Minister hears from autistic people on their experiences of lock down

Minister for Mental Health, Clare Haughey MSP (who in addition has responsibility for autism and learning disability) joined an online group of autistic adults and carers yesterday to hear about their experiences of lock down.

The disruption of daily life and routine resulting from the pandemic and the lockdown has been very challenging for autistic people, 70% of whom are struggling with mental health difficulties and often intense anxiety.

Research from National Autistic Society Scotland has also shown that two thirds of autistic people in Scotland feel socially isolated and this was before social distancing was introduced in light of the Coronavirus pandemic.

The Scottish Government has recognised the fact that many autistic adults and families with autistic children are extremely vulnerable at this time and awarded the charity funds to provide specialist and moderated online social groups to reach as many autistic people carers and families as possible.

The online social groups allow staff to share information on staying safe and healthy as well as helping those with mental health needs and anxieties.

In addition, they also offer a safe and secure place where autistic people can connect and talk about whatever is important to them. There are specific groups focused on film & TV, gaming, craft, LEGO, politics, quizzes as well as for groups for young people, older people, carers, women as well as people from the LGBT+ community.

They’re a great way for people to build confidence, make friends and help with communication skills.

The Minister for Mental Health, Clare Haughey said: “We know that autistic people find the huge changes in their daily lives more difficult to deal with than many other people. That’s why we provided funding to the National Autistic Society Scotland to provide these vital online services for as many people as possible. 

“Taking part in one of the Society’s online social groups today was a great opportunity to hear directly from autistic people and their families on how the lockdown restrictions have affected them. Through our national strategy, we will continue our work to improve the lives of people with autism and ensure everyone gets the care and support they need.

Nick Ward, Director, National Autistic Society Scotland said: “We were delighted that the Minister could join one of our online groups to hear directly from autistic people and as to the challenges they face at this difficult time.

“Many autistic people are feeling the effects of the dramatic changes in their lives from pandemic and in many cases struggle with mental health difficulties or are very isolated within their communities.

“Our online Social Groups, offer a safe a secure space where people can meet and talk about the things that are important to them, form meaningful relationships and feel more connected. Our staff will also be on hand to offer support and tips around managing mental health and well-being and importantly staying safe.”  

Blair Spence who is autistic and from Glasgow said: “I’ve been going to the Social Groups for about 9 months, they’ve really helped my confidence and conversation skills as well as make new friends.

“The new online groups have been really fun. There are about 10 of us in the group and it works really well. It’s good to stay in touch with other people and we’ve done some exciting things with the group leaders like a virtual tour of an Aquarium and around San Francisco including going across the Golden Gate Bridge!

“I really look forward to the weekly online groups and I would recommend to other autistic people to give them a go.”

Funding boost to support autistic people

Two specialist organisations will receive additional funding to support 47,000 autistic people across Scotland during the coronavirus (COVID-19) pandemic.

Health Secretary Jeane Freeman has confirmed:

  • £160,000 to increase capacity in the Scottish Autism Helpline
  • £45,000 for the National Autistic Society to help people keep in touch online during lockdown

The Health Secretary said: “Autistic people find the extreme change in their daily lives more difficult to deal with, which is why we have fast-tracked this funding to improve the consistency and availability of support. These are unprecedented times and it is important autistic people know this support is there to help them and how to access it.

“This funding will help organisations provide autistic people and their families with a source of up-to-date information to manage their physical and mental health and wellbeing, as well as reduce social isolation by helping them forge sustainable and meaningful relationships.”

Charlene Tait, Deputy CEO at Scottish Autism, said: “During these uncertain and challenging times, our aim is to provide reassurance, guidance and support to autistic people and their families across Scotland. 

“These extra funds will allow us to extend our Autism Advice Line offering, enabling us to increase our operating capacity to seven days a week, 8am to 8pm.  We are all too aware of the impact this crisis is having on the emotional, physical and mental wellbeing of autistic people and their families. This funding will enable us to reach out and support people at this difficult and stressful time.”

Nick Ward, Director at the National Autistic Society Scotland, said: “We are very grateful to the Scottish Government for their work throughout this crisis to support autistic people and their families.

“With this funding we can drastically increase the number of online Social Groups, where people can meet and talk about the things that are important to them, form meaningful relationships and feel more connected. Our staff will also be on hand to offer support and tips around managing mental health and well being and importantly staying safe.”

Blair Spence, 19, of Maxwell Park, Glasgow, said: “I’ve been going to the Social Groups for about 9 months, they’ve really helped my confidence and conversation skills as well as make new friends. 

“The new online groups have been really fun. There are about 10 of us in the group and it works really well. It’s good to stay in touch with other people and we’ve done some exciting things with the group leaders like a virtual tour of an Aquarium and around San Francisco including going across the Golden Gate Bridge! 

“I really look forward to the weekly online groups and I would recommend to other autistic people to give them a go.”

Additional funding of £159,920 over a four-month period will allow the Scottish Autism Helpline to open 8am-8pm, seven days a week on 01259 222022.

National Autistic Society Scotland will use £45,057 to fully redesign face-to-face services onto an online platform, NAS Connect, to provide support during the COVID-19 pandemic.

The website will bring people together through interests such as film, books, arts, cooking, quizzes and computer games by facilitating social groups, coffee clubs and branch meet-ups that are unable to meet face to face at this time.

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