Young People’s Bereavement Charity Partners with Cancer Charity with Local Centre

The UK’s first children and young people’s bereavement charity, Winston’s Wish, is delighted to announce its new partnership with cancer care charity Maggie’s. These two national charities are pleased to work together to help ensure that children and young people receive true wraparound support when someone in the family or friend circle is living with advanced cancer.

Winston’s Wish is the UK’s first charity established especially for bereaved young people. Estimates suggest that, devastatingly, each day, more than 100 children in the UK are bereaved of a parent and that figure doesn’t equate how many young people are coping with the death of a sibling, grandparent, friend, or another significant individual in their lives. 

Maggie’s has 24 cancer centres built in the grounds of NHS hospitals throughout the UK.  The charity provides expert support from diagnosis onwards for the person with cancer as well as family and friends.  

Maggie’s Chief Executive Dame Laura Lee said: “Our experts are there for people at possibly the hardest time of their lives, offering free practical and psychological care and support when they need it most. We are here for people with cancer and those who love them for every stage which includes pre bereavement or when bereaved.

“In 2023 we supported people living with cancer more than 300,000 times and we know that number will only rise as more people find themselves living with cancer.”

Each year Winston’s Wish supports and impacts the lives of more than 80,000 grieving children and young people when their lives are turned upside down by bereavement. 

Winston’s Wish supports grieving young people up to the age of 25, offering offers a range of services designed to support children 12 and younger to explore grief through arts and play such as creative therapy. The charity also provides special support and content designed for 13–25-year-olds on the charity’s Talk Grief website which includes real life stories and articles regarding what it’s like to grow up with grief. 

They also produce a special podcast entitled Grief in Common which features interviews from the charity’s dedicated Youth Ambassador Team, made up of those with lived experience of grief.

As well as providing support with bereavement, whether it is from traumatic circumstances, illness or other circumstances, the charity also provides advice for pre-bereavement when there is a terminal diagnosis including offering expert support surrounding how adults can talk to younger children about death and dying, the importance of using direct language and tips about how to remember their special person. 

In a similar vein, Maggie’s supports the entire family when there is a cancer diagnosis and offers support to young people when somebody in their circle receives the news that someone they love has cancer.

Winston’s Wish vision is that no child is left to grieve alone and as such, Winston’s Wish is pleased to be joining forces with the national cancer charity, in order to be visible and accessible in relevant spaces. As part of the partnership, each charity’s services will be signposted to service-users to ensure that they know of the specialised support available to them.

Letizia Perna, Director of Services and Service Transformation at Winston’s Wish is pleased to officially announce the partnership between the two charities. She says, “As we publicly announce the partnership between Winston’s Wish and Maggie’s, we will be combining expertise in childhood bereavement and cancer support.

“This strategic partnership between our two charities demonstrates a profound commitment to supporting children, young people, and families impacted by cancer, particularly those navigating the challenges of bereavement. Together, we will offer a compassionate network that embraces bereaved children, young people, and families, ensuring they feel seen, understood, and supported through their grief journey.”

Maggie’s Chief Executive Dame Laura Lee said: “We are delighted to be partnering with Winstons’ Wish.  By working together, we will ensure that thousands of children and young people experiencing bereavement through cancer get exactly the right support they need.

“We see and hear in our centres everyday how the impact of a cancer diagnosis ripples out through families.”

Together with Maggie’s, Winston’s Wish is keen to ensure that its services are visible and accessible to the countless children, young people and their families throughout the UK whose lives are turned upside down by grief. With support from Maggie’s and their expert cancer support, the charities are pleased to announce their partnership and work together to improve the accessibility of support for young people when cancer is close to home.

Winston’s Wish is keen to reassure bereaved young people and their families that they are welcome to chat online, email or call for free to speak to a bereavement support worker by calling 08088 020 021 between 8-8 weekdays, emailing ask@winstonswish.org or using the live chat at winstonswish.org

Winston’s Wish is pleased to launch its Christmas appeal, entitled ‘Colour Their Christmas’. This heartwarming animated video serves to remind people that this winter there are children and young people facing the festive season without the special person they love.Winston’s Wish can’t take their grief away, but we can help grieving children and young people find glimmers of hope. And with your support, together, we can bring colour back into their world. To donate, please visit Colour their Christmas | Winston’s Wish.

Transforming Cancer Care: Macmillan’s Peer Evaluator project

LISTENING LEADS TO CHANGE

The Macmillan Transforming Cancer Care Lived Experience Programme has published it’s Peer Evaluator project report.

Read the full report that puts considerations of equality right at the heart of its engagement:

https://www.alliance-scotland.org.uk/…/peer…/…

Exciting new venue for this years’ Edinburgh Macmillan Art show

 The much-loved Edinburgh Macmillan Art Show is back this month with a live show (25th & 26th November) plus an online exhibition (25th November – 3rd December) hoping to add to the £550,000 they’ve already raised for Macmillan Cancer Support spanning over two decades. 

For the first time the show will be held in the Cornerstone Centre, St John’s Church (on the corner of Princes Street and Lothian Road) on 25th and 26th November. It will then continue online until 3rd December. 

This limited time show is run purely by volunteers with a dedicated committee volunteering their time and expertise to orchestrate a highly professional art show for the 21st year. 

This year, over 300 pieces of art will feature, at an estimated value of over £100,000. At least 50% of each piece sold is donated to the cancer charity.

These include works by Rosalind Lawless, Ian Darling, Lynn McGregor RSW, Wendy Helliwell, Charity McArdle, Marion MacPhee, Catriona Millar and Lakshman Wimalasena.

ALAN ARMSTRONG

Artist, Alan Armstrong, is a 48 year old neurodivergent adult with a diagnosis of ADHD and Autism. Throughout the various lockdowns he used Art Therapy for himself, but has also brought his creativity to artists with sight impairment and other additional needs. This experience has led to the development of ‘elevated abstract skills’.

He has collaborated with The Wee Hub (Living Memory Association) on Creative ADHD 2022, Remakery Refashion Edinburgh, ArtSquat, Edinburgh Stories with Sally Richardson, Out Of The Blue Drill Hall, Make Plastic Magic 2023 with Pianodrome and Hannah Evans, Out Of Sight Out Of Mind and REVOLUTION 2023.

Alan has two paintings in this years’ Edinburgh Macmillan Art Show and says he’s always had admiration for Macmillan and the work they do. “My family lost our Nana Morag and Uncle Jim to this horrible disease and the impact of watching them become ill was awful because we could not stop the hold it had on them.

“I want to support Macmillan to keep helping others who are amazingly courageous to keep fighting to live and live well. I hope you enjoy my Art as much as I do! I really thrive from giving back to my community.”

EVELYN MCEWAN

Artist, Evelyn McEwan, is a retired Biomedical scientist who, after a career working in Clinical Laboratories, has now taken to painting as a second career.

She started in 2004 with a class on watercolours but now paints in all mediums. She is a member of Veronica Liddell’s Corra Linn Artists Group in New Lanark and Sharon Bradley’s Biggar Botanical Artists Group and has three paintings in this years’ art show.

“I worked in NHS Clinical laboratories for 44 years helping to provide results for diagnosis, quick turn-around testing for patients waiting for chemotherapy and blood transfusion support for those who needed it. So, I saw at first hand the number of people affected by cancer.

“But it isn’t until your own family and friends are touched by the disease that you realise the amazing job Macmillan do for families and individuals. Art is a hobby for me, and I’m honoured to be able to use that gift to give something back and to support Macmillan.” 

Matt Smith, Macmillan Fundraising Manager in Edinburgh said “I’m delighted to be working alongside the committee on the annual Edinburgh Macmillan Art Show.

“They are an incredible group full of talented, committed, and passionate individuals who come together to create one of the most exciting events in Macmillan’s Scottish calendar. 

“We want to say a huge thank you to everyone on the Art Show committee for their support, for raising vital funds and helping raise awareness. It is thanks to the incredible dedication of volunteers such as these that we can continue to provide services to support people living with cancer at every stage of their cancer experience.”

The true value of the money raised, and the artwork donated is recognised in the services that Macmillan provides for cancer patients across Scotland.

In supporting the event, artists and art lovers are helping people to live their best possible life with cancer. 

Macmillan’s Art Show is available to view online here:

http://www.macmillanartshow.org.uk

‘World class’ child cancer care strategy launched

A strategy to deliver world class cancer care for children and young people has been published by the Scottish Government.

Collaborative and Compassionate Cancer Care, the Cancer Strategy for Children and Young People in Scotland 2021-2026, was launched by Health Secretary Humza Yousaf during an online event yesterday.

The strategy highlights 10 priorities for the next five years, supported by almost £6 million investment, which include:

  • working towards funding genetic testing to provide personally targeted treatment
  • expanding Chimeric Antigen Receptor T-Cell therapy (CAR-T) to teenagers and young adults
  • setting up a national molecular radiotherapy service for children
  • funding a dedicated health workforce to care for teenagers and young adults 
  • raising the profile of supported care services and holistic care
  • developing a single centre of excellence to provide radiotherapy treatment to improve survival among children with cancer

Mr Yousaf said: “Receiving a cancer diagnosis is never easy, but receiving one at such a young age is especially difficult.

“We know that diagnosis has come a long way, with survival rates remaining stable for children and young people. However there is still more we can do to support this age group to live long, healthy and happy lives.

“This strategy, backed by almost £6 million, marks an exciting time for children and young people’s cancer services as the first strategy for this age group. It outlines our 10 ambitions to build on previous successes so that, by 2026, we will see improved and enhanced outcomes for patients and ensure equal access to care across Scotland.”

Medical Director of NHS Forth Valley Andrew Murray said: “I am delighted to see the launch of Collaborative and Compassionate Cancer Care, after such a challenging period in the NHS Scotland’s history, and I look forward to working with our clinicians and families to deliver its ambitious objectives over the next five years, improving experiences and outcomes.”

The strategy can be read in full here.

The launch was somewhat overshadowed by news that the Scottish Government is calling in the army to help tackle a crisis in the ambulance service – and a Twitter post of a film of Health Minister Humza Yousaf’s unfortunate accident on a scooter.

‘Prehabilitation’ for cancer patients in Scotland

A new scheme to provide pre-treatment support to cancer patients is launching across Scotland. The project will give tailored help and advice on exercise, nutrition and mental health, to improve outcomes for those preparing for cancer treatment.

Prehabilitation – pre-treatment rehabilitation – will be offered at all eight Maggie’s centres across the country, thanks to Scottish Government investment of £270,000.

Health Secretary Humza Yousaf visited the charity’s Dundee centre where he learned more about the project. He said: “Prehabilitation enables people with cancer to physically and mentally prepare for treatment by adopting healthy behaviours – with the ultimate aim of improving outcomes for them.

“It can reduce the length of stay in hospital and post-treatment complications, and improve recovery, fitness, nutritional status, neuro-cognitive function and quality of life.

“This pilot scheme will help us understand how the NHS and Third Sector can work together to help people ahead of their cancer treatment.

“With eight centres across Scotland, working with Maggie’s allows us to meet the needs of cancer patients close to home. We want to empower them to get the best possible results from their treatment, and improve their long-term health.

“Cancer treatment has remained a top priority for the Scottish Government and NHS Scotland throughout the Covid-19 pandemic.”

Maggie’s Chief Executive Dame Laura Lee said: “We are delighted to be working with the Scottish Government to support people with new cancer diagnoses to understand the benefits of making changes before treatment begins.

“Gentle exercise, eating well and emotional and psychological support are already aspects of the Maggie’s core programme of support – but this usually comes after the patient has started treatment. This new project will ensure newly diagnosed people find support sooner, and will be delivered while working with the NHS as part of their overall care package.”

Prehabilitation is a flagship action in the Scottish Government’s Cancer Plan. As a component of rehabilitation, it should underpin the whole cancer pathway and be integral to the care of all people with a cancer diagnosis.

The Scottish Government has established a Cancer Prehabilitation Steering Group, to ensure lessons from the Maggie’s pilot and other approaches are shared across Scotland and inform future ways of working.

Briggs urges progress on cross-boundary health planning

Briggs Calls for More Progress on Development of New Edinburgh and South East of Scotland Centre

Tory health spokesman Miles Briggs spoke in the Procurement debate at Holyrood yesterday. The Lothian MSP spoke on improving and promoting regional procurement, using the example of when a number of health boards or local authorities pool resources to construct Regional Centres or projects that go across council boundaries. Continue reading Briggs urges progress on cross-boundary health planning