In the weeks leading up to Purple Day—the largest fundraising event for epilepsy-related causes—on 26 March, Edinburgh resident Michael Sturrock has set out to swim the equivalent distance from his home in Leith to the Epilepsy Scotland office in Glasgow.
The 28-year-old, who has epilepsy himself, aims to raise £2,000 for the charity. To reach his goal, he will swim just over 3km—or 122 lengths—every day for 28 days.
Speaking about his experience of epilepsy, Michael said: “I had my first seizure when I was 18. I had just arrived at a friend’s house and bent down to untie my shoes. I woke up several minutes later, unaware of who I was, where I was, who those around me were, what had happened or what was going to happen to me.
“I had just had a ‘grand mal’ seizure, which is the kind most will be familiar with – someone falling unconscious and fitting on the floor. Aside from the danger and physical toll of the fitting period, the subsequent confusion is an experience in which you feel simultaneously trapped in your body and disconnected from reality. It is terrifying for me and those who have witnessed the seizure.
“Having epilepsy not only comes with the physical parts of the condition but impacts the mental health of those with epilepsy and their friends and family. Watching someone having a seizure is a horrifying experience. Studies show an increased prevalence of PTSD in family members and carers of those with epilepsy. Rates of depression and anxiety are higher in people living with epilepsy. Indeed, anxiety is something that has affected me significantly in the years I have lived with epilepsy.
“Over the last decade, I have been on a medical journey to control my epilepsy. After years of trying different and varying quantities of seizure-control drugs and managing their side effects, I have now been seizure-free for 18 months. It’s a huge relief both for me and my husband, who has had to witness and care for me during seizures over the years.
“I’ve chosen a swimming challenge to highlight the fact that there are lots of everyday things that many people with epilepsy can’t or choose not to do because of the risk seizures would pose. Some with uncontrolled seizures would choose not to have a bath, let alone swim in a pool.
“Whether controlled or not, epilepsy is ever-present in the daily lives of those with the condition and those around them. With support from charities like Epilepsy Scotland, however, that need not be a bad thing. The support and sense of community the charity provides not only helps mitigate the effects of epilepsy for many but enriches and becomes a central part of their lives.
“I have the privilege of being a trustee of Epilepsy Scotland and I see first-hand the incredible work they do to support people with epilepsy and their loved ones. It is a truly brilliant charity and deserves every single penny it raises.
“I’m incredibly grateful for the support received. I have completed 5 swims and already raised over 60% of my £2000 goal. If I can raise that number this week, I’ll up my target amount by £1000 – or maybe more. Any donations are very welcome.”
Commenting on his progress, Michael said: “I’m not a bad swimmer so have been largely okay in the pool so far, though my arms were pretty tired on the third day and my pace dropped a fair bit.
“But coping with the monotony is almost the bigger challenge – I started craving chilli heatwave Doritos halfway through yesterday’s swim and couldn’t think of much else for the remaining time – I’ll have to make sure I’m better fed for my next swim!”
To donate, visit www.justgiving.com/page/michael-sturrock-purple-swim.