Tag: Scottish Conference

Call for people living with muscle wasting and weakening conditions to join free charity event

  • Charity invites people across Scotland living with muscle wasting and weakening conditions to join the free in-person event.
  • Muscular Dystrophy UK is hosting the Scottish conference in Stirling.
  • Hear from the charity and experts within the neuromuscular community on how to live well.

Muscular Dystrophy UK is calling on people living with a muscle wasting or weakening condition, their families and carers to join a free in-person event open to everyone across Scotland and beyond.

The Muscular Dystrophy UK’s Scottish conference, taking place on Saturday 23 March 2024, is organised by the leading charity for more than 110,000 children and adults in the UK living with one of over 60 muscle wasting and weakening conditions.

Attendees will hear from the charity about advice and support services on offer and from experts on topics including emotional and mental wellbeing, physiotherapy, occupational therapy, education, self-directed support and from real-life experiences.

Jacqueline Munro, Head of Regional Support, Outreach, and Information at Muscular Dystrophy UK said: “We’re delighted to be able to host the Muscular Dystrophy UK’s Scottish Conference and we look forward to welcoming people from across Scotland.

“It will be a great opportunity to gain useful insights and connect with other people in the muscle wasting and weakening community, to share stories, experiences, tips and advice. Secure your place by signing up now.”

The event will run 9.30am – 5.00pm at Forth Valley College, Stirling Campus, Stirling, FK8 1SE.

Spaces are limited, so sign up today: musculardystrophyuk.org/ScottishConference 

Lunch is included and the venue has a Changing Places toilet facility on site.

The charity will be hosting information stands from other organisations including Scottish Disability Sports, Housing Options Scotland and SDS Forth Valley.

The information day is part of a series of events happening across the UK. Upcoming events will be happening in Cardiff, Wales, on Thursday 18 April 2024, with previous events taken place in England and Northern Ireland.

The charity also hosts a network of local groups, known as Muscle Groups, who meet regularly across the UK in Scotland, England, Wales and Northern Ireland.

Contact Muscular Dystrophy UK with any information days enquiries on  infoday@musculardystrophyuk.org

For more information about Muscular Dystrophy UK visit: musculardystrophyuk.org 

or call our free helpline on 0800 652 6352 (open Mon – Thu 10am – 2pm).

Music Producer doesn’t miss a beat for Muscular Dystrophy UK

  • Scottish music producer is calling on people across Scotland living with muscle wasting and weakening conditions to join the free in-person event.
  • Sanjeev will share his ‘real-life’ experience of living with muscular dystrophy and why he’s supporting Muscular Dystrophy UK.
  • Join Sanjeev and the charity at the Scottish conference in Stirling on Saturday 23 March 2024.

Sanjeev Mann, a Scottish music producer, promotor and activist is calling on the muscle wasting and weakening community to join him at an upcoming charity event.

Sanjeev, aka Supermann on da beat, 27, was diagnosed with Duchenne muscular dystrophy in 2003, aged six. Sanjeev is encouraging other people living with a muscle wasting or weakening condition, their families and carers to join a free in-person event open to everyone across Scotland and beyond.

The Muscular Dystrophy UK Scottish Conference, taking place on Saturday 23 March 2024, is organised by the leading charity for more than 110,000 children and adults in the UK living with one of over 60 muscle wasting and weakening conditions.

Having worked with artists from all over the world, Sanjeev spreads awareness about making the music scene more accessible, and how others with disabilities can follow their creative passions.

Sanjeev, born in Glasgow but now lives in Ayr, said: “Living with Duchenne muscular dystrophy has its ups and downs, but for me it has definitely had more ups. I’m glad I was given this path.

“I can’t imagine my life without my best friends who I’ve met because I have Duchenne. And I probably wouldn’t have started making music if I hadn’t been shielding during the pandemic. I’m proud to be disabled and a disabled artist who shares my music with the world.”

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Sanjeev Mann calling on people across Scotland living with muscle wasting and weakening conditions to join Muscular Dystrophy UK Scottish Conference on 23 March 2024.

Attendees will hear from the charity about advice and support services on offer and from experts on topics including emotional and mental wellbeing, physiotherapy, occupational therapy, education, self-directed support and from Sanjeev about his real-life experiences.

Sanjeev who is looking forward to speaking at the Muscular Dystrophy UK Scottish Conference about how music can help our mental wellbeing continued: “I would like my speech to hopefully give new individuals with muscular dystrophy and their families hope for the future. We can be happy and live our best life. I want people to see that having Duchenne doesn’t mean you can’t have dreams. Anything is possible, and if there’s something you really want to do, go for it. You can always find a way.”

“My biggest inspiration to be a prominent figure in the music scene, is the hope that others with Duchenne will see me and think I could do that too. There is still a huge unconscious bias towards us that means people have low expectations of disabled people. And that can mean we end up having low expectations of ourselves. But I’m challenging that, and I hope others will join me to push change.”

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Photo credit @ Muscular Dystrophy UK

The event will run 9.30am – 5.00pm at Forth Valley College, Stirling Campus, Stirling, FK8 1SE. Spaces are limited, so sign up today: 

musculardystrophyuk.org/ScottishConference. 

Lunch is included and the venue has a Changing Places toilet facility on site.

The information day is part of a series of events happening across the UK. Upcoming events will be happening in Cardiff, Wales, on Thursday 18 April 2024, with previous events taken place in England and Northern Ireland.

The charity also hosts a network of local groups, known as Muscle Groups, who meet regularly across the UK in Scotland, England, Wales and Northern Ireland.

Learn more about Sanjeev’s inspirational story musculardystrophyuk.org/Sanjeevor contact Muscular Dystrophy UK with any information days enquiries on infoday@musculardystrophyuk.org

For more information about Muscular Dystrophy UK visit musculardystrophyuk.org 

or call our free helpline on 0800 652 6352 (open Mon – Thu 10am – 2pm).