New online support hub launched for people with post-COVID breathlessness

Asthma UK & British Lung Foundation have launched an online Post-COVID HUB and dedicated helpline to support people affected by breathing difficulties after COVID-19.

While evidence on the long-term health effects of COVID-19 is still emerging, a range of early studies have suggested that people hospitalised with severe symptoms from the virus are developing chronic respiratory symptoms.[1]

Post-Covid.org.uk, is a site for patients, healthcare professionals and researchers. It aims to bring experts together to lead ground-breaking research, to better understand the long-term effects of COVID-19 on respiratory health and provide a central point for health information and advice for patients.

Joseph, Head of Asthma UK & British Lung Foundation Scotland, said: “As a respiratory charity, we support the thousands of people across Scotland who have breathing difficulties. We understand the toll it can have on people’s lives and the concern many have about the long-term effects COVID-19 will have on their lung health.

“At a time when the NHS is under immense pressure, we want to ensure anyone who’s respiratory health is affected post-COVID can get the help and support they need. That is why we are proud to be launching our Post-COVID HUB.

“The HUB is the first of its kind in the UK. It brings together patients, researchers, and healthcare professionals to provide the latest information on the impact of COVID-19.  We also want to ensure that research and clinical services develop so we can effectively treat any new chronic breathlessness emerging from this crisis.”

The hub is also supported by academics, professional bodies, and respiratory experts:

Professor Jon Bennett, Chair of the Board of Trustees at the British Thoracic Society, said: “We support the launch of the Post-COVID HUB, which will be critical in assessing what care people need post-COVID. Many people are suffering an acute severe lung injury with some ending up in intensive care, and we know that this can have an impact on people long term. 

“We urgently need post-COVID care research and guidelines, to ensure we know what the best treatments are ongoing, and that people can access appropriate support and maximise their recovery.”

Carol Stonham MBE, Chair of the Primary Care Respiratory Society & Senior NHS Nurse Practitioner (respiratory) said: “We welcome the introduction of the Post-COVID HUB. These are times of rapid change with many people recovering from sudden episodes of severe illness requiring critical care, then returning to community or primary care for ongoing management.

“Some will sustain ongoing lung damage, others psychological trauma. The sharing of resources allows clinicians to care for people safely and effectively wherever care needs to be delivered.”

Social Shielding already saving lives

Asthma UK & British Lung Foundation, the UK’s leading respiratory charity, has reiterated the need for everyone who meets the government’s ‘extremely vulnerable’ criteria to follow social shielding guidelines.

Those who have still not received an official ‘shielding’ letter but do meet the criteria are urged to contact their GP or hospital doctor as soon as possible. Social shielding involves staying indoors and avoiding face-to-face contact, utilising government voluntary support services to get the supplies they need.

A recent survey by the charity has revealed that 97% of those with chronic lung conditions in Scotland, who had received an official shielding letter, have said they were taking the measures seriously.

Of the 1188 Scots surveyed, just under 18% of respondents had received a letter to shield from the Scottish Government.

Other interesting findings from the survey include:

  • Anxiety among those with lung conditions is high, with almost 70% of respondents reporting their COVID-19 related a score of 8/10 or above.
  • 58% of smokers have said they are planning to quit due to COVID-19
  • 46% of people with lung conditions reported a disruption to their usual care due to COVID-19.

Joseph Carter, Head of Asthma UK & British Lung Foundation Scotland, said“It is crucial that everyone who is entitled to a shielding letter, even at this late stage, receives one. The evidence shows they work, and people do take the advice seriously.

“This is a marathon, not a sprint and there’s still a long way to go. Receiving these letters enables people to access the various resources and support available to them, to enable them to shield effectively and keep themselves safe.”

Andrew Whittamore, Clinical Lead for Asthma UK and the British Lung Foundation and a practicing GP, said: “Everyone with a chronic lung condition, including asthma and COPD, has been classified as being ‘high risk’.

“Everyone in this group should be strict about following the social distancing advice from the government. This group may not get a letter and do not necessarily need to shield but may choose to do so.

“We know that shielding isn’t as easy as it sounds, so it’s important that people only go through it if they’re in these ‘extremely vulnerable’ groups. A smaller group of people who are classed as ‘extremely vulnerable’ do need to go further and follow the shielding advice.

“It’s vital that anyone who is in these groups, but have not yet received a letter, contact their GP immediately. This will enable them to access all the Government support which is being provided to help them shield. Further advice can be found on the Asthma UK & British Lung Foundation websites.”

Further Advice:

  • For the latest Covid-19 health and shielding advice for people with asthma, visit the Asthma UK website at: asthma.org.uk/coronavirus
  • For the latest Covid-19 advice for people with all other lung conditions, visit the British Lung Foundation website: blf.org.uk/support-for-you/coronavirus
  • VIDEO: For anyone who has a lung condition and is still unsure if they should be shielding or not, the British Lung Foundation’s Medical Director Nick Hopkinson has produced this helpful video: https://www.youtube.com/watch?v=3xUmuf1wcLk

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