Edinburgh nurse Evelyn receives WellChild Award

Nurse Evelyn Rodger from Edinburgh collected her prestigious national 2022 WellChild Award, in association with GSK, at the Hurlingham Club in London on 8 September.

Evelyn was nominated by colleague and charity CEO, Rami Okasha,

The Awards are run by WellChild, the national charity for seriously ill children. The charity’s Patron, The Duke of Sussex was called away to Balmoral and so could not attend the WellChild Awards ceremony with his wife the Duchess as planned.

The news of Her Majesty’s passing broke just as the awards ceremony was about to take place. In a change to the planned proceedings, there was a short silence as a mark of respect followed by a rendition of The National Anthem from opera singers Natalie Rushdie and Camilla Kerslake. The winners then all came onto the stage as a group to receive their awards.

Evelyn, who is a Diana Children’s Nurse with Children’s Hospices Across Scotland was picked from hundreds of nominations from across the UK to win the Nurse category in these Awards which celebrate the resilience of children living with serious illnesses or complex conditions and honour the dedication of those individuals who go the extra mile to help these children and their families. 

Evelyn has been a Diana Children’s Nurse (DCN) with Children’s Hospices Across Scotland for the past eight years, having joined the charity in 2014.  In her role Evelyn is based in the neonatal Unit in Simpsons in Edinburgh Royal Infirmary but she also covers five neonatal units across Southeast of Scotland and Tayside. 

In addition to her nursing Evelyn supports and delivers training for NHS Lothian and CHAS staff, developing an environment of close working not only with the hospital and community teams, but with the CHAS hospice, at home and family support teams. Evelyn’s dedication and her collaborative approach creates a seamless service to families.

WellChild Awards 2022 in association with GSK, at The Hurlingham Club, London (8.9.22 – (right) Nurse if the Year Evelyn Rodger with husband James Picture by Antony Thompson – Thousand Word Media, NO SALES, NO SYNDICATION. Contact for more information mob: 07775556610 web: www.thousandwordmedia.com email: antony@thousandwordmedia.com The photographic copyright (© 2022) is exclusively retained by the works creator at all times and sales, syndication or offering the work for future publication to a third party without the photographer’s knowledge or agreement is in breach of the Copyright Designs and Patents Act 1988, (Part 1, Section 4, 2b). Please contact the photographer should you have any questions with regard to the use of the attached work and any rights involved.

Evelyn was instrumental in a pioneering memory making project called ‘Joes Toes’ which has raised over £15,000 since 2018 to allow CHAS and neonatal units to purchase the materials required to make 3D baby hand and foot-casts, respectfully done in baby Joe’s name. 

Joe was one of twins who was sadly stillborn as a result of twin to twin transfusion syndrome. Part of Evelyn’s role as Diana Nurse is to provide bereavement support and to help parents find ways to create precious lasting memories with their babies, a role which she feels very passionate about. 

Joe’s mother Marie said: “Evelyn is a compassionate, kind, gentle woman who is incredibly knowledgeable in bereavement care and we feel privileged that she was there to support us in making cherished memories with Joe and with saying goodbye with no regrets.

“As part of the memory making process, we asked if she would be able to help us take 3D casts of Joe’s feet. Evelyn was more than willing to help us in any way she could. Joe’s cast is now one of our most cherished possessions and to be able to physically touch, hold, see, something that was exactly his is so very precious.

“Our little Joe has given us, and now other families, so much without even being here. He never drew breath but he has changed us forever.”

CHAS CEO Rami Okasha, who nominated Evelyn for the WellChild Award, said: “Evelyn is retiring from CHAS in September this year so to receive a WellChild Award in her retiral year is an incredible honour. 

“Evelyn has supported hundreds of families, making sure they have time to spend together and are able to make the choices about end-of-life care for their child and understand the really difficult things that are going on around them. 

“More than that Evelyn is an inspiration to her colleagues who work so well with the team across CHAS and across the NHS to support newborn children and parents when the time they have together is going to be incredibly short. 

“Evelyn goes above and beyond to build deep connections with families and says in touch with them even long after her care ends. I have heard myself from parents the difference that Evelyn has made to them.

“It is humbling to hear and I want Evelyn to know there are people across Scotland whose lives she has changed forever and they are incredibly grateful to the skill and dedication and kindness she has shown every single day at her work.”

WellChild Chief Executive, Matt James said: “We were so pleased to be able to celebrate our remarkable winners at The WellChild Awards 2022, in association with GSK, despite the unique circumstances this year.

“It was a chance to recognise and highlight the immense challenges they have faced and to celebrate the remarkable positivity, resilience, and spirit they have demonstrated. It also helped us to shine a light on the dedication of those around them, from siblings, professionals and volunteers who have gone above and beyond to help them through such challenging times.”

Patients in mental health crisis twice as likely to spend 12-hours or more in Emergency Departments than other patients

A new report from The Royal College of Emergency Medicine finds that patients presenting with mental health problems are twice as likely to spend 12-hours or more in Emergency Departments than other patients.

National data show that nearly one in eight (12%) mental health patients presenting to an Emergency Department in crisis face a 12-hour stay from time of arrival, compared with nearly one in 16 (6%) of all attendances.

A recent SNAP survey of Emergency Departments found that more than one third of clinical leads reported patient stays of 72 hours or more in the last week, for patients with mental health needs.

‘Mental Health Emergency Care’ is the latest report in our series of explainers looking at the web of issues facing Emergency Departments. The report highlights that while patients with mental health presentations account for a very small proportion of Emergency Department attendances, they spend a disproportionate amount of time waiting for a mental health bed if they need admission.

Often, it is the patients who are most unwell and vulnerable that wait the longest. Those of greatest concern are patients waiting for a mental health bed, patients waiting for an assessment under the Mental Health Act, and Children and Young People presenting in crisis.

The prevalence and complexity of the mental health needs of children and young people increased during the pandemic, while capacity is struggling to meet surging demand.

Half of Emergency Departments in England reported waits of 12 to 24 hours for a child or young person to see a specialist mental health professional, despite the accepted standard for adults being a one hour wait to be seen.

If admission is needed, 46% of Emergency Departments reported that children and young people will wait more than 48 hours for a bed, with two respondents reporting a wait of five days in the Emergency Department.

The report looks in detail at factors contributing to these long waits, such as the reduction in mental health beds, inadequate numbers of children and adolescent mental health professionals, and poor organisation of professionals to assess patients under the Mental Health Act. It also examines the consequences for patients and departments and makes wide reaching recommendations.

Commenting on the findings of the report, Dr Katherine Henderson, President of the Royal College of Emergency Medicine, said: “The system is failing patients who present to Emergency Departments in mental health crisis.

“Those waiting the longest are children and young people, patients waiting for admission to a bed, and patients waiting for assessment under the Mental Health Act. It is unacceptable.

“We know long waits in a busy and crowded environment are harmful for any patient, but for these patients it can cause deep distress and upset and worsen their mental state. We must do more to ensure that these patients are seen, treated, and directed to the right care quicker.

“These patients presenting to Emergency Departments are extremely vulnerable, they are in crisis and seeking Emergency Care, yet are left waiting for hours and even days, before being treated and admitted.”

The explainer also shows that the UK has only 37 psychiatric beds per 100,000 population – far lower than the OECD average of 71 psychiatric beds per 100,000 population – and that since 1987, over 48,000 NHS mental health beds have been cut in England, with 5,000 mental health beds having been cut since 2011 alone.

Dr Henderson said: “Data show that bed occupancy at mental health trusts averaged nearly 90% between 2017-20, 5 percentage points higher than the recommended 85%. The NHS mental health bed numbers are clear; capacity does not meet demand.

“While the move towards a provision of community mental health care has been positive, the cuts to emergency mental health care beds have been devastating. Now, the most vulnerable and desperate patients are truly suffering.

“We urgently need to see an increase in mental health bed capacity, so we are able to admit these patients to a bed and provide the care they urgently need. We regularly hear heart-breaking stories of young people being admitted a long way from their home and family.

“We urge the new Prime Minister and new Health Secretary to prioritise Mental Health care provision in Emergency Departments, especially ahead of winter.

“We are failing these patients and they are suffering; our report and supporting survey show the extent of this crisis. We need urgent action now. To ensure we are able to quickly and effectively help vulnerable patients in crisis the government must increase mental health bed capacity in Trusts.

“Capacity for Children and Adolescent Mental Health Services (CAMHS) is especially important, and CAMHs should be expanded to 24/7 so that children and young people can be assessed and triaged whenever they present at Emergency Departments, rather than face long waits for these services to open.”

Living without a Lifeline – a shocking snapshot of the crisis facing single parent families in Scotland

OPFS releases new research report based on survey of 260 single parents

Feedback from 260 single parents highlights their experiences and priorities, which includes cost of living, family finances, social security, childcare, employment, access to education, mental health and wellbeing, and the ongoing impact of Covid-19.

Findings showed:

  • 78% of single parents are in work and the same percentage of single parents receive a social security benefit.
  • Almost all (97.9%) of participants said they felt the impact of rising costs.
  • Three in five (61.1%) of participants said they are finding it either extremely difficult to afford or could no longer afford electricity, while 58.1% said the same about gas, and 43.7% said the same about food.
  • More than one in five participants said they can no longer afford to buy clothes (21.2%), pay for travel (22.3%) or childcare (21.2%) at all.
  • Most participants in the research were women, which is in keeping with the national statistic that 92% of single parent households are headed by women.

The findings of the research and the proposals for policy change suggested by single parents themselves have been used to produce a series of recommendations.

OPFS is calling on the Scottish Government to:

  • Increase support to families with young parents who are the poorest in Scotland through a top-up to the Scottish Child Payment.
  • Double the planned “bridging payments” for families with children in receipt of free school meals from £130 to £260.
  • Uprate Scotland’s 8 social security payments by the rate of inflation – 10% in August 22 and predicted by the Bank of England to hit 13.3% in October.
  • Widen eligibility for school clothing grants and free school meals to all families on Universal Credit by legislating to remove all income thresholds.
  • Increase the value and widen eligibility to the new Scottish Carer’s Assistance payment so it reaches many more Carers.
  • Raise increased finances through devolved taxes. Since 2017, the Scottish Parliament has had the ability to set income tax rates and bands, apart from the personal allowance. We also support IPPR’s call for radical reform of council tax to make it fairer and to raise extra finance for public services.

OPFS says the UK Government should:

  • Introduce progressive tax measures to reduce inequality.
  • Tackle the immediate cost-of-living crisis for low-income families with emergency interventions.
  • Introduce single parents’ rights and protection from discrimination into law.
  • Invest in a social security system that prevents child poverty, treating single parent families with dignity and respect.
  • Make childcare work for single parents by enhancing support for childcare costs through Universal Credit.
  • Support single parents into well paid, family friendly employment.
  • Make the Child Maintenance Service (CMS) fairer and fit for purpose.

Satwat Rehman, OPFS CEO said: “Living without a lifeline is exactly what so many single parents who took part in our research and who reach out to our services every day say they are doing, which is why we chose this as the title for our report.

“Women who are single parents have been particularly hard hit by the economic storm that has engulfed us and, with women’s poverty being inextricably linked to child poverty, we are living amid a rising tide of family hardship.

“Single parents described the day-to-day struggle to afford food and fuel, and the need to make sacrifices to ensure that children’s basic needs were met. In some cases, mothers go without food and struggle to pay essential bills. Isolation, anxiety, depression, and suicidal thoughts were described.

“The parents responding have also forcefully described the policy areas which must be prioritised by government to tackle poverty and support family wellbeing and the priority areas where we at OPFS need to focus our energies. Over the coming year, these priorities will be our priorities.”

One key theme raised by participants was the difficulty in meeting the demands to pay for uniforms, school trips, and the many other requirements for daily school life. While costs are rising across the board, support for families in these areas is not increasing, leading to an even greater drain on household budgets.

A single mum who took part in the research said: “There is always something extra to pay for – sponsored events, book fairs, craft fairs, Christmas fairs, Halloween costume, Red Nose Day, Christmas jumper, wear a certain colour for sports day, world book day costume, etc …

“Parental events are held either during working hours or in the evening so I feel excluded as I can’t afford a babysitter- shame online events aren’t continuing.”

The research also found that single parents were struggling to afford to pay for essentials regardless of whether they were in paid work and that support through social security did not go far enough.

One single parent commented: “I just feel that I’m totally on my own financially. We can’t claim free school meals or any grants because I’m not on benefits (except Child Benefit).

“Outgoings are increasing, I am as frugal as I can be, my pay was frozen for 3 years and now I have a 2% cost of living increase, better than nothing! Children’s father has not contributed a penny for years now.

“Feel forgotten about. I cut my own hair, I skip meals, I scrimp on heating etc so I can pay the mortgage etc. There is no support for us from anyone.”

Some single parents contributing to the research shared their experiences of living with unmanageable levels of debt, often as a result of losing their job, illness or economic abuse following a relationship breakdown and not having savings to act as a buffer.

One single mum said:“Father used to pay maintenance when he felt like it, but now has a limited company to avoid declaring his actual income.

“I can’t afford anything and feel like I’m stuck in debt forever. Utilities went from £90 to £160 and is only going to rise.”

Breakthrough in how diabetes causes vision loss

Researchers at Queen’s University Belfast have uncovered a key process that contributes to vision loss and blindness in people with diabetes. The findings could lead to new treatments that can be used before any irreversible vision loss has occurred. 

Diabetic retinopathy is a common complication of diabetes and occurs when high blood sugar levels damage the cells at the back of the eye, known as the retina. There are no current treatments that prevent the advancement of diabetic retinopathy from its early to late stages, beyond the careful management of diabetes itself. As a result, a significant proportion of people with diabetes still progress to the vision-threatening complications of the disease. 

As the number of people with diabetes continues to increase globally, there is an urgent need for new treatment strategies, particularly those that target the early stages of the disease to prevent vision loss. 

The retina demands a high oxygen and nutrient supply to function properly. This is met by an elaborate network of blood vessels that maintain a constant flow of blood even during daily fluctuations in blood and eye pressure. The ability of the blood vessels to maintain blood flow at a steady level is called blood flow autoregulation. The disruption of this process is one of the earliest effects of diabetes in the retina. 

The breakthrough made by researchers at Queen’s University Belfast pinpoints the cause of these early changes to the retina.

The study, published in the US journal JCI Insight, has discovered that the loss of blood flow autoregulation during diabetes is caused by the disruption of a protein called TRPV2. Furthermore, they show that disruption of blood flow autoregulation even in the absence of diabetes causes damage closely resembling that seen in diabetic retinopathy. 

The research team are hopeful that these findings will be used to inform the development of new treatments that preserve vision in people with diabetes. 

Professor Tim Curtis, Deputy Director at the Wellcome-Wolfson Institute for Experimental Medicine at Queen’s and corresponding author, explains: “We are excited about the new insights that this study provides, which explain how the retina is damaged during the early stages of diabetes. 

“By identifying TRPV2 as a key protein involved in diabetes-related vision loss, we have a new target and opportunity to develop treatments that halt the advancement of diabetic retinopathy.” 

The study was funded by the Biotechnology and Biological Sciences Research Council and the Department for the Economy Postgraduate Studentship scheme. 

Planning vital to stem rising child poverty, says Audit Scotland

Longer-term joint planning is needed to address child poverty in Scotland, which has increased since targets were set in 2017, according to a new Audit Scotland report.

The Scottish Government’s policies and spending remain more focused on helping children out of poverty rather than long-term measures to prevent it. Over a quarter of children in Scotland – 260,000 – were living in poverty before the Covid-19 pandemic. And the current cost-of-living crisis risks making the situation worse.

Covid-19’s impact on data collection means child poverty statistics are only available up to 2019/20, the half-way point in the Scottish Government’s first child poverty plan. But even with the data it would not be possible to assess the plan’s success. This is because the Scottish Government did not set out what impact the 2018-22 plan was expected to have on levels of child poverty.

The government’s second child poverty delivery plan takes a more joined-up approach to tackling child poverty, spanning central and local government and their partners. But detailed joint planning is now needed to ensure policy actions are delivered and progress measured. Policy development also needs to meaningfully involve the views of children and families with experience of poverty.

Stephen Boyle, Auditor General for Scotland, said: “Poverty affects every aspect of a child’s wellbeing and life chances and has wider implications for society.

“The Scottish Government needs to work with its partners to quickly set out the detail of how the second child poverty plan will be delivered, monitored and evaluated.

“Government policy takes time to have an impact on child poverty and so it is essential ministers also act now to set out options for reaching their long-term targets in 2030.”

William Moyes, Chair of the Accounts Commission, said: “Councils have a key role to play in tackling child poverty through measures such as housing, education, childcare and employability. But there is limited information available across councils about what they are doing and its impact.

“Better collection and sharing of information about councils’ child poverty work will help support learning and improvement across Scotland.”

OPAT scheme is helping more people to be treated closer to home

Innovative OPAT scheme saves 45,000 hospital admission bed days

A new service which has already saved 45,000 hospital bed days this year is being further rolled out over the coming months.

The Out-patient Antimicrobial Therapy (OPAT) service allows people to be treated at home or in out-patient settings – reducing the need for hospital admission or long stays.

Patients are able to receive intravenous antimicrobial therapy or other complex antibiotic treatment in an out-patient clinic at a time convenient to them, and in some areas even at home rather than as an inpatient.

The service, part of the right care in the right place initiative, is just one of many innovative programmes which health boards are using to help reduce pressures on the rest of the system.

Figures published by the Scottish Antimicrobial Prescribing Group show that between 17 January 2022 and 21 August 2022 on average 250 people per week have been treated by the OPAT service and more than 45,000 hospital admission bed days have been avoided in that period.

OPAT services are supported by £50 million of Scottish Government funding through the Urgent and Unscheduled Care Collaborative.  

Beleaguered Health Secretary Humzah Yousaf welcomed a piece of good news. He said: “I am pleased to see the roll-out of the Out-patient Antimicrobial Therapy service.

“We know that our accident and emergency departments continue to be under significant pressure, and that is why we are working at pace to deliver this scheme, and others like it, to provide more care in the community while reducing pressure on hospitals.

“We know there is a real benefit to treating people at home where possible. We are determined to build on this success and want to see this approach adopted across as many health boards as possible.”

Dr Andrew Seaton, Chair of the Scottish Antimicrobial Prescribing Group and Consultant in Infectious Diseases, said: ““Hospitals are under significant pressure as we try to recover from the effects of the COVID pandemic and there is a real need for initiatives to support recovery and promote different ways of caring for our patients traditionally managed in hospitals.

“OPAT is an excellent example of how nurses, pharmacists and doctors can work together to provide high quality patient centred care without the need for a hospital bed. The focus now on further developing virtual capacity and new ways of working with support across Scotland for initiatives like ours is very welcome”.

Nine health boards currently use OPAT services and the programme will be rolled out further over the coming months.

Yesterday’s announcement was somewhat overshadowed by news that the latest hospital waiting times in Scotland are the WORST EVER.

Scottish Conservative health spokesman Dr Sandesh Gulhane MSP said the figures showed the “crisis in A&E is not merely continuing, but deepening”.

Student health advice from NHS 24

During September students all over Scotland are preparing to start or resume their studies at college or university. As many students will be travelling away from home for the first time, NHS 24 wish to highlight the importance of knowing where to get the right health advice in their new area.

NHS 24’s student health campaign provides details on where to access services such as GPs, dentists, pharmacies, out of hours and urgent care in Scotland. Information on subjects such as immunisations, mental health support and Scotland’s Service Directory are also included.

Representatives from NHS 24 are also visiting numerous colleges and universities throughout Scotland through a programme of ‘health roadshows.’

Michelle Sinclair, Engagement Manager for NHS 24 explains: ‘It’s been a tough couple of years for everyone during the COVID-19 pandemic, and students have made adjustments by switching to online learning at various times during the past two academic years.

‘Attending various freshers and welcome events in person has been really brilliant to promote NHS 24’s 111 service and the health information available on NHS inform.  It really makes the difference to be able to provide advice face to face about student’s health requirements, and we get asked a huge variety of questions on a lot of different subjects.’

Dr Laura Ryan, a GP and NHS 24’s Medical Director adds: “It’s an exciting time for students and their families while they prepare to say goodbye to their loved ones to start their studies.

“Health information can quickly slide to the bottom of the ‘to do’ list when you are making plans to move to a different part of the country, but it’s really important you know when and where to access the service you need if you have a health concern.

“If you’ve moved away from your local area to go to college or university, you must register with a new local GP practice. This also includes students who have moved from elsewhere in Scotland, elsewhere in the UK, and abroad. You should also register with a local dentist.

“NHS inform has lots of information on how to access services in your area. By being prepared and following the advice in our student health campaign, this will avoid delays in accessing the care you need, should you require it.”

Eat Well for Oral Health: FREE course begins at PCHP on Tuesday morning

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