World Meningitis Day: Rise in cases concerning, says Meningitis Now

Meningitis Now is marking World Meningitis Day today (Sunday 5th October) with an urgent call for awareness and action, as new figures reveal a concerning rise in meningococcal disease (IMD) across England.

The latest statistics show there were 380 cases of IMD in 2024/25, compared to 341 in 2023/24 which is an 11% year-on-year increase.

The figures disclosed in the latest quarterly release from UKHSA also reveal that cases of MenB, the most common cause of bacterial meningitis in the UK, have also risen by 13%. There were 314 cases compared to 301 in the previous year.

Increases in MenB have been recorded in several age groups, including a 20% increase in cases among 15–19-year-olds (from 52 cases to 65), a 17% increase among babies under 1 year old (from 29 cases to 35), a 17% increase among 25 to 44-year-olds (from 38 cases to 46) and a 19% increase among 45–64-year-olds (from 34 cases to 42).

Dr Tom Nutt, Chief Executive of Meningitis Now, said, “These figures are worrying. Meningitis can affect anyone at any time, but these increases among teenagers, young adults, and babies – some of the most vulnerable groups – show just how vital it is to stay vigilant.

“Early recognition saves lives, but prevention through vaccines remains the most effective way to protect against this devastating disease.”

Meningitis Now is urging people to familiarise themselves with the signs and symptoms of meningitis, and to check whether they and their loved ones are up to date with vaccinations, including the MenACWY jab.

Meningitis can be fatal within hours of infection. One in ten people who contract bacterial meningitis will die, leaving their families coping with the heartbreak of losing a loved one. Between 30% and 50% of those who survive bacterial meningitis will be left with long-term after-effects, including hearing loss, acquired brain injury, epilepsy, chronic pain, vision problems and amputations. 

Meningitis Now provides one-to-one support, grants, and a free nurse lead helpline to make sure no family faces the impact of meningitis alone.

Earlier this year Meningitis Now launched a campaign to tackle cases of MenB among young people. 

The charity says there are effective, life-saving vaccines against MenB, but they are not currently offered to teens, who are at increased risk of the disease. Meningitis Now’s campaign called “No Plan B for MenB” sets out the changes it would like to see, including:

•           The MenB vaccination to be given to all those at most risk of disease.

•           A MenB booster programme to protect adolescents from 2030.

•           Availability of the MenB vaccination on the high street at a fair price.

Dr Nutt added, “World Meningitis Day is a powerful reminder that we cannot be complacent. While there has been a drop in meningitis cases over the past decade, these new figures underline why our work, raising awareness, supporting families, and pushing for prevention is as important as ever.”

The charity and its supporters are joining forces with other organisations to raise awareness of the disease this Sunday 5th of October and is encouraging people to light a candle at 8.30pm, in memory of those who have been affected by meningitis, as part of a global initiative.

Meningitis Now is the UK’s leading meningitis charity, founded 39 years ago by families who had experienced the heartbreak of losing a loved one to the disease.

The charity is the only organisation in the UK dedicated to fighting meningitis on three fronts:

  • Awareness: Equipping the public with the knowledge to recognise meningitis quickly and ensuring more people are protected through vaccination campaigns.
  • Support: Providing practical, emotional, and financial support to individuals and families whose lives have been changed by meningitis, helping them rebuild their futures.
  • Research: Funding pioneering projects to understand the disease better, improve diagnosis and treatment, and ultimately move closer to a world free from meningitis.

For more information, visit www.meningitisnow.org.

Raise awareness for World Meningitis Day

LEADING UK meningitis charity Meningitis Now has launched a new Signs and Symptoms video to help raise awareness of the deadly disease to mark World Meningitis Day on Saturday 24 April.

The charity is also calling on local supporters to raise awareness with friends, family and in their community and help #DefeatMeningitis. 

In a second video released for the annual day, an initiative of the worldwide Confederation of Meningitis Organisations, charity supporters Holly and Lewis Andrews, from Worcester, are also helping to spread the word by telling their story.

In the video Holly and Lewis talk about how they had already watched their son Theo battle bacterial meningitis in 2018. Fortunately, he recovered. When his baby brother Jasper became unwell in March 2020 they couldn’t believe that history seemed to be repeating itself.

“Meningitis can wreck lives and it’s vital that everybody understands how serious it can be for individuals and families. That’s why we’re supporting World Meningitis Day. 

“By telling our story, raising awareness of the signs and symptoms and increasing vaccine knowledge, we hope to raise the profile of this devastating disease,” they said. 

Thankfully, Jasper, who was diagnosed with viral meningitis, also went on to make a good recovery.

Holly added: “I couldn’t get my head around the fact that both our babies had contracted meningitis. I had so many questions, so many whys? What ifs? How could this have happened again? What did we do wrong?

“I reached out to Meningitis Now again, and shared all my concerns and all my questions, and they were great. They told me about a Facebook support group, which has been a huge help for me.

“Both boys are doing fantastic, they’re both so happy, so content and are already the best of friends, they love each other so much.

“We still can’t quite believe that in the last three years meningitis has hit our little family twice and I don’t think you can ever get over the constant worrying and panicking, but I think it’s just something you learn to live with.”

The family’s full story is on the charity’s website at www.meningitisnow.org/support-us/news-centre/meningitis-stories/jaspers-story

Meningitis Now Chief Executive, Dr Tom Nutt, said: “We want to use World Meningitis Day to help spread the word and raise awareness of the signs and symptoms and reinforce that, on World Meningitis Day, as on every other day, we are here to help and support those who need us.

“With the impact of Covid-19 leading to some people missing their immunisations and the number of meningitis cases expected to rise when people start to gather again it’s important that we keep meningitis awareness on everybody’s radar.

“Please join us on 24 April for World Meningitis Day, take action and #DefeatMeningitis.”

Meningitis is inflammation of the membranes that surround and protect the brain and spinal cord, usually caused by bacteria or viruses.Early signs and symptoms can be similar to ‘flu, tummy bug or a hangover and include fever, headache, nausea, vomiting, diarrhoea, muscle pain and stomach cramps.

More specific signs and symptoms include fever with cold hands and feet, drowsiness, confusion, pale blotchy skin, stiff neck, dislike of bright lights and a rash, which doesn’t fade under pressure. Symptoms can occur in any order and some may not appear at all.

If someone is ill and getting worse seek urgent medical attention.

Of those who contract bacterial meningitis one in ten will die and one in three survivors will be left with life-changing after-effects.

The awareness day takes place as Meningitis Now launches its new five-year strategy aiming to defeat meningitis in the UK within a generation.

The charity is working towards a future where no one in the UK loses their life to meningitis and everyone affected gets the support they need.

It does this by funding research into vaccines and prevention, raising awareness so people know what to look for and what action to take if they suspect meningitis and rebuilding futures by providing dedicated support to people living with the impact of the disease.

For more information visit www.meningitisnow.org