Tag: organ donation

Organ Donation: it’s time to talk

A woman who gave her mother a second chance at life by donating her kidney has spoken of the importance of people within black, Asian and other minority ethnic communities discussing organ donation ahead of World Kidney Day (12 March 2020).

Syma Shahzad, 40, who donated to mum Anees Haq in 2008, shared how she was challenged about her decision due to conflicting beliefs and knowledge within her community, and encouraged people to think about what they would want to happen and discuss it with family.

Syma, who works as a pharmacist in Glasgow, added her support to the awareness drive ahead of World Kidney Day, as statistics show the proportion of patients from minority ethnic communities in Scotland on transplant waiting lists has gradually increased over the past two years.

In March 2020, 10.5 per cent of those on the active waiting lists for a transplant from a deceased donor were recorded as being from a minority ethnic group, compared to 9.2 per cent in March 2018.

Statistics show that in the last five years, around half as many families of minority ethnic eligible donors supported organ donation after their loved one’s death, compared with the families of white eligible donors.

People from black and Asian communities are more likely to develop conditions such as high blood pressure, diabetes and certain forms of hepatitis than white people, which increases the likelihood of them needing a transplant1.

A kidney transplant is more successful if the donor and recipient share the same ethnicity.

Worried about the impact of dialysis on her mother’s life after she was diagnosed with chronic kidney disease in 2007, Syma raised the possibility of her donating her kidney.

A healthy person can lead a completely normal life with one kidney, and a kidney from a living donor generally offers the best outcomes for patients living with kidney failure who need a transplant.

Syma said: “From the outset, our consultant at the Glasgow Royal Infirmary was fabulous. He helped us progress everything as quickly as possible so we could make sure the transplant went ahead before my mum had to start dialysis. I had the first tests in March 2008, and successfully donated my kidney to her in the October of that year.

“Being Muslim, there’s a lot of stigma attached to organ donation. I believe I wasn’t doing anything to put myself in danger, I was simply helping give my mother a better quality of life. For me that was the ultimate decider.

“My belief is that whatever your time is destined to be, your time will be; but whatever you can do to improve that quality of life is essential.

“Within our community, there are so many challenges around mindset and conflicting religious knowledge. I was very headstrong and wouldn’t let anyone dissuade me from doing this. With Asian people being at a higher risk of diabetes, and the associated kidney problems, I would love to see more people considering donation.

“I would encourage anyone who’s unsure about their stance on organ donation to sit down and consider what would happen if it was someone in your family who needed a transplant. Having been through it with my mother, if I could I’d do the same for anyone else in that situation.”

From Autumn 2020, the law around organ and tissue donation after death is set to change to an opt-out system.  This means that if people aged 16 and over have not recorded a decision about donation, they will be considered as a possible donor when they die, unless they are in one of the excluded groups.

Jen Lumsdaine, Lead Nurse for Living Donation Scotland said: “Patients from black and minority ethnic backgrounds who need a kidney transplant tend to wait longer due to a shortage of donors.

“As Syma’s story illustrates, living donation can ensure a better outcome for the patient, and dramatically reduce the time a loved one has to spend on dialysis.

“Choosing to donate a kidney remains an exceptional gift, and living donation will continue to be vital part of continuing to improve transplant numbers when opt-out legislation is introduced, so more lives can be saved and transformed.”

To find out more about living donation visit livingdonationscotland.org

Holyrood to debate changes to organ donation legislation

A Bill to introduce a soft opt-out system of organ and tissue donation for deceased donors  will be debated in Parliament today. Members will be asked to agree to the general principles of the Human Tissue (Authorisation) (Scotland) Bill. Continue reading Holyrood to debate changes to organ donation legislation

Holyrood committee backs opt-out organ donation change

The Scottish Parliament’s Health and Sport Committee have expressed their support for a bill which would see Scotland move to an organ donation system with consent to donate presumed unless a person opts out. Continue reading Holyrood committee backs opt-out organ donation change

Halfway there: organ donor registrations hit new high

51.7% of Scotland’s population are now on the register.

More people than ever are signed up to the Organ Donor Register in Scotland, latest figures show. In 2018, there were 148,000 new registrations from people willing to be organ donors.

And the new registrations mean that the total number of people registered in Scotland has risen to a record high of almost 2.8 million – or 51.7% of Scotland’s population.

Meanwhile, in the last year 829 people in Scotland received a transplant. However there are currently more than 550 people in Scotland waiting for an organ transplant which could save or transform their lives.

The Scottish Government is working on a package of measures to further increase the number of potential donors. This includes legislation introduced to the Scottish Parliament to move to a soft opt-out system for organ and tissue donation. A public consultation in 2017 showed 82% of respondents supporting this move.

Public Health Minister Joe FitzPatrick (above) said: “It’s great to have a record number of people on the Organ Donor Register. This increases the chance of a potentially life-saving and life-changing gift for someone this year.

“However, with more than 550 people still waiting for a transplant, I would encourage people to consider making it their New Year’s resolution and join the Organ Donor Register. One donor can save up to nine lives and transform even more by donating tissue.

“Thanks to the generosity of donors and their families and the work of the NHS, we’ve seen great progress on organ donation over the last few years. We are working on a number of measures to increase donor numbers and save the lives of more people in Scotland.

“The move to a soft opt-out scheme aims to further increase the number of donors, while honouring the donation decision that a person has made in life.”

The figures and data below are from NHSBT:

The number of opt-in registrations (148,488) in Scotland between 4 December 2017 and 3 December 2018. The total may increase as registrations are processed.

In 2017/18, 829 people in Scotland received an organ or cornea/sclera transplant.

As of 4 December, 563 people are waiting for a transplant.

On 4 December 2018, there were 2,796,456 people residing in Scotland on the UK Organ Donor Register (area defined by the ONS NHS Postcode Directory). This is 51.7% of the Scottish population. This is based on 5,404,700 of the Scottish population, figure taken from the mid 2016 population estimates from the Office of National Statistics.

The Human Tissue (Authorisation) (Scotland) Bill will change organ and tissue donation from the current ‘opt-in’ system to a soft ‘opt-out’ system. Under the proposed system, if someone has not stated a decision about donation, they may be deemed as having authorised it. This would mean that, in addition to ‘opting in’  donation could also proceed where a person had not opted-out. There would also be safeguards to minimise the risk of a person becoming a donor if they would not have wished to donate.

People in Scotland can register to become an organ donor through the Organ Donation Scotland

Minister of Public Health visits Royal Infirmary Islet Cell Transplant Team

ORGAN DONATION WEEK: 3rd – 9th SEPTEMBER

Public Health Minister Joe FitzPatrick MSP met Kathryn Hand, who underwent islet cell transplantation in December 2016, to mark the start of Organ Donation Week. Continue reading Minister of Public Health visits Royal Infirmary Islet Cell Transplant Team

Organ donation support on the rise in Scotland

Scotland’s organ donor registrations reaches half the population

Half of people in Scotland have registered to donate their organs or tissue after their death, and the country continues to have the highest rate in the UK.

There are more than 2,724,000 Scottish residents registered on the UK Organ Donor Register, or 50.4% of Scotland’s population, and surveys show that around 90% of people support organ donation. Approximately 550 people in Scotland are waiting for an organ transplant, which could save or transform their lives.

The rise in registered donors comes after high-profile annual awareness-raising campaigns. In addition, legislation has recently been introduced to the Scottish Parliament that would move Scotland to a soft opt out system, with appropriate safeguards. Under the proposed system, if someone has not stated a decision about donation after death, they may be deemed as having authorised it.

Health Secretary Jeane Freeman announced the landmark achievement while visiting Queen Elizabeth University Hospital to learn about the work of the hospital’s kidney transplant and dialysis units.

Ms Freeman said: “Just over half of Scotland’s people have registered to donate their organs or tissue after death, reflecting both their incredible generosity and the progress we have made in highlighting the need for organ donors.

“However, we need more people to register. Most organ and tissue donations can only occur in tragic circumstances, and only 1% of people die in circumstances where they could be an organ donor. Registering only takes two minutes and could save or transform someone’s life.

“We have introduced proposals to change the laws around organ and tissue donation to move to a soft opt out system, to build on the significant progress we’ve already made and as part of the long term culture change to encourage people to support donation. However, the most important step people can take now is to make a decision and tell their family and loved ones. In the event of a tragedy, this would make it much easier for them at a very difficult time and ensure your decision is followed.”

Mr Marc Clancy, consultant transplant surgeon at the Queen Elizabeth University Hospital, said: “I have seen the unit grow from a small size performing 60 transplants a year to become the largest in Scotland.

“We are now transplanting 180 organs annually while achieving some of the best success rates in the UK. This is testament to the commitment of our staff and the national drive to expand organ donation.”

 

 

Organ donation: what’s your view?

Proposed legislation which will create an opt-out system for organ donation, that would assume people were in favour of donation unless they have stated otherwise, is currently being examined by the Health and Sport Committee. They have asked people from across Scotland for their view on the proposals. Continue reading Organ donation: what’s your view?

Organ donation: Scotland’s opting in

Scotland will move to a soft opt out system for organ and tissue donation, under legislation introduced to the Scottish Parliament.  The Human Tissue (Authorisation) (Scotland) Bill will change organ and tissue donation from the current ‘opt in’ system to an ‘opt out’ system.

Under the proposed system, if someone has not stated a decision about donation, they may be deemed as having authorised it.

The Bill contains safeguards to ensure people’s wishes regarding donation are followed and that families will be asked about their loved one’s views to ensure donations don’t occur where the person would not have wished it.

The move to an opt out system received 82% support from respondents in a public consultation in 2017. It will add to measures that have contributed towards improvements in organ donation over the last decade in Scotland, which has seen   an 89% increase in the number of deceased organ donors and a 78% increase in organ transplants.

Public Health Minister Aileen Campbell (above) said: “We need to do all we can to further reduce the number of people in Scotland waiting for transplants. We have made significant progress over the past decade, and moving to an opt out system will be part of driving a long term change in attitudes towards organ and tissue donation.

“Organ and tissue donation is an incredible gift. Importantly, under the proposed system, people will still be able to make a choice about donation as they can now and there are safeguards to ensure their wishes are followed. I would encourage people to continue to make a decision about donation and to tell their family.

“Organ donation can only occur in tragic circumstances, and every donor, supported by their family, makes a selfless decision that can save other people’s lives.”

Under the proposed system there will be protections for adults without capacity to understand deemed authorisation, adults resident in Scotland for less than 12 months and children under 16 who will not be subject to deemed authorisation and will only be able to donate if they, or someone on their behalf, explicitly authorises it.

Less than 1% of people die in circumstances that enable organ donation to proceed, as a potential donor usually has to be in an intensive care unit and  there may be medical reasons that mean organs are unsuitable for transplantation.

Since 2008 in Scotland, there has been:

  • An 89% increase in the number of people who donated organs after their death (54 to 102 in 2017/18)
  • A 78% increase in the number of lifesaving transplant operations from deceased donors (211 to 375 in 2017/18
  • A 22% decrease in the number of people on the active transplant waiting list (689 to 534 in 2017/18)