New online support hub launched for people with post-COVID breathlessness

Asthma UK & British Lung Foundation have launched an online Post-COVID HUB and dedicated helpline to support people affected by breathing difficulties after COVID-19.

While evidence on the long-term health effects of COVID-19 is still emerging, a range of early studies have suggested that people hospitalised with severe symptoms from the virus are developing chronic respiratory symptoms.[1]

Post-Covid.org.uk, is a site for patients, healthcare professionals and researchers. It aims to bring experts together to lead ground-breaking research, to better understand the long-term effects of COVID-19 on respiratory health and provide a central point for health information and advice for patients.

Joseph, Head of Asthma UK & British Lung Foundation Scotland, said: “As a respiratory charity, we support the thousands of people across Scotland who have breathing difficulties. We understand the toll it can have on people’s lives and the concern many have about the long-term effects COVID-19 will have on their lung health.

“At a time when the NHS is under immense pressure, we want to ensure anyone who’s respiratory health is affected post-COVID can get the help and support they need. That is why we are proud to be launching our Post-COVID HUB.

“The HUB is the first of its kind in the UK. It brings together patients, researchers, and healthcare professionals to provide the latest information on the impact of COVID-19.  We also want to ensure that research and clinical services develop so we can effectively treat any new chronic breathlessness emerging from this crisis.”

The hub is also supported by academics, professional bodies, and respiratory experts:

Professor Jon Bennett, Chair of the Board of Trustees at the British Thoracic Society, said: “We support the launch of the Post-COVID HUB, which will be critical in assessing what care people need post-COVID. Many people are suffering an acute severe lung injury with some ending up in intensive care, and we know that this can have an impact on people long term. 

“We urgently need post-COVID care research and guidelines, to ensure we know what the best treatments are ongoing, and that people can access appropriate support and maximise their recovery.”

Carol Stonham MBE, Chair of the Primary Care Respiratory Society & Senior NHS Nurse Practitioner (respiratory) said: “We welcome the introduction of the Post-COVID HUB. These are times of rapid change with many people recovering from sudden episodes of severe illness requiring critical care, then returning to community or primary care for ongoing management.

“Some will sustain ongoing lung damage, others psychological trauma. The sharing of resources allows clinicians to care for people safely and effectively wherever care needs to be delivered.”