We are incredibly proud of John and everyone involved in I Swear following last night’s BAFTA Awards. The film has already raised so much awareness about Tourette syndrome and the daily reality faced by those living with the condition. The impact it has had on audiences, families, and those within the Tourettes community is huge, and we could not be more grateful for the support the film continues to receive.
However, we also want to address the negative comments that have surfaced following John’s involuntary vocal tics during the ceremony. We deeply understand that these words can cause hurt and we are deeply sorry to the Black community for the harm caused but at the same time, it is vital that the public understands a fundamental truth about Tourette syndrome: tics are involuntary. They are not a reflection of a person’s beliefs, intentions, or character.
People with Tourette’s can say words or phrases they do not mean, do not endorse, and feel great distress about afterwards. These symptoms are neurological, not intentional, and they are something John – like many others with Tourette’s – lives with every single day.
The backlash from certain parts of the media has been extremely saddening, particularly given how hard John works to raise awareness and understanding. What should have been a night of celebration for him became overwhelming, and he made the difficult decision to leave the ceremony halfway through.
This moment reflects exactly what I Swear shows so openly: the isolation, misunderstanding, and emotional weight that so often accompany this condition.
People with Tourette’s manage their physical and social environments and symptoms on a constant basis.
The price of being misunderstood is increased isolation, risk of anxiety and depression and death by suicide.
We hope that those commenting will take the time to watch the film, learn about Tourette’s, and understand the experiences behind moments like these. Education is key, and compassion makes a world of difference.
