One in two people with arthritis said their condition impacted their ability to work. Of these, four in ten people have stopped work due to their arthritis
Millions of people with arthritis are not receiving timely diagnoses or adequate treatment and left to face avoidable pain and often unable to work, according to a report by the charity Arthritis UK (formerly Versus Arthritis).
Arthritis affects one in three people across Scotland and is a leading cause of disability, yet the condition remains largely misunderstood and many with the condition are not receiving the care and support they urgently need.
As a result, people with arthritis are living with levels of pain, fatigue, mental health challenges and financial strain, according to the report that publishes today.
Arthritis UK, which was previously known as Versus Arthritis, has worked with YouGov to survey almost 8,000* people representative of the population affected by this condition, of which 1,021 are from Scotland.
It has revealed that of the people surveyed in Scotland, more than one in two (56%) said that arthritis had impacted their ability to work. Of these, four in ten people (40%) have stopped work due to their arthritis and over a third of retired people (38%) said arthritis played a part in their decision to retire.
Left Waiting, Left Behind: The Reality of Living with Arthritis presents the reality of living with the condition through lived experiences and personal stories, and also shows that the impact of arthritis is unequal with people from lower social grades reporting worse experiences from all areas of life.
It concludes that people with arthritis face widespread challenges in accessing effective treatment and support, long delays to secure a diagnosis and lack of treatment options once a diagnosis is made.
More investment, improved services and better training for frontline healthcare professionals are urgently needed to avoid further adversely impacting the lives, relationships and work opportunities of this large group.
Lauren Bennie, Arthritis UK’s Head of Scotland, said: “More than 1,000 Scots have bravely shared their experiences of living with arthritis and musculoskeletal conditions in Scotland with Arthritis UK. As the leading charity for people with arthritis, we know the reality facing our nation’s workforce.
“Far too many people in Scotland are being pushed out of work because of arthritis.
“This includes one in three people diagnosed with rheumatoid arthritis on day one of the Scottish Parliament who will have left the workplace by the end of that same Parliament. What kind of legacy is that for any party in government?
“This is a public health issue that demands urgent action. As the Scottish Government selects which health conditions will receive dedicated action plans within the upcoming Long Term Conditions Framework, Ministers and civil servants alike, must recognise arthritis as a major public health challenge and act now to prevent further avoidable harm.
“With a dedicated action plan, we can ensure every Scot has the right to live the life they choose in a future Scotland free from arthritis.”
The report’s other key findings include:
- one in three people (33%) surveyed say arthritis severely or very severely impacted their life in the past year.
- six in ten people (62%) are living in pain most or all the time due to their arthritis.
- Nearly four in ten people (37%) surveyed felt their condition was not well managed.
- nearly one in two people (49%) felt their symptoms were not taken seriously or were underplayed by a frontline healthcare professional when they were trying to identify their arthritis.
- nearly one in two people (45%) reported their ability to exercise was affected severely or very severely by their arthritis symptoms – even though being active can be important in preventing other long-term conditions.
- Nearly 7 in 10 people (69%) said that waiting for treatment had an impact on their mental health
People in lower social grades, younger adults and those with autoimmune inflammatory conditions are disproportionately impacted by arthritis, facing greater challenges across all areas of life and more frequent barriers, the report identifies.
Across the UK, the survey found of those who reported arthritis having an impact on their ability to work 28% of those in higher social grades reported stopping work due to arthritis compared to nearly half (49%) of respondents from lower social grades.
People with arthritis are being financially squeezed as the condition can increase the personal cost of living, while impacting the ability to earn. Arthritis affects every aspect of life, from physical health to relationships and mental health, with barriers to effective care are preventing people from living the lives they want to lead, the report concludes.
Deborah Alsina MBE, Chief Executive of Arthritis UK, said: “Too many of the 10 million people in the UK living with arthritis are being left unsupported and left to face daily pain, without timely diagnosis and adequate treatment.
“This erodes their quality of life and damages the prospect of economic growth. This report shows us that huge numbers of people with arthritis are falling out of work and risk being pushed into poverty. The further tragedy is that much of this is avoidable.
“Arthritis is grossly misunderstood, with diagnoses too often delayed or absent. We must tackle the misconception that arthritis is an inevitable part of ageing and improve the diagnosis rates and the treatment available, especially as the number of people with arthritis increases*. We are sitting on a ticking timebomb of costs that the country will struggle with if it is not properly identified as a major risk to public health.”
One of the many reasons arthritis must be considered a major risk to public health is it is a gateway condition, increasing the risk of other serious diseases like cardiovascular disease and depression. We cannot afford to miss or mistreat arthritis as it can be a warning sign that patients could accumulate other conditions, and with more rapid progression, Ms Alsina added.
Arthritis UK has called for improved training for frontline healthcare professionals to enable more timely diagnosis and to improve support for people with arthritis. Children and young people all too frequently experience delays in diagnosis, in particular.
It has also concluded government must prioritise arthritis and muscular skeletal conditions. To this end it would like to see the Scottish Government create a dedicated action plan for arthritis within the Long Term Conditions Framework, which is currently being reviewed, alongside multi-year investment in orthopaedic surgery to reduce waiting times.
Arthritis UK was previously known as Versus Arthritis and has changed its name and look (Tuesday 14 October) following consultation with people with the condition.
This research showed that the new name would improve visibility and ensure more people are aware of the information and support that Arthritis UK offers, which will lead to more people with arthritis being supported to live the lives they want to live.
Arthritis UK provides hands-on support services and advice, trains healthcare professionals throughout the NHS, and is the largest dedicated funder of arthritis research globally.
Arthritis UK’s new website and support tools can be found at www.arthritis-uk.org.