Starts tomorrow: Free Wellness Workshops at Salvation Army

Edinburgh Food Project is running FREE weekly Wellness Workshops from 28th September – 30th November and everyone is welcome!

We meet in Granton Salvation Army every Tuesday from 11am – 1pm – we can’t wait to see you all there!

PCOS Awareness Month

Half of UK women can’t identify the main symptoms

Polycystic Ovary Syndrome affects up to 13% of women and can lead to cancer and infertility, but two-thirds of women are unable to identify symptoms like weight gain and hair growth

September is PCOS Awareness Month and new research has revealed that more than half of UK women can’t identify the main symptoms, despite the condition potentially leading to cancer and infertility.

The survey, conducted by Livi, the digital healthcare provider, asked 1,000 women about the most common signs of Polycystic Ovary Syndrome (PCOS).

The complex disorder causes elevated levels of sex hormones and affects 8-13% of women and people with uteruses globally. In the long term, it can lead to a higher risk of type 2 diabetes, cardiovascular diseases and uterine cancer.

The most common symptoms of PCOS include:

  • Irregular periods, long gaps between periods, or no periods
  • Excessive hair growth on the face, chest and abdomen
  • Weight gain
  • Acne

However, the majority of women don’t recognise these as potential symptoms of PCOS. 

When asked to identify the signs, almost half failed to select irregular periods (47%) and around two-thirds didn’t pick excessive hair growth (63%) and weight gain (67%).

Acne is the least well-known PCOS symptom, with four out of five (80%) UK women not acknowledging it as a possible red flag. 

Millennials (25-34-year-olds) are the least likely age group to know what to look for, despite most PCOS diagnoses happening when women are in their 20s or 30s.

The PCOS symptoms that people are least aware of are:

1) Acne – 80% (didn’t identify as a symptom)

2) No periods – 77%

3) Long gaps between periods – 70%

4) Weight gain – 67%

5) Excessive hair growth – 63%

Two in five (40%) people selected at least one incorrect symptom. Nausea (16%), increased sweating (15%) and insomnia (14%) are the most likely signs to be mistakenly identified as PCOS.

Many women discover they have PCOS when they see a GP about possible fertility issues.

Dr Elisabeth Rosen, Lead GP at Livi and a specialist in gynaecology and obstetrics, explains the link: “As PCOS is a condition that causes problems with the release of eggs from the ovaries, it can make getting pregnant more difficult.

“Polycystic ovaries contain fluid-filled cysts known as follicles, in which eggs develop but usually never mature enough to ovulate. This affects the menstrual cycle, leading to irregular bleeding and problems ovulating.”

If you’re concerned about symptoms, Dr Rosen advises speaking to a doctor and says you can help speed up a diagnosis by keeping track of symptoms and your menstrual cycle.

“Keep track of your symptoms and menstrual cycle to help you spot patterns. You can use a cycle tracker app or a physical diary. A doctor will ask questions about your symptoms and experiences and then refer you for a blood test to check your hormone levels. They will also request an ultrasound to check for signs that your ovaries are polycystic.”

For more information about PCOS, including further advice on getting diagnosed, visit: https://www.livi.co.uk/your-health/severe-period-pain-endometriosis-or-pcos-how-can-you-tell-the-difference/ 

NHS Lothian: Free flu vaccine info

Flu vaccinations are already underway for 2 to 5-year-olds, primary and secondary school children.

Everyone else that is eligible for the free flu vaccine will be invited soon.

There’s no need to do anything just now and you don’t need to call your GP.

To find out if you’re eligible visit www.nhsinform.scot/flu

Three brothers’ lives saved by kidney donors

Three brothers with a rare genetic kidney disorder have all now received life-saving kidney transplants within three years of each other, thanks to organ donors across the UK.

John, Bill and Robert Whiteford all suffer from autosomal dominant polycystic kidney disease (ADKPKD) – a genetic degenerative illness which sees kidney function gradually decrease to the point of failure, meaning all would have required ongoing dialysis.

Luckily, thanks to donors, the brothers all have a brand new lease of life, and a new kidney, with John Whiteford successfully receiving his transplant last week at the Queen Elizabeth University Hospital, following seven months of dialysis.  

Each brother received their kidney through separate routes – each with their own unique story – but all being reliant on donors.

Mr Marc Clancy, lead consultant for transplant surgery at NHSGGC, who also performed John’s transplant, said: “The three brothers highlight the different routes people can receive transplants and we’re delighted to have been part of the process for John and Bill, as well as John’s daughter Sonia’s kidney donation. Furthermore, it’s fantastic to see them all recovering, albeit at different stages, and we wish them well for the future.

“Across NHSGGC we’ve been fortunate in being able to maintain a full kidney transplant service across the West of Scotland Renal Transplant Centre. This means a total of 224 transplants have taken place since April 2020.

“Thanks to the new opt-in rules which came into effect earlier this year we expect the numbers of transplants to take place across the UK to increase upwards of 30% over the next 5 years. This is fantastic news for our patients, and despite the pandemic, we are in a strong position within NHSGGC and anticipate similar growth in figures within our own service.” 

Meet the brothers

John Whiteford – received a kidney through the Living Kidney Sharing Scheme

John, who was discharged earlier this week, received his transplant at the Queen Elizabeth University Hospital, thanks to his daughter Sonia who was not a match, but was happy to donate her kidney as part of the UK Living Kidney Sharing Scheme. The scheme means if a donor is unable to donate directly, as was the case here, they are registered in a national scheme which matches them up with other pairs throughout the UK. This means Sonia’s kidney helped save a life elsewhere, while another donor’s kidney was given to John.

The retired minister, who is married with four children, is looking forward to getting his life back on track, and especially to spending time back in Sweden where his wife is from. 

John said:  “I am massively thankful to everyone working in dialysis and in the transplant arena. The team at the QEUH was excellent throughout and the care has been second to none. 

“I couldn’t believe it when I was matched, it really is life changing news. The dialysis keeps me alive but I’m tethered to a machine three days per week and you’re energy levels are low. Transplant is the long-term solution and I’m incredibly thankful to my daughter Sonia, and to the UK Living Kidney Scheme.” 

Daughter and 38 year old mum of two, Sonia, said: “The Living Kidney Sharing scheme has allowed me to help my dad and that is a huge privilege and an amazing thing to be part of.

“I can already see him getting better and his kidney function is improving every day. There’s a real feeling of joy and relief at the same time, and while I was only discharged this week, I’m already feeling my energy levels returning. As a mum of two getting that back fully is essential! 

“The genetic condition which runs in our family means 50% of us will have kidney issues so we really are all in this together, and it’s inspiring to see how well programmes like the Living Kidney Sharing scheme work in practice.”

Bill Whiteford – received a kidney from a friend 

Retired BBC journalist Bill Whiteford is well on his way to recovery having received his kidney two weeks ago at the Queen Elizabeth University Hospital (07/08/21). Bill was lucky enough to have a friend who turned out to be a match.

Bill, who worked for the BBC for years, presenting the likes of Good Morning Scotland and BBC Drivetime, commented: “First and foremost I am grateful to my friend. It’s a massive decision to give up a kidney and I am humbled for his support, without which, I would inevitably still be on the waiting list and fast approaching the need for regular dialysis.

“I’d urge everyone to consider donating an organ – whether that’s through the living donor programmes or by having that important conversation with family to let them know your organ donation wishes in the event you pass away.”

Robert Whiteford – received his kidney from an altruistic donor through the Living Kidney Sharing Scheme

Robert, 67, was the first of the brothers to receive a kidney transplant. The retired vet who stays in Scone also received his kidney through the Living Kidney Sharing Scheme, with ex-wife Linda donating her kidney as part of the process. Luckily Robert was matched up in the first round of checks which meant he was able to avoid going on to dialysis.  Three years on and he remains extremely grateful to Linda and the altruistic donor he was matched with through the programme.

Robert said: “I started developing symptoms around 10 years ago, and following a scan it was confirmed that I had the condition. Following that, my kidney function gradually fell to 8% but luckily through the programme I was matched very quickly.

“I’m extremely thankful to Linda and the altruistic donor, who joined the Kidney Sharing programme and helped facilitated my transplant, and others.

“I would tell anyone who is considering donating to a friend or loved one, to seriously consider the programme – even if you’re not a match, by donating your kidney you can ensure your loved one is matched with someone else.”

Scottish researchers investigate new treatment for diabetes to combat sight loss

Researchers in Scotland are investigating a new treatment for diabetes which they hope could reduce one of the most common complications of the condition – sight loss.

The team of scientists, funded by the British Heart Foundation (BHF), are aiming to find new ways of preventing diabetic retinopathy (DR) and have been given a grant of £286,000 for the study, which is being led by Professor Mirela Delibegovic in collaboration with clinical colleagues Professor John Forrester and Dr Lucia Kuffova at the University of Aberdeen.

People living with cardiovascular disease and high blood pressure can develop a condition called retinal microvascular disease and this is increased in the presence of diabetes.

Diabetic retinopathy is one of the most common complications of diabetes. Those with DR develop damage, often permanent, to the retina – the light-sensing layer inside the eyeball – and as a result, are at risk of losing their sight.

People in the UK known to have diabetes are offered retinal screening once a year to detect signs of changes in the retina caused by DR. This new project aims to identify physical signs of DR when they occur, but before they lead to loss of vision, and to help find treatments to prevent it from developing.

Professor Delibegovic (above), who is the Director of the Aberdeen Cardiovascular Disease Centre at the University of Aberdeen, explains: “Given its nature, DR is a significant and worrying complication of diabetes and so it is important that we understand more about it and find ways to reduce and prevent it.

“In addition, as Type 2 diabetes – the most common type of diabetes – can often go undetected and undiagnosed for many years, up to 40% of people with Type 2 diabetes already have signs of DR when they are first diagnosed with the condition. Being able to intervene sooner could make a real difference for people living with diabetes.”

Over the next 3 years, the team will investigate if inhibition of an enzyme, called PTP1B, will lead to protection against retinal microvascular disease and diabetic retinopathy.

The BHF is the largest independent funder of research into heart and circulatory diseases in Scotland and this project is one of more than 100 research projects currently underway in ten universities across Scotland.

James Jopling, Head of BHF Scotland, said: “This is an important project which could benefit patients living with heart and circulatory disease and diabetes. As such, it is vital we understand more about diabetic retinopathy.

“Research projects like this one in Aberdeen help inform how we treat patients, identify those at particular risk and ultimately find new ways to save and improve lives.”

For more information on the BHF’s life saving research and the work of the BHF visit www.bhf.org.uk

Dentist say seize the moment, as CMOs back water fluoridation

The British Dental Association has welcomed the new joint statement from all four UK Chief Medical Officers highlighting the benefits of water fluoridation in reducing tooth decay.

The BDA fully supports community water fluoridation as a safe and effective public health intervention, as part of a package of measures to improve dental health, where technically feasible and appropriate for local needs. The Health and Care Bill, currently before Parliament, is set to simplify the rollout of the policy in England. Dentist leaders are now urging all 4 UK administrations to restate their positions on water fluoridation in light of the statement.   

Public Health England modelling shows water fluoridation more than pays for itself in medium term, owing to reduction in treatment need. £1 spent equates to £12.71 savings in five years, rising to £21.98 in ten. The BDA has stressed that upfront investment by Government is vital to unlock these benefits. 

In their statement, the four UK CMOs recognise water fluoridation should be seen as a complementary strategy, and not a substitute for regular dental check-ups and other effective methods of increasing fluoride use. 

The BDA backs a joined-up approach in which tried and tested policies like water fluoridation and supervised tooth brushing in early years settings are expanded, with parallel effort applied to rebuilding high street dental services.

Oral health inequality is anticipated to widen, given combination of unprecedented access problems, the suspension and ongoing disruption to public health programmes and changes to dietary habits since the start of the pandemic. Over 30 million appointments have been lost in NHS dentistry since lockdown, in England alone.  

Around 5.8 million people in England receive fluoridated water, the lion’s share artificially added, but in some locations the appropriate level exists naturally within local water supplies.

British Dental Association Chair Eddie Crouch said: “Every dentist will thank the CMOs for recognising the lasting benefits water fluoridation could bring to the nation’s oral health.

“However, these gains are purely theoretical without upfront investment. Spending here will pay for itself, and Ministers need to show they are willing to seize the moment.

“We need a joined-up approach. COVID has left millions unable to access care, and deep inequalities are now set to widen. The four Governments must double down on tried and tested policies while rebuilding the services millions depend on.” 

Review of Autism Strategy criticises lack of progress

An independent review of the Scottish Government and COSLAs 10-year Autism Strategy has been published today.   

The strategy, which comes to an end this year, set out with the vision that by 2021 autistic people would be “respected, accepted and valued by their communities and have confidence in services to treat them fairly so that they are able to have meaningful and satisfying lives’.  

The review concludes: “After ten years, valuable resources have been created and new and additional services delivered. However, real change for many autistic people, both in how they engage with services and in how they are supported to live productive lives, is not as evident. To have a greater impact, the services and support need to have greater reach, become embedded and be sustained.”  

This echoes the findings from the Cross-Party Group on Autism’s own 2020 review the ‘Accountability Gap’ which found (from a survey of 900) that 72% of autistic people and families did not have enough support to meet their needs across a number of areas including education, care and employment.   

In the lead up to the May Holyrood Election National Autistic Society Scotland together with partners Scottish Autism and ENABLE Scotland campaigned under the banner of ‘Our Voice Our Rights’ for a Commissioner to promote and protect the rights of individuals and their families.   

This resulted in a commitment in the SNP Manifesto to introduce a Commissioner as part of a Learning Disability, Autism and Neurodiversity Bill. Scoping work on this is due to begin shortly.  

Nick Ward, Director of National Autistic Society Scotland, (above) said: What is clear from today’s review of the Scottish Strategy for Autism is that autistic people and their families are still, after ten years, not getting the vital support that they need to live meaningful and fulfilled lives.

“The review echoes findings from last year’s ‘Accountability Gap’ report produced by the Cross-Party Group on Autism which found that while progress had been made, 72% of individuals and their families did not get enough support to meet their needs.      

“Today’s review sets out some positive ways forward and we are delighted that Scottish Government has committed to establishing a Commissioner. We believe a Commissioner with robust powers to uphold rights, challenge bad practice and promote good will lever real change.”  

Suzanne from Dunfermline was part of the ‘Our Voice Our Rights’ campaign and has an autistic son called Callum. She said: “Callum has a lot of challenges, he is constantly having to deal with sensory issues and sounds and he needs someone supporting him most of the time.

“It’s difficult for people to understand what he is saying and so we need to be with him when he is out to help as well as explain his compulsion to touch people.   

“When Covid hit a lot of the services withdrew leaving us to deal with health education and social work issues. Over time that has got better but we’re still not receiving the level of support we had before the pandemic.  

Suzanne (with Callum, above) added: “I think there needs to be a lot more joined up thinking, sometimes we end up going from service to service – there needs to be someone holding the system together, someone at a national level I can go to if there is an issue.   

“My hope is that when Callum leaves school he doesn’t end up sitting in a day centre all the time and that there are opportunities for him. He loves buses and would love to be a bus driver. That may not be possible but working or volunteering in and around buses would be amazing for him.”  

Urban greenspace benefits deprived and ethnic minority communities, research finds

While urban greenspace is often associated with improved mental health, new research has found the benefits are dependent on the characteristics of the population using the space – and their proximity to it.

Researchers at the James Hutton Institute and Scotland’s Rural College (SRUC) looked at the link between greenspace and prescription rates to treat mental health disorders across all Scottish towns with more than 10,000 residents.

They found a significant relationship between mental health and the amount of urban greenspace in areas with high proportions of people from black and minority ethnic and/or in areas of high deprivation.

However, the link between lower prescription rates and greenspace in these communities was only evident when looking at those spaces in the immediate neighbourhood. When considering greenspace within a 30-minute walk, no significant relationship was found between greenspace and mental health disorders.

This suggests that the mental health benefits of greenspace for these groups occur where it is closest to home – with previous research finding they are often the least likely to use their nearest greenspace.

Researchers found no significant relationship between mental health and green space in all other population groups.

The research, which has been published by the Urban Forestry & Urban Greening journal, will provide valuable information for urban and land-use planning, where decisions are taken at the population level.

The lead author Dr Michaela Roberts, Environmental Economist at the James Hutton Institute, said: “Our work supports the broad supposition that greenspace and mental health are positively related, and adds further support for the need to understand a populations’ relationship with greenspaces, to ensure urban greening achieves the highest gains for communities.”

Co-author Alistair McVittie, Ecosystem Services Economist at SRUC, said: “Our results highlight that the relationship between greenspace and mental health relies not only on the presence of greenspace itself, but also on the characteristics of the population using the greenspace.”

The research was funded by the Scottish Government’s Rural & Environment Science & Analytical Services Division.

Army called in to help tackle Scotland’s ambulance crisis

Health Secretary Humza Yousaf has confirmed that more than 100 military personnel will be drafted in to help tackle the ambulance crisis. He also told MSPs that additional funding of £20 million will be invested in the Scottish Ambulance Service (SAS) to help improve response times, alleviate pressures and improve staff wellbeing.

In a statement to Parliament, Mr Yousaf announced:

  • assistance from more than 100 military personnel – 88 drivers and 15 support staff – following final approval by the Ministry of Defence. Personnel are expected to begin deployment from this weekend onwards.
  • around 100 2nd year paramedic students to help in ambulance control rooms
  • more Hospital Ambulance Liaison Officers at the busiest A&Es, increasing from 11 to 20 – helping ensure timely admission of patients at A&E and reduce ambulance waiting times
  • additional help from the Scottish Fire and Rescue Service in the form of volunteer drivers, as well as the British Red Cross and private transport companies where clinically appropriate
  • immediate work to create temporary admission wards in hospitals, meaning patients can be admitted quicker
  • additional senior clinical input in ambulance control rooms and to assist and speed up decision-making on mental health, addictions, falls, breathing difficulties, high intensity users and trauma
  • £500,000 to fund staff wellbeing measures
  • 14 additional staff members in Highland to reduce the on-call requirement in Campeltown, and remove it completely in Fort William, Kirkwall and Broadford.

Tuesday’s funding announcement comes in addition to £20 million already announced as part of the NHS Recovery Plan. That investment will deliver a net increase of almost 300 ambulance service staff by April 2022.

Mr Yousaf said: “The global pandemic has created the most challenging crisis in the history of the NHS. Ambulance services around the UK, as well as the wider NHS, are experiencing unprecedented demand – largely because of COVID-19, but also due to a combination of increasingly complex cases, and exceptionally busy emergency departments.

“The Scottish Ambulance Service is the heartbeat of our NHS. It has a unique role in engaging with all parts of the health and social care system across the whole of Scotland – 24 hours of every day. It is vital that we ensure it has the support it needs to perform this crucial role.  

“The additional investment I have set out today means that the Scottish Ambulance service’s frontline budget for this year is more than 16% higher than it was last year. The measures we have announced today will begin to address some of these issues, both improving the level of service for the public, and also helping to reduce the pressure on the workforce, who are doing so much to serve the public during these incredibly demanding times.”

Time to Play!

BPS survey reveals high level of parents’ fears about effect of pandemic on primary school playtime

A survey for the British Psychological Society (BPS) has revealed that more than three-quarters of parents of primary-aged children believe play is now more than or just as important as academic catch-up, amid fears the pandemic has reduced opportunities for their children to engage in playtime at school.

Almost all parents who responded to the BPS survey said access to playtime in the primary school day was important for their children (96 per cent).

Yet research shows that since 1995, children’s break times in the school day have been reduced by 45 minutes a week, resulting in eight out of ten children now having less than one hour of physical activity per day.*

As a result of the findings, the BPS is launching a Time to Play campaign to put more play back in the school day, restore the playtime eroded and reverse the negative impact on children’s wellbeing and development.

The YouGov survey, commissioned by the BPS, had more than 1,500 respondents from across the UK. Key findings include:

  • 96 per cent of parents surveyed said access to playtime in the school day was either very important (79 per cent) or important (17 per cent) for their children
  • 79 per cent of parents said play was more important or equally as important as academic catch up for their children post-pandemic.
  • 69 per cent were very or fairly concerned that the pandemic has impacted on the opportunities their children have for unstructured playtime at school.
  • 61 per cent ranked social development as the most important benefit of play to their child.

Dr Dan O’Hare, co-chair of the BPS Division of Educational and Child Psychology, said:  “It’s clear from the survey findings that play is valued highly by parents. We now need the government to take bold action and prioritise school playtime for our children’s development.

“This isn’t an ‘ask’ for more playtime, it’s about reclaiming what has been lost. There needs to be adequate support, funding and resources for teachers who are already under increasing pressure to deliver the curriculum.”

The campaign will urge the government to put back 10 minutes each day onto school playtime, effectively reversing the years of decline by restoring 50 minutes spread over a week.

In June this year, in a Statement to Parliament on the education recovery programme, the previous Education Secretary Gavin Williamson said the next stage of the government’s recovery plan would include a review of time spent in school and college. The findings of the review are scheduled to be set out this year.

Against this backdrop, the BPS is calling for a focus on unstructured, child-led play in school, highlighting its benefits including aiding social development, problem solving and physical development as vital priorities alongside academic catch-up. 

Dr O’Hare added: “We know that pre-pandemic children’s playtime has been eroded and now, against the landscape of ‘academic catch up’ after lockdowns, closures and pressure on children and schools, this issue is even more urgent.

“Reduced opportunities to play will likely have a negative impact on the wellbeing and development of children, and it is vital that we don’t forget that children have also missed out on play with their friends, physical activity and fun.

“It’s important to understand the role play has in children’s development to really understand why we are campaigning to get more play in the school day. Play is fundamental to children’s health and wellbeing. It can develop children’s skills in coping with challenge, facing uncertainty and how to be flexible and adaptable to different circumstances.

“The intrinsic value of play is that it brings entertainment, enjoyment and freedom to children. It is important that there are opportunities for all children to have high quality play throughout the school day, regardless of their needs, skills and abilities.”

For further campaign information: https://www.bps.org.uk/time-to-play