Sarah Boyack hosted families of children with Tourette’s in Holyrood on Thursday to meet with a Minister and Scottish Government officials.
The roundtable, which was co-organised with Tourette’s Scotland allowed families to raise the lack of support facing their children in Scotland’s education system.
Natalie Don-Innes attended the meeting in her capacity as Minister for Children and Young People, alongside the Unit Head for Additional Support for Learning and the Promise.
Every parent agreed that many issues stemmed from the lack of training for teachers and school staff.
Many attendants highlighted that their children had been punished due to their involuntary tics because of a lack of understanding of Tourette’s.
Tourette’s Scotland offers training for schools and creates bespoke profiles for each child with Tourette’s for their new school to utilise but both the training and reading of the reports are optional.
One participant revealed that their child was told they weren’t allowed to do one of their tics in the classroom and would have to go to the bathroom to do it, despite tics being involuntary.
Another highlighted that despite having a horrible time in school, their daughter was now thriving in university and getting far better support for her Tourette’s.
The Minister, along with the Scottish Government official, agreed to liaise further with Tourette’s Scotland to examine these issues.
The roundtable came after awareness of Tourette’s has skyrocketed due to the success of “I Swear”.
Ms Boyack also hosted a Holyrood debate about Tourette’s at the start of the year where she highlighted the challenges facing kids in the education system with the condition.
Speaking after the roundtable, Sarah Boyack said: “I was honoured to host this roundtable and give parents the opportunities to tell their stories to the Minister.
“I was deeply moved by the stories I heard of children suffering due to a lack of understanding from those in the education system and the stress it has caused their parents.
“It is obvious that with a greater understanding and robust training, the education system can be a place for those with Tourette’s to thrive in rather than a challenge they have to manage.
“I hope that the next parliament picks up the baton on this issue and ensures increased support for Tourette’s is a priority.”
Tourette’s Scotland commented: “We were delighted to have the opportunity for our families to share their stories directly with the minister for children and young people.
“Our families felt heard and that it was a productive meeting with lots of ideas on how to progress with awareness and understanding.”
You can find more out about Tourette’s Scotland and their work here:
