Frame Running gives people with MS the freedom to exercise

Researchers at Queen Margaret University (QMU), Edinburgh have found that Frame Running, an adapted form of physical activity, could offer a safe new way for people with advanced Multiple Sclerosis (MS) to take part in sport and exercise. The results of the study, suggests that Frame Running can help people with walking difficulties stay active in a way that feels both enjoyable and achievable, and which could benefit their health and wellbeing.

Frame Running involves exercise with a purpose-built trike which consists of three wheels and has a saddle and handlebars. The frame is propelled by the athlete’s feet and steered by hands or arms.

Its design offers stability and support while walking or running, which may suit many people with mobility and balance issues, including people living with MS. Frame Running has recently been included as a Para-athletic event in the 2028 Paralympic games in Los Angeles and is increasing in popularity in the UK and worldwide, with local clubs springing up across Scotland in places such as East Lothian, Edinburgh, Dunfermline, Glasgow, Ayrshire, Perthshire and Aberdeen.

The study, funded by the UK MS Society, builds on work by QMU’s Professor Marietta van der Linden, which has explored the potential of Frame Running to support mobility, cardiovascular health and personal confidence in young people with cerebral palsy.

The latest study, now extends that understanding to people living with MS. 

The 12-week research project, which brought participants together for weekly sessions at a local athletics track, offers an encouraging picture. It reveals new possibilities for a group that often encounters significant barriers to physical activity.

Professor Marietta van der Linden, a Human Movement scientist at QMU, said: “People with MS, who experience difficulties walking, often have very few ways to exercise safely outdoors at an intensity that genuinely benefits their health. Frame Running may provide people with these positive health effects, while also offering a sense of speed, freedom and confidence that many thought they had lost.” 

The study, which involved 10 participants, showed that Frame Running enabled most people to reach heart rate levels typically associated with moderate to vigorous exercise. Participants showed strong commitment, attending almost every session, and importantly, no serious safety issues were reported.

Most participants enjoyed the experience so much that they continued attending Frame Running sessions offered by the local athletics club long after the study finished, highlighting its appeal and real-world potential. 

Dr Gary McEwan, Research Fellow at QMU and lead author, added: “Seeing participants reach meaningful exercise intensities was incredibly encouraging.

“These levels of activity are linked to improved fitness, better symptom management and enhanced quality of life – yet they’re rarely accessible to people living with significant disability.” 

CASE STUDY

Helen Isserlis, a former nurse from East Lothian, developed MS almost 30 years ago. With significantly declining mobility, she certainly didn’t expect to be running around a track at 59 years of age.

But she recently stumbled upon Frame Running and its enabled her to take part in intensive exercise for the first time in decades. Her participation in the adapted sport has not only restored her movement, it’s offered a sense of freedom and possibility that she’d thought she’d lost. 

“I can’t hop, skip, jump, and I certainly can’t run. But Frame Running has changed my whole mindset. Instead of focusing on what I can’t do, I look forward to what I can do.”

Helen trains once or twice a week with Team East Lothian at Meadowmill stadium in Prestonpans. 

She said: “It gets your heart rate up, your blood pumping and your legs moving. Afterwards, my hips and legs feel far looser, and my pain is reduced. I can now do intensive bursts of exercise, which would have been impossible before, and I’m working up to a 5k in one go. 

“Frame Running has transformed what is physically possible for me. It’s restored my independence, confidence and joy. It’s made me feel alive again.”

While the study was small and exploratory, the findings mark an important next step in a research journey that has already shown Frame Running to be beneficial for other disability groups.

Caitlin Astbury, Senior Research Communications Manager at the MS Society, said: “Research shows being physically active can improve mobility, muscle strength and mood, and help manage MS symptoms like balance problems and fatigue. But we also know it can be difficult for people with advanced MS to find an exercise routine that works for them.

“This research from QMU provides early but promising evidence that Frame Running could be a safe and enjoyable way for people with mobility difficulties to take part in moderate to intense exercise.

“There are more than 17,000 people living with MS in Scotland, and over 150,000 people in the UK. The condition affects nerves in the brain and spinal cord and impacts how people move, think, and feel. Studies like this help to identify and raise awareness of different types of exercise that people with MS may benefit from. We hope to see more research in this area in the future.”

Dr McEwan concluded: “This study adds to a growing body of evidence showing that Frame Running can transform what is possible for people with mobility impairments.

We would therefore encourage more people with MS and other mobility issues to try Frame Running. We’d also love to see further development of Frame Running groups in the community such as within athletics clubs across Scotland and beyond, so that more people with MS have easy access to the sport, equipment and the joy and camaraderie often associated with being part of a sports club.”

To find out more about the research view the research paper.

Major new research to tackle health inequalities in Roma communities

Project to invest in training and support, building capacity and skills through co-creation

A new £1.1M research project led by Heriot-Watt University is set to improve health outcomes and reduce inequalities for Roma communities across the UK.

Roma populations experience some of the poorest health and wellbeing outcomes, including significantly lower life expectancy of 10 or more years below the national average as well as a higher prevalence of long-term chronic conditions and increased social exclusion.

Poorer health can result from barriers and challenges when accessing the physical, social, and cultural supports that are needed to age across the life course.

The new three-year project will work in partnership with community groups of Roma people now living in the UK, civil society organisations and public authorities across three focus areas in Luton, Peterborough and Glasgow.

Funding for the research is led by AHRC in collaboration with BBSRC, ESRC, MRC and NERC, all part of UKRI. Additional funding is from UKRI’s Building a Secure and Resilient World, and Creating Opportunities, Improving Outcomes strategic themes and the programme is run in partnership with the National Centre for Creative Health.

Including co-researchers from Roma communities, the research will use innovative visual and creative methods to help identify barriers faced by Roma people in accessing healthcare and other services in mid to later life.

The project will then co-design new place-based ‘Integrated Hubs’ to better connect Roma people with culturally appropriate health, wellbeing and community resources which build upon existing expertise and assets within the community.

Dr Ryan Woolrych, director of the Urban Institute at Heriot-Watt University, said: “This research is urgently needed as public health bodies and government reports continue to evidence the inequalities faced by Roma people living in the UK today which is severely impacting life expectancies and creating growing social exclusion.

“There is a significant evidence gap in terms of exploring what it means to age within Roma communities and the interventions needed to ensure healthy and active ageing.

“We will address this by taking an inclusive, community-centred approach to understanding barriers faced by Roma people in accessing healthcare and other services before supporting the development of services that build on their cultural assets and lived experiences. By doing so, we can positively influence a shift in health, wellbeing and place policies and practices for Roma groups.

“We will employ innovative and creative methods like storytelling, dance and photography, working alongside communities to gain deeper insight into Roma experiences to co-design interventions that will deliver impact where they are needed the most.”

The multidisciplinary team includes the Roma Support Group, Luton Roma Trust, Compas and Community Renewal Trust’s Rom Romeha (meaning for Roma by Roma) in Govanhill as well as expertise from Coventry University, Anglia Ruskin University and the University of Dundee.

Crina Morteanu from the Luton Roma Trust said: “As a grassroots organisation, having worked with the Roma for more than ten years, we are delighted to be part of this project which is aimed at tackling one of the most critical issues that Roma face – access to health.

“Many Roma in Luton and the UK generally, face multiple barriers in their access to health.  This project will tackle those barriers which, in return, will result in appropriate solutions and ultimately improving their quality of life.”

Mihai Bica from the Roma Support Group said: “The Roma Support Group is thrilled to be part of this exciting and much needed research addressing some of the existing Roma health inequalities.

“We are particularly pleased that this project will draw on the knowledge and expertise of Roma from across the UK to co-develop healthcare solutions, while equipping them with the skills and capacity to play a central role in future research projects and drive policy change.”

The research builds on already established relationships with Roma communities, public authorities and health providers across the case study areas to give Roma people a voice in developing services that respect their dignity.

Leon Puska of Rom Romeha, Glasgow said: “As a Roma-led organisation, we bring first-hand understanding and passion to address the unique challenges our community face for maintaining good health throughout their lives.

“We are delighted to be part of this UK-wide partnership which will give us the opportunity to work with community researchers to better understand community situations and to co-design appropriate responses.”

New Foresight Project launched to support UK’s 2050 net zero target

The UK Government Office for Science has launched a new Foresight Project to help inform the government’s long-term net zero strategy.

The report titled A net zero society – scenarios and pathways follows the COP26 summit in Glasgow where global leaders convened to outline coordinated action to tackle climate change.

The UK government has committed to achieve net zero by 2050 which is essential to keeping global temperature rises limited to 1.5C.

Societal norms, practices and behaviours will play a significant role in emissions reduction, but these are uncertain and likely to change in the future. This project will provide the evidence and tools to help understand how behaviours could impact net zero.

Patrick Vallance, the government Chief Scientific Adviser, said: “If we are to keep warming below 1.5C, changes within society will matter as much as big technological changes. Through this research, we can understand the impact of potential societal changes on our path to achieving net zero.

This project, due to run until late 2022, will produce an expert evidence review and a set of future scenarios and their implications for the energy system and for different groups within society.