Tag: My Name’5 Doddie FOundation

Doddie digs deep for families living with MND

The My Name’5 Doddie Foundation, founded by rugby legend Doddie Weir, has donated an additional £100,000 to MND Scotland and £200,000 to the MND Association of England Wales and Northern Ireland, to support people living with motor neurone disease (MND). 

Doddie, who first shared his MND diagnosis in June 2017, has pledged to help others living with the rapidly progressing terminal illness, as well as funding for vital research into finding a cure. 

To support families currently affected, the Foundation has committed annnual funding to MND Scotland and the MND Association, since 2018.

The Foundation also made one-off donations to the charities in response to the Covid-19 pandemic, taking its total contributions to MND Scotland and the MND Association to £380,000 and £670,000, respectively.  

The new funds will be used by both charities to help families across the UK cover some of the financial burden that comes with a diagnosis of MND, through their grant programmes. 

These programmes aim to help reduce some of the extra costs that come with living with MND. The grants can be used in various ways, for instance; to help with costs towards home adaptations, such as ramps and stairlifts, for specialist equipment to live life more independently, and for respite activities for carers and families. 

Jill Douglas, CEO of the My Name’5 Doddie Foundation, said: “We are delighted to continue and further strengthen our relationships with MND Scotland and MND Association by working with both these charities to support people living with motor neuron disease. 

“This commitment, by Doddie and the Foundation, to help patients and their families, is one of our main strategic goals and we look forward to sharing our plans for the future in the coming months. 

“Our ability to offer grants to families, through the existing frontline care charities, is only possible through the amazing contribution of our fundraisers and supporters and we’d like to thank everyone who has helped and supported us, you inspire us every day!” 

Adrian Murphy, MND Scotland’s Chair, said: “I’d like to thank the Foundation for its ongoing support of our grants programme which allows us to provide essential support to the families affected by this devastating disease.  

“Since his own diagnosis, Doddie has raised an incredible amount of awareness by sharing his personal journey with MND, and through his Foundation has raised vital funds to support the cause. By continuing to work together we can help make life a little easier for people living with MND right now.”  

Sally Light, Chief Executive of the MND Association for England, Wales and Northern Ireland, said: “We are really pleased and grateful that Doddie is channelling money raised by his Foundation in the last year into our care grants programme once again, ensuring it goes directly to people affected by MND who desperately need it.

“We have a long-standing and comprehensive programme which we know makes such a difference and support like Doddie’s and that of his Foundation’s supporters is vital to us continuing with that.” 

For more information visit: 

www.mndscotland.org.uk, www.mndassociation.org and www.myname5doddie.co.uk.  

Doddie’s coronavirus cash donation

The Foundation set up by former Scotland rugby player Doddie Weir has donated £30,000 to support MND Scotland during the current Coronavirus (COVID-19) pandemic.

The money is on top of the £250,000 the My Name’5 Doddie Foundation has already contributed to MND Scotland’s grants programme.

Doddie, who revealed his MND diagnosis in June 2017, set up the Foundation to help others with the rapidly progressing terminal illness and fund research towards a cure.

The My Name’5 Doddie Foundation has now stepped up its support during the current crisis by pledging a further £30,000 to MND Scotland for Coronavirus response work. The Foundation has also donated £70,000 to the MND Association of England, Wales and Northern Ireland to help support families across the UK during the pandemic. 

Doddie said: “Having MND puts people in the high risk category of Coronavirus because our respiratory systems are already compromised. That means right now is a very worrying time for us.

“I am determined to do as much as I can to help alleviate some of those concerns. The money will be used by the MND Association in England, Wales and Northern Ireland and by MND Scotland to shore up the support they are offering people with MND at this time.”

Craig Stockton, chief executive of MND Scotland, said: “People with MND are among the most vulnerable in our society and during this very uncertain time, they need us more than ever.

“We are working tirelessly to develop and change the ways in which we support families affected by MND in Scotland, and this boost from Doddie’s foundation will help us stay connected to people when they need us most.”

Sally Light is the chief executive of the MND Association. She said: “We are working really hard to ensure our vital work supporting people with MND continues during the current crisis, while also seeing a dramatic fall in our income following the postponement of so many key events in our fundraising calender.

“We are so grateful to Doddie for this donation which will enable us to continue and step up our support of people living with MND at this very worrying time.”

Doddie’s Big Boost for MND

Rugby legend Doddie Weir continues support for families living with motor neurone disease, with additional funding to charities MND Scotland and the MND Association of England, Wales and Northern Ireland.

More than 1,000 people affected by motor neurone disease (MND) have been directly helped by grants funded by the Foundation set up by rugby legend Doddie Weir, who himself has the terminal illness.

That support is set to continue with the My Name’5 Doddie Foundation pledging another year of support to MND Scotland and MND Association’s care grants programmes.

The announcement marks the start of a third year of support from the Foundation set up by the former British and Irish Lion and Scottish international. While much of the money raised by the Foundation is directed into research, a significant amount is pledged to directly help people who are living with the disease via the MND Association and MND Scotland.

Doddie’s Foundation has upped its donation to MND Scotland by £100,000 taking the total contribution to £250,000. The Foundation has also donated £400,000 in total to the MND Association.

People affected by MND in Scotland can apply to MND Scotland for care grants to help with the cost of home adaptations – for instance ramps and stairlifts, equipment such as specialist bathroom facilities and riser recliner chairs, and for respite activities for carers and families. The equivalent is available from the MND Association for those living in England, Wales and Northern Ireland.

MND Scotland helped 250 people affected by MND in 2019, through the charity’s grants programme, awarding almost £300,000 to families in Scotland. The MND Association’s care grants programme totals more than £1million annually for the rest of UK and, in 2019, helped 1,425 people.

Doddie said: “We are delighted to know that we have been able to help so many families over the last two years. There are many challenges to living with MND and it has been my aim to help people in a similar situation to myself live as full a life as possible.

“The grant schemes are vital and we are only able to help in this way thanks to the amazing support we receive from our fundraisers and friends every day.” 

Craig Stockton, MND Scotland’s chief executive, said: “The support from the My Name’5 Doddie Foundation is helping us provide vital support to even more families across the country, when they need it the most.

“I’d like to thank Doddie and his foundation for their generosity, and commitment to improving the lives of those affected. Through our grants programme we are able to remove some of the additional stress that financial worries can cause, and allow people to concentrate on living their lives.”

The MND Association’s chief executive Sally Light said: “We are so grateful for Doddie’s continuing support of the MND Association and his determination to make life better for people like himself who have received this devastating diagnosis.

“The generous donations from the Foundation and continued partnership with us will make a real difference to those living with MND as well as their carers and loved ones.” 

Jill Douglas is the chief executive of My Name’5 Doddie Foundation. She said: “One of our key aims is to give support to families living with MND and we recognise that the MND Association and MND Scotland have the necessary expertise and experience to administer these vital grants on our behalf.

“They are successful partnerships and we very much appreciate the relationships and how they enable us to fulfil this important goal.” 

For more information about MND and the grants available visit www.mndassociation.org/grants or www.mndscotland.org.uk/grants.