A mistake to cut funding for life-enhancing stroke treatment

Health charities and NHS clinicians have united in a call for the Scottish Government to reverse a cut to the funding of a vital stroke treatment that significantly reduces long-term disability.

More than 150 stroke clinicians have backed a call from charities Chest, Heart & Stroke Scotland (CHSS) and the Stroke Association for the reinstatement of £7m to the national thrombectomy service funding.

An open letter to the Cabinet Secretary for Health and Social Care ahead of the Scottish Government budget next week, says the 50% funding cut and a recruitment freeze is a mistake.

The letter says the savings, which amount to less than 0.1% of Scotland’s total health budget, will create far greater costs, when Scots missing out on the “extraordinarily effective” medical treatment end up needing longer hospital stays, community rehabilitation and social care services.

Thrombectomy is a highly specialised procedure that involves physically removing the blood clot in the brain which has caused a severe stroke. The treatment is suitable for about 10% of stroke patients. People are more likely to walk and talk again, return to work and live their lives to the full. 

The Scottish Government has previously committed to rolling out a national thrombectomy service, which would see around 800 stroke patients receive the procedure each year. It is expected to save the health and social care system up to £47,000 per patient in the first five years – a total saving of £37.6m to the NHS.

Ruth Hector, 36, from Stirling said: “I had a stroke at the age of 30. I lost the ability to walk and talk in an instant. I was too young to have a stroke and to feel trapped inside my own body, was scary and hard to comprehend.

“I was taken to The Royal Infirmary in Edinburgh, where after investigations I was able to receive a thrombectomy. After receiving that, I was able to talk perfectly, write and walk around within hours. It felt like I had made a full recovery. I was so thankful for receiving that treatment, I dread to think what it would have been like otherwise.

“I then had another stroke and for some reason wasn’t able to receive a thrombectomy. My recovery has been good with the second stroke, but nowhere near as good as the outcome after thrombectomy.

“I believe everyone should have access to this life saving treatment. My independence is everything. I’m working now, I take part in fundraising events, so truly believe I’m contributing to society and that feels good.”

CHSS and the Stroke Association are jointly calling for the Scottish Government to commit to continuing to fund the service and recruit the staff necessary for a national rollout.

Jane-Claire Judson, CHSS Chief Executive, said: “CHSS and the Stroke Association are united in our plea to the Scottish Government to stand by its commitment to a national thrombectomy service. 

“It is unthinkable that the Scottish Government will deny Scots a treatment we know will make a huge difference to their lives for the sake of a small short-term budget saving.

“Hundreds of Scots who have a stroke each year should be able to trust they will get the best possible medical attention and chance of making a full recovery.” 

John Watson, Associate Director Scotland at the Stroke Association said: “Thrombectomy saves brains, money and lives. It can change the course of recovery from stroke in an instant, and is one of the most effective medical interventions ever developed. 

“We understand the financial pressure the Government is under, but to cut a service that improves patients’ lives while saving money would be a serious mistake. The current resource crisis should lead to thrombectomy being prioritised, not cut.

“That is why we, alongside CHSS and clinicians at the coal face, are calling on The Scottish Government to reinstate its funding for a national thrombectomy service. 

 “The financial savings of having this procedure are undeniably positive, but the potential outcome without it, could have devastating consequences for stroke patients, including severe disability or death.”

Dr Vera Cvoro, Consultant Geriatrician and Stroke Physician, Honorary Senior Lecturer at The University of Edinburgh said: “Thrombectomy is the single most effective treatment we have for stroke. Many patients that come to hospitals with a stroke could benefit from this treatment that prevents disability. 

“This can mean being able to walk again, talk again and even going back to work. We have the expertise to deliver such treatment and it should be available to all people living in Scotland.”

LEITHEATRE needs your support

⭐ WE NEED YOUR HELP ⭐

https://www.justgiving.com/crowdfunding/leitheatre

For over 76 years, we have been at the heart of theatre in the city, with several notable (and now famous) names working with us.

As a registered charity, we work hard to not only put on shows that our members and patrons love, but to safeguard the future of our club. This has been tricky over the years, with increasing maintenance of our club premises and higher production costs.

For the last two years, however, things became even more difficult as COVID-19 removed our main source of funding – the ability to put on shows and make a profit. Now, in May 2022, our latest production of The Odd Couple has been cancelled at the last minute due to COVID within the cast.

We love theatre and we love our club. We want, more than anything, to be around for the next 76 years to do what we do best.

Please please support us in protecting our future. Every small donation will help. Please help us spread the word.

https://www.justgiving.com/crowdfunding/leitheatre

HELP! Community Councils umbrella body funding appeal

Edinburgh Association of Community Councils appeals to members for financial support

The Edinburgh Association of Community Councils (EACC) is making a one-time appeal for funds.

Like community councils, we need to pay for a website, video-conferencing and meeting facilities, and help with documenting meetings etc. 

Unlike community councils, we are not receiving financial support from either the City of Edinburgh Council (CEC) or the Edinburgh Partnership, the higher level body to which both CEC and EACC belong.

Why is this? Community councils are statutory bodies and EACC is officially recognised by CEC as representing them in Edinburgh. Until a few years ago, EACC were getting a grant, similar to those given to individual community councils. This was authorised by Edinburgh Partnership, but paid by CEC from its community services budget. 

Paul Lawrence, CEC Director of Place, has told us that funding hasn’t been provided to EACC since 2017-8. Inevitably there are conflicting explanations of why. We asked Paula McLeay, CEC Head of Policy and Insight, if the grant could be reinstated, but the answer was no. 

EACC is unique among Edinburgh Partnership members in being totally voluntary and unfunded. This is unsustainable and we will continue to negotiate for the grant to be restored. 

In the meantime we have no money, so we are launching this appeal for funds from Edinburgh’s community councils. (As a guide we are hoping to raise about £500 to maintain basic services.)

If you are willing to support EACC, we would be very grateful if you could send us funds by bank transfer:

Account number              30120430
Sort code                         82 68 00
Account name                  Edinburgh Association of Community Councils

Or, by cheque, by post to:

Mrs J Wightman
17 Bonnington
Kirknewton
Midlothian
EH27 8BB

Simon Holledge, Secretary
Judy Wightman, Treasurer

Donations desperately needed for classic WW2 seaplane stranded on Loch Ness

An icon of Second World War aviation desperately needs donations to stay in the air after her starboard engine failed to re-start following a landing on Loch Ness.

The PBY Catalina flying boat ‘Miss Pick Up’ was flying across the picturesque Loch on Saturday while filming for a TV production and had just completed her last landing for this task when she got stuck on the water.

The beautifully-designed flying boat – the most successful flying boat of all time – developed for the US Navy, was lifted out of the water by crane but the damaged engine must be replaced – an expensive, time-consuming and awkward process, especially away from home base.

Now Plane Sailing, the Cambridge-based team of dedicated pilots and volunteers who operate the IWM Duxford-based plane, needs donations for the vital repairs. The plane is not operated for profit and Plane Sailing’s sole mission is to keep the aircraft flying and honour her legacy.

So far more than £15,000 has been raised by hundreds of people donating to the gofundme page, but more is needed.

Former RAF Harrier pilot Paul Warren Wilson is the leader of Plane Sailing’s Catalina operation and The Catalina Society. He said: “The logistics involved are massive.

“Once the damaged engine is replaced we need to put her back onto the water so she can be flown home, otherwise she will be at the mercy of the harsh Scottish winter on a Loch (which as we all know is home to a certain wee beastie!) rather than her usual cosy hanger in Duxford. The damage this could do to the aircraft – an important piece of aviation history – could be irreparable.

“We have been absolutely staggered and humbled by the generous donations from so many of Miss Pick Up’s supporters.

“Yesterday the future looked bleak. Today, with the Cat safely on dry land again, there is a light glimmering at the end of the tunnel.”

Miss Pick Up is one of the world’s only airworthy Catalina flying boats and is largely self-funding, appearing at up to 20 airshows a year – but because of COVID this has been reduced to just two in 2020.

More information can be found at https://www.catalina.org.uk

All the funds raised will be used for boat hire, crane hire, transporting the spare engine and equipment from Duxford to Loch Ness, workshop facilities / accommodation and scaffolding.

The plane is on the west side of the Loch at Urquhart Bay and was lifted onto the quayside by crane, using the pair of lifting points on the wings which are designed for just this purpose – but for the first time ever, for Miss Pick Up.

Miss Pick Up has two engines and each normally lasts for about 1,200 hours flying before refurbishment. The Catalina team’s plan is to drive their spare engine to Scotland to complete the engine change.

After engine runs, the Cat will then go back on the Loch to be flown to Inverness Airport for refuelling, before she flies back home to Duxford.  The whole process is expected to take at least a month.

Catalina quick facts:

The Consolidated PBY Catalina was produced for the US Navy but was also flown by the RAF and the air forces of Australia, New Zealand, Canada, the Netherlands, and the Soviet Union.

Catalinas were used in anti-submarine warfare, patrol bombing, convoy escort, search and rescue missions, and cargo transport.

The aircraft was involved in almost every major operation in the Second World War – notably combatting the dreaded German U-boats in the Atlantic, locatingthe German battleship Bismarck, and the sighting of the Japanese invasion force heading for Ceylon.

It was produced in San Diego, New Orleans, Quebec, and Vancouver during the war.

There are just 20 still flying throughout the world. Miss Pick Up is the only one located in Europe.

Filmhouse needs you!

With a September opening in its sights, the Filmhouse has launched a fundraising campaign to support its return. It is asking people to donate £40, the cost of an annual membership, to raise the £60,000 needed to secure its future.

https://www.gofundme.com/f/filmhouse

Filmhouse has undertaken a survey of its members and regular attenders to understand the many complex issues and concerns that they would have in returning, but which has also unlocked a huge outpouring of support for it.

Juliet Tweedie, Head of Development for Filmhouse said: “We have all been so touched by the outpouring of love and support for Filmhouse since we closed our doors in March.

“The last three months have been very challenging. We have been very lucky to be able to access support from Creative Scotland, City of Edinburgh Council, Scottish Government and the UK Government through the furlough scheme.

“Even with this support to help with the immediate financial strain, we anticipate that as well as a reduction in admissions when we do re-open, due to constraints on capacity in the building and changing habits of customers, we will have to invest hard cash into making the building safe and navigable for our customers and staff.

“We need your help to secure our future, so that we can continue our work as Scotland’s leading independent cinema and a hugely active charity in the city. We are a vital part of our community, and we don’t want to give up any of it.

“We recognise that this is a time of uncertainty, and other charities may be approaching you for help. We are so grateful for any donations, however large or small, and thank you for thinking of us.”

Filmhouse isn’t just a cinema. It is a charity and a community hub for film lovers across Edinburgh and the Lothians. As Scotland’s largest independent cinema, it screens over 850 wonderful films, seasons and special programmes to 200,000 people every year.

Its film education programme is attended by over 10,000 school children each year, and it seeks to inspire young film lovers through its Young Programmers initiative. Its Senior Selections programme brings together older audiences at risk of isolation.

And its Café Bar is a much-loved community space, where its famous nachos and chickpea curry have been keeping the city well-fed for over 20 years! It supports cultural programmes and partners throughout the city, and is proud to have over 5,000 members.

Independent cinemas across the UK are facing a huge challenge to reopen. Despite recent government announcements around the reopening of cinemas and the projected Phase 3 return in Scotland, the recent survey by the Independent Cinema Office found that the challenges of social distancing measures and the need for significantly reduced audience sizes means that reopening may not be viable for many.

The Filmhouse has set up a Go Fund Me page:

 https://www.gofundme.com/f/filmhouse 

which can be accessed directly or through its website or social media channels.

Alternatively, you can send a cheque to Filmhouse, 88 Lothian Road, Edinburgh EH3 9BZ.