Edinburgh boy defying doctors celebrated with artwork at New Sick Kids

 
An Edinburgh teenager who defied medical experts has had his passion for dancing transformed into artwork for Edinburgh’s new Sick Kids hospital. 

Evan Glass, 13, battled through his first two hours of life and mum Danni was told he may never eat, talk or walk. Since birth, he has been fascinating medical experts with his resilience – but it is his dance performances which most often leave people speechless. 

Evan began dancing five years ago through attending classes run by Edinburgh Children’s Hospital Charity’s (ECHC) Arts Programme. Run in partnership with Dance Base, the classes support children receiving treatment at the Royal Hospital for Sick Children with their physiotherapy. Through dance, Evan has completely transformed the way he moves. 

Danni Glass, Evan’s mum, said: “I was given the news that every mum fears after giving birth – I was told that my baby wouldn’t make it. Doctors still can’t believe he is here but he is proving everybody wrong!  

“Since beginning ECHC’s Step Out dance classes, Evan has come on leaps and bounds. His movements used to be quite stiff and robotic but now he moves much more fluidly. His balance has also really improved but where we have seen the biggest changes are in his confidence – it has really helped to bring him out of himself.”

When Evan was offered the opportunity by ECHC to have his dancing made into a piece of artwork for the new Royal Hospital for Children and Young People (RHCYP), he jumped at the chance. 

To create the piece, Evan and Dance Base Instructor Christina Liddell wore sensors on their wrists and ankles which tracked their movements as they danced together. These movements were digitalised and coloured, then transformed into the beautiful piece of artwork that is now displayed for all to see on entering the new children’s hospital.  

Danni said: “Evan is my little miracle. I am so, so proud of everything that he has achieved. He just forgets everything when he dances and loses all of his anxieties – it’s just wonderful to watch. 

“He was so excited to take part in the making of the artwork with Christina and thinks the finished piece is the greatest thing ever. I never realised it would be as big as it is – it’s absolutely amazing! When he first saw it, he was so chuffed and wanted to take photos from every angle. It’s just incredible to think that his artwork is now on display for people to see in the hospital forever.” 

Fiona O’Sullivan, Arts Programme Manager at ECHC, said: “We are all so proud of just how far Evan has come with the help of our partnership with Dance Base. Since starting out, he has danced with Christina at a number of our events and he always steals the show! 
 
“Our Arts Programme doesn’t just provide distraction for children in hospital – it achieves real results that help to improve patients’ health and wellbeing.  
 
“Evan is testament to this and we are thrilled that his artwork is now on display at the RHCYP so visitors can see just how remarkable he is.”

ECHC’s Arts Programme will play a key role at the RHCYP when it opens next year. The charity has funded over £3.1million worth of enhancements at the new hospital to give children and young people a positive hospital experience.

Evan’s artwork is just one of the many beautiful and often interactive art and design pieces that can be seen throughout the new building.

To help support more children, young people and families in hospital and healthcare like Evan and Danni, donations can be made at www.echcharity.org/donate 

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davepickering

Edinburgh reporter and photographer