New polling also reports significant impacts on family life and siblings
Findings also report impact on working life of parents
New polling for Edinburgh Children’s Hospital Charity (ECHC) by The Diffley Partnership has exposed a dramatic concern among parents for their children’s mental wellbeing.
The polling has shown that:
50% of parents think their child has experienced mental ill health, with over one quarter considering it moderate or serious
Nearly 60% of those parents reporting a mental health issue consider it to have a fair or great impact on their family life, with over 60% considering it to have such an effect on their childrens’ friendships and social activities
Almost half believe their child’s mental health issues have a great or fair impact on the other children in the household
More than one-quarter of parents with children whom they believe have a mental health issue have had to take time off work as a result
ECHC exists to transform the lives of babies, children and young people in hospital and healthcare so they can be a child first and a patient second. All its work streams are centred around this objective, putting children and young people at the heart of everything it does, and its activity includes support for child and adolescent mental health services.
It is currently considering enhancing its services for children and wellbeing with a mental health concern to reflect the increased need illustrated by this polling.
Commenting on the polling, ECHC’s Chief Executive Roslyn Neely said:“The data from this poll is deeply concerning. The truth is that we simply don’t know enough about the impact that life in the 2020s – with a period of social exclusion layered on top of unprecedented social media exposure – is having on young people’s mental health.
“However, what we do know is that we are seeing more problems than ever before, and we believe we can play a part in solving them.
“We are working on a ground-breaking programme which will not only help the young people experiencing mental ill health, but their families too.
“There is no more time to wait. We cannot simply cross our fingers and hope that our young people work out any problems without help. There is too much at stake.”
The polling follows a wellbeing and resilience report compiled by ECHC following in-depth consultations with the parents of children and young people who had experience with CAMHS or mental health issues.
Roslyn Neely added:“These in-depth consultations provided us with a wealth of information which, critically, show us that parents explore a range of different sources of help for their children, including CAMHS, GPs and schools.
“ECHC is now discussing the possibility of creating another route down which parents and young people can go.”
Children at the Royal Hospital for Children and Young People (RHCYP) were given a wonderful surprise when Santa and his elves abseiled in to spread a ho-ho-whole lot of Christmas cheer.
Jolly old Saint Nick, two of his most trusted elves, and their super friend Spiderman descended the side of the hospital, much to the delight of unsuspecting children, families and staff watching through the ward windows and from the ground below.
The fearless festive friends scaled two different parts of the building to ensure as many children and young people as possible had a chance to view the spectacle.
Organised by Edinburgh Children’s Hospital Charity (ECHC) in partnership with Edinburgh Rope Access, the daring deed is raising money to deliver magic and happiness to seriously ill children in hospital this Christmas.
Nicky Erskine, managing director at Edinburgh Rope Access, dedicated the gutsy stunt to all those at the hospital who fight their own brave battles on a daily basis.
Nicky said: “Who needs a chimney when Santa can abseil off the roof instead? Scaling the side of a hospital isn’t for the faint-hearted but it is nothing compared to the challenges that children staying here face with such courage every day.
“We wanted to do our bit to spread some Christmas cheer, bring lots of smiles to those on the wards and raise funds for an incredibly worthy cause while we were at it.”
Pippa Johnston, Director at ECHC, said: “We are enormously grateful to Santa and his elves for coming all the way from the North Pole to visit children and families at the hospital. It was marvellous to see so many faces light up when Santa dropped by their window and gave them a wave!
“Every year, together with our friends at NHS Lothian, ECHC works hard to make time spent in hospital a little bit brighter. At Christmas, this becomes even more vital, but we rely solely on donations and kindness to do this.
“Though we can’t stop their pain, we can deliver some happiness. For those facing a hospital stay at this time of year, special events like this really do go a long way in delivering magic and lifting everyone’s spirits.”
To find out more about ECHC’s Redirected Letters to Santa Christmas appeal and to donate, visit www.echcharity.org/donate
Scottish law firm Gillespie Macandrew has made a significant charitable donation of £40,000 to be shared between its two charity partners, Edinburgh Children’s Hospital Charity (ECHC) and Alzheimer Scotland.
As part of its ESG programme, in each of the last 7 years Gillespie Macandrew has donated around 1% of the firm’s annual pre-tax profits to its partner charities. In total this commitment has contributed over £210,000 to Scottish charitable causes.
The firm’s charity partners are nominated and chosen by staff and supported through volunteering and other activities. Last year Gillespie Macandrew began a three-year partnership with both ECHC and Alzheimer Scotland.
Robert Graham-Campbell, Chief Executive Officer at Gillespie Macandrew commented: “We are delighted to share the firm’s success with these two very important Scottish charities, particularly during a period of recessionary pressures for organisations and individuals.
Our practitioners deal with sensitive family matters every day and it is therefore very fitting that we support ECHC and Alzheimer Scotland who provide invaluable support to Scottish families.”
Victoria Buchanan, Deputy Director of Development at Edinburgh Children’s Hospital Charity, commented: “Edinburgh Children’s Hospital Charity is thrilled to receive this wonderful donation of £20,000! Being in hospital is tough for children but this donation will make things easier for them and their families.
“Through ECHC’s daily art activities, youth work and family programme on the wards, children can have fun and feel better supported to face whatever challenges lie ahead.
“We’d like to thank everyone at Gillespie Macandrew for their generous donation.”
Caroline Miller, Lead for Stakeholder Engagement at Alzheimer Scotland, commented: “We are so grateful to all of the people at Gillespie Macandrew for their continued support over the past year.
“People living with dementia and those who love them continue to be disproportionately affected by the legacy of the pandemic and the effects of the cost-of-living crisis so it’s vital that we continue to be there to make sure no one faces dementia alone.
“Gillespie Macandrew have made an incredible contribution during our partnership, raising over £40,000 which has all been used to support people living with dementia here in Scotland. Services supported include our network of Dementia Advisors who provide personal support, advice and advocacy and our Freephone 24 Hour helpline which is a lifeline for so many”.
Gillespie Macandrew has a long and proud history of supporting not for profit organisations and staff are given a paid day off each year to participate in charitable or corporate and social responsibility events.
The firm has offices in Edinburgh, Glasgow and Perth, advising clients on all areas of land and rural business, private client, commercial real estate, energy, tax and disputes, combining a personal approach with industry-leading expertise.
The Scottish Friendly Children’s Book Tour brought a carnival-themed festival to Edinburgh Children’s Hospital on Sunday 31 July.
Bestselling author Lari Don told stories of Neringa and the Sea Dragon and Nana Miriam and the Hippo from her magical collection Fierce, Fearless and Free: Girls in Myths and Legends from Around the World, illustrated by Eilidh Muldoon.
There were also opportunities for the children to get involved with story-making exercises.
The Scottish Friendly Children’s Book Tour is supported by Scottish Friendly and organised by Scottish Book Trust, the national charity transforming lives through reading and writing.
During the pandemic, the tour has been delivered virtually throughout classrooms in Scotland, with educational watch on demand video content viewed over 100,000 times.
Marc Lambert, CEO of Scottish Book Trust said:“Bringing stories to young people in hospital is so important: it can inspire imaginations and improve wellbeing.
“Scottish Book Trust is delighted that the Scottish Friendly Children’s Book Tour returned to Edinburgh Children’s Hospital for a fun-packed festival. Lari Don is a wonderful storyteller and we know the young people and their families will have enjoyed her fantastic tales.”
Fiona O’Sullivan, Director of Children’s Wellbeing at Edinburgh Children’s Hospital Charity, said: “Storytelling is so powerful; being transported to another time, place or galaxy can be so brilliantly beneficial for children when they are unwell.
“It was wonderful to welcome Scottish Book Trust back to the hospital in person. Their stories brought fun and distraction to children and young people and filled the wards and waiting areas with lots of smiles and laughter!”
Lari Don is a children’s writer, brought up in the North East of Scotland, now living in Edinburgh.
She has written adventure novels, picture books and collections of myths and legends; most of her books are inspired by her love of traditional tales and Scotland’s landscape.
Lari is currently having to learn how to create and share stories around the limitations of long covid.
An Edinburgh young person living with juvenile arthritis and complex autoimmune issues is raising awareness of the loneliness of living with a chronic condition for a new charity campaign.
Jessica Rhodes, now 12, was just three years old when mum Tanya noticed she was tiring easily when walking to nursery. Despite numerous GP visits and lots of tests, no one could find anything medically wrong.
Over the next few years, Jessica developed increasingly unusual symptoms and was referred to the Rheumatology Department at the Sick Kids where doctors battled to get things under control.
She was diagnosed with uveitis – inflammation in the eye and one of the world’s most common causes of blindness. Because of this and her joint pain, doctors began to talk about juvenile arthritis.
Over the five years since being diagnosed, Jessica has experienced numerous appointments and in-patient stays, medications, invasive procedures and joint injections, and very few days free from pain.
By 2019, Jessica was experiencing intense muscle spasms and could not walk without collapsing. She was given a wheelchair to attend school – but could only manage short periods due to pain and extreme tiredness. Tanya had to give up her job and find home-based work to care for her.
Jessica said: “I saw so many doctors. I didn’t know why I was getting ill all the time, and why I had to have so many different tests. It was quite scary. I have tried lots of different medications, some helped, some didn’t. Some gave me mouth ulcers and made it hard to eat.
“Eventually they discovered that I have arthritis, uveitis and Raynaud’s disease. At the time, I had no idea what any of that meant and I felt very confused. I have arthritis in my knees, ankles, shoulders and hands. But the inflammation isn’t only in my joints; my eyes and skin are affected as well.
“I need pain relief most days. I’ve lost count of the number of injections I’ve had. I have monthly infusions and regular steroid injections and I have a methotrexate injection every week. It makes me feel sick and rubbish the next day, but I know it helps make me less sore all the time.”
Jessica is now the face of Edinburgh Children’s Hospital Charity’s (ECHC) new ‘Never Alone’ fundraising appeal which aims to raise awareness of the impact that living with a chronic condition can have on children and raise funds to support them throughout their hospital journey.
Jessica added: “It can be lonely having a long-term illness. I have had to miss quite a lot of school for appointments and treatments at the hospital. When I was in Primary 5, I had a lot of complications from my condition. I was in a wheelchair and couldn’t go to school for a long time. I missed school. I missed being with my friends and teachers.
“I try to join in all activities with my friends. Sometimes I can’t because I’m in too much pain and that’s really frustrating. Sometimes my family has to cancel our plans because I’m too ill to go out.
“I love music and I really enjoy singing in my choir. But I had to stop playing the cello because holding it hurt too much and I’ve missed a lot of choir practice too. I love playing basketball but sometimes it means I’m in pain for days afterwards.
“When I come to the hospital, the ECHC team are on hand to make sure I’m never alone. At the worst points, they have really supported me and helped me feel less negative about coming to hospital.
“They listen to me, understand how tough things can be and make sure I have fun. The ECHC Hub at the hospital is a great place to go and relax after an appointment or treatment. I’ve also made friends and even been on outings with the team. It’s not so lonely with them beside me.
“Sometimes I worry about what it will be like when I’m older, and if it will get worse. I worry what that might mean for my future. But arthritis and my other conditions aren’t the most important part of who I am, and I will work hard and persevere to do the things I want to do.”
As part of the new campaign, ECHC carried out a survey of parents and carers whose children have long term health conditions. 77%* said that their child’s health condition makes them feel lonely.
The survey showed that missing out on social life and activities was the main cause of loneliness for children with health conditions (29.2%), with missing out on school and education also stated as a key reason (24.6%).
Pippa Johnston, Director at ECHC, said: “Jessica will always have to deal with her arthritis. And sadly, she’s not the only child who suffers from a long term, chronic condition.
“The hospital sees 110,000 children and young people every year, many of whom must attend on an ongoing basis – over weeks, months and years. It can be a lonely experience and this loneliness can have long term effects on a child. We have an opportunity to change that.
“We’re asking the public to help children like Jessica through their hospital journeys. Donations can fund marvellous magicians, dancers and musicians to visit children at their bedside and in isolation; arts and craft workshops and the running of our youth group so children can make friends; and film screenings, garden play sessions or baby sensory classes to bring families separated through hospital admissions together again.
“We rely solely on donations to be able to do this. Please consider making a donation so Jessica and other children like her never have to feel alone. Thank you.”
To make a donation to ECHC’s Never Alone appeal, please visit:
A little boy who was diagnosed with a brain tumour at only 12 days old was first to switch on the Christmas lights at Edinburgh’s new children’s hospital.
Joey Sharp, now 11 months old, endured two life-saving surgeries just days after he was born at Christmas time last year, and has been undergoing chemotherapy treatment at the hospital ever since.
Alongside his proud parents and with the help of big sister Carly (3), Joey pressed the button to light up the 20ft tree and surrounding area, following an introduction and countdown from Forth One presenter Boogie in the Morning.
Mum Sam said: “Our little Joey was only 12 days old when he had emergency surgery in December last year. Hours before, we were given the devastating news that he had a brain tumour.
“We were told to prepare for the worst. Our world had shattered. I had been making Christmas lists, buying presents and organising family fun. Suddenly, it all seemed hopeless.
“After eight agonising hours, 50% of the tumour was removed. But Joey was still seriously ill and needed a second operation. The days passed in a blur as we sat by his side in Intensive Care.
“Two days before Christmas, he had his second brain surgery. This time, they removed 98% of the tumour, but we still had a way to go. With six long months of intensive chemotherapy ahead, we were determined to make the most of every moment.”
Sam and husband Steven will always be grateful for all the care and support both they, Joey and Carly received while in hospital over the festive period.
The family are backing Edinburgh Children’s Hospital Charity’s (ECHC) new Christmas appeal, which asks supporters to help “Light Up Christmas” for those seriously ill children and young people facing a hospital stay this December.
Sam continued: “Throughout our time in hospital, ECHC was there for us at every turn, supporting us on the ward when none of our family or friends could visit.
“The charity’s activities gave us a break from our daily reality. Seeing Joey respond to bubbles in baby sensory sessions, and hearing singing and live music was wonderful. It gave us hope. The change that came over the ward when the charity arrived was amazing, everyone’s faces lit up.
“On Christmas Day, Covid rules were relaxed and we were allowed to be together. ECHC made sure our time was magical. They showered the kids with gifts and involved Carly in all the fun. The best gift of all was seeing her and her baby brother together for the first time since he was admitted.
“In March, we were transferred to the new Royal Hospital for Children and Young People. We felt anxious leaving the old Sick Kids but the moment we arrived we were reassured with the most wonderful welcome.
“The new hospital is made for children and families. It’s a bright, fun, friendly space that supporters of the charity should be proud to have made possible.
“Joey is now 11 months old, cancer free and growing stronger every day. Without doubt, the support from ECHC made a huge difference to his recovery and our first memories as a family so it was wonderful to have him be the first to switch on the Christmas lights for the charity at the new hospital!”
Children, families and staff gathered at the hospital entrance and watching on from windows were treated to a musical performance by Edinburgh Brass Band before watching Joey and his family light up the giant Christmas tree – very kindly gifted to ECHC by Conifox Adventure Park.
The Christmas Light Switch On is just one of many activities that the charity has planned to make Christmas as magical as possible for those who are sadly too unwell to spend it at home.
Victoria Buchanan, from ECHC, said: “We would like to say an enormous thank you to Conifox Adventure Park, Edinburgh Brass Band, Boogie in the Morning and Joey and his family for helping to make our first ever Christmas Light Switch On at the new hospital so special.
“Every year, ECHC makes Christmas magical for children in hospital by creating a living advent calendar around the wards with a new surprise behind each door, with everything from a real ballerina to festive magic sessions and a samba band! We also fund the hospital play team and Christmas gifts to make sure treats and distractions are always available to bring smiles and comfort.
“This is our first year in our new home at Little France, so we are determined to make it the biggest and best Christmas yet. Although we have lit up the building, we still need help to Light Up Christmas and make sure no child or young person in hospital misses out on the joy of the festive season.
“We rely solely on donations to do this. Please help by making a donation to ECHC this Christmas. You could Light Up Christmas for a child in hospital this December.”
To donate now to ECHC’s Light Up Christmas appeal, visit:
Congratulations to Edinburgh Children’s Hospital Charity (ECHC), who received not one but TWO top awards at last night’s SCVO Scottish Charity Awards event!
The charity explained on Facebook: ‘Something pretty AMAZING happened tonight … ECHC won the PEOPLE’S CHOICE AWARD at SCVO Scottish Charity Awards 2021!
‘And then, just as we were gathering our thoughts and getting our emotions in check … we were announced as WINNERS of CHARITY OF THE YEAR too!
‘This is truly incredible. THANK YOU to everyone who voted for us and to our wonderful supporters, partners, volunteers and staff for your dedication in helping children and families in hospital.
‘This past year has been one of the toughest and we could not have done it without you all. So, this one’s for you…THANK YOU! ‘
ECHC’s Victoria Buchanan said: “We are absolutely thrilled to be named Charity of the Year and People’s Choice winner at the Scottish Charity Awards 2021! Through the tightest Covid restrictions and a hospital move; ECHC was privileged to stand alongside those ill, injured and shielding at home.
” From emergency care packs, silent discos, giant inflatable octopuses and record-breaking fundraising appeals, we pulled out all the stops to continue to bring fun, comfort and friendship to wards and waiting rooms and ease worries during one of the toughest years families have faced.
“None of this would have been possible without the incredible dedication of our supporters, partners, staff and volunteers. This award is recognition of their phenomenal efforts to ensure children in hospital could be children first, patients second, even in a global pandemic.”
https://youtu.be/C8chri-SO_o
You can watch the whole SCVO Scottish Charity Awards 2021 event on YouTube (above).
The winners of the annual awards ceremony dedicated to recognising Scotland’s voluntary sector were announced last night (1 October) in a glittering online event hosted by Sally Magnusson live from the EICC.
Run annually by the Scottish Council for Voluntary Organisations (SCVO), the Scottish Charity Awards celebrates the best of the voluntary sector and this year’s shortlist included 47 individuals and organisations from charities, social enterprises and voluntary groups across the country.
The winner of each of the nine categories was decided by a judging panel, with the tenth People’s Choice category winner decided by the public, with over 12,000 votes cast. As a result this year one finalist received both the Charity of the Year and People’s Choice Awards!
The winners for 2021 are:
Campaign of the year – Stop It Now! Scotland – Get Help or Get Caught
Child Sexual Abuse impacts one in six children in Scotland and targeting offenders is one of the most important ways of tackling abuse before it happens. As a result of the ‘Get Help or Get Caught’ campaign over 79,000 people visited the team’s website and 185 people accessed specialist self-help resources designed for people who are worried about their own online behaviour towards children and young people.
Stuart Allardyce, Director Stop It Now! Scotland said: “We’re thrilled to have won Campaign of the Year for our #GetHelporGetCaught campaign – thank you so much. As a child protection charity, our aim at Stop It Now! Scotland is to prevent children from being sexually abused, whether that’s online or offline.
“Child sexual abuse affects one in six children across the UK, and the number of adults posing a threat to children is growing. Our campaign is one way to tackle that problem, by telling adults who are offending or who might offend about the harm they cause, the consequences, and the support our helpline and website provide to stop their illegal behaviour.”
A special commendation was given to Aberlour Children’s Charity – Aberlour Urgent Assistance Fund.
Volunteer of the year–Central and West Integration Network – Shawn Nicholas Fernandez
Shawn wants to be a role model for both BAME and disadvantaged communities. He successfully made an impact in communities across Glasgow by delivering Cyber Crime Prevention Awareness Workshops and also creating a space through a community gardening project to help refugees by encouraging them to spend more time in nature to benefit their mental health and wellbeing.
Sean said: “I am extremely overwhelmed and proud to be part of Central and West Integration Network and a special thanks goes to all the Staffs and the beautiful volunteers who are always working unconditionally without expectations.
“By winning this award, I hope it will be an eye opener and encouragement for other volunteers especially those that are socially excluded. Nothing is impossible if we put our minds to it. Every organisation should recognise their volunteers and their contributions to the community because they are the cornerstone and should be rewarded.
“Circumstances in life may not always turn out the way we want it to be. Life may not be as smooth as we want it to be. But hard work, dedication and perseverance goes a long way. Thank you.”
A special commendation was given to Bob MacKenzie from CACE (Cumbernauld Action on Care of the Elderly)
Pioneering project – Scottish Families Affected by Alcohol and Drugs – Click and Deliver Naloxone
Over the last ten years, nearly 10,000 families in Scotland lost a loved one through drug-related death. Naloxone is a life-saving medication that reverses opioid overdose, providing vital time to call an ambulance.
The team at Scottish Families recognised the need for access to this vital medication and launched a unique national Click and Deliver service, providing training and free Naloxone by post to any adult in Scotland. From May 2020 until March 2021, the team issued 295 kits, potentially saving 295 lives.
CEO Justina Murray said: “We are absolutely delighted to win the Pioneering Project Award. This life saving project was set up in a matter of days, at the height of lockdown and we are so proud of it.
“Our colleague Suzanne Gallagher has done an awe inspiring job of running this service from her front room, delivering 743 kits and counting. Thanks also need to go to Kirsten Horsburgh and our friends at Scottish Drugs Forum for everything they have done to help create and promote this service.”
Employee of the year – Carers Trust Scotland – Nicola Bell
Nicola has achieved a huge amount in the last 12 months. Working with young carers, she set up #Supermarkets4Change, campaigning to raise awareness of unpaid carers with supermarkets to include young carers in the protected hours set aside for vulnerable people to shop.
This work, led to those young people nominating her for the Scottish Youth Parliament Support Worker of the Year Award, which she went on to successfully win. Resources she produced for professionals and young carers on the topic of supporting carers through a whole family approach have been so well received they are being translated into other languages by European carers organisations to use in their own countries.
She said: “I am so honoured to have won Employee of the Year! I would not be here without the support of the amazing Carers Trust Scotland team and the Scottish Young Carers Services Alliance. To all the incredible young carers & young adult carers – thank you!
“I feel very proud to work with such inspiring colleagues, services and young people each day.”
A special commendation was given to Fiona Mitchell from Harlawhill Day Care Centre.
Community Action – Cumbernauld Resilience
Cumbernauld Resilience was established in March 2020 as a community-based response to the effects of the Covid 19 pandemic. It united people from all over Cumbernauld from a diverse demographic to reach out and help their neighbours.
The team has over 120 volunteers who have freely given their time, expertise and commitment to distribute over 90,000 meals and other essentials to locals – even hosting Christmas celebrations for over 600 people!
Chair Tony Murphy said: “As a relatively new charity, we are humbled and delighted to have been recognised in this way. We are especially delighted to have won in the Community Action Category as, from the outset, Cumbernauld Resilience’s ethos has been about mobilising the wonderful community spirit that exists in our town to help those in need.
“Thank you so much to every supporter, donor and volunteer – without your unbelievable support and unselfish commitment we really wouldn’t have been able to reach out and help so many in our community during their hour of need.”
Climate Conscious – Forth Valley Sensory Centre – Making Sense of Energy Saving
The project helped people cut their energy bills, despite the pandemic, but also secured new heating systems, warmer home payments and even new windows for a number of deaf and blind people who were struggling to heat their homes and pay their bills.
On top of this, with the change to LED lighting in the centre and the advice provided to centre users in braille, workshops, accessible video and BSL, it saved the equivalent of 300 tonnes of CO2.
Chief Executive Jacquie Winning said: “This award covers two of the biggest issues in today’s society, accessibility and the climate emergency.
“Thank you to everyone who supported us and to the staff at our Centre for making such an innovative project come to fruition!”
Trustee of the year – Linkes (SCIO) – Robert Smith
Robert is the co-founder and driving force of Linkes community project (2006), serving as chairperson to promote integration, empowerment and social inclusion. In response to the pandemic, he was visionary and determined, quickly building alliances to set-up a food distribution project.
Between March – September 2020, Robert’s team of volunteers delivered a whopping 18,000 meals and 2,000 grocery packs. Since October he has also overseen logistics of a weekly food-hub. Robert makes the magic happen, whether he is running board meetings, bulk buying food, driving the van, supporting new volunteers, making friendly phone calls– he is an unstoppable force for good.
He said: “I am absolutely delighted to receive this award. It’s not something I expected as the other finalists have all achieved incredible things and I’d like to congratulate them on their work.
“I would also like to thank the amazing team of staff, board and volunteers at Linkes, our partners and funders and everyone else in the community who contributes to what we do. I’m really proud of what we’ve achieved in what has been an extremely difficult year and on behalf of the team at Linkes, I’d like to say a big thank you for this award.”
A special commendation was given to Julia Grindley from Edinburgh School Uniform Bank.
Digital citizens – People Know How
People Know How believe in the inextricable link between social and digital isolation and the pandemic has only reinforced that view.
Over the last year the team has provided devices, digital skills and connectivity to thousands of people across Edinburgh and East Lothian. In doing so, the team has helped people stay connected with loved ones, access support and home-school their children.
Throughout this work they identified that the biggest obstacle to digital inclusion is data poverty, which is why they have now launched a national campaign to end data poverty.
Claudia Baldacchino, Communications & IT Officer, said: “It’s an honour to have been awarded the Digital Citizens Award. We’re so proud of our volunteers and staff for achieving so much over the last year, supporting thousands of people with devices, digital skills and connectivity.
“We’d also like to thank all our partners and funders who have made this work possible through their support and collaboration. We will continue to combat data poverty and digital exclusion as we recover from the pandemic and beyond, and can’t wait to see what the future brings.”
A special commendation was given to Space – The Louise Project.
Charity of the year AND People’s Choice Award – Edinburgh Children’s Hospital Charity (ECHC)
Covid-19 has been a rollercoaster for everyone; no less for children and families in hospital and those privileged to support them. Innovation and dedication from supporters, partners, staff and volunteers saw support for children shielding at home, in wards and waiting rooms continue through the tightest regulations and a hospital move. From emergency care packs, silent discos, inflatable octopuses and record-breaking fundraising appeals, ECHC has excelled to ensure children in hospital are children first, patients second, even in a global pandemic.
Victoria Buchanan said: “We are absolutely thrilled to be named Charity of the Year and People’s Choice winner at the Scottish Charity Awards 2021! Through the tightest Covid restrictions and a hospital move; ECHC was privileged to stand alongside those ill, injured and shielding at home.
“From emergency care packs, silent discos, giant inflatable octopuses and record-breaking fundraising appeals, we pulled out all the stops to continue to bring fun, comfort and friendship to wards and waiting rooms and ease worries during one of the toughest years families have faced.
“None of this would have been possible without the incredible dedication of our supporters, partners, staff and volunteers. This award is recognition of their phenomenal efforts to ensure children in hospital could be children first, patients second, even in a global pandemic.”
A special commendation was given in the Charity of the Year category to North Edinburgh’s Scran Academy SCIO.
Anna Fowlie, Chief Executive of SCVO, said: “At SCVO we know that fantastic work is going on all the time in the voluntary sector and we were delighted to celebrate the achievements and successes of our finalists and winners at this year’s Scottish Charity Awards.
“We had a record-breaking number of entries this year and each one demonstrated just how well the voluntary sector has responded and adapted to changes and restrictions over the past 12 months.
“Thanks to our sponsors, the team at the EICC, our host Sally Magnusson and everyone who applied and voted for making this year’s Awards so special. Congratulations to our winners for 2021!”
The brave mother of Christopher Nelson, who sadly drowned in 2015, has tackled her fear of water by completing a swimming relay in the loch where her son’s ashes are scattered.
Christopher, 24, tragically died after falling into a canal in Amsterdam while on holiday in the city with his fiancé.
Now, his mother Donna – who previously could not swim and who has had an immense fear of water since her son’s death – has swam a 27km relay with friends and family in St Mary’s Loch in his memory.
Donna’s swim was originally planned for May 2020 but had to be rescheduled due to Covid. To prepare for her challenge, she learned to swim by attending adult swimming lessons with instructor Jen Henderson at Lasswade Centre.
Donna said: “This challenge was the worst one mentally and emotionally for me that I have ever done by far, considering I couldn’t swim before and Christopher drowned in open water but I crossed that finish line for my boy!
“Before I started my lessons, I hadn’t been in a swimming pool since Christopher died. Even when I stood in the shower, I couldn’t put my face under the water. There hasn’t been a morning in the last six years where I’ve stood in the shower and not thought about what happened to my son.
“It was such an emotional swim but the support of my team, Steven Nelson the Water Safety Crew Manager and Niall Cassidy from Driftwood Adventures and his team were phenomenal. All of us felt so safe in their capable hands.
“We couldn’t believe how kind the weather was to us considering the week we’d had – I think my boy had a wee hand in that for his mum!”
Donna’s swim was a fundraiser for Edinburgh Children’s Hospital Charity (ECHC), which supports the Royal Hospital for Children and Young People – a charity close to the family’s heart.
She added: “Christopher was a mad sports person as a little boy, so we were on first name terms with the A&E staff at the Sick Kids as he had so many sports-related injuries.
“He was very athletic and used to really inspire me to do things I would never do. He was my inspiration for most things in life. He would never believe that I would take swimming lessons, and especially not that I would swim in open water.
“When I complete my challenges, I’m always sobbing my eyes out but also have such a sense of relief. Afterwards, I always look up to the sky and say ‘love you son’ and have a moment with him – this one was no different.
“I can’t thank everyone enough who has donated and supported us for this mammoth challenge for my boy.”
The grieving mum and her family and friends – also known as ‘’Donna’s Prosecco Posse” or #teamnelson – have so far raised over £40,000 for ECHC by completing a series of fundraising challenges since 2015, including Tough Mudder and a 200-mile cycle. Her swim has so far raised over £9000.
Victoria Buchanan, Deputy Director of Fundraising and Marketing at ECHC, said: “Donna is hugely admirable, inspiring and brave and we would like to say an enormous congratulations to her and her friends and family for completing what we know was an incredibly tough challenge – both physically and mentally.
“We are so grateful to be Christopher’s family’s chosen charity. The money Team Nelson are raising will have a huge impact on the lives of children, young people and their families and make a phenomenal difference during their time in hospital. We cannot thank them enough for their incredible continued support.”
Donna and Christopher’s family and friends completed the 27km swim relay on Saturday 22nd May in St Mary’s Loch, supported by Steven Nelson (no relation) Founder and Manager/Activities Coordinator of Beyond Boundaries East Lothian and volunteers who very kindly agreed to be the Water Safety Crew, as well as Niall Cassidy and his team from Driftwood Adventures.
Donna’s team’s fundraising page is still open. To support them, visit:
· This is the first time MRI-guided Laser Interstitial Thermal Therapy (LITT) will be available in Scotland
· The surgery is currently only available at Great Ormond Street Hospital in London or in Houston, Texas
· The current surgery choice in Edinburgh is open brain surgery, which is around seven hours and leaves an ear to ear scar. LITT will reduce this to two hours and is much less invasive
· Children and young people who will be referred for this surgery have refractory (medication resistant) epilepsy and can have up to 100 ‘drop down’ seizures a day
· In appropriately selected cases, LITT surgery can stop seizures entirely and cure the child’s epilepsy
Children and young people living with severe epilepsy in Scotland will have the life-changing chance to be seizure free, thanks to the funding of a world class laser coming to Edinburgh’s new children’s hospital.
A partnership between the Welch Trust, Edinburgh Children’s Hospital Charity (ECHC) and NHS Lothian is bringing MRI-guided Laser Interstitial Thermal Therapy (LITT) for Edinburgh’s Royal Hospital for Children and Young People (RHCYP) – the first time this laser technology will be available in Scotland.
LITT is a new and proven, minimally invasive treatment which uses a laser to remove brain tissue that is causing seizures. Children and young people who will be referred for laser surgery are diagnosed with refractory (medication resistant) epilepsy; they may experience severe and frequent ‘drop down’ seizures, up to 100 in one day. In appropriately selected cases, laser surgery can stop seizures entirely and cure the child’s epilepsy.
LITT surgery treatment is currently only available at Great Ormond Street Hospital (GOSH) and in Houston, Texas. The laser equipment will be part of the Scottish National Paediatric Epilepsy Surgery Service, based at the RHCYP in Edinburgh, meaning children will come to the capital from all over Scotland to have the surgery.
The current surgery choice practiced in Edinburgh is open brain surgery, which lasts around seven hours, has a longer recovery time and results in a scar across the top of the child’s head.
The LITT precision technology will reduce this surgery time to around two hours, is much less invasive and has a shorter recovery time. It is expected that up to six children a year could benefit from the laser surgery, aged from infants to adolescents, with a similar number of adults also benefitting annually.
Following a request from the National Epilepsy Surgery Service to ECHC to support this initiative, the charity identified the Welch Trust as the ideal funder and agreed a partnership to make this project a reality.
Victoria Welch, Trustee of the Welch Trust, said: “We are very proud to be able to gift this LITT technology to the new Royal Hospital for Children and Young People. As a Paediatric Nurse, I understand the importance of having the best equipment in the hospital to expedite the curing of patients with complicated conditions and ultimately save lives.
“When we were made aware of this need, we didn’t have to think too long about it. Our focus continues to be to invest in high impact programmes that save lives or significantly improve the quality of life for very sick or terminally ill children. We look forward to continuing our partnership with the Edinburgh Children’s Hospital Charity and expanding our support across other areas of critical care.”
Roslyn Neely, CEO of Edinburgh Children’s Hospital Charity, said: “With the new children’s hospital now open, we are thrilled to have partnered with the Welch Trust to bring the world-class LITT equipment to Scotland for the first time.
“It is always very satisfying for us to be able to join with another funder who have a similar desire to support the hospital with projects that will transform children’s health.
“Having the laser surgery available in Edinburgh gives families more choice in their place of care and means they will no longer need to endure the financial and emotional cost of national or international travel and separation at a very stressful time. It will also place Edinburgh and NHS Lothian on the map as a world-leading provider of epilepsy surgery and treatment.”
Dr Edward Doyle, Associate Medical Director, Women and Children’s Services, NHS Lothian said: “Across NHS Lothian, we continually look at new and emerging technology and treatments to see how they could benefit our patients.
“We are delighted that through the support of both the Welch Trust and Edinburgh Children’s Hospital Charity, we will be the first in Scotland and only the second location in the whole of the UK to offer LITT surgery.
“Severe epilepsy can be very difficult to live with and puts an enormous strain on families. Having a world-class cutting edge treatment option available here in Lothian, which is both less invasive and which reduces recovery time, will make a huge difference to lives of children and their families across Scotland.
“This treatment really does have the potential to transform lives and our teams at the Royal Hospital for Children and Young People are delighted that they will soon be able to offer it as a treatment option.”
The new laser equipment is compatible with the intra-operative MRI suite at the RHCYP. It is expected to arrive in summer 2021, followed by a period of intensive training prior to the first surgery taking place.
Gillespie Macandrew announces new charity partnership with Alzheimer Scotland and Edinburgh Children’s Hospital Charity
Leading Scottish law firm Gillespie Macandrew has begun a three year charity partnership with Alzheimer Scotland and Edinburgh Children’s Hospital Charity (ECHC). Alzheimer Scotland provides support for those living with dementia and the ECHC supports children and their families in a variety of healthcare settings.
The new partnerships are a key part of the Firm’s overall Corporate Social Responsibility (CSR) programme, which includes donating 1% of pre-tax profits each year to the nominated charities. The firm has an established and active CSR committee which includes representatives from all four of Gillespie Macandrew’s offices.
As well as financial support, staff are given a day off each year to take part in charitable activities and as a result of this commitment to the nominated charities, the Firm has donated a total of over £130,000 in the past five years.
Chief Executive Officer Robert Graham Campbell commented: “We have a long and proud history of supporting charitable causes, whether it is engagement though volunteering, providing funding and pro-bono legal advice or partnering to host training opportunities.
“We look forward to working with our two new charity partners to support the excellent and valuable work they do.”
Stakeholder Engagement Lead from Alzheimer Scotland, Caroline Miller said: “The incredible commitment from Gillespie Macandrew will help us provide a range of person-centred support for people living with dementia and their families, who have been devastated by the pandemic.
Money raised will also go towards our exciting project to build the UK’s first Virtual Dementia Resource Centre so we can offer support no matter where you are and what time of the day it is.”
ECHC’s Fundraiser Amy Ford added: “Gillespie Macandrew’s support over the next three years means that we can continue transforming the experiences of every child and young person in hospital and healthcare throughout the duration of the pandemic and beyond.
When the new Royal Hospital for Children and Young People opens on Tuesday 23 March, ECHC will be there to support children, young people and families in many ways and we simply could not do this without the generosity and kindness of our charity partners like Gillespie Macandrew.”
Alzheimer Scotland and ECHC were nominated and voted for by staff and Gillespie Macandrew is pleased to be able to offer our support, particularly at a time of increased pressure on the services they provide.
The firm has offices in Edinburgh, Glasgow and Perth and advises on all areas of land and rural business, private client, commercial real estate, energy, tax and disputes.
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