The National Deaf Children’s Society has backed calls in the Scottish Parliament for more support for deaf children affected by the NHS Lothian audiology scandal.
A motion proposed by Jeremy Balfour, Conservative MSP for Lothians, on the current lack of support, has received cross party backing and will be debated in Parliament tomorrow (Thursday 8th June).
The debate follows a roundtable which Mr Balfour organised with families whose children were affected by the scandal earlier in the year.
The debate – S6M-08219 Ensuring that Lothian Late-diagnosed Deaf Children Get the Support That They Need – will be held at 12:30pm, before First Minsters Question Time. It will conclude with a Scottish Government Minster responding to points raised by concerned MSPs.
The motion highlights that the failure of NHS Lothian to identify children’s deafness early will mean some children permanently miss out on opportunities to develop language and communication.
An independent report published in 2021, found that NHS Lothian was identifying children’s deafness when they were on average 4.5 years old, while the average age of identification as deaf in England was three months. The report was commissioned after the National Deaf Children’s Society raised concerns about the quality of children’s audiology at NHS Lothian.
Mark Ballard, Head of Policy for Scotland for the National Deaf Children’s Society, welcomed the debate saying: “It’s vital that NHS Lothian and local authorities work together to ensure every child affected by the failings of NHS Lothian’s paediatric audiology service get the support that they need to thrive.
“We must not fail these children twice – first by failing to identify their deafness and then by failing to give them the support they need, especially as their needs may be more complex due to late identification.”
The National Deaf Children’s Society is calling for a specialist resource provision to be set up within a school in Lothian and the Borders, similar to those in Glasgow, Falkirk and Dundee.
The charity wants NHS Lothian and local authorities to work together on an individual plan for support for every deaf child involved.
The National Deaf Children’s Society also calls for the recruitment of additional specialist staff to address the more complex language and communications needs of children whose deafness was missed in the early years, who may struggle to catch up with their hearing classmates.