Letters: Charity makes sure no child faces hospital alone this Christmas

Dear Editor,

Christmas is a time when many of us look forward to being with our loved ones, making lifelong memories while getting into the festive spirit of caring for each other.

For the majority of us the festive period will be full of joy and an occasion to look forward to. However, for families whose children will be seriously ill in hospital, this Christmas will be a time full of worry. Hospital can be a lonely and scary place for anyone, but especially a child. We want to make sure no child faces hospital alone and like all charities we are in desperate need of support to do this.

Without a place to stay close to the hospital our families will have to travel, on average, 90 minutes to be with their seriously ill child. The alternative is paying out for expensive hotels, sleeping on a chair in the hospital or even sleeping in their cars. Neither are viable options, worsened further by the current cost of living crisis. These extra expenses are another burden that families shouldn’t have to shoulder at a time when all they want is to be with their child.

Our ‘Homes from Home’ are free for families who need them and it currently costs us approximately £40 to support one family for one night, but this cost is rapidly rising.

By donating £40 to our appeal your readers will give families all the precious gifts of Christmas; care, wellbeing, warmth, rest and most precious of all, time together in our ‘Homes from Home’.

Our ten ‘Homes from Home’ are located at specialist children’s hospitals and support families from across the UK. They are completely free of charge to all the families that stay with us, but as a charity we rely on the generosity of our supporters to make sure every child can be with their family this Christmas.

We want to make sure that no child faces hospital alone and that all families can be together this Christmas, making special festive memories rather than travelling in their car or sleeping in uncomfortable waiting room chairs.

Every £40 donated will give another family the precious gift of togetherness, ensuring that they can always be just minutes away from their ill child’s hospital bedside.

Donate £40 today by visiting sickchildrenstrust.org


Jane Featherstone,

Chief Executive at The Sick Children’s Trust

Family Fund open for applications

As the cost of living crisis deepens, families in Scotland raising disabled, or seriously ill children, on low incomes have the chance to secure critical support from a national charity.

Family Fund, the UK’s largest grant-making charity for families with disabled and seriously ill children, provides essential items for families including kitchen appliances, clothing, bedding, play and sensory equipment and family breaks.

Last year, it delivered over 170,919 grants and services, worth over £37 million, to families on low incomes across the UK.  

Thanks to ongoing funding from the Scottish Government, the charity can continue to support families across Scotland.

With winter approaching this is timely help, as a recent Cost of caring report by Family Fund shows that nine in 10 families are struggling, or falling behind with their regular household bills and many are forced to forego living essentials such as food, heating, basic furniture like beds, flooring, washing machines and fridges, to try to make ends meet.

In the latest poll of UK families in September, almost 60% reported an average increase in household bills of £124 a month. On top of this their average monthly food bill has gone up by £189 over the year.

Cheryl Ward, Chief Executive of Family Fund, said: “We urge eligible families in Scotland to come forward with an application to secure help through these difficult winter months.

Our research shows it costs three times as much to bring up a disabled child as other children, with many families unable to increase their income due to round-the-clock caring responsibilities.

“As prices continue to rise and winter approaches, many families tell us they are gravely worried about how they will survive the coming months.

“Family Fund is here for support now so please come forward to apply.”

Reece’s story:

Six-year-old Reece has autism and lives in Glasgow, with his mother, Olivia, and older brother, Justice, 20.

Olivia explains: “When Reece was younger, he had speech and developmental delay and was diagnosed as autistic at the age of three. Now that Reece is six years old, he’s still behind in his development. Reece can repeat what others say and he does understand what people mean but he can’t speak his own words yet. Additionally, he is still behind with his toileting as he continues to wear nappies.

“Reece attends a specialist school. They’re helping him a lot to better his understanding and to engage more. Generally, Reece enjoys school except when it’s noisy. He has sensory issues so he dislikes certain loud sounds.

“Reece finds it frustrating that we currently live in a flat without a garden. The lack of space is hindering his development since he loves the outdoors. He really enjoys jumping and swinging. When we’re outside he likes collecting sticks. Reece also likes to spin a lot and even though he can’t speak, he still makes sounds from his mouth, so people often stare but I try to explain his condition to people as much as I can.

“At the moment, I receive two days of respite care which I use to study for my degree.

“The cost of living crisis has greatly impacted the cost of my bills. We haven’t been able to afford other things as much as we used to. I can barely buy a full basket of food nowadays so I have to improvise my cooking. Sometimes I have to leave myself out of the meal and just eat snacks so that my children can eat.”

How Family Fund has helped

Olivia said: “Family Fund is very helpful, especially to families on a low income. Without the grants we wouldn’t be able to afford things so important to a child’s development.

“We received a sensory grant which we used to buy a colour changing bubble machine which Reece loves. It helps to calm him down.

“We also received a fridge freezer grant. Our old fridge was broken and too small. The grant from Family Fund allowed us to buy a newer, and bigger, fridge which was better for our family. Without the grant we would have had to wait a long time to get a new one.

“The most recent grant we received was a Haven family break grant [that] gave us a chance to get away on holiday to the seaside which Reece loves a lot. The Haven site has a lot of activities to do all under one roof. The break gave us peace of mind and it was beautiful to see Reece happy and calm. He was so content with everything around him.”

Eligible families in Scotland are encouraged to apply as soon as possible by visiting Grants: Scotland | Family Fund or calling 01904 550055

Charity launches Christmas campaign in memory of those lost to sepsis

Scotland-based charity Sepsis Research FEAT has launched a new Christmas campaign featuring the stories of families impacted by sepsis in order to help raise awareness of the deadly condition.

Sepsis takes the lives of approximately five people every hour in the UK. It occurs when the body’s response to an infection spirals rapidly out of control, injuring its own tissues and organs which can result in multiple organ failure and death.

Sepsis Research FEAT’s new campaign pays tribute to the many lives that have been lost to sepsis. It includes a Christmas video featuring singer Natalie Rushdie, who herself had sepsis in 2021.

In the video she performs Auld Lang Syne alongside images of people aged between 9.5 months to 92 years whose lives were tragically taken by sepsis. The Christmas campaign also features stories being shared by supporters from across the UK who were fortunate to have survived sepsis, some of whom have faced long-term and life-changing effects. 

The charity is highlighting the devastating impact sepsis can have on individuals and families so that more people will become aware of the symptoms and why it is vital to seek urgent medical attention if you spot them in yourself or a loved one.

As the UK’s only charity dedicated to funding research into sepsis while working to raise awareness, Sepsis Research FEAT works tirelessly to increase everyone’s knowledge about the condition. If people are able to recognise the symptoms of sepsis, they can act fast and seek medical help which improves their chances of recovery. 

The 5 key symptoms of sepsis everyone should know are:

  • Confusion 
  • Not passing as much urine as normal
  • Very high or low temperature 
  • Uncontrolled shivering
  • Cold or blotchy arms and legs 

Sepsis can be hard to recognise and diagnose because, in its early stages, it can have similar symptoms to common winter conditions like the flu and chest infections. However, if someone has any of the key symptoms becoming noticeably worse, this could indicate sepsis and urgent medical attention should be sought.

It can also be hard for people with sepsis to spot the signs in themselves as their health may deteriorate rapidly and they could become confused. Sepsis Research FEAT is urging people to look out for others this Christmas and seek medical attention on their behalf.

Colin Graham, Chief Operating Officer at Sepsis Research FEAT, said: “Christmas is a time for celebration but it is also a time to remember those we have lost and to consider how things could be so different. Too many lives are tragically taken by sepsis every year.

“We want our Christmas campaign to pay tribute to those people and also their families who are living with the devastating impact of sepsis. Our charity and supporters fight on in their name by continuing to raise awareness and fund vital research. We are incredibly grateful to those supporters who are sharing their stories this Christmas to help others learn about sepsis and how to spot it.

“Sepsis is an indiscriminate, deadly condition that can kill a previously healthy adult or child in a matter of hours. It is vital that everyone knows the symptoms so they can seek medical treatment in time. Cases of sepsis could be mistaken for the flu because the early symptoms are sometimes similar, particularly around Christmas time and the winter months when flu is more common.

“The difference is that these symptoms worsen rapidly when sepsis is the cause. The most important thing is to react fast and seek medical attention because this can improve chances of survival.

“Please support our campaign this Christmas to help spread the word about sepsis and how to recognise the symptoms. If you have personal experience of the condition then please consider sharing your story online using #StopSepsisNow. You can also take part in fundraising to support us to continue our work raising awareness of sepsis and funding ground-breaking research to help save lives.”

For more information about Sepsis Research FEAT and the charity’s Christmas campaign, visit https://sepsisresearch.org.uk

Festive campaign brings joy and hope to secondary breast cancer patients

Secondary breast cancer charity Make 2nds Count is unwrapping a bumper festive bundle of activities to get its Christmas campaign off to a sparkling start.

Sadly, while others enjoy the season of goodwill, it can be a very lonely time for patients, individuals and families coping with the impacts of secondary breast cancer. A recent YouGov poll revealed that 60% of those impacted by a diagnosis find the festive period especially difficult and isolating.

But the charity is bringing the Christmas spirit to patients and their loved ones with a package of initiatives to show support for people living with this incurable form of the disease which claims the lives of 1,000 women a month in the UK.

Make 2nds Count aims to raise £15,000 through the sale of Tree of Hope baubles, plus further funds from specially commissioned Christmas cards and charity partnerships with Dalkeith Country Park’s festive Spectacle of Light and McLarens on the Corner in Edinburgh.

The Make 2nds Count Tree of Hope initiative gives people the chance to donate by buying a Christmas bauble which is not only a beautiful decoration for the tree but a poignant tribute to a current patient or lost loved one.

Supporters donating to the Tree of Hope pay £25 for a bauble, featuring the name of the person they are honouring, in return for a virtual bauble with a personalised message on the Make 2nds Count website and delivery of their personalised bauble keepsake in January.

There are also standard Make 2nds Count baubles available for £15 that the charity hopes to see in homes across the UK this year, the third year of the Tree of Hope initiative.

Dalkeith Country Park will showcase its own Tree of Hope as part of its Spectacle of Light event where visitors can add a ribbon to commemorate a loved one, and all donations will come to the charity. They are also providing collection tins for any spare change, at till points in its Fort Douglas and Restoration Yard’s store and eateries, and signage around the park with a QR code.

The limited-edition Christmas cards, designed by Make 2nds Count supporter Nikki Hughes, are available through the charity in packs of eight for a minimum donation of £6. In addition, there is the opportunity to donate online for a virtual card.

McLarens are once again supporting Make 2nds Count this Christmas by hosting a Tree of Hope and by adding a £1 discretionary charge on every Christmas booking and they will match the total at the end of the festive season.

Emma Hall, Head of Operations for Make 2nds Count says: “Christmas is a magical time but we know that it can be quite a challenging period for secondary breast cancer patients and their families.

“However, the fantastic response we always get from the public to our festive campaign gives us all a real boost. We’re confident this year people will be as generous as they can afford to be and every donation, no matter how modest, helps tremendously as we support people not only at Christmas but throughout the year.”

Make 2nds Count supports secondary breast cancer patients and their families and campaigns to raise awareness of, and fund research into the disease –  also known as metastatic, advanced or stage IV breast cancer – a form of cancer which has spread beyond the breast to other parts of the body. On average there are around 35,000 patients in the UK currently living with this form of cancer.

To find out more about how to support the charity’s Christmas campaign visit:  

https://www.make2ndscount.co.uk/get-involved/christmas/

40% of Scotland residents more likely to call on help from a charity due to the cost-of-living crisis

  • Research from the Movement for Good Awards has found that 40% of people are more likely to depend on help from a charity than ever before
  • While 37% say they are likely to reduce or stop the amount they donate due to the current climate
  • 34% of residents are choosing to volunteer their time rather than help financially
  • Of those still intending to give, 66% want to support local charities now more than ever

Charities will be under increased strain this winter as a new poll of 67,000 people shows two in five UK residents are more likely to depend on charities during the cost-of living crisis.

Over a third of residents in Scotland (40%) that took part in the research (5,057) have admitted they are more likely than ever before to have to call on help from a charity. While in contrast 37% said they are likely to reduce the amount they donate to charity due to the increasing costs they’re facing on their energy bills.

While people may be planning to give less money, 34% of residents have said they’re more likely to volunteer their time instead. Two thirds (66%) are more likely to support a local charity rather than a national or international one with 53% of residents choosing frontline charities supporting those most in need due to the cost-of-living crisis.

The findings come as the UK’s largest network of food banks, The Trussell Trust, announced it had distributed a record number of food parcels between April and September this year, with one in five individuals referred to The Trussell Trust now coming from working households.

With charities facing increased pressure, Benefact Group’s Movement for Good Awards is giving away £120,000 as part of its annual 12 Days of Giving Christmas campaign.

Residents are encouraged to nominate a charity online at 

www.movementforgood.com using the online form.

The first draw takes place on December 1st and the last on December 16th with 10 charities drawn every day. Nominations are open until Thursday 15th December.

Winners are drawn at random and the more times a charity is nominated the more chance it has of being selected.

Mark Hews, Group Chief Executive of Benefact Group, said: “It’s perhaps no surprise that people intend to cut back on their charitable giving at this time, and it is clear is that charities need help more than ever.

“Our annual £1 million Movement for Good Awards have helped thousands of charities across the UK and we’re asking people to take a few minutes of their time to nominate a cause they especially care about.

“Out of some five million companies in the UK, Benefact Group is the fourth largest corporate donor* and has an ambition to be the biggest. As a Group of financial service businesses, uniquely owned by a charity, all available profits go to good causes, and the more our loyal customers support us to grow, the more the Group can give.

“As a company whose purpose is to contribute to the greater good of society, charitable giving is at the heart of what we do and, together, we can help many good causes to continue their love and support for those who need it most in these difficult times.”

This year in June, 250 £1,000 awards were donated. A further 250 £1,000 awards were awarded in September followed by £500,000 of larger grants in October.

A special draw was recently launched to coincide with COP27, giving five environmental charities £5,000 each – a further £25,000 in funding.

Movement for Good is funded by EIO plc, part of the Benefact Group.

Walkers raise over £100k for charity in new Edinburgh endurance event

A new charity endurance walk over some of Scotland’s most beautiful peaks raised over £100,000 in its inaugural year.

The Pentland Peaks Challenge, sponsored by Artemis Investment Management, took place in the glorious Pentland Hills near Edinburgh in late September.

The 179 walkers, including 84 staff from Artemis, chose from three routes. These ranged in difficulty from a ‘Bronze Challenge’, at eight miles and covering three peaks, to a ‘Gold Challenge’ that covered 27 miles and required walkers to scale seven peaks. The participants were supported by 25 volunteers who ensured that the day ran smoothly.

All the funds raised went to two charities. SANE is a national mental health charity that raises awareness, fights to improve services and provides emotional support. Mary’s Meals, based in Scotland, operates globally to provide school meals to more than 2.2 million children daily, giving them the energy to learn.

Derek Stuart, Chair of the Artemis Charitable Foundation, said: “I am incredibly proud that over 200 people took part in this new event. To generate over £100,000 for two amazing charities is a real achievement.

“Each year, our staff raise money and Artemis gives a proportion of its profits to the Artemis Charitable Foundation. Established in 2007, it manages our charitable activities and involvement in the wider world. Our staff and the trustees choose which charities will benefit with a particular focus on ones where the Artemis contribution can make a significant impact.

“The foundation supports ‘core’ charities in the UK and internationally in the areas of health, poverty, education and the environment, and also makes donations to global disasters and emergencies when they occur. In 2021 the foundation donated over £900,000 and the total amount donated since 2007 is £12.8 million.”

The next Artemis Pentland Peaks Challenge is due to take place on Saturday 2nd September 2023.

For further information on how to take part or donate, please visit:

https://pentlandpeaks.com/

Game, set, match funding as Judy Murray backs Mary’s Meals

Donations made to the school feeding charity will be matched, with up to £1.5 million available 

Judy Murray is encouraging people across Scotland to give to Mary’s Meals this winter – so that the charity can reach even more hungry children with its nutritious school meals. 

The British tennis coach is supporting the Double The Love campaign – which will see donations made to Mary’s Meals until 31 January 2023 doubled by a group of generous supporters, up to £1.5 million. 

Judy says: “I am delighted to announce that donations to Mary’s Meals are being doubled this winter – meaning this wonderful charity can reach even more children with daily school meals. 

“It’s game, set, match funding – so please give, if you can!” 

Mary’s Meals, which was founded in a shed in Argyll, feeds an incredible 2,279,941 children every day in countries including Kenya, Ethiopia, India and Yemen.  

The promise of a meal at school attracts hungry children into the classroom where, instead of working or looking for food, they can gain an education and hope for a better future.   

But the charity has warned that the world is facing a hunger crisis of unprecedented proportions brought about by conflict, climate change and Covid-19 – making its work both challenging and indispensable.  

Judy took part in a Q&A at an event held at Glasgow Caledonian University on Saturday [12 November] to mark the 20th anniversary of the charity. Mary’s Meals’ founder, Magnus MacFarlane-Barrow, also spoke at the celebration. 

Suzy Harley, head of supporter care at Mary’s Meals, says: “Every day, we encounter new children who desperately need our life-changing meals. And every day we find new ways of reaching them thanks to the kindness of those who believe in our mission. But it has never been more difficult to do so – and that is why we need your support now more than ever. 

“Double The Love is an important opportunity for us to feed even more little ones. We are deeply thankful to Judy and everyone who is helping us keep our promise to the more than 2.2 million children who rely on our meals, while allowing us to reach the next hungry child waiting for Mary’s Meals.” 

Thanks to the charity’s low-cost approach it costs just £15.90 to feed a child with Mary’s Meals every school day for a year. And, thanks to Double The Love, a donation of £15.90 made before 31 January 2023 will feed two children for a year. To find out more, visit marysmeals.org.uk/double. 

Entries are now open for The MoonWalk Scotland 2023

Raise money for those living with breast and other cancers

On Saturday 9th September 2023, thousands of women and men will set off from Holyrood Park in Edinburgh to walk an overnight half or full marathon through the streets of the capital.

Walkers will be uniting to raise much needed awareness and money, which is granted towards research, prevention and supporting those living with cancer in Scotland.

Walkers can pick any theme from previous years to decorate their bra and add a sprinkle of silver.

Organised by breast cancer charity Walk the Walk, The MoonWalk Scotland will be the final event in the charity’s trilogy of MoonWalks in 2023, following The MoonWalk London, at Clapham Common on Saturday 20th May and The MoonWalk Iceland, at Lake Myvatn on Tuesday 13th June.

For all the events, Walkers can choose between half and full marathons, as well as a virtual option to take on the MoonWalk in their local area.

Those looking to experience Scotland and London can enter both and receive a special 10% discount on entry.

For the ultimate challenge take on the 3 Land Challenge and do all three MoonWalks!

Sign up for The MoonWalk Scotland now at www.walkthewalk.org

Celebrating 25 years of MoonWalking!

Money raised by Walk the Walk through its MoonWalks is granted to help other charities and organisations across Scotland and the UK in their united aims.

The one and only iconic, original night-time walk – The MoonWalk London – was created in 1998 by Nina Barough CBE and celebrates 25 years of MoonWalking.

MoonWalks in Scotland (2006) and Iceland (2011) followed. All three MoonWalks are organised by the cancer charity Walk the Walk, founded by Nina.

Recycle Week: Capital residents can recycle rubbish councils don’t collect

●        To celebrate Recycle Week (17th – 23rd October) Edinburgh residents and the surrounding areas can recycle items the council doesn’t collect and raise money for charity in the process

●        The recycling programmes are free to join for individuals, schools and businesses

●        For each item recycled, points are awarded that are redeemable as donations to a chosen charity, community project or school

●        Less than half of all household waste produced in Edinburgh is currently recycled

Edinburgh residents and the surrounding areas can celebrate Recycle Week by signing up to recycle “unrecyclable” items – including cheese packaging, cleaning product packaging, hair care empties and beauty products  – whilst raising money for their chosen good cause in the process.

These everyday items have traditionally not been recycled by councils, usually because they are made up of a mix of materials that makes them more complex and costly to recycle. As a result they are often destined for landfill, incineration or the natural environment.

The recycling programmes are run by TerraCycle and are free to sign up to. By signing up, residents can either collect and send in their waste to be recycled, or they can set up a public drop-off location and become recycling champions for their communities.

Less than half of all household waste produced in Edinburgh is recycled.

By signing up to one or more of the following free recycling programmes – among others which can be found on TerraCycle’s website – everyone can play their part in combatting the waste crisis:

The Cheese Packaging Free Recycling Programme

The Kinder Free Recycling Programme

The Ueshima Coffee Company Free Recycling Programme

The Hair Care Packaging Free Recycling Programme

The RB® Hygiene Home Free Recycling Programme

The Personal Care and Beauty Free Recycling Programme 

Once signed up to a programme, a free shipping label is sent which can be attached to a box containing the items. Once full this is sent free of charge to TerraCycle to be recycled.

For each item sent in to be recycled, points are awarded which are redeemable as monetary donations to the recyclers’ chosen good cause. To date people across the UK have diverted more than 250 million items from landfill, raising more than £2m for schools, charities, community causes and non-profits.

For more information visit: www.terracycle.co.uk

Make 2nds Count to shine a light on secondary breast cancer

  • 23 venues will join campaign, designed to highlight the lack of awareness and support available for the incurable cancer
  • Three in ten UK adults who are either diagnosed or know a friend or family member with secondary breast cancer felt that research and support were insufficient and not readily available for patients or loved ones 

Make 2nds Count has confirmed that 23 landmarks from across the UK will join the newly launched ‘Shine a Light on Secondaries’ campaign, which has been coordinated to highlight the lack of awareness and support available across the UK for patients and their loved ones living with the incurable cancer.  

On 13th October 2022, venues including Camera Obscura, Granton Gas Tower, The Balmoral, Caird Hall and Blackpool Tower will shine brightly in the charity’s colours, pink, purple and teal, as part of the national campaign designed to “Shine a Light” on Secondary Breast Cancer Day, which is often overlooked amidst the wider narrative around Breast Cancer Awareness Month (October).  

A YouGov survey commissioned this year by Make 2nds Count revealed that 29% of UK adults who are either diagnosed or know a friend or family member with secondary breast cancer felt that research and support were insufficient and not readily available for patients or loved ones. 

It also confirmed that only 23% of these UK respondents asked would look to the mainstream media as a source of information and support when dealing with secondary breast cancer, whilst a staggering 59% refer to charities offering one-to-one advice and personal experience. 

Heather Moffitt, a trustee of Make 2nds Count who is living with Stage 4 (metastatic) breast cancer, comments: “We desperately need people to be aware of this forgotten form of breast cancer. We need to change the narrative and raise so much more awareness around the signs and symptoms of this disease.  

“Secondary breast cancer is incurable and without further research and education, this disease will continue to destroy the lives of so many. That’s why we’ve joined forces with venues across the UK to mark a moment and Shine a Light on this disease and the important work that needs to be done.” 

The disease, also known as metastatic, advanced or stage IV breast cancer, is a cancer that has spread beyond the breast to other parts of the body and is incurable. On average there are around 35,000 patients in the UK currently living with this form of the disease. 

Make 2nds Count is a patient and family-focused charity dedicated to giving hope to women and men living with secondary breast cancer. 

Their mission is to fund secondary breast cancer research that contributes to advancing an increased quality of life for patients; establish a community that supports and educates patients and families affected by secondary breast cancer; inform and facilitate access to patient trials and to increase overall awareness of secondary breast cancer.    

For more information or support visit www.make2ndscount.co.uk/