The TUC is interested in the experiences of people with Long Covid in work, including people who have lost their jobs because of Long Covid.
Long Covid is the term used to describe COVID-19 symptoms that extending beyond the initial infection. Evidence on Long Covid points to symptoms of COVID-19 lasting for weeks, months and possibly years after the infection.
This survey asks questions to better understand how workers with Long Covid have been treated in the workplace.
Dear Editor
Despite the recent easing of national COVID-19 lockdown restrictions, many parents of neonatal babies in Scotland continue to face significant challenges in being with their premature or sick baby.
Before the pandemic parents typically had unrestricted access to their baby 24 hours a day, with neonatal units encouraging full participation in care giving. But in the past 12 months, parental access at many units has been restricted, with parents often unable to attend the unit together, and some having limits imposed on the length of time they can be with their baby.
Restrictions vary from unit–to–unit and the picture across Scotland is extremely varied, with some units continuing to facilitate full parental presence and involvement in their baby’s care. Policies have also changed over time, depending on national COVID-19 restrictions and local infection rates.
As part of this year’s Maternal Mental Health Awareness Month, taking place throughout May, Bliss is raising awareness of our new research which shows the devastating impact of these restrictions. Parents whose babies required neonatal care during the COVID-19 pandemic have told us how they struggled to access mental health support and experienced high levels of isolation.
In a Bliss survey of over 500 UK parents of neonatal babies born in the past 12 months, 92% of parents said they felt isolated and 69% said their mental health has become worse following their neonatal experience.
Parents with a neonatal experience are already at a high risk of experiencing mental health difficulties, and many parents feel they have not been able to get support for their mental health and wellbeing while their baby is in neonatal care.
Parents are the most important people in their baby’s lives and unit access restrictions have had a substantial impact on families. The implications on family bonding and mental health will be felt long into the future.
That’s why Bliss is calling on the NHS to introduce a National Roadmap for a return to usual 24/7 parent access on neonatal units as a matter of urgency, and to work with NHS Trusts in Scotland and beyond to implement it consistently across the country.
Our smallest and sickest babies need their parents at their side to give them the best chance of survival and quality of life.
Caroline Lee-Davey,
Chief Executive of Bliss Scotland
Presenter and Journalist Trisha Goddard is sharing her experience with breast cancer to raise awareness of the life-changing importance of strong bones, as new research reveals a worrying lack of action among the public.
Osteoporosis will affect half of women and 1 in 5 men over 50, but despite this, new research by You Gov and commissioned by the Royal Osteoporosis Society (ROS) shows that only 40% of Scots under 55 actively try to prevent it.
The condition weakens bones, making them more likely to break and affects 3.5 million people in the UK.
In 2008, Trisha was warned that her bones would lose strength as a result of her breast cancer treatment – unless she took decisive action.
Today, Trisha is sharing the lessons from one of the toughest periods of her life as a message of hope for people of all ages: that by taking action to strengthen your bones, we can all live better in older age and avoid the pain and disability of osteoporosis.
Trisha said: “I never really gave osteoporosis or my bone density a thought until it came to my breast cancer treatment. My surgeon explained that the medication I would be on for the next ten years would affect my bones.
“While I was ill, the hospital tested my bone density and I was pleasantly surprised to find out that at the age of 50, it was still really good. All the weight training and powerwalking I had done for half my life had paid off. There was no need for me to be prescribed any additional medication to help preserve my bones through the cancer treatment.
“After five years of being on breast cancer medication, my surgeon checked my bone density again. Great news! I’d barely lost any of my bone density. My surgeon happily explained that this was a direct result of me continuing to weight train, power walk and stay active.
“All that time, my aim had been to stay physically and mentally strong. Without even realising it, not only had I maintained my muscle strength, I had also maintained my bone strength.
“I’m not going to pretend it was easy – far from it – but a little bit of exercise most days was what got me through cancer. I’ll always have worries about my health, but it gives me peace of mind knowing that I’m in control of my bone health.”
Despite the huge impact for individuals and society, the research shows that 54% of people living in Scotland have never even had a conversation about bone health. In comparison, 69% actively try to maintain a healthy weight.
Trisha continued: “The whole experience made me realise how important it is, not just for cancer patients, but for everyone to look after their bones.
“Bone health is so overlooked when it comes to wellbeing. It absolutely brought home to me that prevention is better than cure. That’s why I’m joining forces with the Royal Osteoporosis Society to raise awareness of the importance of bone health.”
The ROS has announced that Trisha is to become an Ambassador for the charity as part of its mission to bust myths and improve the bone health of the nation.
More people die of fracture-related causes than deaths caused by lung cancer and diabetes.
The disease costs the NHS £4.5bn per year, a figure set to rise as the population ages. The ROS has warned this may climb even higher following the effects of lockdown, as the research shows that worryingly over a third of people in Scotland (37%) have exercised less during the pandemic.
Craig Jones, Chief Executive of the Royal Osteoporosis Society said: “Trisha is living proof that the fatalism about osteoporosis and broken bones being just part of getting older is plain wrong.
“There are many things that can increase your risk of osteoporosis, and sadly some cancer treatments are one of them. Many people will need to take a drug treatment for their bones to counteract the effects of their cancer treatment which will reduce their risk of bones becoming fragile.
“Thankfully, taking weight-bearing exercise, getting enough vitamin D and eating the right foods can also make a big difference, not just for cancer patients but for everyone who wants to proactively manage their bone health.
“It’s typical of Trisha’s openness and can-do attitude that she’s sharing this inspiring message about how to age better and stop osteoporosis in its tracks.”
The popular presenter launched her 30-year career in television in Australia, before becoming a household name in the UK, where she fronted her celebrated BAFTA-winning talk show, which ran for 12 years.
Trisha is a life-long advocate for mental health services, and her time in the public eye has been characterised by her willingness to share candidly her own experiences to support people who are battling adversity.
Trisha is poised to return to our screens this summer as host of a new, more holistic version of Channel 5’s show, You Are What You Eat. Trisha will also be part of campaigning efforts by the ROS to raise awareness of bone health and work towards its goal of a future without osteoporosis.
Find out more about bone health at https://theros.org.uk/.
With the Holyrood Elections next week, 80 disabled people, families and carers came together to grill representatives of the major political parties at an online hustings event on Thursday, April 22nd.
As many as one in five people in Scotland are disabled or have a long-term health condition meaning they are a sizeable portion of the electorate. Despite this, very little time has been given to debating the issues that directly affect disabled people and families as campaigning has gone on.
Last week’s event was organised by a consortium of nine major charities who are trying to rebalance the debate so the voices of disabled people and families are heard and their views considered.
At the hustings disabled people questioned candidates from the five main Scottish political parties on a wide range of issues including social care, the impact of the pandemic, social security, employment as well as rights and access.
The panel was chaired by award-winning freelance journalist and broadcaster Pennie Taylor, who specialises in health and social care issues and covered by STV on Wednesday.
Rob Holland, External Affairs Manager for the National Autistic Society Scotland and one of the organisers of the hustings said: “Around one million people in Scotland have a disability or long-term health condition yet their views are often excluded from the national debate.
“Given the uncertainty about the post-COVID landscape it is more important than ever for political parties to hear from disabled people and families, understand the challenges they face and do something about it.”
The hustings event was organised by ENABLE Scotland, Health and Social Care Scotland (the ALLIANCE), Leonard Cheshire Disability, MS Society Scotland, National Autistic Society Scotland, RNIB Scotland, Scottish Autism, Sense Scotland and Sight Scotland.
QUOTES from disabled people that attended the Hustings:
David Weir, is 30, autistic and from Glasgow. He said: I always vote and encourage other autistic people to vote.
“I feel that many politicians don’t listen – so the more disabled people speaking up the more they will understand the challenges we face and hopefully do something about it.”
Cat Johnson, 34 from Edinburgh, was diagnosed with MS at the age of 21 in 2007. She said: “As someone with MS who has acquired disability rather than being born with one, you see both sides and remember how things were before.
“The way that we view and treat disabled people in society is so far off what is OK and that’s frustrating.
“It’s good to see politicians and their parties engaging at this stage but we need a longer term push for real change to provide better support for disabled people.
“Things like the new Scottish social security system holding on to the 20-metre-rule, which sets a baseless measure for the highest level of mobility support, need to change if we want to build a better, fairer society.”
Kirin Saeed, 52, from Edinburgh is blind. She said: “I as a visually impaired Asian woman believe events like these offer me and others to question the main decision makers, politicians, as well as to create greater awareness in the hope greater change may happen, although we have come a long way there is so much still yet to do.
“COVID19 has shown the importance in investing in the vulnerable of society to benefit all.
“I am a pragmatic optimist and feel the only way we will have greater say is to be at the heart of the legislative process. And having the chance to question and getting a small response is a positive start. It is what happens afterwards that I really look forward towards.”
Representing the main political parties at the event were Jeremy Balfour (Scottish Conservatives), Pam Duncan-Glancy (Scottish Labour), Neil Gray (SNP), Gillian Mackay (Scottish Green Party) and John Waddell (Scottish Liberal Democrats).
The Stroke Association is funding the world’s first study to determine the long-term impact of Covid-19 on stroke survivors.
Since the start of the Covid-19 pandemic there have been widespread reports of adults with the virus also having strokes. The charity announces this new study today, amid concerns that the virus may be causing more severe strokes in patients whom doctors are struggling to treat.
It is thought that the virus could be increasing the chance of blood clots forming in the brain and blocking blood flow.
The Stroke Association is funding this vital research to investigate the difference the virus could make to stroke recoveries, which are already at risk due to disruption to stroke services caused by the pandemic.
The study will establish which differences in patients with and without the virus may influence their needs for treatment and care, including how to avoid the risk of having further strokes.
Researchers at University College London Hospitals NHS Foundation Trust (UCLH) led by Dr Richard Perry will follow up to 4,000 stroke survivors, with and without Covid-19 from across 13 emergency stroke units.
Stroke recovery, rehabilitation and health will be tracked for up to 18 months after their stroke. Researchers will collect and assess comprehensive, specialist medical information from stroke patients, including brain scans, blood samples and measures of disability.
The findings will help to understand how Covid-19 impacts stroke recovery and which treatments might best support survivors’ recoveries.
Dr Terry Quinn at the University of Glasgow works with the UCLH team on their Covid-19 and stroke research. Hhe said: “Research that compares stroke in patients with and without Covid-19 is essential to understand if Covid-19 results in more severe strokes, where survivors will need more support to recover from its devastating effects.
“From the beginning of the pandemic, I would see patients admitted with unusual strokes, who would then go on to have a positive Covid-19 test. This vital research will help us understand why this happens.
“The findings from this year-long study will inform decisions about the most effective treatment and the rehabilitation needs of this group of patients, including prevention of recurrent stroke. We already know that from the moment a person has a stroke or mini-stroke they are at substantial increased risk of further strokes.
“We’ve come a long way since the start of the pandemic. In the early days of the pandemic, stroke teams from across the UK came together to share their experiences and data. I was part of this collaborative activity and the exchange of information was crucial for delivering the best possible stroke care.
“This work had no external support and was reliant on busy clinicians giving up their time. Stroke clinicians will continue to engage with the new project, but the Stroke Association funding will allow us to achieve things that would not be possible without this support.”
Stroke is a sudden brain attack, stroke strikes every five minutes in the UK, and there are more than 128,000 stroke survivors living in Scotland. It’s estimated there will be around 173,000 by 2035.
Dr Rubina Ahmed, Research Director at the Stroke Association, said: “Stroke is a leading cause of adult disability in the UK and the second biggest killer in the world. It’s extremely concerning that we’re seeing strokes happening in ways we have not seen before.
“This research is absolutely critical in understanding and treating stroke after Covid-19, to help reduce the devastating effects and ultimately improve lives. Covid-19 is here to stay, so it’s vital we can prevent and treat strokes linked with the virus.
“The pandemic has shattered our fundraised income and is threatening research that drives life-changing breakthroughs in stroke care. As a result of the pandemic, we have had to halve our budget for stroke research.
“Research improves treatment and care for people affected by stroke so they can live their best lives possible, and that’s why stroke research is worth saving. Now more than ever, we need the public’s support. If you can, please help us find a way through the research funding crisis by donating today, so that we can fund more life-saving research.”
In February, the Stroke Association announced the world’s largest study to confirm if Covid-19 increases the risk of stroke and by how much. Together with the new research announced today, the two studies will help doctors to prevent and best treat Covid-19 strokes in the people who are most at risk.
Over the past 30 years the Stroke Association has played a crucial role in supporting stroke research in the UK. Research helps stroke survivors rebuild their lives, but the pandemic has hit research hard. By saving stroke research, more sure stroke survivors can live life to the full.
Find out how stroke research helps rebuild lives at stroke.org.uk/rebuildinglives or to donate, please visit: stroke.org.uk/saveresearch
Domestic abuse charity, Hestia, receives £655,000 of support from players of People’s Postcode Lottery
More than 200,000 victims of domestic abuse will now be helped as pandemic causes soaring demand for services
Charity Hestia’s UK SAYS NO MORE campaign is to dramatically expand its Safe Spaces scheme for victims of domestic abuse across the UK, in response to rising levels of abuse during the pandemic.
The Safe Spaces scheme offers access points, through high street partners, where victims can discreetly use consultation rooms to access specialist domestic abuse services.
Thanks to an award of £655,000 raised by players of People’s Postcode Lottery, more than 200,000 victims of domestic abuse will be helped. The funding has been awarded as part of the Postcode Recovery Fund, designed to help communities recover from problems exacerbated by the pandemic.
The Covid-19 pandemic has had a devastating impact on victims of domestic abuse, with the number of cases escalating and support networks cut off overnight. Since lockdown on November 5, 2020, Hestia has seen a 30 per cent increase in demand for support.
Currently, people living with domestic abuse can access over 5,300 Safe Spaces in pharmacies nationwide as well as accessing Online Safe Spaces on many websites. The new funding will allow Safe Spaces to extend to other high street businesses and online, to build a long-lasting infrastructure of support for victims of domestic abuse.
To support the expansion of the Safe Spaces project, 32,000 staff in participating organisations will be trained in domestic abuse responses so victims can access the help they need.
Laura Chow, head of charities at People’s Postcode Lottery said: “Hestia’s Safe Spaces initiative is a great example of a charity that is addressing the demand which has escalated during the pandemic.
“Thanks to players of People’s Postcode Lottery, the charity received the funds to create additional safe spaces for those needing help. Thanks to this funding, more support will be available in our communities and on our high streets, bringing benefits well beyond the pandemic, to those who need a safe space.”
Sue Harper, Head of Domestic Abuse Prevention at Hestia, said: “Right now there are victims of domestic abuse that don’t know where to go or are trapped at home with their abuser.
“Safe Spaces was born in the midst of lockdown as a bridge for victims to specialist support, but it has the potential to support thousands more victims to safety in the future. With the generous support of the players of People’s Postcode Lottery we can now expand this vital initiative, enabling communities to be play a critical role in tackling domestic abuse.”
A survivor of domestic abuse who used a Safe Space told Hestia: “Safe Spaces has saved my life. I had been experiencing coercive control for 5 years of a 10 year relationship. During lockdown, I was shielding and the abuse escalated to aggression and violence, making me fear for my life.
“When I saw that independent pharmacies were offering Safe Spaces, I scrolled through the list with my heart in my mouth and found that my local village pharmacy was listed. Over the weeks I used the Safe Space, I developed a plan to get the abuser out of my home. I am now beginning to feel safe in my home again, but without this support, things could have been very different and far, far worse.”
Lockdown restrictions that ease today [Monday 26 April] must not inadvertently create new barriers for blind and partially sighted people and those with other disabilities, says the national sight loss charity RNIB Scotland.
RNIB Scotland director James Adams said: “With lockdown restrictions easing further today, we’re all looking forward to getting outside to see loved ones and enjoy the warmer weather.
“But we are hearing from many blind and partially sighted people who have lost confidence in going outside after a year of covid restrictions and are anxious about public spaces becoming busier and more cluttered with café and bar tables and chairs.
“Social distancing often relies on being able to see things such as signs, queuing systems or barriers. When you can’t see these changes, they can create new obstacles to navigate and further erode confidence.
“So we’re asking the public to be aware of the challenges people with sight loss might face, and help them to safely social distance as the restrictions change. We’re also reminding local authorities and businesses that the measures in place to protect us must be inclusive to everyone, not just to those who can see them.
“This is the ‘new normal’ we should aim to return to in Scotland.”
* RNIB’s website (www.rnib.org.uk) and helpline (tel 0303 123 9999) has more information on this.
Everyone has experienced stress at some point in their life. Stress typically occurs when we are unable to meet the demands being placed on us, whether this be at work or in our personal lives.
Whilst short-term stress is a normal response to pressure or increased demand, a prolonged increase in stress levels can have negative effects on our health and wellbeing.
Whilst stress alone won’t increase your risk of developing heart disease, the choices we make when we’re stressed, which can include overeating, drinking alcohol and lack of exercise, can have a negative impact on our heart health.
Stress will also raise blood pressure levels which, if prolonged, may start to damage the heart and arteries. However, once feelings of stress pass, increased blood pressure levels will usually reduce and therefore the best way to address this increase is through prevention and management of stress levels.
Here are some tips for doing just that:
Exercise Regularly
Whilst exercise can be one of the first things to drop out of our routine in times of stress, research indicates that exercise can reduce levels of stress and anxiety.
Rest and Recover
Taking time out of the day to re-charge, whether it be going for a short walk or doing something you enjoy, can be important for preventing burnout, resulting from a chronic overload of demand.
Question Unhelpful Thinking
Sometimes our thought patterns can be unhelpful in increasing our stress levels, such as when we ruminate over a problem, or over-exaggerate a situation. Questioning our thinking can sometimes be useful for stopping stress in its tracks.
Support Others
Research indicates that both connecting with and helping others can be great for our mental wellbeing. In particular, activities such as volunteering can give a sense of purpose outside of our work.
Learn Something New
Learning a new skill can help to give a sense of purpose and can also be a great distraction tool when stress levels are particularly high.
Seek support
If you are feeling overwhelmed, anxious or stressed, there are a number of services available to support you, including the Samaritans, and psychological therapies such as Cognitive Behavioural Therapy which can be accessed through the NHS or privately.
For more healthy tips, visit us at Healthy Heart Tips.
Walk-through testing is now available for people with #coronavirus symptoms at Edinburgh Napier University, Craiglockhart Campus Car Park.
Open 7 days a week – with appointments available from 8am to 8pm
Tests must be booked via http://nhsinform.scot/test-and-protect or by telephone on 0800 028 2816.
The Royal College of Emergency Medicine has launched a new campaign Summer to Recover: Winter-Proofing Urgent and Emergency Care for 2021.
The campaign outlines a series of important actions, recommendations, and guidance that four-nation Governments, NHS bodies, NHS Trusts and Boards, and Emergency Department Leadership Teams can take to ‘winter-proof’ the Urgent and Emergency Care system.
The campaign comes following the intense pressures faced by hospitals and Emergency Departments across the UK as a result of the pandemic and the gruelling winter the health service has just experienced.
Dr Katherine Henderson, President of the Royal College of Emergency Medicine, said: “This year has been like no other for health care workers and Emergency Medicine staff. We have all had to adapt quickly to face the intense pressures of the pandemic and in many ways, we have changed the way we deliver care.
“Every winter our hospitals near capacity, our Emergency Departments become crowded, and staff are stretched thinly, sometimes having to administer care in corridors.
“This winter, with the severely high-risk of covid, patient safety was at the forefront of our minds. We could not have crowded Emergency Departments and we could not allow for corridor care. Prevention of hospital acquired infection, enforcing strict infection prevention control measures and social distancing were vital tools to keeping our patients and staff safe.
“Winter saw intense pressures in our Emergency Departments: the ambulances waiting to admit patients into hospital were pictured and widely reported; there were long-delays for some patients in Emergency Departments; staff severely struggled to move patients through the system; and there were huge issues with capacity. It was incredibly tough for staff and patients alike and for many, it will be unforgettable.
“Now, we are seeing a return of our community patients and demand for urgent and emergency care services is beginning to increase, as we return to ‘normal’ we cannot allow our old practices to make a comeback. Crowding and corridor care presented a huge challenge to staff and put patient safety at risk.
“We currently have an opportunity to transform the urgent and emergency care pathway. So, we are launching a new campaign, Summer to Recover: Winter-proofing Urgent and Emergency Care for 2021 outlines a series of recommendations the College is making to the four-nation Governments and NHS bodies, to NHS Trusts and Boards, and to ED Leadership Teams.
“We know there is a challenge ahead with tackling the backlog of elective care, but we must use the time we have and use the Summer to Recover and prepare our hospitals and staff for Winter 2021.
“NHS England 2021/22 priorities and operational planning guidance for the year ahead, together with the recommendations outlined in the consultation on the clinical review of standards are welcome and are aligned with the College’s own recommendations in our new campaign.
“The implementation of the metrics proposed in the consultation on the Clinical Review of Standards, particularly measuring 12-hours from arrival, are welcome and will help identify areas of improvement quicker, but without the ability to resolve these issues with adequate capacity, resources, staff or alternative care there will be little we can do in the Emergency Department.
“Expanding capacity, ensuring there is adequate alternative care that patients have access to, and working with local health systems, are all tools that will be crucial to ensuring our Emergency Departments are not crowded again.
“We have said it before; we must not let Emergency Departments become the safety-net of the system. What happens in the Emergency Department ripples throughout the hospital and the health and social care network. We must work together to prevent crowding, to maximise the safety of our patients and to reduce long and high-risk delays.
“Next Winter may seem like a long way off but to prevent another crippling winter, like the one we have just experienced, we must learn, and recognise the shortages and lack of preparation we faced and absolutely guarantee that this winter, we are ready, and we are prepared.”
