Thousands affected by NHS Lothian hearing service scandal

LAWYERS WARN OF MORE VICTIMS IN NHS LOTHIAN AUDIOLOGY CASE

Lawyers supporting victims of the NHS Lothian hearing service scandal have warned that the number of children affected could be far greater than those identified in the independent report.

An audit of the health board’s audiology services found significant concerns in 155 of the 1007 patients treated between 2009 and 2018, which led to some children being identified with hearing loss years later than when first tested.

However, it has now emerged that THOUSANDS of children could be affected as lawyers highlight the 1,007 patients analysed in the audit was just a “sample” of those tested during the 9-year period.

Grace Smith, Associate at global law firm PGMBM, who are supporting parents affected by the scandal, said: “Whilst the audit highlighted those 155 children who were significantly affected by the failures at NHS Lothian, it is clear that the real number of families affected is much higher.

“The audit was performed on a sample of just over 1000 patients that were treated at NHS Lothian between 2009 and 2018. Within that 9-year period there were far more children through the doors of the Paediatric Audiology Service. The patient case load for this time frame was 22,900.

“The audit found concerns with 88% of the records within the sample. If that same percentage is applied to the full patient caseload across that time period, then the number of families affected by the report, delays and misdiagnosis could run into five figures. We know that there are children who were not included in the audit sample who have been affected by the failings highlighted in the audit report. ”

PGMBM are representing a parent whose child was not included in the audit sample – but experienced significant and serious delays in diagnosis.

Grace added:. “One of the families we are representing was seen by NHS Lothian’s Audiology Service several times from 2019 after their child failed a hearing test at birth.

“Despite repeatedly raising concerns about their child’s hearing, they were dismissed again and again and told that their child’s hearing was normal.  However, at almost three years old, an external second opinion diagnosed their child with severe hearing loss. This significant delay in diagnoses happened at a key developmental stage for their child.

“There are clearly more people affected than were reviewed in the audit sample. We would appeal to anyone worried to get in touch with either NHS Lothian or ourselves and we can look at ways to support you.”

The British Academy of Audiology report found systemic failings which led to babies and children undiagnosed or experiencing significant delays in diagnosis and treatment.

It was found that there were a series of serious issues particularly within the under-five age group of the Paediatric Audiology service. The root causes of these failures were found to be a lack of scientific leadership, knowledge, reflection and enquiry in the presence of a lack of routine and robust quality assurance process.

The report found that staff were not following professional standards, training was almost exclusively in-house and insufficient, testing was not carried out correctly and there was no evidence of consistent management protocol or structure for children after results of tests. As such children who presented with similar test results and histories were being managed in different and contrasting ways. It also found that parents concerns were often dismissed.

NHS Lothian apologised following the report which was published last December.

Anyone who thinks they might be affected by the issues identified in the audit and would like more information can speak to PGMBM lawyers at:

www.nhslothianclaimlawyers.com

PGMBM is a partnership between British, American, and Brazilian lawyers passionate about championing justice for the victims of wrongdoing or harm.

The firm has recently opened it’s Scottish office in Edinburgh, with Partner Alison Webb at the helm.

The case is among the first of many that the Scottish entity is taking on in an emerging market for group litigation in Scotland.

Audiology scandal: Review Group Chairperson Appointed

Professor Jacqueline Taylor has been appointed as the chair of a National Audiology Review Group.

The former NHS Clinical Director and Associate Medical Director will oversee the review of  hearing services provided to both children and adults in Health Boards across Scotland.

It comes after a report published in December 2021 outlined a series of errors in the treatment provided to children by Paediatric Audiology in NHS Lothian. The group will provide recommendations for a national plan for the service.

Health Secretary, Humza Yousaf said: “I would like to thank  Professor Taylor for agreeing to take on this important role which will help shape the future of audiology services in Scotland moving forward.

“Professor Taylor is one of the most respected medical figures in Scotland and I know that she will provide the necessary leadership and oversight for this vital work.

“I am determined that our hearing services are fit for purpose in Scotland following the unacceptable failures in NHS Lothian which came to light last year and this group will help identify any wider issues and areas for improvement.”

Professor Taylor said: “I look forward to working with this group over the coming months. “We expect to engage with the widest range of professionals and stakeholders in this area, identifying any gaps in provision but also learning from good practice.

“NHS Scotland provides some of the best healthcare treatment in the world, but where issues emerge it is important to understand what went wrong and how this can be rectified.”

The remit of the review, its full membership and timetable for reporting is now being finalised with the Chair.

The National Deaf Children’s Society has responded to the Scottish Government’s announcement that Professor Jacqueline Taylor has been appointed as the chair of a National Audiology Review Group.

Mark Ballard, Head of Policy for Scotland at the National Deaf Children’s Society, said: “We welcome the appointment of Professor Taylor and it’s a clear signal that the Scottish Government is treating this issue with the gravity it requires.

“The total number of families affected by NHS Lothian’s failures is still unknown. Among those that were, there are deaf children who have been left dealing with life-changing consequences.

“We need this review to not only right a serious injustice, but also to make sure that this isn’t happening in other areas across Scotland.

“It is a crucial step towards making sure that no family ever has to go through this again.”