Landmark Clinical Trial on MND Begins in Glasgow

A groundbreaking clinical trial for motor neurone disease (MND) begins this week at the Queen Elizabeth University Hospital (QEUH) in Glasgow.
 
The pioneering trial MND-SMART is testing multiple drugs, rather than a single treatment at a time, and so aims to speed up the time it takes to find medicines that can slow, stop, or reverse the progression of MND.
 
The trial, based at the QEUH, will welcome participants from across the NHS Greater Glasgow and Clyde region which cares for the largest number of people living with MND.
 
Motor neurone disease (MND), also known as amyotrophic lateral sclerosis or ALS, is a progressive condition that causes muscle to waste away. It occurs when nerve cells called motor neurons, which send messages from the brain and spinal cord to the body’s muscles, stop working properly.
 
More than 1,500 people are diagnosed with MND in the UK each year. There is no cure and half of people die within two years of diagnosis.
 
MND-SMART is a pioneering clinical trial in its reach and design and is recruiting hundreds of people living with MND across the UK to take part in tests of potential treatments.  Unlike typical clinical trials which test a single treatment at a time, MND-SMART is testing multiple drugs and so aims to speed up the time it takes to find medicines that can slow, stop, or reverse the progression of, MND.


 
Dr George Gorrie, Consultant Neurologist and Lead for Motor Neurone Disease Greater Glasgow and Clyde, said:  “The MND-SMART trial launching in Glasgow is some good news at a time when there isn’t much around. 
 
“Ensuring the safety of people taking part in MND-SMART is the research team’s highest priority and we will follow all government requirements relating to COVID-19 and research.
 
“The pandemic and ensuring practices are COVID-19 compliant will impact how quickly people can be recruited to the trial but we are delighted to be able to start seeing participants.”
 
Those who have already registered online interest in the trial and who live in the Greater Glasgow and Clyde area will be contacted by the Glasgow trial team over the coming months to discuss taking part.
 
The trial was first announced in January and centres are due to open across the UK. Glasgow is the third such centre after Edinburgh and Dundee. 
 
The trial has been developed by people with MND and clinical trial experts from across the UK. The study is led by the Euan MacDonald Centre for MND Research at the University of Edinburgh.
 
Funding for the trial has been provided by the Euan MacDonald Centre, substantial private donations, MND Scotland and the My Name’5 Doddie Foundation.
 
For further information about the trial please visit www.MND-SMART.org

Council launches search for Lockdown Legends

The search is on for neighbours who go that extra mile as nominations open for the City of Edinburgh Council’s Good Neighbour Awards.

Established in 2016, the award is a way for residents to pay tribute to Council tenants who make an outstanding contribution to their local community.

Councillor Kate Campbell, Housing, Homelessness and Fair Work Convener, said: “This year, we want to hear about Edinburgh’s lockdown legends – those incredible neighbours who have gone above and beyond to support others in their community during what has been one of the most challenging years many of us have ever faced.

“I am always amazed at the inspiring stories I hear from our tenants and blown away by the selfless acts of our Good Neighbour Award winners. Please give back by taking the time to put forward your good neighbour for the recognition you know they deserve.

Councillor Mandy Watt, Vice Housing, Homelessness and Fair Work Convener, added: “At the height of lockdown, things we once took for granted became difficult or impossible for many of us. Yet we very quickly saw big-hearted residents from all over the city give their time and energy to help others get through this challenging time.

Maybe you know someone who helped deliver shopping for someone who was shielding, or collected their prescriptions, or maybe just made sure people didn’t feel alone. Whatever difference your local lockdown legend made to you or your community, get nominating now.

Last year’s Good Neighbour Award winner was Council tenant Gilbert ‘Gibby’ McIntyre, who sadly passed away before he learned of his win. A donation to the RSPB has been made in his name, on the request of his family.

Speaking about his kind-hearted Dad, Gibby’s son Scott said: “Dad was very much interested in enhancing his, and others’, surroundings through his hard work in the garden.

“A big part of this was to attract birds and other wildlife and he made a point of positioning feeders and nesting boxes so that his neighbours could also enjoy the many visitors to the garden. This was particularly appreciated by those who were less able to get out and about.”

Nominations for this year’s awards should be emailed to the Council by 1 January 2021 at housing.research@edinburgh.gov.uk or by phone on 0131 529 7805.

The winners will be announced on the Council’s social media channels and in an edition of the Tenants’ Courier, the Council’s newsletter to all tenants.

Nominees and those who cast nominations will also be entered into a prize draw for a chance to win a £100 shopping voucher.

UK exposes series of Russian cyber attacks against Olympic Games

Russia’s military intelligence service, the GRU, conducted cyber reconnaissance against officials and organisations at the 2020 Olympic and Paralympic Games due to take place in Tokyo this summer before they were postponed, the UK has revealed.

The targets included the Games’ organisers, logistics services and sponsors.

The attacks on the 2020 Summer Games are the latest in a campaign of Russian malicious cyber activity against the Olympic and Paralympic Games.

The UK is confirming for the first time today the extent of GRU targeting of the 2018 Winter Olympic and Paralympic Games in Pyeongchang, Republic of Korea.

The GRU’s cyber unit attempted to disguise itself as North Korean and Chinese hackers when it targeted the opening ceremony of the 2018 Winter Games.

It went on to target broadcasters, a ski resort, Olympic officials and sponsors of the games in 2018.

The GRU deployed data-deletion malware against the Winter Games IT systems and targeted devices across the Republic of Korea using VPNFilter.

The National Cyber Security Centre (NCSC) assesses that the incident was intended to sabotage the running of the Winter Olympic and Paralympic Games, as the malware was designed to wipe data from and disable computers and networks.

Administrators worked to isolate the malware and replace the affected computers, preventing potential disruption.

Foreign Secretary Dominic Raab said: “The GRU’s actions against the Olympic and Paralympic Games are cynical and reckless. We condemn them in the strongest possible terms.

The UK will continue to work with our allies to call out and counter future malicious cyber attacks.

The UK has already acted against the GRU’s destructive cyber unit by working with international partners to impose asset freezes and travel bans against its members through the EU cyber sanctions regime.

Today (Monday 19 October), the US Department of Justice has announced criminal charges against Russian military intelligence officers working for the GRU’s destructive cyber unit – also known by the codenames Sandworm and VoodooBear – for conducting cyber attacks against the 2018 Winter Games and other cyber attacks, including the 2018 spear phishing attacks against the UK’s Defence Science and Technology Laboratory (DSTL).

The UK attributed the attacks against DSTL, which followed the Salisbury poisonings, to Russia in 2018.

All Souls Day service at The Old Kirk and Muirhouse Parish Church

Despite the COVID-19 restrictions, The Old Kirk and Muirhouse parish church will be hosting their annual ‘All Souls Service’ on Sunday 25th Oct at 2:30pm.

It is an opportunity for anyone in the community, church-goer or not, to spend time reflecting on the life of someone who has died.

There will be music and readings, though sadly this year no cuppa afterwards. You will need to wear a face covering, and because the number of seating spaces is restricted, all spaces must be reserved for ‘Test and Protect’ purposes: please call 07305 825 697.

£30million package to support Scots facing hardship

A £30 million package of funding is being made available to local authorities to support people facing financial hardship as a result of coronavirus (COVID-19), including money to provide free school meals over the school holidays.

Local authorities will be given flexibility to use £20 million, previously held in reserve for the Scottish Welfare Fund, to support people in their communities.

A further £10 million has been made available so councils can continue providing free school meals through the winter breaks with future funding confirmed to extend support over Easter.

Cabinet Secretary for Social Security and Older People Shirley-Anne Somerville said: “No one should be struggling to put food on the table, keep the lights on, or stay warm at home in the midst of this pandemic.

“With continuing uncertainty around Brexit and the furlough scheme being scaled back we are doing all we can to ensure the right support gets to people at the right time in the right way.

“We know a healthy meal during the school day helps children to learn – but right now it’s an essential to support families at such a difficult time. This money will offer nutritious free meals for children or allow families to get food they desperately need.

“Those experiencing financial hardship can currently apply to the Scottish Welfare Fund and seek advice on which benefits they can receive. However, this will not be suitable for everyone: some people are not eligible for crisis grants or already receive the full benefits they are entitled to, while others may need immediate support with food and essentials.

“We are giving local authorities greater flexibility over funding held in reserve for the Scottish Welfare Fund, to support local action and address people’s needs. This may include supplementing local budgets for the Scottish Welfare Fund to meet demand, providing financial support to tackle food insecurity or to meet fuel costs, or boosting local funding for Discretionary Housing Payments.

“Additionally we are making further resource available to continue the provision of Free School Meals over forthcoming holidays, including Easter.”

Chair of the Poverty and Inequality Commission Bill Scott, said: “We welcome this much needed additional help for low income families and individuals. The funding for Free School Meals during the Christmas, February and Easter breaks will come as a great relief for many hard pressed parents.

“We would urge local authorities to use the flexibility given to them by Scottish Government to ensure that every penny of extra help available gets to those who need it most.”

COSLA’s spokesperson for Resources Councillor Gail Macgregor, and spokesperson for Community Wellbeing Councillor Kelly Parry said: “The impacts of the virus have not been felt equally across society and we welcome this funding which can be used flexibly by councils, enabling them to provide more support for those who need it most in our communities.

“Local authorities will deploy it in ways that best meets local circumstance, to provide the most effective support to those experiencing financial hardship, for example through grants, addressing food insecurity, or support for fuel costs.

“We know that as winter arrives and the furlough scheme draws to a close unfortunately more adults and children are likely to need assistance to ensure they are fed and warm. Local Government is the anchor in our communities and is able to provide advice, support and assistance to those that need it.”

Edinburgh College lecturer named UK Teacher of the Year

Edinburgh College Graphic Design lecturer Helena Good has been named teacher of the year at the Tes FE Awards, which celebrate the best of the UK’s further education sector.

Helena has worked in education for 23 years and in her role as a Graphic Design lecturer at Edinburgh College, she shares her passion for creativity and design with students through the College’s NC, HNC and HND graphic design courses.

Through her lecturing work, Helena has had a huge impact on her students, who have won numerous national and international awards in recent years. She connects the classroom with careers through a programme that partners her students with a mentor from the graphic design industry to ensure they receive guidance and advice on their studies and future paths.

Helena’s impact has been felt far beyond her own college. She is the driving force behind the Daydream Believers programme – a pioneering project which aims to make the transition from school to college more appealing and seamless for secondary students who are looking to progress to post-16 education.

It is delivered in collaboration with student ambassadors and industry partners, and involves a number of high schools across Edinburgh.

The judges described the programme as “the most important educational initiative in Scotland at the moment”.

The judges also said: “Good is an inspirational lecturer. She is a solid professional doing her job outstandingly. Her work is transformative and makes a huge difference within and outside of Edinburgh College.”

Helena said: “I feel so honoured to have been considered alongside such an inspiring group of teachers who all deserved to be recognised for going above and beyond. Thanks to the judges, Edinburgh College and everyone who believes in daydreams!”

Edinburgh College Principal Audrey Cumberford said: “It is wonderful to see Helena named Teacher of the Year by the UK Tes FE Awards, she works tirelessly to not only inspire her students, but also young people across Scotland and beyond, through the Daydream Believers programme which brings students, school pupils and industry together to innovate. She is a true inspiration and her infectious energy for creativity is an absolute asset to our College.

“I am extremely proud of Helena and our other finalists in the Foundation Apprenticeship team and Automotive Engineering team. Our staff are competing with colleges throughout the whole of the UK and this success reflects their status as national leaders in their field of expertise.”

Edinburgh College was shortlisted in two other award categories. Its Foundation Apprenticeship team were shortlisted for Apprenticeship Programme of the Year.

The team worked relentlessly in 2018/19 to boost the number of FA enrolments and ensure the learning needs of pupils are met while satisfying the requirements of employers as they seek to nurture the future workforce.

And the College’s Automotive Engineering team was shortlisted in the Best Teaching and Learning Initiative category following the team’s partnership with the Scottish Motor Racing Club and Knockhill Racing Circuit.

Introduced in March 2019, the partnership saw students convert a Citroen road car into a race car fit for track action at the Scottish C1 Cup held at Knockhill.

Helena was one of eighteen winners across further education and skills who were recognised at the first virtual Tes FE Awards 2020.

Find out more about the award winners here: https://www.tes.com/news/revealed-winners-tes-fe-awards-2020

Police seek information on Gorgie stabbing

Police are appealing for information after an 18-year-old man was seriously injured in the Gorgie area. The incident happened around 5pm on Monday (19 October) when the teenager walked into a shop on Gorgie Road with a stab wound to his leg.

It’s believed the incident happened in the Westfield Court area. The 18-year-old was taken to the Edinburgh Royal Infirmary.

There is no description of the suspect.

Detective Sergeant Rory Legge, of Corstorphine CID, said: “This happened at a busy time of the day and we know there would’ve been a lot of traffic and people in the area.

“I would ask anyone who witnessed this incident or saw any suspicious behaviour around the Westfield Court area just before 5pm on Monday to contact us.”

Anyone with information should contact Police Scotland on 101 quoting incident number 2228 of 19 October 2020. Alternatively, Crimestoppers can be contacted anonymously on 0800 555 111.

11 million households to make savings as government extends cap on energy bills

*Energy Price Cap extended until end of 2021, protecting around 11 million UK households from being overcharged

*households on standard variable and default energy tariffs will continue to save between £75 and £100 a year on dual fuel bills

*2.8 million electricity and 2.1 million gas customers switched supplier in the first six months of 2020

Around 11 million households across the UK will be protected from being overcharged on their energy bills thanks to an extension to the government’s Energy Price Cap until the end of next year.

The Energy Price Cap shields those least likely to shop around for the best deals – including the elderly and most vulnerable – from being charged excessive prices.

Since its introduction in January 2019, the cap has saved customers around £1 billion a year, equivalent to around £75-100 a year for typical households on default energy tariffs.

An additional 4 million households with prepayment meters on default tariffs will also come under the protection of the cap from January.

Business and Energy Secretary Alok Sharma said: The Energy Price Cap has been vital in ensuring customers do not pay too much on their bills, which is why we are keeping it in place for at least another year.

“Switching energy supplier to find the best value deals is still the best way to save on bills, but this government is determined to make sure all customers are treated fairly and get the protection they deserve.”

In addition to the price cap, millions of customers have been able to benefit from lower bills as the numbers of those switching to cheaper tariffs has increased and the rollout of smart meters has progressed in recent years.

A total of 2.8 million electricity and 2.1 million gas customers switched supplier in the first 6 months of 2020, building on record numbers of households switching to cheaper tariffs in 2019, the first full year of the Energy Price Cap.

However, more than half of customers are still on standard variable or default tariffs, where, in the absence of the cap, they would likely still be paying excessive charges for energy use.

In August, the independent energy regulator, Ofgem, recommended an extension to the cap following a review into the market. Today’s announcement follows that recommendation.

The Energy Price Cap extension is the latest government measure to help vulnerable customers with their energy bills and follows particular support during the coronavirus pandemic.

Energy suppliers have given prepayment and pay-as-you-go customers support when they faced financial distress.

Those with prepayment meters have also benefited from a price cap that is in place until the end of the year.

Today’s announcement means a further 4 million households with prepayment meters on default tariffs will continue to be protected from excessive prices by the wider Energy Price Cap once the Competition and Market Authority’s Prepayment Meter Cap expires at the end of 2020.

Jonathan Brearley, Chief Executive of Ofgem, said: The Secretary of State’s announcement means that 15 million households will continue to be protected under the price cap and will pay a fair price for their energy in 2021.

“Although those protected by the cap are paying a fair price, they can also reduce their energy bills further by shopping around for a better deal.

“Ofgem will continue to protect consumers in the difficult months ahead as we work with industry and government to build a greener, fairer energy system.”

Natalie Hitchins, Head of Home Products and Services at Which?, said: “With energy bills expected to rise and tighter coronavirus restrictions returning to many parts of the country, it is good to see the regulator taking steps to protect vulnerable customers and ensure they can stay warm this winter.

“Anyone facing financial difficulty or struggling to pay their energy bills should speak to their provider about what support may be available to them. Households could also potentially save themselves hundreds of pounds a year by switching to a provider offering a cheaper deal and possibly better customer service.”

Customers looking for cheaper energy deals can compare deals with Which? Switch, a transparent and impartial way to compare energy tariffs and find the best gas and electricity supplier for you.

Which? calculates that a medium user (using 12,000kWh gas and 2,900kWh electricity per year) on a dual-fuel default tariff at the level of the current price cap could save up to £221 by switching to the cheapest deal on the market. Based on widely-available tariffs available across England, Scotland and Wales, paying by monthly direct debit, with paperless bills. Data is from Energylinx and correct on 13 October 2020.

Seven ways to control screen time and improve wellbeing

Overuse of technology and excessive screen time for Brits can be detrimental to physical and mental health, so here are seven ways to reduce screen time:

The coronavirus pandemic has changed the way Brits stay connected with friends, family and colleagues, as we have been kept physically apart.

We are all spending more time at home and staying connected virtually, but it can be hard not to have an entire day consumed by technology.

The experts at CE Safety have researched and revealed seven easy to action tips to help reduce screen time and improve Brits wellbeing.

CE Safety recommends undergoing small but effective day to day changes such as taking fewer pictures, switching electronics to grayscale, and having tech-free zones around the house like the bathroom.

Research has shown that low levels of happiness are associated with increased smartphone usage, and social media can contribute to feelings of loneliness.

Excessive technology and smartphone usage also negatively impacts sleep. With heightened anxiety and stress due to the coronavirus and lockdown, additional screen time will not help.

A spokesperson for CE Safety says: “Technology does solve many problems and can help with communicating with people. There is also an endless amount of information at our fingertips.

“But it can be distracting, time-consuming and addictive. Nomophobia is a real term to describe a growing fear in today’s world—the fear of being without a mobile device, or beyond mobile phone contact.

“We think everyone should be more aware of their technology and smartphone usage, and look to make small changes to improve their screen time, and ultimately improve their wellbeing.”

Establish tech-free zones.

There are a few locations around the house that mobiles and laptops aren’t needed. From the dining room to the bathroom, try to keep your phone in your pocket. Our parents and grandparents survived just fine without taking a phone to the bathroom.

Switch to grayscale.

Laptops and smartphones allow you to turn your screen or display grey. As a result, this will remove all the attractive, eye-catching colours from your screen. Not only is it better for your eyesight but the visual appeal is also lost.

You can even schedule greyscale or ‘night mode’ across devices now to help soften the colours your eyes consume before bedtime.

Don’t take as many pictures.

Taking pictures with your smartphone has become second-nature. A birthday party, sporting event, and holidays are all picture worthy events and Brits tend to snap at every opportunity. But in an effort to reduce your screen time, try not to take as many photos and cherish the moment for what it is, rather than turning to a smartphone at the first opportunity.

Be aware of your screen time and set time limits

Ignorance is bliss, but in this case, we’d advise making the effort to track the time you actually spend staring at screens each day. There are plenty of tools and apps that will do this for you, and iPhones track your screen time automatically and tell you how many minutes you are spending on each app.

Many Brits might be surprised at just how long they spend glued to the screen. What else could you do with that time? Go for a run? Do some cooking? Read a book?

Don’t watch the TV in bed

Try and watch TV or films from your living room rather than in your bed. Watching from your couch makes it easier to stop watching that next episode on Netflix. You want as little blue light as possible before going to bed. Also, try and turn off the TV when you’re not actually watching it.

Don’t charge your phone in the bedroom

We advise not to charge your phone next to your bed as it might tempt you to check for messages. Looking at your phone’s screen just before bed has been shown to disrupt sleep patterns.

Get your news in one place

The internet provides us with a wealth of ways to access news. But trawling through social media and news headlines to make sense of the latest events can keep users glued to the device. Try and find a reliable news source you like, and stick to it.

Still time to sign up for Family Fun Day

A virtual fun-day with activities for children and advice for parents is being held during the school holidays as part of a campaign launched to support families in Edinburgh.

The All of Us family fun day on Thursday, October 22, will have 15 online sessions, including story time, children’s yoga, a scavenger hunt and advice for one-parent families, which are being put on by organisations from across the city.

Some sessions will be hosted on Facebook, while people will need to sign up for others in advance.

All of Us was launched by NSPCC Scotland and Edinburgh Child Protection Committee earlier this year to help people find out where to get support and advice with parenting or other worries about family life and where to turn if they had concerns about a child.

At the start of the year a number of community events were held across the city but further ones were cancelled because of Covid-19, and all activities were moved online, including the family fun-day.

In April, the partnership brought together information on its web page about organisations and contacts where families could go for help and support during lockdown. This resource has continued to be regularly updated.   

Carla Malseed, NSPCC Scotland local campaigns manager, said: “Because of the pandemic, this year has been extremely difficult for so many families, who have faced financial pressures, relationship strains, isolation and ill-health.

“But we want people to know that support is still out there and if they or someone they know is struggling then it is important they feel that they can seek and get help.

“Our family fun-day, as well as providing some enjoyable activities for children and parents during the school holiday, will be an opportunity for adults to get some advice, such as how to help keep kids safe online.

“There are still spaces left, so please look on our website and find out about the different sessions we are running.” 

Jackie Irvine, Chair of the Edinburgh Child Protection Committee, said: “Protecting young people and supporting families remains a priority for us, and we want everyone across the city to be aware of where to turn for help if they or someone they know is struggling.

“And we really hope people will join us for our fun-day, which has a wide range of activities for children and some advice for parents. We are really pleased to see so many local organisations taking part.”

The campaign is also raising awareness among communities and professionals about the early signs of child neglect and how to help families who are struggling. Two new webinars have been produced about the role that everyone can play in preventing neglect and helping to raise happy healthy children in Edinburgh.

One of the webinars is designed for parents and wider community members and describes what neglect is, its causes and signs and what people can do if they are worried about someone else’s child or need some support themselves. The other is for professionals and gives some insight into working with families in Edinburgh.

The 20-minute long webinars, which are free and can be watched until 28 February, 2021, can be accessed here.

To find out more about our fun-day programme visit www.edinburgh.gov.uk/allofus. People will need to sign up for some events in advance and the session organiser will then contact them with details of how to take part on the day.

For parenting advice and support visit NSPCC helpline or call 0808 800 5000, weekdays 8am to 10pm and weekends 9am to 6pm. People can also contact Social Care Direct on 0131 200 2324.

To find out more about the campaign visit www.edinburgh.gov.uk/allofus