Letters: Covid-19 and the potential risk of increase in M.E.

Dear Editor

As the nation gets to grips with containing the Coronavirus pandemic, attention must be given to the possible impact on long-term health.

Some of your readers will have personal experience – or know someone who has – of the serious neurological condition, Myalgic Encephalomyelitis (M.E.), or seen stories being shared to mark May’s M.E. Awareness Month.

We know that many of 250,000 men, women and children in the UK with M.E. became ill following an infection or virus. This means we face the possibility, being raised by our medical advisors, researchers we work with and international experts, of a spike in post-Covid illnesses – including M.E.

Already some people who have contracted Covid-19 are reporting lingering dizziness, nausea and crippling fatigue – all common symptoms of M.E.

We know that it is sensible for anyone with a virus to take proper time to recover. They should not push themselves, but instead listen to their body and rest as much as needed, to give themselves the best chance of making a full recovery.

Action must now be taken to investigate the long-term post-viral effects of Covid-19, and put appropriate support in place for those whose health is affected beyond initial viral infection.

To those reading this who already live with M.E., we know that living under “lockdown” thanks to chronic and often disabling symptoms is nothing new.

Action for M.E.’s Crisis, Advocacy and Support Service can help source practical local assistance, and advocate for health and social care needs, as well as offering comprehensive information and support to manage M.E.

Please call on 0117 927 9551 or email questions@actionforme.org.uk and we will do what we can.

Sonya Chowdhury

Chief Executive, Action for M.E.

Letters: Help with M.E.

Dear Editor

Myalgic Encephalomyelitis (M.E., sometimes diagnosed as chronic fatigue syndrome) is a fluctuating, neurological condition that can severely affect someone’s ability to live and work.

Difficulties in diagnosing it can leave people searching for answers about how to manage. The free Mentor M.E. project can help.

Being a parent, coping with work, managing well-being, feeling isolated, losing contact with friends, and challenging misconceptions about this invisible illness are all topics our mentors have supported mentees with.

If you have M.E., or care for someone who does, get in touch to find out how we can help.

Avril McLean

Scotland Project Coordinator, Action for M.E.

Tel: 07753 247099

Email: avril@actionforme.org.uk

www.actionforme.org.uk/mentorME

Letters: reach out to people with M.E. this Christmas

Dear Editor,

For most people, Christmas is about celebrating with friends and family; however, many people with the chronic, debilitating illness M.E. tell us they feel very lonely and isolated at this time of year – particularly the one in four who are so severely ill that they are bed- or house-bound. If you know someone with M.E., consider reaching out to them this Christmas – a simple card, phone call or visit can make a real difference.

If you have M.E. and you need information and support, call us on 0117 927 9551 (we’re here until 4pm on Friday 21 December, and re-open 10am Monday 7 January) – or visit www.actionforme.org.uk/you-are-not-alone. Our M.E. Friends

Online forum is open throughout the festive period; to register, visit www.actionforme.org.uk/MEfriendsonline

Sonya Chowdhury

Chief Executive, Action for M.E.

42 Temple Street, Keynsham BS31 1EH

Tel: 0117 937 6620

 

Edinburgh patients and professionals to show MSPs: This is M.E.

The chronic, neurological condition myalgic encephalomyelitis (M.E.) affects more people in Scotland than MS and Parkinson’s combined – but doctors receive almost no training on the illness. The urgent need to change this is the focus of a special event at the Scottish Parliament tonight, hosted by Gail Ross MSP and supported by UK charity, Action for M.E. Continue reading Edinburgh patients and professionals to show MSPs: This is M.E.

Letters: Lonely this Christmas

Dear Editor

Many people with the chronic, neurological condition M.E. tell us they feel very lonely and isolated at this time of year, particularly those who live alone with no family or friends to share the festivities with. A visit, phone call or simply a thoughtful card from a friend could make a positive difference – so if you know someone with M.E., let them know you are thinking of them this festive season.
If you have M.E. and you need information and support, call us on 0117 927 9551 (we’re here until 4pm on 22 December, and re-open on 3 January), or join one of our friendly online forums, open 24/7. You can also read advice from Rose, who has M.E., in her article on coping with Christmas alone at www.actionforme.org.uk/alone-at-xmas
Sonya Chowdhury
Chief Executive
Action for M.E.
42 Temple Street,
Keynsham BS31 1EH