Category: Leith

‘a system under strain and a need for urgent change’

New data shows the need for support has rocketed over the past five years, revealing a growing crisis across schools, families, and workplaces

As Mindroom marks 25 years of championing neurodivergent children, young people, and adults in the workplace, new data exposes a sharp rise in need across the UK, and a system struggling to cope.

Over the past five years, demand for Mindroom’s support has soared by nearly 300%, with families waiting years for assessments, children missing school due to unmet needs, and parents describing a system “at breaking point.” 

The charity’s latest Impact Report also shows a 62% rise in families seeking mental health support, a 240% increase in training for professionals, and 93% of young people saying they felt more confident after working with Mindroom – proof of both surging need and transformative impact.

“Everywhere we look – classrooms, GP surgeries, workplaces, kitchen tables – the pressure is mounting,” said Alan Thornburrow, CEO of Mindroom.

“Every week, more families come to us saying they simply can’t navigate the system alone. The good news is that public understanding of neurodiversity has grown hugely. The question now is whether our institutions can keep up.”

This comes amid a worsening national picture. A Scottish Parliament report (June 2025) * described a “concerning picture” of neurodivergent care in Scotland, with over 42,000 children and 23,000 adults now waiting for neurodevelopmental assessments, signalling increases of over 500% and 2,200% respectively since 2020.

Some families face waits of up to three and a half years, while in England, reports show children waiting more than four years for an ADHD or autism diagnosis.

Mindroom’s 2024 Impact Report shows the charity handled 25,499 direct contacts on behalf of children and young people last year alone, providing vital one-to-one support and advocacy for families in crisis.

At the same time, its training and consultancy arm grew by 160%, equipping professionals in education, health, and business to create “neuroinclusive communities. But despite this progress, the gap between awareness and action remains wide.

A 2024 national workplace report** found that over half of neurodivergent employees had taken time off due to inadequate support or lack of reasonable adjustments. While neuroinclusion is rising up the corporate agenda, too many workplaces still fall short on psychological safety and practical understanding.

To mark its 25th anniversary, Mindroom is launching new initiatives to expand neuroinclusive practice from classrooms to boardrooms and, over the past three years, the charity has trained more than 10,000 people across sectors, a foundation it now plans to build on through national partnerships, policy advocacy, and expanded training.

“Behind every statistic is a person: a child finally getting the right support in school, a parent who no longer feels alone, or a workplace learning to value difference,” Alan Thornburrow added. “That’s what keeps us going.

“With neurodiversity finally gaining visibility in public life – from government policy to entertainment – we have a once-in-a-generation chance to turn awareness into action. Neurodivergent young people are not a side issue; they are the future workforce.”

Founded in 2000 and inspired by the lived experience of Robin and Sophie Dow and their daughter Annie, Mindroom began as a small Edinburgh charity and now supports thousands of families every year. Its mission – to build a society that champions every kind of mind – is more relevant than ever.

To download the latest Impact Report created by Mindroom (2024), please visit: 2024 Impact Report

For more information or to access Mindroom’s 2024 Impact Report, visit: https://www.mindroom.org

* Neurodevelopmental Pathways and Waiting Times in Scotland

** The City & Guilds Foundation “Neurodiversity Index 2024” finds that 50% of neurodivergent employees say they have taken time off work due to their neurodivergence.