Worried and Waiting: Record waiting times for children in NHS Lothian

NHS Lothian has the longest patients waiting times for treatment, with 69.1% of total patients waiting over 12 weeks. 2382 out of 3448 paediatric patients in NHS Lothian waited over 12 weeks for treatment.

In NHS Highland 48.9% of patients were waiting over 12 weeks at that time. This is in comparison to NHS Greater Glasgow and Clyde where over 12 week waits made up only 19.2%, and NHS Grampian which stood at 12.9%.

The report by the Royal College of Paediatrics and Child Health, Worried and waiting: A review of paediatric waiting times in Scotland 2024, stated that –

It is worrying that children and young people are waiting longer than 12 weeks to be seen in paediatrics. However, what is the most concerning is that in September 2023, 13 out of 14 health boards in Scotland were experiencing very high waits over 12 weeks, with only NHS Western Isles achieving the national standard rate.

Lothian MSP, Miles Briggs, said: “It is extremely concerning that young people in Lothian are waiting over 12 weeks for treatment.

“Over two thirds of young people are now waiting over the 12 week waiting target which is unacceptable.

“SNP mismanagement of our NHS means that hundreds of children are not being seen a quickly as they should be, nowhere more so than in NHS Lothian.

“We urgently need to see our health service properly run. 

“It is also important that NHS Lothian receives funding parity with other health boards.

“This tired SNP Government has had no answers for years.”

Thousands affected by NHS Lothian hearing service scandal

LAWYERS WARN OF MORE VICTIMS IN NHS LOTHIAN AUDIOLOGY CASE

Lawyers supporting victims of the NHS Lothian hearing service scandal have warned that the number of children affected could be far greater than those identified in the independent report.

An audit of the health board’s audiology services found significant concerns in 155 of the 1007 patients treated between 2009 and 2018, which led to some children being identified with hearing loss years later than when first tested.

However, it has now emerged that THOUSANDS of children could be affected as lawyers highlight the 1,007 patients analysed in the audit was just a “sample” of those tested during the 9-year period.

Grace Smith, Associate at global law firm PGMBM, who are supporting parents affected by the scandal, said: “Whilst the audit highlighted those 155 children who were significantly affected by the failures at NHS Lothian, it is clear that the real number of families affected is much higher.

“The audit was performed on a sample of just over 1000 patients that were treated at NHS Lothian between 2009 and 2018. Within that 9-year period there were far more children through the doors of the Paediatric Audiology Service. The patient case load for this time frame was 22,900.

“The audit found concerns with 88% of the records within the sample. If that same percentage is applied to the full patient caseload across that time period, then the number of families affected by the report, delays and misdiagnosis could run into five figures. We know that there are children who were not included in the audit sample who have been affected by the failings highlighted in the audit report. ”

PGMBM are representing a parent whose child was not included in the audit sample – but experienced significant and serious delays in diagnosis.

Grace added:. “One of the families we are representing was seen by NHS Lothian’s Audiology Service several times from 2019 after their child failed a hearing test at birth.

“Despite repeatedly raising concerns about their child’s hearing, they were dismissed again and again and told that their child’s hearing was normal.  However, at almost three years old, an external second opinion diagnosed their child with severe hearing loss. This significant delay in diagnoses happened at a key developmental stage for their child.

“There are clearly more people affected than were reviewed in the audit sample. We would appeal to anyone worried to get in touch with either NHS Lothian or ourselves and we can look at ways to support you.”

The British Academy of Audiology report found systemic failings which led to babies and children undiagnosed or experiencing significant delays in diagnosis and treatment.

It was found that there were a series of serious issues particularly within the under-five age group of the Paediatric Audiology service. The root causes of these failures were found to be a lack of scientific leadership, knowledge, reflection and enquiry in the presence of a lack of routine and robust quality assurance process.

The report found that staff were not following professional standards, training was almost exclusively in-house and insufficient, testing was not carried out correctly and there was no evidence of consistent management protocol or structure for children after results of tests. As such children who presented with similar test results and histories were being managed in different and contrasting ways. It also found that parents concerns were often dismissed.

NHS Lothian apologised following the report which was published last December.

Anyone who thinks they might be affected by the issues identified in the audit and would like more information can speak to PGMBM lawyers at:

www.nhslothianclaimlawyers.com

PGMBM is a partnership between British, American, and Brazilian lawyers passionate about championing justice for the victims of wrongdoing or harm.

The firm has recently opened it’s Scottish office in Edinburgh, with Partner Alison Webb at the helm.

The case is among the first of many that the Scottish entity is taking on in an emerging market for group litigation in Scotland.

Round the clock children’s services to return at St. John’s

Round the clock paediatric inpatient services in St John’s Hospital will resume this Autumn, NHS Lothian announced yesterday.

The service will be reinstated 24 hours a day, seven days a week, from October, to enhance the care already provided to children in West Lothian.

The details were agreed by NHS Lothian board members at their meeting yesterday (Wednesday August 12).

It means that inpatient paediatrics will be extended from functioning four nights a week, to seven days and nights by October 19.

Dr Tracey Gillies, Medical Director, NHS Lothian, said the children’s ward was now in a position to fully re-open after a number of new staff were recruited to the team.

Dr Gillies said: “We are really pleased that we are able to fully reinstate children’s inpatient services 24/7 in St John’s Hospital. It is testament to the teams who have pulled together to make this happen.

“We have always said that we could only restore the full service when it was safe and sustainable to do so and that has been our priority throughout.

“Parents and children will not have to do anything differently and many may not even notice a difference. However it does mean that patients who require to remain in hospital over a weekend will be able to do so at St John’s, instead of routinely being transferred to the Royal Hospital for Sick Children in Edinburgh.”

Two permanent Consultants and one locum have been recruited to the team at St John’s, following successful rounds of recruitment in June. A small number of ward nurse vacancies are in the process of being filled, meaning that staffing in the unit will be further strengthened.

The availability of Advanced Paediatric Nurse Practitioners has also increased, giving added resilience to the staffing rota.

The Paediatric Programme Board (PPB), which was established to help develop and implement a strategy to deliver safe and sustainable services, was told at its most recent meeting that the unit had sufficient cover to provide a safe and sustainable rota for out of hours and weekend shifts.

It was also agreed that the programme board will now be dissolved because it has fulfilled its remit.

It comes just weeks after the Royal College of Paediatrics and Child Health published its most recent review into the service and praised NHS Lothian for its “considerable and impressive efforts” to restore the 24/7 service.

NHS Lothian invited the RCPCH to return and undertake a second follow up review of progress since their original Review and Report in 2016. The visit took place in February 2020 and the College’s Report was received at the end of May 2020.

Parents and families are not required to do anything differently as a result of the change and will still access care in the normal way, through NHS 24, their GP or the Emergency Department.

If children are very sick or require specialist intervention, they will continue to be admitted to the Royal Hospital for Sick Children, in line with the normal protocols.

“A state of chaos”: Further delay to full paediatric service at St John’s

The full reinstatement of 24/7 paediatric services at St John’s Hospital has been further delayed, Health Secretary jeane Freeman confirmed today. Continue reading “A state of chaos”: Further delay to full paediatric service at St John’s

Paediatric inpatient services to resume at St John’s

Paediatric inpatient services in St John’s Hospital will resume on Monday (March 18).
NHS Lothian will reinstate the service from Monday to Friday morning each week to provide 24-hour services to children in West Lothian. Conservative health spokesman Miles Briggs MSP gave the announcement a guarded welcome but says the reopening must be sustainable.

Continue reading Paediatric inpatient services to resume at St John’s

Partial reinstatement of children’s services at St John’s

Paediatric inpatient services in St John’s Hospital will begin to be restored in March, it was announced yesterday. NHS Lothian will reinstate the service from Monday to Friday each week to provide 24-hour services to children in West Lothian. Continue reading Partial reinstatement of children’s services at St John’s

Breakthrough? NHS Lothian takes step towards reinstating children’s services in St John’s Hospital

NHS Lothian has announced it has moved a step closer to reinstating the paediatric inpatient service in St John’s Hospital following the recruitment of three new members of staff. Continue reading Breakthrough? NHS Lothian takes step towards reinstating children’s services in St John’s Hospital

“Shambolic”: Reduced paediatric service at St John’s to continue ‘indefinitely’

The partial closure of a vital children’s ward is set to continue “indefinitely” – after the SNP admitted its staff recruitment crisis was to blame. Continue reading “Shambolic”: Reduced paediatric service at St John’s to continue ‘indefinitely’

Briggs requests update on St John’s children’s ward

Miles Briggs MSP has requested a Parliamentary Statement from Health Secretary, Jeane Freeman MSP, to get an update on the future of St. John’s children’s ward return of out of hours services. Continue reading Briggs requests update on St John’s children’s ward

Paediatrics picture brightens at St John’s

NHS Lothian has taken a step forward in boosting the medical team in paediatric inpatient services at St John’s Hospital, Livingston. A consultant  recruited at the end of last year has now joined the team and the most recent recruitment campaign, which ended on 9 January, has also proved successful – an offer has been made to another candidate, which when finalised, would take the total to seven.

Continue reading Paediatrics picture brightens at St John’s