Tag: UK Sepsis Trust

Charity marks World Sepsis Day with viral petition urging action in light of Lord Darzi’s NHS investigation

  • The findings of Lord Darzi’s independent review of the National Health Service echo a national sepsis charity’s calls for action
  • The UK Sepsis Trust’s petition calling for Government to ‘step up’ its act on sepsis has accumulated over 35,000 signatures since launch at start of September for sepsis awareness month
  • The charity has three key asks to help improve sepsis outcomes and reduce the total number of deaths each year in the UK from 48,000  

TODAY, on World Sepsis Day, 13th September 2024, the UK Sepsis Trust is calling for urgent action to address health inequalities, prevent avoidable infections, and integrate advanced diagnostics into NHS clinical systems to improve sepsis care.  

Recent reports from the National Child Mortality Database and research from the University of Manchester, have shed light on the critical role health inequalities play in sepsis outcomes; these findings underscore the need for equitable access to healthcare services, particularly in sepsis cases, where delays in diagnosis and treatment contribute to 48,000 deaths in the UK each year.  

As highlighted in Lord Darzi’s Independent Review of the NHS, published yesterday, there are stark regional variations in access to GP services—an issue mirrored in the management of sepsis across the country. 

UK Sepsis Trust’s Founder & Joint CEO Dr Ron Daniels said: “To further strengthen our health system’s ability to respond to sepsis, we need to urgently integrate diagnostics into clinical systems, enabling healthcare professionals to make rapid, targeted decisions.

“This forms one of the three key demands in our charity’s petition to the Government, which has gathered over 35,000 signatures since the start of September. Our petition calls for sepsis to be prioritised alongside heart attacks and strokes, ensuring that rapid diagnostics are available at every patient touchpoint within the NHS.  

“Sepsis has far-reaching economic impacts. As highlighted in Lord Darzi’s report, the NHS has struggled to support individuals in their recovery from critical illness, often failing to help them return to work.

“This is not only a health issue but an economic one. On World Sepsis Day, we renew our call for the Government and the NHS to take immediate action. Sepsis is an emergency. Let’s prioritise its prevention and treatment to save lives, improve outcomes for survivors, and safeguard the future of our health system.” 

Even when sepsis outcomes do not result in tragic loss of life, many survivors and their families continue to suffer from long-term health issues and challenges. Around 40% of survivors have one or more of cognitive, psychological or physical sequelae, with nearly 80,000 people each year suffering with potentially life-changing after effects.

UKST provides free, Support Nurse-led services to survivors, many of whom find their ability to function is impacted by Post Sepsis Syndrome (PSS) – with symptoms reported by sepsis survivors including fatigue (80%), anxiety (53%), and trouble concentrating (47%). 37% report difficulty performing tasks they could previously, while 34% suffer with Post Traumatic Stress Disorder (PTSD). It’s easy to see how this affects peoples’ ability to work.  

In a survey conducted in August 2024, UKST found that 83% survivors were not told about PSS by healthcare professionals, and 68% of survivors and 64% of caregivers of survivors, weren’t given information about support resources and services after sepsis.

To help improve sepsis outcomes, The UK Sepsis Trust is calling for the government to:  

  • Measure and publish performance data on the sepsis care pathway. Reliable data are needed to understand the quality of NHS sepsis care, identify opportunities for improvement and provide targeted support where needed. 
  • Empower frontline decision-making with better integration of rapid diagnostics. There is no single test to diagnose sepsis, but diagnostics help doctors make important decisions about the types of treatment to use. Diagnostic tests are typically done in centralised laboratories, which means clinicians have to wait for the results. Time is of the essence when treating sepsis, so health professionals need access to fast and reliable tests to reduce preventable deaths. 
  • Raise awareness of the signs and symptoms of sepsis and signpost rehabilitation services to reduce pressures on the NHS. Empowering the public to ‘Just Ask: Could it be Sepsis?” can help save lives, and ensuring survivors have access to ongoing care and support will help keep them well and out of hospital. 

Sign and support the charity’s petition here: Make Sepsis a Priority in the NHS. 

Bereaved parents call for action to end preventable sepsis deaths

New report shows 15% of child deaths are related to infection

  • 15% of child deaths are related to infection according to a new report from the National Child Mortality Database
  • Sepsis is the immune system’s overreaction to an infection, and claims 48,000 lives in the UK each year
  • Clinical signs of sepsis were reported in over 700 child deaths between April 2019 and March 2022
  • Parents who have lost their children to sepsis are calling for action to improve patient outcomes
  • Following a report from the National Child Mortality Database released today, parents who lost their children to sepsis have spoken out about what needs to happen to prevent future child deaths.

Fifteen per cent of child deaths in England over the last three years are related to infection, according to a new report published on 14 December by the University of Bristol’s National Child Mortality Database (NCMD) team.

The report uses the NCMD’s unique data on all child deaths in England to examine 1,507 infection-related deaths between April 2019 and March 2022, with the clinical signs of sepsis reported in 701 child deaths.

UK Sepsis Trust Founder & Joint CEO Dr Ron Daniels, who contributed as a report author, said: “It’s staggering to learn that almost one in every six deaths in children is caused by infection.

“Whilst not every death will ever be preventable, this report clearly highlights that modifiable factors may have saved many of these children’s lives. It’s clear that there is an urgent need to empower parents and carers, to ensure that health professionals listen more closely to families, and to work closely with people from vulnerable communities to design messaging that is relevant and accessible to them.

“Martha’s Rule when implemented will be a hugely important step, but it is one small part of the system wide solution we need to stop avoidable deaths from infection in children.”

UK Sepsis Trust Ambassador Melissa Mead, whose son William died of sepsis on 14th December 2014, and who reviewed the report from the perspective of a bereaved parent said: “For this report to be published on the anniversary of William’s death felt quite poignant.

“It’s a really sad day, if I’m honest, and this is makes for really sobering reading. I’m really disheartened. It feels like William’s life didn’t matter and that the same thing is happening time and time again, and I just feel like no one is listening to us – certainly me as a parent – and it scares me.”

Helen and Daniel Philliskirk lost their 16-month-year-old son James to sepsis in May 2022.

They took him to Sheffield Children’s Hospital on multiple occasions but were dismissed by doctors and told he had chicken pox – but a postmortem examination found that he had developed sepsis after a Strep A infection, with no evidence of chicken pox present.

His parents have given their support to calls for Martha’s Rule, after their own inquest experience found that neglect by the hospital contributed to James’ death.

“Just trust your gut; you know your child best,” said Helen. “I think people would always rather see children and verify that they are healthy or verify that things are OK rather than people be at home worried and things get missed and ultimately lead to very unwell children or sadly, children dying.”

The NCMD report also found that children under one were at greater risk of infection related death than other age groups, but also that risk varied by ethnic and socio-economic background.

Children from an Asian/Asian British or black/black British ethnic background were at higher risk, with children from a Pakistani ethnic background at the highest risk of all.

During their son’s illness, Mohammed Elsiddig and Duaa Siyed Ahmed were repeatedly dismissed by healthcare professionals despite their respective medical qualifications, and their son Yousef died of sepsis on 5th February 2023, just after his first birthday.

They have shared Yousef’s story with the UK Sepsis Trust to help raise awareness of sepsis, while also hoping to reduce the

Duaa said: “Although it’s extremely difficult for us every day, nothing can bring Yousef back but at least we can do something to prevent this from happening to other families.”

Mohamed said: “Our message to the healthcare professionals is please listen to parents because they know their kids better, and please show them respect and empathy.

“Whenever you are dealing with a child with fever please think and ask yourself ‘Could this be sepsis?’ and if you are not so sure please do not feel ashamed to seek senior advice, whether at night or during the day.

“Always follow the national guidelines because it’s very sensitive to detect sepsis. Finally, please pay attention and do not fall into unconscious bias and stereotyping.”

Read the report: ncmd.info/wp-content/uploads/2023/12/Infection-related-deaths-of-children-and-young-people-in-England.pdf 

Charity calls for ‘Sepsis Savvy’ on World Sepsis Day

  • Today is World Sepsis Day, and September is sepsis awareness month
  • The UK Sepsis Trust is asking you to protect your readers from a condition that kills 48,000 people in the UK each year
  • Readers could also win £250 in Love2shop vouchers by playing and leaving feedback on the charity’s ‘Sepsis Savvy’ game 

The UK Sepsis Trust needs your help to get people ‘Sepsis Savvy’ today on 13th September 2023 (World Sepsis Day).

Sepsis is a life-threatening condition that arises when the body’s response to an infection injures its own tissues and organs.

It occurs when the body’s immune system – which normally helps to protect us and fight infection – goes into overdrive. It can lead to shock, multiple organ failure and sometimes death, especially if not recognised early and treated promptly.

It affects a staggering 245,000 people in the UK each year – with 48,000 people losing their lives to sepsis-related illnesses. That’s 5 people dying every hour!

UK Sepsis Trust Founder & Joint CEO Dr Ron Daniels said: “This World Sepsis Day we are asking the public to spend five minutes reviewing our ‘Sepsis Savvy’ resources which were created in partnership with Iceland Foods and the Iceland Foods Charitable Foundation.

“By watching a short video on the signs and symptoms of sepsis, and then testing your knowledge with a game, you could equip yourself with potentially life-saving information.”

These resources are available at sepsistrust.org/savvy and there is also the chance to win up to £250 in Love2shop vouchers for anyone who provides feedback after playing the game.