Tag: ENABLE Scotland

Join the fight for the rights of people with Learning Disabilities

EDINBURGH residents have been invited to attend a campaign meeting hosted by ENABLE Scotland at 95 Causewayside, Newington on 9 November 2022 from 7pm to 9pm designed to inform the charity’s calls to the Scottish Government.

The event is designed to collate feedback and evidence from the community that will then go on to inform the charities proposals for the Bill based on real, lived experiences of the learning disability community.

Following a campaign from ENABLE Scotland members, the Scottish Government has announced that it will bring forward a new Learning Disability, Autism and Neurodiversity Bill (LDAN).  This is believed to be the first Bill of its kind, worldwide.

Local people in Edinburgh can attend the event to find out more information about the proposed LDAN Bill and feedback their thoughts, asks and concerns about the protection of human rights and their first-hand experiences of the failings and challenges relating to the current system and the associated laws.

ENABLE Scotland will take the feedback from the event to inform its campaigning around the Bill proposals ensuring that people living with learning disabilities, and their families, are at the heart of the new legislation.  

Jan Savage, Director of ENABLE Scotland said: “For too long, people who have a learning disability have been Scotland’s invisible people.  Subject to poor attitudes and persistently poor public services where they have to fight for their rights. 

“This is a once in a lifetime opportunity to bring forward legislation which secures people’s rights in law. It is so important that every voice of every person who has a learning disability is informing this process which is why we are inviting people with lived experience – as well as supporters from the local community in Edinburgh – to come along, hear about the plans for the Bill and have their say in what ENABLE Scotland will be asking of the Scottish Government.

“The work will not stop there.   We are committed to the community that support us in our campaign for the LDAN Bill and as such we will ensure regular updates, information on campaigning and actionable communications to MSP will be shared with our supporters as the Bill progresses through Scottish Parliament over the next two years.

“The Scottish Government have agreed that change is needed.  We will not get this chance again.  If you care about the human rights of people who have a learning disability and want to be part of a movement for change with other like-minded people – we want to meet you on 9 November 2022!”

The charity says that now is the time for change, citing evidence that – amongst other shocking stats – less than 7% of people who have a learning disability have a job, adults who have a learning disability in Scotland die 20 years younger than other adults and children with a learning disability are 12 times more likely to die from preventable illness than other children.

The LDAN Bill provides an opportunity to ensure that the rights of people with a learning disability are protected in law.  The Scottish Government has also said that it will create a new Commissioner to make sure that these rights are upheld.

The LDAN Bill is being proposed as a replacement for the current Mental Health (Care and Treatment) (Scotland) Act 2003, that ENABLE Scotland believes does not go far enough in protecting the human rights of those in the learning-disabled community and a new Bill and set of laws is pertinent to the safeguarding of individuals in Scotland.

ENABLE has also launched a national survey for people to submit their views if they are unable to make it along to one of the local campaign meetings, please complete here.

New partnership launched to break down barriers for young people with a learning disability

A new partnership between ENABLE Scotland, Edinburgh Napier University and global professional services firm, EY, has set out to create equality across those accessing higher education opportunities.

Whilst 45% of all Scotland’s school leavers go to university, only 8.6% of school leavers who have a learning disability go on to higher education. Now, ENABLE Scotland’s Breaking Barriers programme is working with young people who have a learning disability to ensure they have the support required to access university life, can undertake work experience opportunities with a leading global employer, and graduate with a university qualification from a world-class academic institution.

Breaking Barriers, a ground-breaking initiative established by ENABLE Scotland in 2018, has partnered with some of Scotland’s highest profile corporate employers and has named EY as its newest official partner alongside Edinburgh Napier University – expanding its reach across the East of Scotland.

A cohort of young people from the East of Scotland are already undertaking studies and will now start work placements at EY. Anna Taylor (17) and Jaymes Doyle (18) from Edinburgh are working towards obtaining an Accreditation in Applied Business Skills from Edinburgh Napier University.

On her experience with Breaking Barriers so far, Anna Taylor said: “It has been really refreshing to meet different people who have the same anxieties and barriers as I do and who understand how you feel.

“It is a very unique experience; I have the support I need but also get to pursue something that was previously outside of my comfort zone.

“I am looking forward to my work placement with EY to see how the topics we have covered with Edinburgh Napier apply in a real life work setting.”

James Doyle added: “Breaking barriers has benefited me a lot as I have learned how to be in a university environment and have found a new interest in banking and business. I feel like I have been helped with my confidence and social skills a lot.”

ENABLE Group CEO and co-founder of the Breaking Barriers programme, Theresa Shearer, spoke at the 2022 Harkin International Disability Employment Summit in Belfast yesterday, discussing the Breaking Barriers programme and the charity’s goal to ensure further education is made more accessible for those with a learning disability.

Theresa Shearer said: “I am delighted that we are building on the success of the Breaking Barriers programme and making it possible for even more students who have a learning disability to access the life-shaping experience of university that is a rite of passage for so many, yet it is currently available to so few disabled young people.

“Breaking Barriers demonstrates how the public, private and third sectors can work collaboratively to improve diversity, equity and inclusion in education and the workplace, and I am excited to welcome Edinburgh Napier University and EY as the programme’s newest partners, advancing our shared ambition of a truly inclusive society for all.”

Professor Nazira Karodia, Vice Principal of Learning and Teaching at Edinburgh Napier University said: “We are delighted to welcome our ENABLE students to The Business School, where our vision is to be the Business School for empowerment, enterprise and employability for all.

“Our ethos as a university is to be the home for difference makers and our position as the number one modern university in Scotland reflects our success in providing students with a positive learning experience, and our close industry links.

“Not everyone has an opportunity to change the world, but everyone can make a positive difference to the world around them: working with fantastic partners like ENABLE and EY is truly helping break barriers faced by young people with learning difficulties.”

Ally Scott, EY Scotland Managing Partner, said: “Breaking Barriers is an inspiring initiative that EY is delighted not just to support, but to work with to give these remarkable young people the skills for a successful and fulfilling career.

“This is a great example of Scotland’s strong ecosystem between education, industry and the civic community in action, and I look forward to celebrating their graduation with them in the summer.”

The Breaking Barriers programme originated in the West of Scotland and has entered its fifth consecutive year, delivered in a partnership between ENABLE Scotland, the University of Strathclyde Business School, ScottishPower and STV. 

Such is the success of the programme that many former graduates have gone on to shape their chosen career path and secure employment and additional training opportunities in fields such as filmmaking, para-medicine, cyber security, financial services, digital music, and fashion.

The expansion of the programme is supported by Edinburgh City Council through the Young Person Guarantee.

Find out more at: www.enable.org.uk/breaking-barriers

ENABLE Scotland launches #MyOwnFrontDoor campaign

ENABLE Scotland launches campaign to address the ‘human rights emergency’ of hundreds of Scots who have learning disabilities being forced to live far away from their families or stuck in hospital. 

#MyOwnFrontDoor calls for urgent change to uphold the human rights of all adults with learning disabilities in Scotland to live in the community of their choice by 2023.

A new campaign launches today to unlock the door for hundreds of adults with learning disabilities to have the right to a home they choose and to live in the community of their choice, as Scotland’s largest member-led charity calls on society to address the “human rights scandal” facing people with learning disabilities in Scotland.

ENABLE Scotland’s latest campaign – #MyOwnFrontDoor – is being led by the charity’s 12,000 strong membership and supporter network to address what it describes as a “level of discrimination that we do not expect and would not expect other people in our society to bear“.

Due to lack of support to live in their own communities close to their loved ones, official data reveals that over 1,000 adults have been sent by Scottish local authorities to live ‘out of area’, meaning not in their home local authority area.  Beyond this, a further 67 people are living in hospital.  22% of these people have been there for more than 10 years.

Despite a Scottish Government report highlighting this issue in 2018, which recommended that better specialist social care support should be available across Scotland to support these individuals to live in the community of their choice, there has been no monitoring of progress, and ENABLE Scotland fear that the situation has deteriorated further.

The campaign is calling for urgent action to end hospital living for people with learning disabilities; and to put immediate plans in place to ensure that all people in delayed discharge or who have been displaced ‘out of area’ are supported to return to live in the home they choose and the community they choose, close to the people they love by 2023.   

Already the charity supports 6,000 people to live independently across Scotland, including some people who were previously living in hospital or other institutional settings for many years, or who have been fighting for their rights to live closer to their families.

People, like Nova, who ENABLE Scotland helped to support to move back to Scotland from England and live in her own house, close to her family. Before ENABLE Scotland got involved, Nova, who is in her early forties, was offered a placement in a care home for the elderly and it took more than a year to support her to get her own keys to her own front door.

Launching the campaign, John Feehan, an adult who has a learning disability and who is an active member of ENABLE Scotland, said: “It can be so hard to speak up for yourself when you have a learning disability.  It is even harder to make people listen.  

“That is why I am speaking out.   It makes me so angry that other people who have a learning disability are stuck in hospital, or being forced to live far away from their families.  This has been going on for too long now.

“Some people think that people who have a learning disability are not able to live in local communities like everyone else.  They think that that it is easier for them to be locked away in hospital, or to live with lots of other people who have a learning disability. 

“That isn’t true.  It is only because the right support is not there – it’s not the person’s fault.  Anyone can live anywhere with the right support.  If they don’t want to be where they are, people need help to get back to live close to their families or to get out of hospital – right now.”

Jan Savage, Director of ENABLE Scotland, said: “This is a human rights emergency. It is a national scandal – hidden in plain sight. People who have a learning disability – brothers, sisters, sons and daughters – are being forced to live far from home, to “live” in hospital, or to live in care settings where they are uncomfortable and unhappy.

“I am sure that people will be shocked to learn about the situation our fellow citizens find themselves in. But they should be reassured that better is possible.

“Clear and decisive action is now required to adopt a ‘Community First’ principle to end the practice of people being sent out of area; to nationally invest in high quality, consistent, specialist social care support to be available in every community; and to stop building new multi bed units for people who have a learning disability. These are not the solution – they perpetuate the problem.

“We cannot wait any longer. People who have learning disabilities are being subjected to a level of discrimination that we would not, and do not, expect other groups in our society to bear.

“We are determined that this campaign will start a movement for change as each and every one of us stand up for the human rights of all people with learning disabilities in 2022. The keys to unlocking their own front door are in our hands.”

John Dalrymple, Director of Radical Visions, said: “Everything we know about the disastrous effects of segregation and exclusion and all the evidence we have about good social care practice argues for an immediate halt to the placement of people in institutions.

“Everything we say we believe about basic humanity, independent living and universal human rights compels us to support campaigns like #myownfrontdoor and ensure that in future no-one is denied a home of their own.”

My-Own-Front-Door-Campaign-ReportDownload

A new campaign report from the charity – My Own Front Door – proposes five key steps that public bodies must take now to unlock the right to an own front door for people who have a learning disability. 

The five keys are:

  • Close all Assessment and Treatment Unit (ATU) beds and end the practice of Scottish citizens being sent out of the country.
  • Immediately implement a Community First principle for the commissioning of support for all adults and children who have a learning disability in Scotland – ending the commissioning of multi bed units.
  • Invest nationally in a Specialist Provider Network to improve local support in every area in Scotland.
  • Maintain a national at-risk register and ensure that everyone identified on this has a plan by 2023 to come home to the community of their choice.
  • Create a national Community Living Panel to ensure oversight and accountability of decision making about individual placements.

As part of this campaign, the charity is offering support and advice to any individual or family who is affected by this issue, and is asking members of the public to raise the issue directly with their local MSPs.

To join the movement, act, share, speak up and get informed, please visit:

www.enable.org.uk/myownfrontdoor.

Review of Autism Strategy criticises lack of progress

An independent review of the Scottish Government and COSLAs 10-year Autism Strategy has been published today.   

The strategy, which comes to an end this year, set out with the vision that by 2021 autistic people would be “respected, accepted and valued by their communities and have confidence in services to treat them fairly so that they are able to have meaningful and satisfying lives’.  

The review concludes: “After ten years, valuable resources have been created and new and additional services delivered. However, real change for many autistic people, both in how they engage with services and in how they are supported to live productive lives, is not as evident. To have a greater impact, the services and support need to have greater reach, become embedded and be sustained.”  

This echoes the findings from the Cross-Party Group on Autism’s own 2020 review the ‘Accountability Gap’ which found (from a survey of 900) that 72% of autistic people and families did not have enough support to meet their needs across a number of areas including education, care and employment.   

In the lead up to the May Holyrood Election National Autistic Society Scotland together with partners Scottish Autism and ENABLE Scotland campaigned under the banner of ‘Our Voice Our Rights’ for a Commissioner to promote and protect the rights of individuals and their families.   

This resulted in a commitment in the SNP Manifesto to introduce a Commissioner as part of a Learning Disability, Autism and Neurodiversity Bill. Scoping work on this is due to begin shortly.  

Nick Ward, Director of National Autistic Society Scotland, (above) said: “What is clear from today’s review of the Scottish Strategy for Autism is that autistic people and their families are still, after ten years, not getting the vital support that they need to live meaningful and fulfilled lives.

“The review echoes findings from last year’s ‘Accountability Gap’ report produced by the Cross-Party Group on Autism which found that while progress had been made, 72% of individuals and their families did not get enough support to meet their needs.      

“Today’s review sets out some positive ways forward and we are delighted that Scottish Government has committed to establishing a Commissioner. We believe a Commissioner with robust powers to uphold rights, challenge bad practice and promote good will lever real change.”  

Suzanne from Dunfermline was part of the ‘Our Voice Our Rights’ campaign and has an autistic son called Callum. She said: “Callum has a lot of challenges, he is constantly having to deal with sensory issues and sounds and he needs someone supporting him most of the time.

“It’s difficult for people to understand what he is saying and so we need to be with him when he is out to help as well as explain his compulsion to touch people.   

“When Covid hit a lot of the services withdrew leaving us to deal with health education and social work issues. Over time that has got better but we’re still not receiving the level of support we had before the pandemic.  

Suzanne (with Callum, above) added: “I think there needs to be a lot more joined up thinking, sometimes we end up going from service to service – there needs to be someone holding the system together, someone at a national level I can go to if there is an issue.   

“My hope is that when Callum leaves school he doesn’t end up sitting in a day centre all the time and that there are opportunities for him. He loves buses and would love to be a bus driver. That may not be possible but working or volunteering in and around buses would be amazing for him.”  

Evaluation-report-EMBARGOED-UNTIL-10AM-FRIDAY-24-SEPTEMBER-2021Download

‘Our Voice Our Rights’: Charities call for Autism Commissioner

ENABLE Scotland, National Autistic Society Scotland and Scottish Autism have today launched the ‘Our Voice Our Rights’ Campaign calling on the major political parties to commit to a Commissioner for autistic people and people with a learning disability at the forthcoming Holyrood election. 

The ‘Our Voice Our Rights’ campaign aims to make Scotland the best country in the world for the 56,000 autistic people, the 120,000 people with a learning disability and their families in Scotland. A country where human rights are respected and upheld; everyone has equal access to the services and support they need throughout their lives; and where autistic people and people with a learning disability are active citizens and fully supported to fulfil their potential.  

While there have been many ambitious and well-intentioned strategies over the years from Government and partners, and an extensive regulatory framework, the charities hear day in day out how too many people are struggling to access their human rights to education, work, a family life, healthcare, to high quality social care services, and to be free from discrimination in their communities. 

Many individuals and their families are exhausted from fighting tooth and nail to get the much-needed support and status as equal citizens. A fight that sadly, they often lose, leaving many in crisis, something brought into sharp focus by the pandemic and the pressures on the system. 

In the lead up to the Scottish Parliamentary Elections in May 2021 the three charities are standing together with autistic people and people who have a learning disability to say ‘enough is enough’ and calling on all the major political parties in Scotland to commit to a Commissioner to ensure real change. 

The Commissioner would be the first of its kind in the world, established in law to champion the human rights of autistic people and people with a learning disability.  

They would be a powerful voice, improving access to services and advocating on people’s behalf when they cannot and importantly helping people have the choice and control to live a good life, free from discrimination.   

They would close the current gap – between what the law says and what actually happens in reality. They would lead improvements and importantly people would also have recourse when the system falls short and fails to deliver for them.  

The charities have launched the campaign alongside autistic people, people with a learning disability and families including the broadcaster Stuart Cosgrove.   

A website is now live with a series of videos featuring people from across Scotland making the case for change. People are also being encouraged to get involved and to contact the party leaders to call for a Commissioner for autistic people and people with a learning disability to be included in their election manifestos.  

Peter McMahon who has a learning disability and is a member of ENABLE Scotland said: “We need a Commissioner for Learning Disability and Autism so that people who have a learning disability like me aren’t put on the back burner or forgotten about.

“With a Commissioner working with us we can improve access to services and speak up for people when they cannot. Most importantly we can help people live good lives with choice and control and free from discrimination. People with learning disabilities feel invisible, we don’t want to be the invisible people any more and feel a Commissioner would help us.”

Broadcaster Stuart Cosgrove who has an autistic son said: “This campaign has the capacity for real positive change – As a family we’ve been lucky in that Jack got his autism diagnosis early on as a child but like all parents I worry about what happens when he grows up and leaves school.  

“We of course want him to be independent, have his own place, a relationship, a job, all the usual things that parents hope for, but we also know those are likely to be challenging for him – he’s going to need that bit extra help and support.     

“I believe by and large Scotland has a caring culture but establishing a Commissioner at a national level with a legal obligation to look into the different aspects of public life would make a huge difference. It would help Scotland lead the way to creating a society that fully includes and values autistic people.” 

 

Better outcomes for children who need additional support

New tools to assist learners 

Councils and teachers are being given extra help to improve outcomes for young people with additional support needs.

The Scottish Government’s new guidance on mainstreaming provides clear, updated information to help decide the best learning environment for a young person. For the first time, it includes a Scottish definition of inclusion and practical guidance to deliver inclusion in schools. Continue reading Better outcomes for children who need additional support