Next Tuesday 28th of May at 1pm Pilton Community Health Project (PCHP) will be hosting a COPD workshop. If you have COPD, researchers from NHS Lothian and The University of Edinburgh, want to hear about your experience of having COPD, so they can design their research to meet you needs.
You can expect nice and welcoming atmosphere, a warm cup of tea and £20 voucher for you time.
If you are struggling to get to PCHP, transport can be provided too.
To sign up for workshop please fill in a form https://bit.ly/3WS3VCZ or use a QR code on a poster or Call Sammy Waite Patient and Community involvement in research officer 07385347040
A new tool to help patients with Chronic obstructive pulmonary disease (COPD) better manage their condition is being trialled by NHS Lothian’s Midlothian Community Respiratory Team (MCRT) in collaboration with Health Innovation South East Scotland.
COPD affects approximately 120,000 people in Scotland and is the second most common reason for emergency hospital admissions.
The Dynamic Scot project (remote physiological monitoring) allows patients to monitor their condition from the comfort of their own home through a digital service that can be accessed via a smartphone, tablet or computer.
Patients are prompted each day to log on and answer questions about their symptoms and how they are feeling. This encourages them to self-manage their symptoms with the option to seek advice when needed via the messaging service. In the longer term this can flag up early signs of deterioration in their condition and help predict if they are at risk of hospitalisation.
Claire Yerramasu, Advance Practitioner Physiotherapist and lead clinician for the MCRT pilot, NHS Lothian (above) said, “COPD is the third most common cause of mortality world-wide and is a major healthcare problem.
“The prevalence of this condition is rising in the UK along with other parts of the world and we therefore need to come up with innovative ways of better monitoring and supporting these patients.
“So far, I have received nothing but positive feedback from the patients currently trialling this new technology.”
Carmel Thompson, one of the patients in the trial said: “Using the online tool makes me think about the variability of my daily symptoms and how I am managing them and because of this I am more confident to wait longer to see if my symptoms resolve before using my rescue medications.
“The service gives a good level of basic information for those who are willing to engage with it and the daily questions are very easy for me to do routinely in the morning.”
Another patient also trialling the new tool, Charlotte Sweeney explained that, “I have found the service useful for recognising my symptoms and knowing what to do and when. It is reassuring to have the messaging service to be able to contact someone with questions and queries.”
Many health services have changed how they work as a direct result of the COVID-19 pandemic and have experimented with digital platforms. Through this approach, a whole host of benefits have been experienced including giving patients back more control of their care, allowing them to fit their healthcare needs around their lifestyle and reducing the amount of time that they need to spend travelling to attend hospital appointments.
Dr Gourab Choudhury, Consultant Physician, Respiratory Medicine in NHS Lothian said: “We are delighted to be trialling this technology here in Lothian. It is simple to use and patient friendly and the feedback that we have had so far has been really positive.
“We hope to further expand the role of virtual platforms to other areas in Lothian through this technology and similar others in the coming months.”
The number of people who have Chronic Obstructive Pulmonary disease in NHS Lothian has increased by 70% since 2011/12, to 19,167 people, a higher increase than any other region in Scotland.Continue reading Alarming rise in COPD cases in Lothian
1,000 people are needed for ground-breaking research into an incurable lung condition at the University of Edinburgh. Supported by the British Lung Foundation, Professor Moira Whyte and Dr Gourab Choudhury will conduct research into the very early stages of the development of chronic obstructive pulmonary disease (COPD).Continue reading Vital research into incurable lung condition affecting millions to take place in Edinburgh
