Cutting Edge: Laser Epilepsy Surgery to be brought to Scotland

·        This is the first time MRI-guided Laser Interstitial Thermal Therapy (LITT) will be available in Scotland 

·        The surgery is currently only available at Great Ormond Street Hospital in London or in Houston, Texas 

·        The current surgery choice in Edinburgh is open brain surgery, which is around seven hours and leaves an ear to ear scar. LITT will reduce this to two hours and is much less invasive 

·        Children and young people who will be referred for this surgery have refractory (medication resistant) epilepsy and can have up to 100 ‘drop down’ seizures a day 

·        In appropriately selected cases, LITT surgery can stop seizures entirely and cure the child’s epilepsy 

Children and young people living with severe epilepsy in Scotland will have the life-changing chance to be seizure free, thanks to the funding of a world class laser coming to Edinburgh’s new children’s hospital.  

A partnership between the Welch Trust, Edinburgh Children’s Hospital Charity (ECHC) and NHS Lothian is bringing MRI-guided Laser Interstitial Thermal Therapy (LITT) for Edinburgh’s Royal Hospital for Children and Young People (RHCYP) – the first time this laser technology will be available in Scotland.  

LITT is a new and proven, minimally invasive treatment which uses a laser to remove brain tissue that is causing seizures. Children and young people who will be referred for laser surgery are diagnosed with refractory (medication resistant) epilepsy; they may experience severe and frequent ‘drop down’ seizures, up to 100 in one day. In appropriately selected cases, laser surgery can stop seizures entirely and cure the child’s epilepsy.  

LITT surgery treatment is currently only available at Great Ormond Street Hospital (GOSH) and in Houston, Texas. The laser equipment will be part of the Scottish National Paediatric Epilepsy Surgery Service, based at the RHCYP in Edinburgh, meaning children will come to the capital from all over Scotland to have the surgery. 

The current surgery choice practiced in Edinburgh is open brain surgery, which lasts around seven hours, has a longer recovery time and results in a scar across the top of the child’s head.

The LITT precision technology will reduce this surgery time to around two hours, is much less invasive and has a shorter recovery time. It is expected that up to six children a year could benefit from the laser surgery, aged from infants to adolescents, with a similar number of adults also benefitting annually. 

Following a request from the National Epilepsy Surgery Service to ECHC to support this initiative, the charity identified the Welch Trust as the ideal funder and agreed a partnership to make this project a reality. 

Victoria Welch, Trustee of the Welch Trust, said: “We are very proud to be able to gift this LITT technology to the new Royal Hospital for Children and Young People. As a Paediatric Nurse, I understand the importance of having the best equipment in the hospital to expedite the curing of patients with complicated conditions and ultimately save lives.  

“When we were made aware of this need, we didn’t have to think too long about it. Our focus continues to be to invest in high impact programmes that save lives or significantly improve the quality of life for very sick or terminally ill children. We look forward to continuing our partnership with the Edinburgh Children’s Hospital Charity and expanding our support across other areas of critical care.”  

Roslyn Neely, CEO of Edinburgh Children’s Hospital Charity, said: “With the new children’s hospital now open, we are thrilled to have partnered with the Welch Trust to bring the world-class LITT equipment to Scotland for the first time.    

“It is always very satisfying for us to be able to join with another funder who have a similar desire to support the hospital with projects that will transform children’s health. 

“Having the laser surgery available in Edinburgh gives families more choice in their place of care and means they will no longer need to endure the financial and emotional cost of national or international travel and separation at a very stressful time. It will also place Edinburgh and NHS Lothian on the map as a world-leading provider of epilepsy surgery and treatment.” 

Dr Edward Doyle, Associate Medical Director, Women and Children’s Services, NHS Lothian said: “Across NHS Lothian, we continually look at new and emerging technology and treatments to see how they could benefit our patients.

“We are delighted that through the support of both the Welch Trust and Edinburgh Children’s Hospital Charity, we will be the first in Scotland and only the second location in the whole of the UK to offer LITT surgery. 

“Severe epilepsy can be very difficult to live with and puts an enormous strain on families. Having a world-class cutting edge treatment option available here in Lothian, which is both less invasive and which reduces recovery time, will make a huge difference to lives of children and their families across Scotland.

“This treatment really does have the potential to transform lives and our teams at the Royal Hospital for Children and Young People are delighted that they will soon be able to offer it as a treatment option.”

The new laser equipment is compatible with the intra-operative MRI suite at the RHCYP. It is expected to arrive in summer 2021, followed by a period of intensive training prior to the first surgery taking place. 

Two thirds of people in Scotland support car-free zones outside schools

  • New research reveals nearly two thirds (67%) of people in Scotland support car-free zones outside schools to help more families walk to school.
  • It comes ahead of Living Streets’ Walk to School Week (17-21 May) when thousands of children will take to their feet for the journey to school.

New research reveals the majority of people in Scotland are in favour of measures to make it easier for families to walk to school.

Living Streets, the UK charity for everyday walking carried out the research ahead of national Walk to School Week (17 – 21 May 2021).

The YouGov poll found that nearly two thirds of people in Scotland (67%) support car-free zones outside schools, with support also for safer crossings (57%), a ban on pavement parking (55%) and lower speed limits (47%).

One in four cars on Britain’s roads at peak times are on the school run, generating half a million tonnes of carbon dioxide a year. The charity is urging families to leave the car at home for the journey to school and is urging local authorities to make it easier for families to choose cleaner, sustainable travel.

Mary Creagh, Chief Executive, Living Streets said: “We’ve seen the huge improvements on offer to health and air quality when we drive less and walk more. We need to ensure families feel safe and confident to walk to school so we can keep enjoying these benefits.

“We work in over 2,000 schools across the UK and parents tell us they are put off walking because of speeding vehicles, unsafe crossings and cars parked on pavements. By making school streets car free, we remove those barriers – and our new research shows that most people back these changes.  

“We want at least one School Street – closed to traffic at drop off and pick up times – in every ward to help more families enjoy the fresh air, freedom, friendship and fun that walking to school brings.”

Thousands of children across the UK will celebrate the benefits of walking during Walk to School Week (17 – 21 May 2021).

Walk to School Week is organised by Living Streets, the UK charity for everyday walking as part of their National Walking Month campaign each May.

Families will be encouraged to walk, cycle, scoot or ‘Park and Stride’ for the whole week to see the big differences that come from small steps, from healthier and happier children to fewer cars outside the school gates.

It’s Veggie week at Murrayfield Nursery

EDINBURGH NURSERY GOES VEGGIE FOR NATIONAL VEGETARIAN WEEK

The Murrayfield Nursery in Edinburgh is serving up an entirely vegetarian menu to children this week, as part of National Vegetarian Week celebrations.

The Nursery has incorporated a range of enticing vegetarian meals in place of its usual rolling spring/summer menu for children to experience and enjoy each day.

Alongside the change in menu, children will also explore a variety of vegetables as part of their opportunities to learn through play at the Nursery.

Nursery Manager Rhonda Houston said: “We’re pleased to be offering a healthy, nutritious meat-free menu to all of our children this week as part of National Vegetarian Week.

“We’re always promoting the benefits of a healthy, balanced diet, and sharing information about where our food comes from – and this was another fun opportunity in which to do so.

“We already offer a vegetarian/vegan option as part of our seasonal menus at The Murrayfield, but it will be nice to introduce all of our children to new tastes, textures and flavours, which we can all share in together.”

The Murrayfield Nursery provides inspiring environments to children aged 12 weeks to five years and is part of the independent CC Nurseries group, which already provides inspirational Early Childhood Learning and Care for over 600 families in settings across England and Scotland.

More information about the Nursery can be found at www.themurrayfieldnursery.co.uk 

or via Facebook at fb.com/murrayfieldnursery

Best Start Grant and Best Start Foods pay £53.8m since launch

Official statistics have been published for Best Start Grant and Best Start Foods for the period from December 2018 to 28 February 2021.

More than 162,800 Best Start Grant and Best Start Foods applications have been approved, with a total of £53.8 million paid to clients since launch.

Three cash payments make up Best Start Grant. These are Pregnancy and Baby Payment, Early Learning Payment, and School Age Payment.

Best Start Foods is a prepaid card that can be used in shops and online to buy healthy foods for pregnant mothers and children under three-years-old.

Since launch, more than £17.1 million of payments have been awarded for Pregnancy and Baby Payment, £13 million for Early Learning Payment, £10.1 million for School Age Payment and £13.6 million paid through Best Start Foods.

Authorised applications for December 2020, January 2021 and February 2021 for all payments stand at 4,755, 4,545 and 5,480 respectively.

Social Security Scotland began taking applications for Scottish Child Payment in November 2020. As part of the application process, individuals can choose to make a joint application for Scottish Child Payment, Best Start Grant, and Best Start Foods.

Details on how to apply for Best Start Grant and Best Start Foods are available at MyGov.scot.

Financial boost for children in the east of Scotland

Disadvantaged young people across Edinburgh, the Lothians, Fife and Falkirk have received a financial boost with the launch of a new partnership between Radio Forth’s Cash for Kids and Charles River Laboratories.

The pharma company has presented the charity with a donation of £10,000 and pledged to raise more vital funds in the future. The donation will go directly towards the next grant round of funding, supporting community groups and families – many of whom are facing a financial emergency in the pandemic.

As part of the partnership, colleagues at Charles River Laboratories have signed up to take part in the Virtual Kiltwalk as well as Cash for Kids’ own Virtual Tour de Forth event. They’ll also provide a team of volunteers for the next Mission Christmas campaign in December.

Edinburgh-based Director at Charles River Laboratories, Morag Myers, said: “After such a challenging year for fundraising, we are hopeful that this initial donation of £10,000 will go a long way to help families in our local community and have a positive impact on the lives of children and young people.

“At Charles River, our purpose is clear, and our passion is strong: together, we create healthier lives.  One of our key values is Care and one of the ways that we demonstrate this is by supporting  the communities where we work and live.  By Supporting Cash For Kids we are looking forward to doing just that.”

Charity Manager at Radio Forth’s Cash for Kids, Victoria Hendry, added: “2020 was a hugely challenging year for our charity, with events and numerous fundraisers cancelled, but it was thanks to the efforts of our individual and corporate supporters that we were able to re-open grant funding towards the end of the year.

“We’ve already supported more than 7,000 children in 2021, with over £110,000 in financial support so far.

“We’re incredibly grateful to the Scottish team at Charles River Laboratories for their generous donation and commitment to go even further for us in the future. The pandemic has proved to us that every single penny we raise can make a difference. Their donation will change lives for the better and help Cash for Kids reach and help even more young people right across the region.”

Child abuse helpline referrals in Scotland increased by more than a third during pandemic

  • Adult’s mental health and behaviour was the top concern followed by physical abuse, neglect and emotional abuse
  • The charity calls for recovery plans of next Scottish Government to go beyond education and invest in a positive future for children
  • The NSPCC reveals plans for Childhood Day this June which will bring people together to celebrate play, raise money and help keep children safe

The number of referrals made by the NSPCC child abuse helpline to agencies in Scotland in the last 12 months were almost 40% higher than the previous year.

The service made nearly 2,500 referrals to external agencies such as the police and local authorities from April 2020 to March 2021, compared with 1,781 in 2019/20.

Referrals are made when concerns reported to the helpline are considered to be serious enough to warrant further investigation or if it is felt a family needs support.

The figures echo concerns from the charity’s frontline teams that the pandemic has increased the risks of abuse and neglect, with children both more vulnerable and out of sight of people who can keep them safe.

The NSPCC is now warning that with most children back in schools and society, the hidden harms they experienced during the lockdowns will become visible.

The charity is calling for the Governments across the UK to invest in a positive future for children by ensuring their catch-up plans go beyond education.

In the short term, they must address the harm and trauma children may have faced in the past 12 months, but Governments must also use the opportunity to invest in keeping children safe and well in the future.

The charity believes that investing in support for very young children must be a priority for the next Scottish Government, because this is a particularly vulnerable stage in life when foundations for lifelong health and wellbeing are built.

It is crucial that there is substantial investment in public services – universal and specialist – so all parents in Scotland are supported to give their children the best start in life.

The top reason for referral in Scotland from the helpline was parental and adult mental health and behaviour, which increased by 86% from the previous year to more than 950 referrals.  

This includes worries about parental alcohol and substance misuse, domestic abuse and parental mental health.

This was followed by:

  • Physical abuse, which increased by 42% to 490 referrals
  • Neglect, which increased by 2% to 422 referrals
  • Emotional abuse, which increased by 15% to 289 referrals

A parent from Scotland who contacted the helpline said: “I was recently let go from my job and I haven’t been coping well with the stress of it all. I’ve been drinking more than I used to and me and my wife argue almost every day.

“Sometimes the rows happen in front of our two-year old daughter – I’m worried what affect it must be having on her.

“Me and my wife have tried couples counselling in the past but it didn’t really work for us. I really want to get my anger under control so I’m hoping you might be able to help.”

To build a better future for children, the NSPCC is urging the Scottish Government to put young children’s social and emotional wellbeing at the heart of recovery planning. Investment to radically transform early childhood must be the legacy of this pandemic.

To do this, it must:

  1. Undertake a Scotland-wide needs assessment to build a true picture of infancy across the country and where there are gaps in support, or systems which need to change.
  2. Follow the blueprint set out in the Independent Care Review’s Promise report, build intensive family support provision, considering specifically what support families with young children need.
  3. Invest in specialist services which support the parent-child relationships so all parents in Scotland are enabled to give their children the best start in life.

Sir Peter Wanless, NSPCC CEO, said: ‘”We’ve been hearing first-hand about the immense pressures families have faced during the pandemic and the heavy toll that has taken on children and young people. For some children, this has included experiencing abuse, bereavement and other harm. 

“The record number of contacts to our helpline reinforces the need for Governments across the UK to put children at the heart of their recovery plans. These must go beyond education and address the harm some have experienced so the pandemic doesn’t leave a legacy of trauma for children.

“But this isn’t just a job for our Governments. Everyone has to play their part in keeping children safe. And that’s why we’re planning Childhood Day on 11 June when we’ll celebrate childhood and encourage people to get involved in making sure all children grow up happy and safe.”

The campaign will celebrate childhood by bringing the nation together to play, raise money and help keep children safe. It will put a spotlight on what it is to be a child, whilst also showing we must work together to prevent abuse and protect children.

Youngsters return to pools with a splash in Edinburgh!

Young swimmers are celebrating their return to swimming lessons – and at the same time are showing how healthy activities can return post-lockdown – with the reopening of ten pools in Edinburgh.

Following months of closure caused by the pandemic, Edinburgh Leisure has been able to facilitate the return of 4,370 children to the national Learn to Swim Framework.

Edinburgh Leisure operates pools at Ainslie Park Leisure Centre, Drumbrae Leisure Centre, Gracemount Leisure Centre, Dalry Swim Centre, Glenogle Swim Centre, Leith Victoria Swim Centre, Portobello Swim Centre, The Royal Commonwealth Pool, Queensferry High School and Currie High School.

The Learn to Swim Framework, a partnership between Scottish Swimming and Scottish Water, is delivered by Leisure Trusts and aquatic providers enables children of all ages to become safe and confident swimmers.

Edinburgh Leisure has welcomed back 4,370 children and young people from babies through to Club level from 26 April 2021 – the first lessons in the area since pools had to close in December following an initial re-opening in September at the end of the first national lockdown.

Angela McCowan, Aquatics Development Manager at Edinburgh Leisure said: “We are delighted to be welcoming so many children and young people back to our pools across the city. Not only is it a great opportunity for them to get active again but they are learning critical life skills, which will keep them safe in and around water.”

New measures have been put in place, including social distancing, additional hygiene procedures, instructors teaching from poolside and children arriving to lessons ‘Beach Ready’ with their swimming costumes on under clothing.

Around 85% of the 39 Learn to Swim Framework providers are set to resume their programmes over the coming weeks and Edinburgh Leisure will open 10 pools for lessons.

The Learn to Swim partnership between Scottish Swimming and Scottish Water was extended for a fourth year in 2020 following its success in creating a 100,000-strong new generation of safe swimmers.

Euan Lowe, Scottish Swimming chief executive officer, said: “After a long period of various closures and restrictions, we’re thrilled to see children return to the water. It’s great to see their excitement and eagerness to get back into the water. We look forward to seeing lessons resume right across the country over the coming weeks.

“It is also encouraging to see the nation’s youngsters take a lead in showing that health and leisure activities can be resumed post-lockdown. We know from recent studies and advice from the World Health Organisation that the properties of chlorine make pool environments safe spaces during this pandemic to participate in sport and exercise.

“The Leisure Trusts and aquatic providers involved with Learn to Swim has shown what can be achieved when everyone works so closely and diligently together.”

Brian Lironi, Director of Corporate Affairs with Scottish Water, said: “It’s fantastic to be in a position now where we can restart the programme and enable more children to become strong and confident swimmers – especially in the lead up to summer.

“With our partnership with Scottish Swimming into its fourth year, we look forward to seeing thousands of youngsters continue to both start and enjoy their lessons.”

The Learn to Swim Framework is aimed at youngsters from birth to 11-years-old and provides consistently high-quality teaching which progresses through a series of lessons and levels over a number of years.

More information on the Learn to Swim Framework can be found on the dedicated website: www.learntoswim.scot

Collective Play on Calton Hill

Join us at Collective for a weekend of free, socially distanced, outdoor play and crafty activities for local families and under 12s.

Taking inspiration from Christian Newby’s new large-scale textile work in the City Dome, Collective Play: Warp/Weft invites children and families to take part in creative play and fibre art activities across the site!

Throughout the weekend:

  • Try your hand at weaving with artist and maker Rhona Jack as the City Observatory pillars become a giant loom!
  • Claim your free fibre craft and play pack, designed by Rhona with everything you’ll need to make your own tapestries using recycled materials
  • Visit Christian Newby’s exhibition, Boredom>Mischief>Fantasy
    >Radicalism>Fantasy
    : learn about the tools Christian used to create his textile work, and see how many different motifs you can spot in the tapestry
  • Explore the history and nature of Calton Hill using our family-friendly trails.

Collective PLAY: Warp/Weft is free, donations welcome, but booking either a morning or afternoon slot via Eventbrite is required.

Every care has been taken when organising this event to ensure the safety of visitors, staff, and to adhere to COVID-19 government guidelines:

  • Pre-booked tickets for a morning or afternoon session will allow us to maintain a safe number of visitors to Collective Play at all times.
  • Materials packs have been carefully packaged using sanitised hands and will be yours to keep after the event.
  • Children and adults will be asked to sanitise their hands before taking part in the giant weaving activity, and numbers will be limited to ensure social distancing.
  • All play will take place outdoors. Collective is based in a large public park, Calton Hill and, after taking part in the on-site activities, we encourage families to take their materials packs out into the park to explore.

Tickets are limited and previous events have sold out so early booking is recommended – all details and booking link are on our website here:

https://www.collective-edinburgh.art/programme/collective-play-warp-weft

Rhona Jack is a multi-disciplinary artist, living and working in Dundee, whose practice is formed by a combination of sculpture and fibre art, often blurring the lines between art, craft and design.

She graduated from Duncan of Jordanstone College of Art & Design in 2017 and is currently a Committee Member of GENERATORprojects.

Recent exhibitions include ‘Wear and Tear’ (Nomas* Projects, Dundee, 2021), ’Women in Print’ (Zane Bennett Contemporary Art, Santa Fe, 2020), Platform (City Art Centre, Edinburgh, 2020), Reduct (Royal Scottish Academy, Edinburgh, 2020), Satellite (Summerhall, Edinburgh, 2018), Inside:Outside and An Isolated Process (both MERZ Gallery, Sanquhar, 2020).

If you have any questions about Collective Play please get in touch: mail@collective-edinburgh.art

Aldi donates 12,088 meals to Lothian charities over the Easter School Holidays

Local charities in the Lothians helped Aldi donate 12,088 meals to people in need over the Easter school holidays. 

The supermarket paired up its stores with local charities, community groups and foodbanks to donate surplus food, prioritising donations to those focused on feeding children. 

Around 36 tonnes of food were donated throughout Scotland, with more than 61,000 meals, including over 47,500 meals for children, donated to causes supporting families and children in need. 

The donation is part of Aldi’s commitment to donate 10 million meals across the country in 2021, in partnership with community giving platform Neighbourly.  

So far this year, Aldi stores across the UK have already donated more than two million meals to good causes.  

Mary Dunn, Managing Director of Corporate Responsibility at Aldi UK, said: “We’re proud to support good causes in the Lothians, helping them to provide meals to those in need over the Easter period.  

“At a time when more people are experiencing financial hardship and food insecurity due to Covid-19, we are committed to doing what we can to donate more meals in 2021 than ever before.” 

Steve Butterworth, from Neighbourly, added: “The school holidays are often a busy time for the nation’s charities and food banks. I’m sure Aldi’s donation will have been a massive help for so many of these vital organisations.” 

Breadwinners need to earn more than £40k for their household to live the UK’s average lifestyle

  • New research shows how much is needed to live the life of the UK’s average household
  • One person would need to earn £42,781, while a couple would need to be paid £18,714 each
  • A UK household would need one person to earn an annual salary of £42,781 to be able to live an average life.

The average household is made up of 2.4 people, and has annual outgoings of £30,571, while also saving £2,160 per year, according to statistics from the ONS.

Research from IVA Advice reveals that a single breadwinner in the household would need to earn £42,781, giving them an after tax income of £32,731 to account for the UK’s average spending and saving.

Despite covering the typical outgoings of a UK household, the salary itself is 37% above the national average.

According a range of job websites, positions paying an average of £42,781 per year include the role of Team Leader in Warwickshire County Council, an environmental engineer in Strood, and a Pharmacy Manager in West Bromwich.

Alternatively, if two people are bringing in a salary, they each need to earn £18,714 a year, which equates to a net wage of £16,366 each. The annual income is 18% below the national average, but two people earning the amount would be able to live the UK’s average lifestyle.

Jobs in which people can make around £18,714 a year include a Forklift Counterbalance Operative, a Production Factory Operative, a JD Sports Fashion Assistant Manager, or a Legal Assistant.

The average UK household budget breaks down to £2,548 a month, with some of the biggest monthly costs including housing, i.e. paying a mortgage or rent, at £309, food and drink at £279 and recreation and culture, such as pet and TV fees costing £205.

The study was conducted by IVA Advice to raise awareness of the importance of keeping track of household finances.

Commenting on the study, a spokesperson for IVA Advice said: “These figures show that a person needs to earn a considerable wage for their household to live the UK’s ‘average’ life.

“People often feel under pressure to have the newest and best things, never mind just the ‘average’. So it’s not surprising that people can easily overspend and find themselves in debt trouble very quickly.”

www.iva-advice.co