Time to Live grant scheme: Shared Care Scotland report published

Shared Care Scotland is the national carer organisation focused on improving short breaks for all of Scotland’s unpaid carers.  

Research is an essential part of this work: it helps ensure that short breaks policy and provision is better informed by the experience of carers and cared-for people and that those responsible for the commissioning and delivery of short breaks have access to the current best evidence on ‘what works’.

Shared Care Scotland recently worked with Iriss to hear directly from carers about the impact that the Short Breaks Fund ‘Time to Live’ grant scheme had on their lives during the Covid-19 pandemic.  

The final report and a collection of carer stories has been published this week in Rethinking Personalised Short Breaks for Unpaid carers during COVID-19.

The report shows that taking a person-centred approach – supporting carers to have choice and control in short breaks – brings sustainable benefits and can improve their financial, physical and mental wellbeing as well as providing similar benefits to those they care for. 

What also emerges from the report is that it is not just the break itself that can lead to positive outcomes, but the process of accessing support can also achieve additional benefits. This includes reducing isolation, helping carers feel valued, and providing that essential preventative support that can help to sustain the caring role.

It is hoped that the report provides important evidence to help reinforce good practice.  Above all, it is to show that supporting carers to embed pockets of respite throughout their days can be fundamental in helping them have ‘Time to Live’.

You can read the report here.

Dementia Awareness Week: Policy to be shaped by people living with dementia and unpaid carers

People living with dementia are being invited to join a new panel to help shape policy and delivery.  

The national, independent group will also be open to unpaid carers to be sure that Scottish Government is fully considering the impact of policy and funding decisions on those who experience them first hand.

Work will begin with the development of an application and assessment process, with the expectation that it would be established before the end of the year.

Speaking at the beginning of Dementia Awareness Week, Minister for Mental Wellbeing and Social Care, Kevin Stewart said: “The voice of experience is a crucial part of our policy making process, and making sure that it is factored in as early as possible in making important decisions is key to improving services across the country. Only someone living with dementia, their loved ones and carers fully know the complexities and nuances of dealing with it.

“We already have a very active lived experience voice in dementia support and this panel will help to amplify it. Dementia activists across the world us the motto ‘Nothing about us, without us’ and this group will put this into practise.”

Dementia Awareness Week takes place annually in Scotland on the first week of June.  This year’s event will run from Monday 30 May to Sunday 5 June and the aim of the week is to raise awareness of dementia and help improve the lives of people with dementia, their families and carers. This year’s theme is ‘Prevent, Care, Cure’ .

To apply to be part of the lived experience panel or for more information, contact dementiapolicy@gov.scot.