Tag: Action for M.E.

Learn about M.E./CFS in Scotland

Free training for Health Professionals

Action for M.E. is excited to announce that it has secured further funding for Learn about M.E. – the M.E./CFS Professional Development Project in Scotland.

This project funded by Scottish Government and is a partnership between Action for M.E., The M.E. Association, #MEAction Scotland, The 25% ME Group and Dr. Nina Muirhead.

Dr Muirhead, who developed a free online Continuing Professional Development (CPD) module in partnership with the CFS/M.E. Research Collaborative (CMRC,) became ill with M.E./CFS in 2016.

Anna who has lived with M.E. said: “The module is brilliant and I think it covers a lot of really important information about M.E. I think the first thing it does is it dispels the myths that are surrounding M.E. … I think what this does is it really places M.E in the scientific knowledge we have about the condition”

A podcast is available to listen to now with input from the doctor who helped to develop the training module, a GP who has used the module to treat patients and people who have lived experience of living with M.E..

We are keen to involve GPs and health professionals in Scotland to shape the development of the module and further podcasts to complement the module.

If your GP has not yet completed this training we would be keen to hear from you both to inform the development of our work on this training module. Please get in contact with Avril McLean, Project Coordinator, at avril@actionforme.org.uk or call 0117 927 9551 

This training module on M.E./CFS, based on 10 clinical cases, will improve knowledge of the illness; reduce delays to diagnosis; reduce multi unnecessary referrals and investigations and the potential for harm for people with M.E.

This module is also likely to be applicable to a subset of COVID patients who may develop post viral M.E./CFS and could be harmed by inappropriate advice to exercise.

Evaluation data from health care professionals who completed the module (November 2020 – March 2021) found that:

·         75% reported increased confidence in diagnosis of M.E./CFS

·         77% reported increased confidence in treatment & management of M.E./CFS

·         100% reported improvement in patient-centred care and patient pathways

The Scottish Government’s Neurological Framework funding is supporting the project to improve knowledge relating to diagnosis and management of M.E./CFS.

Many people with M.E. face disbelief and stigma around their illness and do not receive the appropriate care and support they need.

This project provides vital information to GPs and Health Professionals in Scotland to assist them to diagnose and manage the symptoms of M.E./CFS and Long Covid.

New support for professionals on M.E./CFS and managing Long Covid symptoms

GPs and health professionals in Scotland can now get a free one-hour training session on the diagnosis and management of M.E./CFS. This module, based on ten case studies, also supports the management of Long Covid symptoms.

Action for M.E. is very excited to launch a new partnership project in Scotland: Learn about M.E. – the M.E./CFS Professional Development Project in Scotland.

This project is a partnership between Action for M.E., The M.E. Association, #MEAction Scotland, The 25% Group and Dr. Nina Muirhead. Dr Muirhead, who developed a free online Continuing Professional Development (CPD) module in partnership with the UK CFS/M.E. Research Collaborative (CMRC,) became ill with M.E./CFS in 2016.

Dr. Muirhead said: “Only after I developed M.E. myself did I realize that I had not understood the illness. Feeling the devastating impact of M.E. on myself and my life I felt determined to offer something that changed that experience for other people.”

Many people with M.E. face disbelief and stigma around their illness and do not receive the appropriate care and support they need. This project provides vital information to GPs and Health Professionals in Scotland to assist them to diagnose and manage the symptoms of M.E./CFS. This module is also likely to be applicable to a subset of COVID patients who may develop post viral M.E./CFS and could be harmed by inappropriate advice to exercise.

There are around 20,000 adults and children living with M.E. in Scotland.

Action for M.E.’s Big Survey 2019 found that over 35% of respondents who live with M.E. in Scotland were not at all confident that their GP understood their condition. In addition, only 7% of children and young people and 16% of adults are obtaining a diagnosis within the current NICE and Scottish Good Practice Statement on ME-CFS guideline timescale of three months and four months respectively. Almost one in five adults (18%) waited more than six years for a diagnosis.

This training module on M.E./CFS will improve knowledge of the illness; reduce delays to diagnosis, reduce the likelihood of multiple unnecessary referrals and investigations and the potential for harm for people with M.E.

General Practitioners, Medical students and Allied Health Professionals will receive 1 hour CPD upon successful completion of the course.

The Scottish Government’s Neurological Framework funding is supporting the project to improve knowledge relating to diagnosis and management of M.E./CFS. Dr. Nina Muirhead is developing a complementary podcast and short opinion pieces to support dissemination and take up in Scotland.

Letters: Volunteer with Action for M.E.

Dear Editor

The serious neurological condition Myalgic Encephalomylitis (M.E.) will sadly be all too familiar to some of your readers: at least 20,000 children and adults in Scotland live with M.E., also diagnosed as chronic fatigue syndrome (CFS or M.E./CFS).

Many face barriers in accessing health and social care services that meet their needs, and some professionals still don’t understand the impact of M.E. and its symptoms.

UK charity Action for M.E. is trying to change this by offering people with M.E. across Scotland one-to-one advocacy, via phone and email, to help them be heard, understand their rights and access support.

We want to expand this much-needed service, and are seeking enthusiastic volunteers in Scotland who can make the most of our online advocate training programme to develop their skills, gain valuable experience, and help improve the lives of vulnerable people with M.E., all from home.

Anyone who is interested in finding out more can call, email or visit our website – we would love to hear from good listeners who can spare two hours a week.

Alice Cranston

Advocacy Coordinator, Action for M.E.

Tel: 0117 927 9551

Email: advocacy@actionforme.org.uk

Website: www.actionforme.org.uk/advocacy