Scottish teenagers are missing out on carers benefit

Young people may be missing out on help because they don’t realise they’re carers

On Young Carers Action Day (13 March) teenagers who look after others are being urged find out if they’re eligible for a grant available only in Scotland. 

Since being introduced in 2019 by the Scottish Government, Young Carer Grant has delivered over £3 million to over 6,600 teenage carers.    

However a leading carers charity says many young people who look after others do not recognise themselves as carers, as they see the support they give as just part of family life. As a result, they do not know they’re entitled to benefits. 

Scottish Government figures suggest around 25% of those eligible for Young Carer Grant in 2022-23 did not apply.  

The Carers Trust has joined Cabinet Secretary for Social Justice Shirley-Anne Somerville to urge teenagers who look after others to recognise their vital caring role and to apply for the support available to them. 

Young Carers Grant, paid by Social Security Scotland, is available to those aged 16-18 who spend 16 or more hours a week looking after someone who gets a disability benefit. 

The grant was introduced in October 2019 by the Scottish Government to help young people with caring responsibilities and is part of a wider package of support for young carers funded by the Scottish Government. 

Paul Traynor, Head of External Affairs (Scotland) at Carers Trust, said: “There are lots of young people caring for a relative, friend or member of their community who don’t realise they’re young carers and could be eligible for financial support.

“They might help someone get dressed in the morning, help with shopping or provide emotional support, for example. The person they look after could have a disability, illness or addiction.  

“Young carers often view this as ‘just helping out’ or ‘part of family life’. It could even be expected as part of their culture. It is vital that all young carers know about their rights, what support they are entitled to, are able to have a life alongside caring and are helped to reach their full potential in all aspects of their lives.” 

Cabinet Secretary for Social Justice Shirley-Anne Somerville said: “I’m pleased that the grant we introduced has been able to deliver over £3 million to young carers in Scotland who are balancing their vital caring role with study or work.  

“However, we know many young people who look after others see the amazing work they do as part of life and do not recognise themselves as carers and so do not realise they can get financial support. 

“I urge any young person aged 16, 17 or 18 who looks after someone else to check if they’re eligible for Young Carer Grant and to apply if they are. It’s money they’re entitled to. 

“The payment is designed to recognise the important role of unpaid young carers and allow them to take part in the same activities as their peers, whether that’s driving lessons, going on a weekend away or buying new clothes.

“The money can be spent on whatever the young person wants.” 

Zainab, who is a young carer said: “I spent my grant on a piano keyboard. I’ve loved to do piano for a very long time but I didn’t have enough funds to buy one as they’re very expensive.

“So I used my Young Carer Grant to buy one and I love it!” 

Young carers may also be eligible for Carer Support Payment from Social Security Scotland or Carer’s Allowance from the Department for Work and Pensions. 

Carer’s Allowance Supplement is also available as an extra payment for people in Scotland who get Carer Support Payment or Carer’s Allowance on a particular date each year.

These dates are available on mygov.scot/carers-allowance-supplement.  

“It’s harder than anyone understands, and I feel like I’m drowning”

New survey identifies that young carers need a break

Carers Trust Scotland calls for more support for young carers after survey finds many feeling stressed, lonely and worried

  • More than one in five (22%) of young carers and young adult carers responding said they feel unable to take a break from caring and 31% don’t get enough rest or time for themselves.
  • More than half (54%) of young carers and young adult carers that responded said the amount of time they spend caring per week had increased in the past year
  • At least a third of respondents said their caring role resulted in them either ‘always’ or ‘usually’ feeling ‘worried’ (36%), ‘lonely’ (33%) or ‘stressed’ (42%)
  • 47% of young carers and young adult carers responding to the survey said they ‘never’ or ‘not often’ got support from their school, college or university in balancing study with their caring role

Findings from a new Carers Trust survey reveal how an alarming lack of support, coupled with a dramatic rise in time spent caring, is leaving many young carers across Scotland feeling ‘lonely’, ‘exhausted’, ‘worried’, ‘burned out’ and ‘stressed’.

The findings were published to mark Young Carers Action Day, an annual event led and organised by Carers Trust to raise awareness of young carers and the challenges they face.

Carers Trust recommendations

Carers Trust Scotland is responding to the survey findings by calling for action to address isolation among young carers and young adult carers. Recommended action includes:

·       More commissioned breaks and respite for young carers and young adult carers. Carers Trust Scotland are calling on Scottish Government to introduce a right to access the regular breaks they need to support positive wellbeing, reduce social isolation, and live a fulfilled life alongside caring.

·       The Scottish Government to do more to monitor how local authorities are meeting statutory duties to identify and support young carers.

·       Education providers, whether schools, colleges or universities, need to take a more integrated and collaborative approach to support. This includes working in partnership with the NHS, local authorities and local carer organisations.

Survey Findings

More than half (54%) of the young carers (aged 18 or under) and young adult carers (aged 16-25) responding to the survey had experienced an increase over the last year in the amount of time they spend supporting siblings and parents with care and support needs.

And one in five of those reporting an increase said they were caring for as much as 20 to 49 hours more per week.

Even before Coronavirus, pressures on the health and social care services meant increasing levels of caring responsibilities were falling too heavily on young carers’ shoulders.

The impact of this overwhelming burden of responsibility was made clear in many of the written responses to the survey.

One young carer said: “I’m more stressed and anxious and I just feel like I need a break”.

Another said: “It’s too much pressure and responsibility for something I didn’t choose.”

And a third young carer revealed: “It affected my friendships as they didn’t understand why they couldn’t come inside the house.”

Coronavirus exacerbates existing pressures on young carers

Those pressures have been greatly exacerbated by the pandemic. Many essential services for those being cared for by young carers were closed because of lockdown. That left young carers and young adult carers to take on even further caring responsibilities.

And while the pandemic is moving into a less acute phase, Covid continues to negatively impact the lives of young carers and young adult carers across the UK. As a result of the pandemic the survey that:

  • 59% said they felt more stressed
  • 52% said they felt less connected to others
  • 46% said their education was suffering
  • 44% said their mental health is worse
  • 41% said they were concerned about their future prospects.

This sense of anxiety in a context of loneliness and isolation is revealed in just a few of the written responses:

‘I never got a break in almost 2 years, I worked hard to keep mum out of hospital as I was scared what would happen if she went in. I never get any thanks or praise for what I do …”

Feels never ending, I’m getting angry all the time with the person I care for although they haven’t done anything because I feel so on edge unable to have a break or get away.”

My mental health is awful, and I really struggle to take time for myself at home. The only time I have away from my family is at school but I don’t even like going to school because I get so nervous for everything and I’m always so exhausted.”

Responding to the survey findings, Carers Trust’s CEO, Kirsty McHugh, said: ‘These stark findings underline the plight of young carers. Too many are left unsupported, struggling to access the services they need with knock on effects to their education, mental health and well-being. 

“We need more investment in social care generally and local care organisations specifically to relieve young carers of the overwhelming pressure so many are under.

“In addition, the NHS must ensure its mental health services prioritise young carer support. Otherwise young carers will continue to be left alone to cope with complex problems and responsibilities that would overwhelm most adults, let alone young people.”

National action plan needed to protect young carers’ futures

·       71% of young carers and 85% of young adult carers are more worried about the future since Coronavirus.

·       45% of young carers and 68% of young adult carers say their mental health is worse since Coronavirus.

·       40% of young carers and 56% of young adult carers feel overwhelmed by the pressures they are now facing

Today, on Young Carers Action Day (March 16 2021), Carers Trust Scotland is calling on Scottish Government to commit to developing a new cross-cutting National Action Plan to protect the futures of children and young people with caring responsibilities.

These plans are urgently needed to address a downward spiral in the mental health of young carers across Scotland, and the adverse impact this is having on their hopes for the future.

A recent Carers Trust Scotland survey revealed high levels of anxiety and stress among young carers. The survey found over two thirds (71%) of young carers aged 12 to 17, and 85% of young adult carers aged 18 to 25 were experiencing increased concern for their futures since Coronavirus.

To address these challenges, Scottish Government’s National Action Plan should include clear actions that can be delivered at pace. They should address education, employability and health and wellbeing prospects among young people with caring responsibilities.

Louise Morgan, Director of Carers Trust Scotland comments: “It is important on Young Carer Action Day to highlight the additional challenges young carers have experienced as result of the pandemic and think about their futures.

“It is vital that Scottish Government introduces a new National Action Plan which is ambitious and ensures young carers in Scotland have the support that they need and are given a fair chance to reach their full potential in all aspects of their lives.”

To Protect Young Carers’ Futures and help make a National Action Plan for young carers a reality, Carers Trust Scotland is working with young carers across Scotland to ask statutory bodies to make meaningful commitments to deliver young carers’ rights across health, social care, education and employment. 

Speaking about her hopes for Young Carers Action Day, Ilse Cuthbertson a young carer and Member of the Scottish Youth Parliament for Carers Trust Scotland, (above, right) said: “The Young Carers Action Day Steering Group chose to focus on protecting young carers futures.

“This theme fits in perfectly with this year, as due to the pandemic it is now more important than ever that we protect the futures of young people with caring responsibilities.”

Welcoming the call for a National Action Plan to protect young carers’ futures, world-leading researcher on young carers’ rights and Carers Trust Ambassador, Dr Saul Becker, said: “During the pandemic, we have seen millions of people, rightly, furloughed to stay at home, paid by the government and told they must NOT work.

“On the other hand, carers of all ages, and especially carers under the age of 25, have been forced to stay at home because schools have closed, health and social care services have been cancelled, and young carers have taken on many of the responsibilities of statutory and other service providers, often on a full-time basis.

“It’s young carers’ turn for recognition and support. We desperately need national and local action plans to make sure that young carers are not left behind; that they are no longer ignored and invisible. We must safeguard their futures – and see this as a sound investment not a cost.”

Employers called on to protect young carers’ futures

Carers Trust is also urging employers to protect young carers’ futures by acknowledging the unique skills and attributes young carers develop from an early age, such as time-management skills, resilience, empathy and a sense of responsibility for others.

We are already working with our corporate supporters to develop resources and provide experience to facilitate young carers’ pathways into employment:

  • with funding from the People’s Postcode Lottery we are building an internship training programme for young people with caring responsibilities.
  • the financial services group, Quilter, have supported us in setting up a Steering Group for young carers and young adult carers to come together to plan.
  • with support from the leading online florist Bloom and Wild we are developing a series of workshops for young carers to gain invaluable workplace experience and insights.