Dobbies launches Edinburgh 2021 festive events programme

New quiet grottos introduced at the Edinburgh store

With colder months on the way, the UK’s leading garden centre retailer, Dobbies Garden Centres, launches its events for the festive season, with booking open now in the Edinburgh store.

The ever-popular Santa’s Grotto experience is back. As one of the most loved, traditional festive experiences at Dobbies, little ones in Edinburgh will love walking through the outdoor woodland, spotting Christmas characters along the way before being welcomed by Santa and receiving a special gift. For those looking to create a lasting memory, a photo can be purchased.

New for 2021, at 50 stores across the UK, will be Quiet Grottos. Working in partnership with Autism Together, there will be Santa visits which are supportive of children with additional needs, considering sound and visual elements, and helping to minimise anxiety. 

Michelle Walklett, Head of Autism Together’s Autism Training and Advisory Service, said: “As a specialist UK charity supporting autistic people, we’re pleased to be working with Dobbies in Edinburgh to help enhance their Christmas Grotto experience for visitors with autism and other sensory needs.

“Through this partnership, we’ll also be delivering autism awareness training for Santa and all his elves and helpers in time for the festive season.”

Christmas is not just for children, and Dobbies is extending the festive fun to four-legged friends. At Santa Paws in Edinburgh, dogs have the chance to meet Santa, along with the whole family. Guests are invited to bring their cameras to get a snap, making it the perfect Christmas card photo opportunity.

At Santa’s Breakfast, families will be able to enjoy the ever-popular Dobbies’ breakfast. The festive event includes breakfast options for adults and children, followed by fun games and a visit from Santa with a special gift for each child. This event is suited to families with children aged 10 and under.

Sarah Murray, Partnership and Events Manager, said: “At Dobbies we want to offer families an opportunity to come together and make memories that last a lifetime. There truly is nothing more magical than Christmas for a child and our range of events helps to bring the season to life for all the family.”

Dobbies’ Edinburgh Christmas events are available to view online, with customers requested to book in advance. Also new for 2021 is the opportunity to add a donation to the price of an event ticket, for Dobbies’ National Charity Partner, Teenage Cancer Trust.

Bookings can be made at https://www.dobbies.com/events 

·         Christmas Afternoon Tea is available in 66 stores and starts on 1 November, £12.95 per adult and £6.95 per child.

·         Santa’s Grotto starts on 27 November in all 50 stores, from £11.99 per child.

·         Santa’s Breakfast is available in 66 stores and starts on 4 December, £13.99 per child and from £6.99 per adult.

·         Santa Paws starts on 4 December in 23 stores, £6.99 for dogs, £11.99 for children.

·         Quiet Grottos will be hosted on 10 December in 50 stores, from £11.99 per child.

Dobbies offers Book with Confidence. For more info: https://www.dobbies.com/book-with-confidence

10,000 autistic people to take part in the UK’s largest study of autism

An ambitious new research project, Spectrum 10K, launches today and will recruit 10,000 autistic individuals, as well as their relatives, living in the UK.

There is an urgent need to better understand the wellbeing of autistic individuals. Spectrum 10K hopes to answer questions such as why some autistic people have epilepsy or poor mental health outcomes and others do not

Simon Baron-Cohen

Spectrum 10K is led by researchers at the world-leading Autism Research Centre (ARC), the University of Cambridge, together with the Wellcome Sanger Institute and University of California Los Angeles (UCLA) and will study how biological and environmental factors impact on the wellbeing of autistic individuals.

In the UK, there are approximately 700,000 autistic individuals. The level of support needed by autistic individuals varies considerably. Many autistic people have additional physical health conditions such as epilepsy, or mental health conditions such as anxiety or depression.

It is unclear what gives rise to the diversity within the autism spectrum or why some autistic people have better outcomes than others. The project aims to answer this question and to identify what support works best for each individual.

Professor Simon Baron-Cohen, leading Spectrum 10K and Director of the ARC, explained: “There is an urgent need to better understand the wellbeing of autistic individuals. Spectrum 10K hopes to answer questions such as why some autistic people have epilepsy or poor mental health outcomes and others do not.”

Individuals of all ages, genders, ethnicities and intellectual capacities will take part in Spectrum 10K. Eligible participants join by completing an online questionnaire and providing a DNA saliva sample by post.

Autistic participants involved in Spectrum 10K can also invite their biological relatives (autistic or otherwise) to participate.

Information collected from the questionnaire and DNA saliva sample, and information from health records will be used to increase knowledge and understanding of wellbeing in autism.

Dr James Cusack, CEO of the autism research charity Autistica and an autistic person, said: “We are delighted to support Spectrum 10K. This project enables autistic people to participate in and shape autism research to build a future where support is tailored to every individual’s needs.”

The Spectrum 10K team views autism as an example of neurodiversity and is opposed to eugenics or looking for a cure for preventing or eradicating autism itself.  Instead, their research aims to identify types of support and treatment which alleviate unwanted symptoms and co-occurring conditions that cause autistic people distress.

The Spectrum 10K team collaborates with an Advisory Panel consisting of autistic individuals, parents of autistic children, clinicians, and autism charity representatives to ensure Spectrum 10K is designed in a way that best serves the autistic community.

27 specialist NHS sites around the UK are also helping with recruitment for Spectrum 10K.

Dr Venkat Reddy, Consultant Neurodevelopmental Paediatrician in the Community Child Health Services at Cambridgeshire and Peterborough NHS Foundation Trust, said: “There is a need to conduct further research into autism and co-occurring conditions to enable researchers and clinicians to build a better understanding of autism.

“I would encourage autistic individuals and their families to consider taking part in Spectrum 10K.”

Dr Anna and Alastair Gadney, parents of a teenager with autism and learning difficulties: “We have been exploring, over many years, how to implement the best support for our son.

“We wholeheartedly endorse Spectrum 10K and hope our involvement can help increase understanding of autism and in-turn support many families out there.”

Chris Packham, naturalist and TV presenter who is also autistic, said: “I’m honoured to be an ambassador of Spectrum 10K because I believe in the value of science to inform the support services that autistic kids and adults will need.”

Paddy McGuinness, actor, comedian, television presenter, and father of three autistic children, said: “As a parent of three autistic children, I am really excited to support Spectrum 10K.

“This research is important to help us understand what makes every autistic person different, and how best to support them.”

Recruitment for Spectrum 10K is now open. Autistic children under the age of 16 must be registered by their parent or legal guardian. Autistic adults who lack the capacity to consent by themselves must be registered by a carer/or family member.

To register, participants should visit www.spectrum10k.org

Coalition raises concerns as new figures highlight slump in support for vulnerable children

  • Near doubling in the number of pupils with additional support needs since 2012
  • Decline in the number of specialist ASN teachers by 578 since 2012
  • 500 per cent increase in those with mental health problems

An alliance of leading providers of children’s services, the Scottish Children’s Services Coalition (SCSC), has called for greater resourcing to support children and young people with additional support needs (ASN), both during and after the Covid-19 crisis.

The call comes as new figures out today (23rd March 2021) from the annual Scottish Government pupil census, reveal that while the number of specialist ASN teachers has slumped to a record low, the number of those pupils with ASN has escalated dramatically.

Between 2012 and 2020 the number of full-time equivalent ASN teachers (publicly funded primary, secondary, special and centrally employed) has fallen from 3,389 to 2,811, a decrease of 578 teachers (17%).

This fall is against the background of an overall increase by 92.2 per cent since 2012 in the number of pupils identified with ASN, from 118,034 to 226,838 in 2020,representing just under a third of all pupils (32.3 per cent).

The number of those with autism spectrum disorder has increased by over 150 per cent (from 8,650 to 21,820) between 2012 and 2020, those with social, emotional and behavioural difficulties by over 125 per cent (from 23,485 to 52,921) and those with mental health problems by 500 per cent (from 1,254 to 7,524).

Against a background of a per pupil cut in spending and in specialist support, the SCSC has called for greater resourcing from both the Scottish Government and local authorities to ensure that those with ASN in Scotland’s schools, who disproportionately come from lower income families and areas of deprivation, are getting the care and support that they need. 

The coalition has also raised concerns about the effectiveness of a presumption of mainstreaming, meaning that all pupils are educated in a mainstream educational environment unless exceptional circumstances apply.

A spokesperson for the SCSC commented: “It is vital that those with ASN get the care and support they need, especially during and as we come out of the current Covid-19 crisis.

“This is also key if we are to genuinely close the educational attainment gap as we know that those with ASN disproportionately come from lower income families and areas of deprivation. Such a situation is clearly challenging in an environment of austerity and evidence of cuts in spending per pupil with ASN and in the number of specialist teachers supporting this group.

“While we also support the presumption of mainstreaming, which means that all children and young people are educated in a mainstream educational environment unless exceptional circumstances apply, it is clearly difficult to see how this is functioning properly for all those with ASN given this fall in specialist support and increase in the number of those identified with conditions such as autism and mental health problems.

“The Scottish Government and local authorities need to work together to provide the necessary resourcing to address the needs of those children and young people with ASN, who represent some of the most vulnerable individuals in our society. “

‘Our Voice Our Rights’: Charities call for Autism Commissioner

ENABLE Scotland, National Autistic Society Scotland and Scottish Autism have today launched the ‘Our Voice Our Rights’ Campaign calling on the major political parties to commit to a Commissioner for autistic people and people with a learning disability at the forthcoming Holyrood election. 

The ‘Our Voice Our Rights’ campaign aims to make Scotland the best country in the world for the 56,000 autistic people, the 120,000 people with a learning disability and their families in Scotland. A country where human rights are respected and upheld; everyone has equal access to the services and support they need throughout their lives; and where autistic people and people with a learning disability are active citizens and fully supported to fulfil their potential.  

While there have been many ambitious and well-intentioned strategies over the years from Government and partners, and an extensive regulatory framework, the charities hear day in day out how too many people are struggling to access their human rights to education, work, a family life, healthcare, to high quality social care services, and to be free from discrimination in their communities. 

Many individuals and their families are exhausted from fighting tooth and nail to get the much-needed support and status as equal citizens. A fight that sadly, they often lose, leaving many in crisis, something brought into sharp focus by the pandemic and the pressures on the system. 

In the lead up to the Scottish Parliamentary Elections in May 2021 the three charities are standing together with autistic people and people who have a learning disability to say ‘enough is enough’ and calling on all the major political parties in Scotland to commit to a Commissioner to ensure real change. 

The Commissioner would be the first of its kind in the world, established in law to champion the human rights of autistic people and people with a learning disability.  

They would be a powerful voice, improving access to services and advocating on people’s behalf when they cannot and importantly helping people have the choice and control to live a good life, free from discrimination.   

They would close the current gap – between what the law says and what actually happens in reality. They would lead improvements and importantly people would also have recourse when the system falls short and fails to deliver for them.  

The charities have launched the campaign alongside autistic people, people with a learning disability and families including the broadcaster Stuart Cosgrove.   

A website is now live with a series of videos featuring people from across Scotland making the case for change. People are also being encouraged to get involved and to contact the party leaders to call for a Commissioner for autistic people and people with a learning disability to be included in their election manifestos.  

Peter McMahon who has a learning disability and is a member of ENABLE Scotland said: “We need a Commissioner for Learning Disability and Autism so that people who have a learning disability like me aren’t put on the back burner or forgotten about.

“With a Commissioner working with us we can improve access to services and speak up for people when they cannot. Most importantly we can help people live good lives with choice and control and free from discrimination. People with learning disabilities feel invisible, we don’t want to be the invisible people any more and feel a Commissioner would help us.”

Broadcaster Stuart Cosgrove who has an autistic son said: “This campaign has the capacity for real positive change – As a family we’ve been lucky in that Jack got his autism diagnosis early on as a child but like all parents I worry about what happens when he grows up and leaves school.  

“We of course want him to be independent, have his own place, a relationship, a job, all the usual things that parents hope for, but we also know those are likely to be challenging for him – he’s going to need that bit extra help and support.     

“I believe by and large Scotland has a caring culture but establishing a Commissioner at a national level with a legal obligation to look into the different aspects of public life would make a huge difference. It would help Scotland lead the way to creating a society that fully includes and values autistic people.” 

 

Local author generously donates book royalties to charity

A generous Edinburgh author has committed to donating royalties from her latest book to a leading education and social care charity.

Debbie Irving, who was born and raised in Edinburgh, has published her book, ‘My Brother is Different’, the royalties of which will be donated to LOVE learning.

This book is aimed at children with brothers and sisters who have autism, as a tool for them to better understand and explain why their siblings and other children might behave differently to them.

The picture book tells the story of how a brother and sister discover that their little brother’s autism can be difficult for them at school, but with some help from their mother, they realise that he is special in a good way too.

Written with experts on children’s mental health, ‘My Brother is Different’ is a way to help young children cope with autism and the effects it can have on their family and friends.

It has been estimated that more than 50,000 people in Scotland have an autism spectrum disorder. 1

Debbie, who is currently the Head of HR for an engineering company based in Fife, worked at Edinburgh City Libraries for nearly 18 years. She was inspired to write her book after a personal experience that took place two years ago when she went passed a school’s playground.

Debbie witnessed a young boy with autism experiencing a breakdown and was surprised by the looks of confusion in the faces of the other children, who did not understand what was happening to their friend.

Debbie who is a trustee of LOVE Learning has partnered with the charity to illustrate and print the book and has decided to donate all royalties in full to help with fundraising. The charity, which acquired Edinburgh’s much-loved LOVE Gorgie Farm, works to provide alternative education and social care for children with mental health problems and learning difficulties.

Debbie Irving and LOVE Learning intend to continue releasing several books for children, from short stories to novels, on themes concerning mental health, additional learning needs and the changes children go through as they grow up.

Debbie Irving, local author of ‘My Brother is Different’ commented: “I am thrilled to see a project like this book take off and I truly hope that ‘My Brother is Different’ serves as a tool to help many children understand more about autism and about what their sibling and friends with this condition go through.

“LOVE learning has been incredibly supportive during the whole process and I decided to donate all royalties to this charity so that the book can contribute to their mission of helping give children the best possible start in life.”

Lynn Bell, CEO of LOVE learning added: “We are so grateful that Debbie decided to so generously donate the royalties of her book to LOVE learning and look forward to keeping supporting her in her future work.

“Too often we see children with autism facing exclusion in many social and educational settings. We believe that ’My Brother is Different’ is a great educational tool for children to better understand autism and help harness love and compassion amongst siblings and friends.”

‘My Brother is Different’ can currently be purchased online as hard copy on LOVE Learning website and as an e-book on Amazon

Autistic people struggling to get vital support, says new report

– 72% of people responding to a survey about their experiences of the Scottish Government and COSLA’s 10 year Strategy for Autism reported that they did not have enough support to meet their needs – 

The findings are published in today’s ‘The Accountability Gap’, a report from the Cross-Party Group (CPG) on Autism’s review of the Scottish Government and COSLA’s 10-year Strategy for Autism

Supported by charities National Autistic Society Scotland and Scottish Autism, who provide Joint-Secretariat to the CPG, a survey carried out as part of the review also found that: 

  • 72% of respondents said they did not have enough support to meet their needs 
  • 78% of respondents said that it was not easy accessing support locally 
  • 50% felt that autism awareness among the general public had not improved 
  • 69% said that with more support they would feel less isolated 
  • 36% said they received no support within 12 months of receiving a diagnosis. 

The CPG on Autism is Co-Convened by Annie Wells MSP and Alexander Burnett MSP, and has a large membership that comprises of MSPs, autistic people, families, organisations and professionals from across Scotland. The group meets regularly looking at issues faced by autistic people and families.  

In 2011, the Scottish Government together with COSLA published a 10-year Scottish Strategy for Autism that set out priorities and aimed to deliver strategic action for autistic people and their families in Scotland.  

The CPG on Autism undertook its review from May 2019 to January 2020 and heard first-hand the difficulties faced by autistic people and their families in Scotland. It found widespread recognition that the Government’s strategy set out a welcome vision and was well-intentioned however the majority of people who participated said there had been limited impact for many people in a number of areas including autism diagnosis and post-diagnostic support, as well as support in education, care and employment. 

It also highlighted how a lack of accountability at local level, is leaving autistic people and families fighting, often with little success, to get the support they need. 

The review makes 10 recommendations that aim to help improve the lives of autistic people that the Scottish Government and COSLA should consider when the Strategy comes to the end of its lifespan in 2021. These include: 

  • Solving the accountability gap by establishing a new Commissioner role, whose remit includes ensuing that autistic people and families get the support they need. 
  • Developing a new Scottish Strategy for Autism that is co-created between autistic people, families, charities, COSLA and the Government, is appropriately funded and delivers real sustainable change. 

Co-Convener of the Cross-Party Group on Autism, Alexander Burnett MSP, said: “The majority view of the hundreds of people who have been involved in our review is that the ambition and aspiration set out in the Scottish Government’s strategy has not been realised in practice and that many autistic people and their families lack the appropriate levels of support in order to thrive in our society. 

“We found that there are concerns surrounding a lack of training for professionals, as well as a lack of pre and post diagnosis support across a number of areas 2including social care, education, transition into adulthood, housing and employment. 

“In the context of the pandemic we believe the report’s recommendations are more important than ever for Scottish Government, COSLA and partners to consider when planning for what comes next when the strategy is due to come to an end next year. 

“Over the years, we have seen numerous reports and reviews on autism, however there seems to be little evidence to suggest any real change is being delivered at a local level.

“This is a system that is repeatedly failing to meet the rights and needs of autistic people. We must therefore focus on systemic sustainable change to enable better access to education, health, social and community services for autistic people and their families.” 

Kirsteen, a mother from Aberdeen said: “I have an autistic son called Toby who is now a young adult. When Toby was younger he received support from the school, college and the local authority but virtually stopped overnight when he became 16.

“Toby needs a lot of support and without it we struggled to cope as a family. Ultimately, we reached crisis point and things escalated even to the extent the police got involved as he became very frustrated and lashed out.

“Toby is now living in his own flat which initially I had to pay for as the local authority did not provide anything that met his needs. They had offered a place in a hostel for people with drug issues which is completely inappropriate. 

“I’m now selling my place so I can move closer to Toby as I desperately want to make sure he is supported. I do this because my son and daughters mean the world to me but it’s hugely stressful to hold down a full-time career in nursing and provide support for someone with such complex needs. 

“I don’t feel things have got better over the last few years and I don’t think they will change unless Scotland implements legislation – committees and reviews on autism make no difference.” 

Nick Ward, Director of National Autistic Society Scotland, said“Today’s ‘Accountability Gap’ report from the Cross-Party Group paints a stark picture of the struggles that Scotland’s 56,000 autistic people and their families face in order to get the services they are entitled to – a struggle which sadly they often lose leaving them frustrated, distraught and often in crisis.

“The Government must now look to build on the 10-year strategy by building accountability into the system so people get the services and support they so desperately need.” 

Charlene Tait, Deputy Chief Executive Officer at Scottish Autism, said: “We recognise the Scottish Government’s commitment through its 10-year strategy to set out a landscape where autistic people and their families have access to the services and support they need. 

“However, there is an evident ‘accountability gap’ between service provision and what is available.  The reality is that many autistic people and their families often have to fight to get the vital services and support to which they are entitled. 

“Over the years, we have seen numerous reports and reviews on autism, however there seems to be little evidence to suggest any real change is being delivered at a local level. This is a system that is repeatedly failing to meet the rights and needs of autistic people. 

“We must therefore focus on systemic sustainable change to enable better access to education, health, social and community services for autistic people and their families.”

Autism: Supporting and celebrating different minds

£250,000 funding to support new service for people with autism.

A new national support service will help children and adults diagnosed with autism to understand and embrace their identity.

The service will provide online support on a range of issues, offer practical help and connect autistic people and their families with peers.

Backed by £250,000 Scottish Government funding, the pilot National Post Diagnostic Support Programme will be led by Scottish Autism, in partnership with the National Autistic Society, Autism Initiatives and Autistic People’s Organisations.

A new awareness campaign, which aims to challenge stigma and myths to give the general public a clearer understanding of autism, is also being launched.

Speaking at the national Scottish Strategy for Autism’s annual conference, held virtually this year, Mental Health Minister Clare Haughey said: “We know that the restrictions put in place due to the coronavirus (COVID-19) pandemic have been particularly hard for autistic people and their families, with normal routines changed dramatically. 

“This new programme will allow autistic people across Scotland to access vital support, building on the excellent services already provided by third sector organisations, which have been well adapted to continue throughout the pandemic.

“We also know that there is sadly still a stigma associated with autism, and that’s why we today we are also launching our ‘Different minds. One Scotland’ campaign.

“Crucially, the campaign has been developed with autistic people. It aims to help the public understand autism, to be more accepting of the different qualities and attributes of autistic people.”

Autistic spokesperson Jasmine said: “The way I view the world is shaped by me being autistic, and my experiences have been shaped by me being autistic.

“I want to ensure that there is at least one autistic child who feels a little bit less alone – a little bit less like the world is against them –  then I’d feel like the campaign has accomplished everything it set out to.”

Charlene Tait, Deputy CEO at Scottish Autism said: “The delivery of a national post diagnostic service is a much needed and welcome step forward in Scotland. This new service brings the collective knowledge and experience of several charity partners that will work collaboratively to provide a wide range of information and support for autistic people of all ages and their families.

“This new service will focus on ensuring families are better informed and empowered after a diagnosis whilst also supporting autistic individuals to embrace their identity and widen their peer group.”                                          

Protecting Scotland’s Future: the Government’s Programme for Scotland 2019 – 20 committed to develop an online autism support service to help people live positively with autism, while reducing the demand for services through CAMHS, Psychological Therapies and other public services.

https://youtu.be/0TAuQUlpdvU

Find out more about the campaign at http://differentminds.scot.

A Scottish Government omnibus survey from September 2020 found that just 42% of people feel they have a good understanding of autism, over half (50.75%) think that autism is a mental health condition. In addition, 86% of respondents feel that there is value in learning from autistic people.

National Autistic Society Scotland calls for transition plans to help autistic children return to school

The National Autistic Society Scotland is calling on schools to provide all autistic children with a personalised transition plan to help with their return to school in August.

The lock down has been extremely challenging for many families with autistic children. The huge change to routine and daily life together with strict restrictions resulting from the lockdown has led to distress for many autistic children putting families under huge pressure, often with very limited support.

According to the Scottish Government there are 6500 autistic children across Scotland. A third of autistic children also have a learning disability and, in many cases, also mental health difficulties.

Families have been under huge pressure juggling home schooling and working from home as well as supporting their autistic children. Some schools have provided specialist educational support throughout the lockdown while many others have not.

Families have reported that some home education packages received from schools have been either poor quality or generic and not differentiated for their child’s needs, so they have struggled to home school effectively and are worried that their children have fallen behind.

Similarly, many autistic children have now settled into a different routine, with limited social interaction outside of the family. They may well have been affected by the virus itself whether through illness of a parent or relative or even bereavement which can be all the more traumatic if that person also had a role in providing care and support.

All of these things combined mean that many autistic children will find returning to school in August difficult and in some cases even distressing, particularly as there are likely to be fundamental changes to daily school life.

NAS Scotland are therefore calling on schools to make sure that every autistic child has a personalised transition plan to aid their return to school in August.

This might include visits prior to school starting, more autism awareness among staff, safe spaces, accessible information and videos showing any changes to layouts or school rules as well as a principle contact for parents.

Nick Ward, Director of National Autistic Society Scotland said: “Many autistic children will have been out of school for over 4 months by the time the new term begins. Some have coped very well. Others however, have struggled under the strict restrictions and huge change to routine and we’ve heard from families under severe pressure with profound impacts on mental health and wellbeing.

“We know that change can be incredibly challenging for autistic people. It is important that transition back into school is handled sensitively and in a personalised way.

“Transitions are already hard for autistic children, often because of a lack of support or understanding about autism, and that’s why we’re calling on schools to make sure that each and every autistic child has a personalised plan with input from parents to make the transition as smooth as possible. We don’t feel that this is too much to ask in a system which should be focused on getting it right for every child.”

Suzanne who lives in Dunfermline said: “The lock down has been hugely challenging for us as a family. I’ve had to stop my Open University course together with my volunteering in order to care for and educate by two autistic children.

“Callum has quite significant needs and doesn’t understand the restrictions so it has been difficult to follow social distancing and I’m worried it will be very hard when he goes back to school as he has a compulsion to run up and touch or hug people.

“Emma is very different and is quite quiet. She has enjoyed lockdown to some extent, particularly with us being together as a family. She is however, very anxious about returning to school and has really struggled with sleep because she is so worried.

“Both my children have very different needs and so their transition back into school will need to be done with lots of understanding and support. The school have been quite helpful in my case and have offered to talk things through but I worry not everyone out there will get the same level of help.”

Minister hears from autistic people on their experiences of lock down

Minister for Mental Health, Clare Haughey MSP (who in addition has responsibility for autism and learning disability) joined an online group of autistic adults and carers yesterday to hear about their experiences of lock down.

The disruption of daily life and routine resulting from the pandemic and the lockdown has been very challenging for autistic people, 70% of whom are struggling with mental health difficulties and often intense anxiety.

Research from National Autistic Society Scotland has also shown that two thirds of autistic people in Scotland feel socially isolated and this was before social distancing was introduced in light of the Coronavirus pandemic.

The Scottish Government has recognised the fact that many autistic adults and families with autistic children are extremely vulnerable at this time and awarded the charity funds to provide specialist and moderated online social groups to reach as many autistic people carers and families as possible.

The online social groups allow staff to share information on staying safe and healthy as well as helping those with mental health needs and anxieties.

In addition, they also offer a safe and secure place where autistic people can connect and talk about whatever is important to them. There are specific groups focused on film & TV, gaming, craft, LEGO, politics, quizzes as well as for groups for young people, older people, carers, women as well as people from the LGBT+ community.

They’re a great way for people to build confidence, make friends and help with communication skills.

The Minister for Mental Health, Clare Haughey said: “We know that autistic people find the huge changes in their daily lives more difficult to deal with than many other people. That’s why we provided funding to the National Autistic Society Scotland to provide these vital online services for as many people as possible. 

“Taking part in one of the Society’s online social groups today was a great opportunity to hear directly from autistic people and their families on how the lockdown restrictions have affected them. Through our national strategy, we will continue our work to improve the lives of people with autism and ensure everyone gets the care and support they need.

Nick Ward, Director, National Autistic Society Scotland said: “We were delighted that the Minister could join one of our online groups to hear directly from autistic people and as to the challenges they face at this difficult time.

“Many autistic people are feeling the effects of the dramatic changes in their lives from pandemic and in many cases struggle with mental health difficulties or are very isolated within their communities.

“Our online Social Groups, offer a safe a secure space where people can meet and talk about the things that are important to them, form meaningful relationships and feel more connected. Our staff will also be on hand to offer support and tips around managing mental health and well-being and importantly staying safe.”  

Blair Spence who is autistic and from Glasgow said: “I’ve been going to the Social Groups for about 9 months, they’ve really helped my confidence and conversation skills as well as make new friends.

“The new online groups have been really fun. There are about 10 of us in the group and it works really well. It’s good to stay in touch with other people and we’ve done some exciting things with the group leaders like a virtual tour of an Aquarium and around San Francisco including going across the Golden Gate Bridge!

“I really look forward to the weekly online groups and I would recommend to other autistic people to give them a go.”

Funding boost to support autistic people

Two specialist organisations will receive additional funding to support 47,000 autistic people across Scotland during the coronavirus (COVID-19) pandemic.

Health Secretary Jeane Freeman has confirmed:

  • £160,000 to increase capacity in the Scottish Autism Helpline
  • £45,000 for the National Autistic Society to help people keep in touch online during lockdown

The Health Secretary said: “Autistic people find the extreme change in their daily lives more difficult to deal with, which is why we have fast-tracked this funding to improve the consistency and availability of support. These are unprecedented times and it is important autistic people know this support is there to help them and how to access it.

“This funding will help organisations provide autistic people and their families with a source of up-to-date information to manage their physical and mental health and wellbeing, as well as reduce social isolation by helping them forge sustainable and meaningful relationships.”

Charlene Tait, Deputy CEO at Scottish Autism, said: “During these uncertain and challenging times, our aim is to provide reassurance, guidance and support to autistic people and their families across Scotland. 

“These extra funds will allow us to extend our Autism Advice Line offering, enabling us to increase our operating capacity to seven days a week, 8am to 8pm.  We are all too aware of the impact this crisis is having on the emotional, physical and mental wellbeing of autistic people and their families. This funding will enable us to reach out and support people at this difficult and stressful time.”

Nick Ward, Director at the National Autistic Society Scotland, said: “We are very grateful to the Scottish Government for their work throughout this crisis to support autistic people and their families.

“With this funding we can drastically increase the number of online Social Groups, where people can meet and talk about the things that are important to them, form meaningful relationships and feel more connected. Our staff will also be on hand to offer support and tips around managing mental health and well being and importantly staying safe.”

Blair Spence, 19, of Maxwell Park, Glasgow, said: “I’ve been going to the Social Groups for about 9 months, they’ve really helped my confidence and conversation skills as well as make new friends. 

“The new online groups have been really fun. There are about 10 of us in the group and it works really well. It’s good to stay in touch with other people and we’ve done some exciting things with the group leaders like a virtual tour of an Aquarium and around San Francisco including going across the Golden Gate Bridge! 

“I really look forward to the weekly online groups and I would recommend to other autistic people to give them a go.”

Additional funding of £159,920 over a four-month period will allow the Scottish Autism Helpline to open 8am-8pm, seven days a week on 01259 222022.

National Autistic Society Scotland will use £45,057 to fully redesign face-to-face services onto an online platform, NAS Connect, to provide support during the COVID-19 pandemic.

The website will bring people together through interests such as film, books, arts, cooking, quizzes and computer games by facilitating social groups, coffee clubs and branch meet-ups that are unable to meet face to face at this time.

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