Infected Blood Compensation Scheme

Statement from the Minister for the Cabinet Office on the Infected Blood Compensation Scheme

With permission, Mr Speaker, I would like to make a statement following the final report of the Infected Blood Inquiry.

Yesterday, the Prime Minister spoke about the anguish the infected blood scandal brought to those impacted by it. I want to reiterate his words and apologise again today. I am sorry.

The Prime Minister also spoke – on behalf of the whole house – of our gratitude to Sir Brian Langstaff and his team, for completing his comprehensive report…

I think seven volumes, two and a half thousand pages…

 …and of our appreciation of all those who came forward as part of the inquiry.

It was the greatest privilege of my ministerial career to have met over 40 representatives of the infected blood community…

…in Cardiff, Edinburgh, London, Belfast, Birmingham and Leeds…

… as we finalised our response to compensation for this appalling tragedy.

 The whole community’s bravery through immense suffering is what has enabled justice today…

…I know many of them will be watching  in the gallery today….

…and I want to honour their fortitude through their unimaginable pain, as I lay out a more detailed response to Sir Brian’s second interim report on compensation.

We will provide the House with a further opportunity to debate the Inquiry’s full report after the Whitsun recess.

The Government will also respond to each recommendation in full as quickly as possible within its comprehensive response to the report.

Compensation

Mr Speaker, the Prime Minister confirmed yesterday that the Government will pay comprehensive compensation to those who have been infected and affected as a result of this scandal.

I will now set out to the House the scheme the Government is proposing

…. And of course, more details of the scheme will be published online today.

 (ALB, Eligibility, Burden of Proof)

We are establishing the Infected Blood Compensation Authority, an arm’s length body to administer the compensation scheme.

A shadow body has already been set up and an interim CEO has been appointed…

…and today I am delighted to announce the appointment of Sir Robert Francis as the interim Chair of the organisation.

The experience and the care that Sir Robert will bring to this role will ensure that the scheme is credible and trusted by the community…

His support in delivering this scheme will be invaluable.

Mr Speaker, those who have been infected or affected – as a result of this scandal – will receive compensation.

To be crystal clear…

…if you have been directly or indirectly infected by NHS blood, blood products or tissue contaminated with HIV or Hepatitis C…

 …or have developed a chronic infection from blood contaminated with Hepatitis B …

…you will be eligible to claim compensation under the scheme.

And where an infected person has died, but would have been eligible under these criteria, compensation will be paid to their estate.

And this will include where a person was infected with Hepatitis B and died during the acute period of infection.

But, Mr. Speaker, Sir Brian could not have been clearer.

It’s not just the harm caused by the infections that requires compensation…

…it’s also all the wrongs suffered by those affected that must also be compensated for.

So, when a person with an eligible infection has been accepted onto the scheme… 

…their affected loved ones will be able to apply for compensation in their own right.

That means partners, parents, siblings, children and friends and family who have acted as carers of those who were infected are all eligible to claim.

Now I am aware that being asked to provide evidence of eligibility will likely be distressing.

So I am determined to minimise that as much as possible.

And I am pleased to confirm today that anyone already registered with one of the existing Infected Blood Support Schemes will automatically be considered eligible for compensation.

Loss Categories

Mr Speaker, I would like to give thanks to the dedication and hard work of Professor Sir Jonathan Montgomery and the other members of the Expert Group…

 … who were critical in advising on how the Government could faithfully translate the recommendations of Sir Brian for the scheme.

And in line with our previous commitment, we will publish the names of those experts today.

Now in his report Sir Brian recommended compensation be awarded with respect to the following five categories.

 An Injury Impact Award…

…acknowledging the physical and mental injury caused by the infection.

A Social Impact Award…

…to address any stigma or social isolation as a result of the infection.

An Autonomy Award…

 … acknowledging how family and private life was disrupted during this time…

A Care Award…

 …to compensate for past and future care needs of anyone infected…

And finally, a Financial Loss Award…

 …for past and future financial losses suffered as a result of the infection.

The Government accepts this recommendation…

…with two small refinements, informed by the work of the Expert Group, and designed for simplicity and speed. Two other principles that Sir Brian asserted.

First, the Care Award will be directly awarded to the person with the infection…

 …or their estate.

And second, the Financial Loss Award will be paid either directly to the person with the infection, or

 …where an infected person has tragically died before the establishment of the scheme, their estate and affected persons who were dependent on them…

Now,sadly many people have links to multiple individuals who were infected, or are both infected themselves and affected by another’s infection…

…so multiple injury awards will be offered to reflect the scale of the loss and suffering.

The scheme will be tariff-based. And we will be publishing an explanatory document, including examples of proposed tariffs on gov.uk.

However, Mr Speaker, this is not the end.

Over the next few weeks Sir Robert Francis will seek views from the Infected Blood Community on the proposed scheme before its terms are set in regulations, to make sure that the scheme will best serve those it is intended for.

Now, Sir Robert has welcomed the Government’s proposals as positive and meaningful. He will set out more details on engagement with the community shortly.

Payment Process

The Inquiry recommended that the scheme should be flexible in its award of compensation…

…providing options for a lump sum or regular payments.

We agree, and that is why awards to living infected or affected persons will be offered as a lump sum or periodical payments.

And where the infected person has died, estate representatives will receive compensation as a single lump sum to then distribute to beneficiaries of the estate as is appropriate.

We will also guarantee that any payments made to those eligible will be exempt from income, capital gains and inheritance tax…

…as well as disregarded from means tested benefit assessments.

We will also ensure all claimants are able to appeal their award…

 …through both an internal review process in the Infected Blood Compensation Authority…

…and, where needed, the right to appeal to a First-tier tribunal.

And our expectation is that final payments will start before the end of the year.

Now, Mr Speaker, if you would permit, I would like to return to the House when the regulations are laid later this year…

…to make a further statement on an update on the delivery of the compensation scheme.

Support Schemes

But, I know from my discussions with the community just how important the existing Infected Blood support scheme payments are to them.

 I recognise that many people sadly rely on these payments …

 …and they are rightly keen to understand what the Government’s intentions are.

 And I want to provide reassurance to all those out there today…

…that no immediate changes will be made to the support schemes.

Payments will continue to be made at the same level until 31 March 2025…

 …and they will not be deducted from any compensation awards.

 From the 1st April 2025, any support scheme payments received will be counted towards a beneficiary’s final compensation award.

This will ensure parity between support scheme beneficiaries, regardless of whether they were the first or the last to have their compensation assessed by the Infected Blood Compensation Authority.

And we will ensure that no-one…no-one, receives less in compensation than they would have received in support payments.

Interim Payments

Now Mr Speaker, I recognise that members of the infected blood community are still dying each week from their infections.

And there may be people, indeed there will be people listening today…

…who are thinking to themselves that they may not live to receive compensation.

So, I want to address some of those concerns too.

Today I am announcing that the Government will be making further interim payments ahead of the establishment of the full scheme.

Payments of £210,000 will be made to living infected beneficiaries – those registered with existing Infected Blood Support Schemes…

…as well as those who register with a support scheme before the final scheme becomes operational…

…and the estates of those who pass away between now and payments being made.

 I know that time is of the essence…

 …which is why I am also pleased to say they will be delivered within 90 days, starting in the summer.

 ….so that they can reach those who need it so urgently most.

Memorial

Mr Speaker, before I conclude, I would like to turn to the matter of memorialisation.

Many of those who were infected by contaminated blood or blood products have since died…

…died without knowing that their suffering and loss would be fully recognised, either in their lifetime or at all.

The lives of most of those who have died remain unrecognised.

And I note Sir Brian’s recommendations on memorialisation across the UK…

…and the Government will address these recommendations in detail as part of our wider response to this report.

Conclusion

So in conclusion, Mr Speaker, I know that the whole House will want to join me in thanking Sir Brian and the Inquiry for the work that they have done…

…and pay tribute to all those who have been caught up in this terrible tragedy and battled for justice for so long.

Yesterday was a day of great humility for everyone implicated by this Inquiry…

…and today, I can only hope – with the Inquiry’s report published, and with our firm commitment to compensate those touched by the scandal – the infected blood community knows their cries for justice have been heard.

Mr Speaker, I commend this statement to the House.

Apology to victims of infected blood scandal

First Minister makes statement in parliament

First Minister John Swinney has formally apologised on behalf of the Scottish government to everyone who has been infected or affected as a result of infected NHS blood or blood products in Scotland.

On Monday, the Infected Blood Inquiry Chair Sir Brian Langstaff made clear in the report that the situation was a result of “systemic, collective, and individual failures”.

The First Minister said: “More than 30,000 people across the UK were infected by contaminated blood products and transfusions between the 1970s and 1991 – with around 3,000 of those here in Scotland. 

“That is 3,000 families in Scotland who have faced decades of unnecessary heartbreak and pain. They have been failed by the organisations and process that should have been in place to protect and support them and I am sorry.

“Those infected and impacted by this tragedy have worked tirelessly to ensure that its impact, and their suffering, is not ignored – and to ensure that what they have endured is never repeated.

“People who were infected with HIV or hepatitis as a result of NHS treatment have endured unimaginable suffering, and I know that Infected Blood Inquiry report published yesterday, will not heal wounds nor bring back those love ones who have been lost. I do, however, hope that it is a step forward in the journey towards a semblance of justice and a better future.  

“The Scottish Government has already accepted the moral case for compensation for infected blood victims and we are committed to working with the UK Government to ensure any compensation scheme builds on the interim compensation which was paid out in 2022 and works as well as possible for victims.

“The Scottish Government will take forward the Inquiry’s recommendations for Scotland along with charities representing the infected and affected.

“We are determined to use the Inquiry’s report to ensure lessons have been learned so a tragedy like this can never happen again.  The Scottish National Blood Transfusion Service has extremely high standards of blood safety and I would continue to encourage anyone who can do so to give blood, as this remains essential for thousands of patients.”

Brock calls for speedy action for the victims of the infected blood scandal

Deidre Brock MP has called for compensation for the victims of the infected blood scandal to be put in place without further delay.

The Edinburgh North and Leith MP formally handed in a petition to the UK Parliament on behalf of her constituents, prior to the final report of the Infected Blood Inquiry being published on Monday May 20th.

The petition calls on the UK Government to implement the findings of the second interim report published in April 2023, which has already provided recommendations about compensation.

The inquiry Chair Sir Brian Langstaff made clear at the time that the compensation scheme should be set up straight away, to avoid adding to the decades-long delays people had already suffered, yet over a year later there is still no clarity and no timeframe has been set for payments.

The petition was led in Edinburgh North and Leith by Deidre Brock’s constituent Justine Gordon-Smith who, together with her sister Rachel lost their father, Mr Randolph Peter Gordon-Smith, to the contaminated blood scandal in deeply traumatic circumstances.  They have been tirelessly campaigning ever since.

Ms Brock said: “I am handing in this petition on behalf of everyone in Edinburgh North and Leith who is working so hard for justice – people who received infected blood, their carers and the families of those who have been lost in the worst treatment disaster in the history of the NHS.

‘The moral case for compensation has long been accepted by government, so what are we waiting for? More delays merely worsen people’s suffering.

‘It’s a tragic truth that people who were infected are dying while the government dithers over the justice they and their families deserve.

‘The interim report was clear that they should go ahead with compensation immediately and that was published over a year ago.

“When will they lay out a clear – and short – timeframe for victims to get the compensation they’ve been waiting decades to receive?  Or is the UK Government planning to kick this into the long grass again until they are kicked out of office?

‘I commend the efforts of my constituent Justine who has been tireless in her fight for equitable treatment for all those affected. I stand squarely with her, her sister and everyone who has suffered as a consequence of this scandal. They have already struggled enough and this battle for compensation is one they should not have to keep fighting.

‘I urge the government to finally do the right thing and deliver justice to the victims of the infected blood scandal.”

Dogstar Theatre Online: Factor 9

Factor 9 by Hamish MacDonald

from the testimonies of Bruce Norval and Robert Mackie

Online release date: Wednesday July 15, 2020

The UK Government’s Infected Blood Inquiry began public hearings in April 2019, five years after Dogstar opened Factor 9, Hamish MacDonald’s play about the scandal, as part of the Umeå 2014 European Capital of Culture in Sweden

The Inquiry continues and Factor 9 remains as relevant now as when it opened.  Indeed, some of those at the heart of the 35-year campaign for justice cite Factor 9 as a significant influencer towards the granting of the public inquiry. 

Dogstar Theatre Online will release our production with Vimeo on Demand on Wednesday July 15, adding to our current online offer The Tailor of Inverness and Brian Ross and Hopscotch Films’ outstanding documentary Circling A Fox.

The infected blood scandal is now recognised as the greatest healthcare disaster in the history of the NHS.  Factor 9 has been seen by health ministers and other leading politicians in both the Scottish and Westminster governments, and by all leading members of the inquiry, including its chairman, Sir Brian Langstaff.

There is an uncounted legion of victims across the world.  Official figures in the UK cite around 5,000 people who were infected with HIV and Hepatitis through the administration of contaminated blood products during the 1970s and 80s. 

Half of this number are now dead as a result and new deaths occur every month.  There are no figures for the infection of spouses, children, and other relatives.

The multi-media performance tells the true story of two Scottish haemophiliacs, Bruce Norval from Inverness and Rab Mackie from the Scottish Borders, and how their lives were devastated from an early age by NHS-prescribed blood clotting products.

With tremendous performances by Matthew Zajac (Bruce) and Stewart Porter (Rab), Factor 9confronts how society can react towards its most vulnerable in the moment of a pandemic – and what can happen in the name of medical research.

In the enclosed world of the abandoned ward, a decades-long struggle with government and health authorities for recognition and truth unfolds, taking an uncompromising journey from the 1940s Nazi military-industrial complex to the 1960s Arkansas prison system via the 1980s AIDS crisis to the haemophilia clinics of Scotland, asking, how could this happen?

Director Ben Harrison said “When Hamish and Matthew approached me with the subject, I saw a great opportunity to uncover theatrically a great scandal.

“We hoped to achieve a similar balance between the visually compelling and the emotionally powerful that Matthew and I achieved with The Tailor of Inverness. The betrayal of the principle of care that lies at the heart of the story will I am sure both touch and anger audiences.” 

Composer/sound designer Pippa Murphy, set and costumes Emily James, lighting Paul Claydon

The 2014 production was supported by Creative Scotland and produced in association with leading Swedish theatre company Profilteatern and Umea 2014 European Capital of Culture.

www.vimeo.com/ondemand/factor9

www.dogstartheatre.co.uk  www.taintedblood.info

Running time: 84 minutes

The production contains strong language. Age suitability 14+