life.”

Debbie is urging others to consider what organs they would be happy to donate and to ensure that this decision is recorded on the organ donor register and shared with their family.

“I would really encourage everyone to register their organ donor selections online and to speak to their loved ones about this decision. If your death can help someone else to live, why wouldn’t you want to do that?

“My daughter’s life wasn’t a waste because she saved so many others and I think that’s an incredible feat.”

An NHS Lothian spokesperson said:“It is hugely important that people make the decision to sign up to the organ donor register and then discuss it with their families. Debbie knew right away that her daughter would want to make a difference in her death, just as she had throughout her whole life.

“Although Scotland now has an opt-out policy, it’s still really important to outline what organs you would be happy to donate on the organ donor register. You could help up to nine people if you decide to donate all your organs but having those conversations with your family is crucial.”

For details about organ donation, visit organdonationscotland.org

Renewed appeal to locate the bodies of Renee and Andrew MacRae

Detectives have renewed an appeal for information as they continue efforts to locate the bodies of Renee and Andrew MacRae.

Renee, 36, and her three-year-old son Andrew left their home in Inverness on November 12, 1976.

Their BMW car was discovered on fire in a lay-by near Dalmagarry later that evening. Their bodies have never been found.

William MacDowell, then aged 80, was found guilty of their murders at the High Court in Inverness in September 2022. He died in February 2023.

Detective Chief Inspector Brian Geddes said: “Renee and Andrew’s family and friends waited decades for justice, which was served last year.

“However, their bodies have not been found and our investigation continues to explore all possible opportunities open to us to help answer that final, most important question in order to provide Renee and Andrew with the dignity they deserve.

“We continue to review the available evidence to identify any further areas of interest, while also considering whether there are any opportunities that modern technology could assist with in identifying possible deposition sites.

“This review includes considering any properties which may be linked to William MacDowell which he could have used, possibly a derelict building, an empty one or even an occupied one he had use of.

“The time scale would be the early to mid-1970s and we are hoping someone may remember seeing Renee MacRae’s BMW car in an area perhaps with MacDowell’s company Volvo or the family white Range Rover.

“We are also considering possible sites where they may have met during their relationship, possible including the Blackfold area above Loch Ness, Inverfarigaig, and between Nairnside and Daviot.

“This case will never be considered resolved until we find Renee and Andrew. We owe it to the family and friends to make every effort to recover Renee and Andrew’s bodies and I would urge anyone who may be able to assist, no matter how small you may feel your information is, to come forward.”

Anyone who believes they can assist police is asked to contact 101 or you can email SCDHOLMESInverness@scotland.police.uk. You can also contact Crimestoppers anonymously on 0800 555 111.

Eyre Place planning application: MSP hails ‘power of community’

A Scottish Government Reporter appointed to consider the Eyre Place planning application has dismissed the developer’s appeal and refused planning permission.  

Nearly 400 objections to the planning application 22/0384/FUL (Student Accommodation) 72-74 Eyre Place were received from residents. The residents were largely concerned with the overall scale of the development, its overbearing presence blocking natural light for neighbours, and dense accommodation which would overburden local infrastructure and amenities. 

Many local residents, therefore, felt the proposal was not compatible with the character of the area in terms of use or design and could also increase noise and disturbance due to plans that the top storey of the flats would be dedicated to ‘entertainment’ and karaoke booths. 

On 11 January 2023, it was unanimously agreed by The City of Edinburgh Council’s Planning and Development Management Sub-Committee that a hearing would be held, so that local residents and developers could make their case in the Council chambers, before a final vote was held.

However, the developers, CA Europe Operating Company, appealed, and a Reporter, (a lawyer appointed by Scottish Government Ministers), instead was tasked to decide on the merits of the planning application. 

Foysol Choudhury, list MSP for Lothian, raised deep concerns at the time about the fact that the public hearing would not take place and that the voices of local residents would not be heard, with local democracy being sidelined by the developer’s appeal. 

Responding to the news that the Reporter has now dismissed the developer’s appeal and that planning permission has been denied, Foysol Choudhury MSP said: “My constituents are overjoyed at this result and they should be congratulated for all their hard work in organising as a community, to ensure their concerns about this planning application were heard by elected officials. 

“Many of my constituents told me that the community was in despair, not just because of the proposed development but because they felt the decision to sideline the public hearing led to their voices being silenced. 

“The developers attempted to bypass local democracy and failed in their appeal, which is of course a relief for my constituents, but we must learn lessons so that local democracy is not circumvented like this again in the future.  

“Nevertheless, I am glad that this deeply unpopular planning application has been denied. It’s great to see what can be achieved through the power of community!” 

Local resident, Hannah Edwards, said: Our community is delighted with the Reporter’s decision. It reflects what was obvious to so many when we first saw this aggressive proposal 18 months ago.

“A development of this size on a constrained site would have had a really negative impact on the lives of so many. We’re eternally grateful to each and every person who fought so hard to get the result we were so dearly hoping for.” 

I Care! Join Carers Week campaign

Ask your MP to support carers this Carers Week

Dear supporter,

This Carers Week, we’re calling for greater UK Government support for unpaid carers.

To raise awareness of Carers Week and our campaign, please click the button below and take a couple of minutes to write to your local MP to ask them to support our campaign for greater cross-Government action in support of carers.

We have provided a template letter and ask that you add your own personal experience of caring to this, before sending it. Please forward any response you receive from your MP to policy@carersuk.org so that we can follow up with them, if you are happy to do so.

Click here to write to your MP:

https://technology-trust-news.org/15AY-8B1GO-9R7IOT-55U34F-1/c.aspx

Thank you in advance for your support and for taking part in Carers Week 2023!

Best wishes,

The Carers Week team

19 million people in the UK have provided unpaid care – but haven’t identified as a carer

  • Polling shows nearly three quarters of people (73 per cent) who currently provide unpaid care, or have provided care in the past, have never identified as or called themselves a carer
  • Eight million people who have provided unpaid care have also seen their health and wellbeing suffer
  • Seven charities supporting Carers Week call for cross-Government action and a funded National Carers Strategy

Carers UK, along with six charities, carried out the polling of the general public to coincide with the start of Carers Week. They found that 73% of people in the UK who are providing, or have provided, unpaid care in their lifetime – roughly 19 million people – have not identified themselves as a carer.

The polling also suggests eight million people (31 per cent) in the UK with experience of providing care have seen their health and wellbeing suffer.

The findings demonstrate the need for Government and all areas of society to play a role in supporting millions of people to identify their caring role and get help.

The polling reveals that the vast majority of carers could be missing out on important information, support or advice that could make a real difference to their day-to-day lives.

Nearly half of those who took longer to identify themselves as a carer (46%) said they missed out on financial support as a result of not knowing they were a carer, and 35% missed out on practical support.

This lack of support can leave unpaid carers isolated; unable to take breaks from caring, struggling to look after their physical and mental health, stay in work or education, or manage financially.

Helen Walker, Chief Executive of Carers UK commenting on behalf of the Carers Week charities said: “The fact that the large majority of people who have cared for a friend or family member in the UK haven’t identified or called themselves a carer shows that there is so much to be done to raise awareness of unpaid care and its impact on individuals, whether that be to their finances or physical or mental health.

“Eight million people with experience of care seeing their health suffer is concerning and shows the need for targeted action to support carers.

“Healthcare professionals, employers and wider society have an important responsibility to help people with caring responsibilities get the right support when they need it.

“The Government needs to show that it recognises and values unpaid carers by stepping up cross-government action to support them, alongside a funded National Carers Strategy.”

Providing care is a common experience – the polling shows that 50 per cent of the public have at some point in their life provided unpaid care to a family member or friend with a disability, illness, mental health condition or who needs extra help as they grow older.

The YouGov Poll found that women are significantly more likely to be providing unpaid care than men and are more likely to identify as or call themselves a carer.

People providing unpaid care often fail to identify their caring role because they see themselves primarily as a family member or friend, or the process of taking on a caring role is very gradual as the condition of the person being cared for deteriorates over time. Other barriers include carers being too busy to realise the role they’re undertaking, or not feeling like the amount of support being provided is enough to be identified as a carer.

They may be missing out on Carer’s Allowance, the main benefit for those caring 35 hours or more each week and earning under £139, support from their local council to take a break, or practical support from their local carer organisation.

Running from 5 June to 11 June, the charities supporting Carers Week 2023 are Carers UK, Age UK, Carers Trust, MND Association, Rethink Mental Illness, Oxfam GB and The Lewy Body Society.

Together, they are calling on Government for better recognition of unpaid carers across society so that they can access the vital support they need to carry out their caring role.

Demand for wishes from critically ill children rising fast

The number of wish enquiries from seriously ill children with less than a year to live is rising fast and children’s charity Make-A-Wish UK is calling on people to help to meet this urgent demand now, before it’s too late.  

New statistics by Make-A-Wish, the charity which grants wishes for critically ill children, has revealed that the number of rush or priority wishes for children who have less than a year to live, doubled from 2021 to 2022 from 75 to 151. With 130 of these wishes already granted since September 2022*, that number is expected to go even higher this year.  

More than 63,000 children in the UK have been diagnosed with a critical condition and are eligible for a wish. It’s estimated that by 2030, this figure will have risen to over 73,000 and Make-A-Wish UK is worried that without support, they could soon be forced to turn critically ill children away.  

Jason Suckley, chief executive for Make-A-Wish UK said: “This year we have seen a sharp rise in the number of children with short prognoses. We want every single one of these children to experience the life-changing magic of a wish but sadly, the demand for wishes is growing faster than we can meet it. For these children in particular, every day counts. 

“When a child is diagnosed with a critical illness, the joy of childhood is brought to an abrupt end; replaced by hospital appointments, gruelling treatment plans and endless worry. We’re appealing for the public’s generous support to help make more wishes come true for a critically ill child before it’s too late.

“Families can create lasting memories that they will treasure forever – no matter what the future holds. Their support really does mean everything to the children and families who turn to us.” 

Make-A-Wish currently grants on average about 1,000 wishes a year and right now, 1,124 seriously ill children like Oliver are waiting for their wishes to come true.

At just 18-months-old, Oliver Cheng from Leicester, was diagnosed with the incredibly rare genetic condition, FIG 4 neuro development disorder – a condition so rare it’s believed he’s just one of seven or eight children in the world who have it.  

With no treatment available, no one was sure how long Oliver had to live. “We were told to take lots of pictures and make as many memories as possible,” said mum Lia who wanted to find a way of bringing comfort to Oliver as often as possible, whilst she still could.  

After visiting a hydrotherapy pool and seeing just how relaxed Oliver became in the warm water, the family turned to Make-A-Wish who made Oliver’s wish of having a spa pool at home come true.  

His eyes were glowing,” said Oliver’s mum Lia describing the moment Oliver saw his spa pool for the first time. “He spreads his body out, floats in the water and puts his hands towards the bubbles. He’s not able to do much but this is something fun that he can enjoy every day now and help relieve his pain. 

“We love to just sit and watch him relax. We know that our time with Oliver may be short, but Make-A-Wish have helped us make incredible memories as a family that we couldn’t make on our own. I don’t know how to thank everyone enough for what you have given us.” 

To find out more about how to support Make-A-Wish’s Spring Appeal campaign, visit make-a-wish.org.uk/springappeal.  

Portobello Promenade assault: Do you know this man?

Police Scotland have released an image of a man they believe may have information in connection with an assault which occurred on Friday 17 March 2023 at around 12.15pm at Portobello Promenade.

The man is described as aged 30 to 37, of a medium build and with brown hair. He is between 5ft 11ins to 6ft 2ins and was wearing a grey Nike hoodie, dark coloured jogging bottoms and white Adidas trainers.

Portobello Promenade image

Constable Erin Millar of Police Scotland said: “The man pictured or anyone who recognises the man pictured please contact officers via 101, quoting incident number 1687 of Friday 17 March 2023.

“Alternatively, Crimestoppers can be contacted on 0800 555 111, where anonymity can be maintained.”

Letters: Take on Great North Run challenge for the Stroke Association

Dear Editor

I was honoured and humbled to be given the opportunity to work on Marlon’s stroke journey. It was a complete eye opener into the world of a stroke survivor and I will always be in debt to the Stroke Association and the two amazing stroke survivors who helped show what having a stroke is really like for the 10,000 people who have a stroke every year in Scotland. 

There’s 128,000 stroke survivors in Scotland, and it is still the leading cause of adult disability. Many people don’t realise that the vast majority of strokes – around 80-90% in fact – are preventable.  Stroke is still chronically misunderstood by the public and underfunded in terms of research, which is incredible when you consider those stats.

That’s why I’m asking everyone to get involved in this year’s Great North Run for the Stroke Association

This famous event takes place on Sunday 10 September and although the general ballot is closed, the Stroke Association still has charity places available!

Stroke strikes every five minutes in the UK and it changes lives in an instant. However, with our support, the Stroke Association can help more stroke survivors and their families rebuild their lives after stroke.

For more information and to apply for your place, visit www.stroke.org.uk/events/sporting-fundraising/greatnorthrun    

Thank you,

Mark Charnock

New First Minister must open his eyes to challenges facing vision impaired

EDINBURGH, UK – 14th February 2022: Sight Scotland community service users meet with staff for a social event at Robertson Avenue. (Photograph: MAVERICK PHOTO AGENCY)

Sight Scotland, and its sister charity Sight Scotland Veterans, are calling on the new Frist Minister, Humza Yousaf MSP, to improve inclusivity and accessibility for the vision impaired. 

An estimated 180,000 people are currently living in Scotland who are blind or partially sighted, with this number expected to double by 2031 to almost 400,000. People living with vision impairment face a multitude of challenges on a daily basis, including loneliness, isolation, and social exclusion. 

If we add in spiralling waiting times, the cost-of-living crisis, and growing problems with accessibility in our towns and cities, it is clear to see that more needs to be done to support people living with sight loss across the country. 

Craig Spalding, Chief Executive of Sight Scotland and Sight Scotland Veterans, comments: “As a former Health Secretary, our new First Minister knows the challenges that are facing healthcare and public health in Scotland. 

“You just have to look at the latest ophthalmology waiting times statistics released by Public Health Scotland to realise that the Scottish Government must do better.

“On average 36% of new outpatients had to wait over 16 weeks for eye appointments, a rise of almost 10% in just three months. This number then grows to over 50% in some health boards such as Fife and Lanarkshire.

“People with deteriorating eye conditions just don’t have the time to wait, if ophthalmology waiting times are not improved, many face the very real prospect of permanent damage. 

“The cost of living crisis is also hitting the vision impaired community hard. The majority of people living with sight loss already face additional expenses, such as transportation costs, technology assistance costs and support in the home. 

“They are also forced to spend a lot more time in their home due to vision loss, which makes fuel poverty a very real threat due to soaring energy bills. This is forcing many to cut back on essentials such as food, heating and electricity, which is having a terrible impact on both their physical and mental health.  

“The Scottish Government must address the growing problems of accessibility in Scotland. More streets in Scotland are being transformed to give priority to active travel, but unfortunately there are many instances where these new layouts are dangerous for visually impaired people. 

“Issues centring around cycle paths with no kerbs, floating bus stops and staggered zebra crossings, are causing real safety concerns. Meaningful engagement with communities is key to this so that their lived experience can inform plans that meet the needs of everyone.” 

EDINBURGH, UK – 14th February 2022: Sight Scotland community service users meet with staff for a social event at Robertson Avenue. (Photograph: MAVERICK PHOTO AGENCY)

Spalding adds: “We are looking forward to working alongside the new Scottish Government to help address many of these issues and to develop further the new See Hear strategy and the National Low Vision service. 

“We welcomed the launch of the new eyes.scot website, and the reestablishment of the Graduate Diploma in Low Vision Rehabilitation course at Strathclyde University which is a step in the right direction to ensuring more people with visual impairment have access to specialist support to lead independent day to day lives. 

“A new First Minister and Cabinet present a real opportunity to address these challenges. We welcome the chance to work even closer together to ensure the needs of people living with sight loss are at the top of the agenda.” 

For more information about the activity groups please visit: 

https://sightscotland.org.uk