Tag: sepsis

‘Bionic’ former MP Craig Mackinlay advocates for better sepsis aftercare 

As Mental Health Awareness Day approaches on October 10th, former MP Craig Mackinlay is using his platform to call for urgent improvements in sepsis aftercare and mental health support for survivors.

In a new episode of Sepsis Voices with Dr Ron, released in September for Sepsis Awareness Month, Mackinlay shares his personal story of survival after losing both hands and feet to sepsis and becoming a quadruple amputee. Now known as the “Bionic” MP, Mackinlay is a powerful advocate for change.

Mackinlay, who received prosthetics after his sepsis ordeal, criticises the NHS for its inadequate provision of prosthetic limbs, saying, “What the NHS is currently giving out in terms of prosthetics does not do mental health any good.”

He explains how poor access to high-quality prosthetics leaves survivors unable to regain their independence, deeply impacting their mental well-being and ability to return to work.

The economic impact of sepsis-related disability is substantial, with many survivors unable to work due to long-term physical and cognitive effects. The UK Sepsis Trust estimates that 40% of sepsis survivors suffer from ongoing complications, leading to lost productivity and increased financial strain on both families and the economy. Mackinlay highlights how providing better aftercare and mental health support could prevent thousands of cases of long-term disability, allowing survivors to contribute to society and reduce the overall economic burden.

Mackinlay’s advocacy aligns with the UK Sepsis Trust’s recent Step Up campaign, which calls on the government to improve outcomes for sepsis survivors. The campaign’s key demands include:

  1. Measurement and publication of sepsis care performance data – to ensure better accountability and improve NHS care standards.
  2. Integration of rapid diagnostics – allowing healthcare providers to diagnose and treat sepsis faster, preventing severe disabilities and reducing the long-term economic impact.
  3. Increased public awareness of sepsis symptoms – ensuring that early intervention prevents life-altering complications like limb loss.

The charity’s Change.org petition calling for public support of the asks has accumulated nearly 50,000 signatures: https://chng.it/5dnys44wvt

Dr Ron Daniels, Founder and Chief Medical Officer of the UK Sepsis Trust, also highlights the “postcode lottery” in sepsis care, noting that a recent University of Manchester study found that people from socioeconomically deprived areas are nearly twice as likely to die from sepsis.

Both Mackinlay and the UK Sepsis Trust emphasise the need for a national effort to address these disparities and improve both physical and mental health care for survivors.

As the UK Sepsis Trust raises awareness this Sepsis Awareness Month, this episode of Sepsis Voices with Dr Ron brings attention to the need for systemic change in sepsis aftercare and the importance of recognising the mental health toll on survivors ahead of Mental Health Awareness Day.

Listen to the full episode here: https://SepsisVoices.podbean.com/e/sepsis-survival-and-advocacy-bionic-former-mp-craig-mackinlay-on-adapting-to-life-with-disability-and-driving-for-change/

Bereaved parents call for action to end preventable sepsis deaths

New report shows 15% of child deaths are related to infection

  • 15% of child deaths are related to infection according to a new report from the National Child Mortality Database
  • Sepsis is the immune system’s overreaction to an infection, and claims 48,000 lives in the UK each year
  • Clinical signs of sepsis were reported in over 700 child deaths between April 2019 and March 2022
  • Parents who have lost their children to sepsis are calling for action to improve patient outcomes
  • Following a report from the National Child Mortality Database released today, parents who lost their children to sepsis have spoken out about what needs to happen to prevent future child deaths.

Fifteen per cent of child deaths in England over the last three years are related to infection, according to a new report published on 14 December by the University of Bristol’s National Child Mortality Database (NCMD) team.

The report uses the NCMD’s unique data on all child deaths in England to examine 1,507 infection-related deaths between April 2019 and March 2022, with the clinical signs of sepsis reported in 701 child deaths.

UK Sepsis Trust Founder & Joint CEO Dr Ron Daniels, who contributed as a report author, said: “It’s staggering to learn that almost one in every six deaths in children is caused by infection.

“Whilst not every death will ever be preventable, this report clearly highlights that modifiable factors may have saved many of these children’s lives. It’s clear that there is an urgent need to empower parents and carers, to ensure that health professionals listen more closely to families, and to work closely with people from vulnerable communities to design messaging that is relevant and accessible to them.

“Martha’s Rule when implemented will be a hugely important step, but it is one small part of the system wide solution we need to stop avoidable deaths from infection in children.”

UK Sepsis Trust Ambassador Melissa Mead, whose son William died of sepsis on 14th December 2014, and who reviewed the report from the perspective of a bereaved parent said: “For this report to be published on the anniversary of William’s death felt quite poignant.

“It’s a really sad day, if I’m honest, and this is makes for really sobering reading. I’m really disheartened. It feels like William’s life didn’t matter and that the same thing is happening time and time again, and I just feel like no one is listening to us – certainly me as a parent – and it scares me.”

Helen and Daniel Philliskirk lost their 16-month-year-old son James to sepsis in May 2022.

They took him to Sheffield Children’s Hospital on multiple occasions but were dismissed by doctors and told he had chicken pox – but a postmortem examination found that he had developed sepsis after a Strep A infection, with no evidence of chicken pox present.

His parents have given their support to calls for Martha’s Rule, after their own inquest experience found that neglect by the hospital contributed to James’ death.

“Just trust your gut; you know your child best,” said Helen. “I think people would always rather see children and verify that they are healthy or verify that things are OK rather than people be at home worried and things get missed and ultimately lead to very unwell children or sadly, children dying.”

The NCMD report also found that children under one were at greater risk of infection related death than other age groups, but also that risk varied by ethnic and socio-economic background.

Children from an Asian/Asian British or black/black British ethnic background were at higher risk, with children from a Pakistani ethnic background at the highest risk of all.

During their son’s illness, Mohammed Elsiddig and Duaa Siyed Ahmed were repeatedly dismissed by healthcare professionals despite their respective medical qualifications, and their son Yousef died of sepsis on 5th February 2023, just after his first birthday.

They have shared Yousef’s story with the UK Sepsis Trust to help raise awareness of sepsis, while also hoping to reduce the

Duaa said: “Although it’s extremely difficult for us every day, nothing can bring Yousef back but at least we can do something to prevent this from happening to other families.”

Mohamed said: “Our message to the healthcare professionals is please listen to parents because they know their kids better, and please show them respect and empathy.

“Whenever you are dealing with a child with fever please think and ask yourself ‘Could this be sepsis?’ and if you are not so sure please do not feel ashamed to seek senior advice, whether at night or during the day.

“Always follow the national guidelines because it’s very sensitive to detect sepsis. Finally, please pay attention and do not fall into unconscious bias and stereotyping.”

Read the report: ncmd.info/wp-content/uploads/2023/12/Infection-related-deaths-of-children-and-young-people-in-England.pdf 

Raising awareness of sepsis

New campaign focuses on spotting the early signs

The five early signs of sepsis are to be highlighted in a new campaign to help raise public awareness of this potentially fatal condition.

The campaign, which will run across social and traditional media, focuses on the often silent symptoms of sepsis, which is a serious complication of an infection.

This includes very high or low temperature, uncontrolled shivering, confusion, passing less urine than normal and blotchy or cold hands and feet.

The first sepsis awareness campaign launched in February 2018. The new campaign aims to build on this while increasing public knowledge of the early warning signs.  It complements the work carried out by Healthcare Improvement Scotland through the Scottish Patient Safety Programme, which since 2012 has supported clinicians and clinical practitioners to improve recognition of the signs of sepsis and better equip them to deal with it.

Chief Medical Officer Catherine Calderwood said: “While deaths caused by sepsis have fallen by 21% since 2012, thanks in part to the work of the Scottish Patient Safety Programme, it is still vital that people are aware of this potentially fatal condition.

“The key in treating sepsis is catching it quickly so that is why it’s important to know the signs. If someone has two or more of the symptoms and they are getting rapidly worse, it is important to seek urgent medical advice.

“Following our first campaign from 2018, we know that more than three out of four people are aware of the dangers of sepsis but we want to further increase public awareness to spot the signs and this campaign will help us do this. It will also help to focus on continuous improvement across Scotland ensuring there is safe and consistent care for all sepsis patients.”

Craig Stobo, who founded Sepsis Research after the death of his wife Fiona and unborn daughter Isla from the illness, said: “Sepsis Research is delighted to be supporting the Scottish Government’s Sepsis Awareness Campaign. This focused effort to encourage people to recognise the symptoms of this potentially fatal illness will save lives.

“Educating people so they know what to look out for and understand the urgent need to get medical assistance will help prevent potentially tragic consequences and we congratulate the Scottish Government on taking this initiative.”

Colin Graham, chief operating officer of Sepsis Research (FEAT): said: “This is a very important campaign by the Scottish Government and we urge everyone in the medical profession and the wider public to pick up on the life-saving messages it contains.”