Grieving mum calls on medical professionals to listen to parents

A HEARTBROKEN MUM who lost her young son to meningitis is appealing to parents to trust their instincts and for medical professionals to listen to their concerns. 

Georgie Hall and her husband Bryan, from Wrentham in Suffolk, endured the agony of losing their son Ollie, 6, to meningitis in October 2017.

Speaking at the annual Christmas concert of patient support charity Meningitis Now at Gloucester Cathedral earlier this week, Georgie said: “There are a few things I would like to tell every parent out there in the hope they never have to experience the pain that we are. 

“Firstly, trust your instincts. You know your child better than anyone. The experts at the inquest into Ollie’s death all agreed that doctors should listen to the parents and parental views should weigh heavily in the medical assessment of the child.

“The hardest part of the inquest was hearing that Ollie could have been saved if he had been treated sooner.

“My greatest regrets are allowing the paramedics and GPs to ignore my concerns and trusting them instead of my instincts. I’m so sorry my darling Ollie.”

The couple are also calling for parents to ensure their children are vaccinated against the disease.

“The second thing is to have your child vaccinated. MenB has a vaccine. It’s not available to everyone so check with your GP whether your child is covered. If they aren’t, the MenB vaccine can be bought in many High Street pharmacies.” 

Ollie had been too old to get the MenB vaccination from the NHS when it was first introduced to the schedule in 2015, following campaigning by Meningitis Now, and his parents were unaware it was available privately.

He became ill on 23 October 2017 and as his condition worsened his concerned parents called 111, rather than wait for an appointment with their local GP. An ambulance was called but paramedics dismissed meningitis, as did doctors at a local surgery where Ollie was taken.

“The four medical professionals discussed Ollie among themselves almost to the point of ignoring anything I wanted to say,” Georgie said. 

They concluded that Ollie had a viral infection and he was sent home to rest.

“My instincts were telling me they were wrong but I felt I could not argue”, Georgie added.

As Ollie’s condition continued to deteriorate and a rash began to develop he was taken back to the surgery and an emergency ambulance was called, only to find none was available. He was driven to hospital by his parents, but it was too late and he died the next morning.

An inquest into his death in June this year concluded there had been a ‘gross failure’ to provide basic medical treatment and the Suffolk coroner called for urgent improvements to prevent further deaths.

Ollie’s parents had earlier told the week-long inquest that they felt they had been made to feel like ‘over-sensitive parents, who didn’t know what we were talking about.’

The family was represented at the inquest by Shoosmiths, the major law firm noted for its expertise in medical negligence cases. Shoosmiths is working with the family to campaign for medical professionals to listen more to parents’ concerns.

Michael Burrell, Senior Associate with the firm, said: “Parents know their child better than anyone, especially if that child is poorly or off colour.

“It is surprising, given Ollie’s symptoms and that Georgie repeatedly raised the possibility of meningitis with the medical professionals, that her concerns were seemingly disregarded so readily without the simple tests which could have reassured Georgie or led to a lifesaving diagnosis having been undertaken.

“We are hopeful that the evidence obtained as part of the coronial process will help ensure lessons are learned so that no other family has to go through what Georgie and Bryan have experienced.”

Georgie added: “It was shocking how fast the disease took over Ollie’s body. In less than 24 hours from showing his first sign of being ill he had died. 

“Nothing can prepare you for that as a parent, no one expects to see their child die, it just doesn’t make sense. How could my happy, healthy 6-year-old boy be here one minute and gone the next?

“Ollie was up to date with all his routine childhood vaccinations. Then, a few days later we found out that it was MenB and the vaccine for this strain wasn’t available to babies back in 2011 when Ollie was born.

“As if our hearts weren’t broken enough, we then discovered that we could have purchased the vaccine privately.

“The laboratory results confirmed that Ollie would have been protected by the vaccine. My heart was shattered.”

Meningitis Now Chief Executive Dr Tom Nutt said: “Ollie’s parents Georgie and Bryan did everything right. They noticed his symptoms. They sought help. It is an absolute tragedy that they could not prevent the death of their son.

“This case highlights the need for parents to know the signs and symptoms of the disease and that, like Georgie, they should trust their instincts and seek medical help as quickly as possible.

“We urge all parents to check too if their child has received this vaccination and if not to do so as soon as possible.”

Meningitis Now is working towards a future where no one in the UK loses their life to meningitis and everyone affected gets the support they need.

It does this by funding research into vaccines and prevention, raising awareness so people know what to look for and what action to take if they suspect meningitis and rebuilding futures by providing dedicated support to people living with the impact of the disease.

Visit the website at www.MeningitisNow.org to find out more, learn the signs and symptoms and donate.

New meningitis vaccination programme begins today

MenACWY programme gets underway in Scotland

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The MenACWY vaccine is introduced for 14-18 year olds from today, and young people are being urged to make sure they’re protected.

Earlier this year it was announced that in response to a rise in the number of cases of meningitis W, and based on advice from the Joint Committee for Vaccination and Immunisation, a MenACWY vaccine would be introduced to replace the MenC vaccine used in the adolescents and freshers vaccination programmes.

The vaccine will be offered to students under the age of 25 attending university for the first time this Autumn, along with a catch-up programme for all 14 to 18 year olds.

Those planning to go to university are urged to make an appointment at least two weeks before they go or, failing that, during Freshers’ week.

From this week, older teenagers will start receiving an invitation letter and information leaflet, asking those who have left school to get the vaccine at their GP practice as soon as possible.

Young people returning to school in August will receive their vaccine in school during the coming academic year.

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Health Secretary Shona Robison said: “The launch of the MenW vaccine prevention programme for teenagers is great news. This vaccine also protects against MenA, MenC and MenY, making sure young people are protected at such an important time in their academic lives.

“I would urge everyone who is eligible for the vaccine to make an appointment with their GP, or if they’re still at school to take up the offer of the catch-up programme there. They might be busy preparing to leave for university, working or enjoying their summer break, but a short appointment really could make an enormous difference to their future health.”

CEO at Meningitis Now, Sue Davie said: “As a charity dealing with the consequences of the disease on a daily basis I would plead directly to parents across Scotland to make sure that their children get the Men ACWY vaccination. We are particularly concerned with those going to university in the autumn as they are at a higher risk from what has been called ‘freshers’ flu’.

“It is critical that young people are not complacent about the disease and they take the necessary steps to protect themselves, stay vigilant and seek urgent medical help if they suspect it. This is a cruel disease, it does not discriminate and could significantly alter the future outlook for young people if they are not protected or meningitis aware”.

Meningitis Research Foundation Scotland Manager Mary Millar said: “Adolescents aged between 14 and 18 are more likely to carry meningococcal bacteria than any other age group and offering the ACWY vaccine to all of them should stop the bacteria from being passed on. This means that even unvaccinated people will be protected from catching the disease – an effect known as herd protection.

“Although we welcome the implementation of the ACWY vaccine amongst 14-18 year olds over the next couple of years, it will take time for herd protection to be established so babies (who are particularly vulnerable to developing disease) will remain unprotected. Fortunately, the MenB vaccine Bexsero, which will be routinely available for babies from September, also protects against this ST-11 MenW strain.”

21-year-old Sally Bound from Inverness contracted meningococcal meningitis while away from home at university. She said: “I was in my third of four years at uni and I was working late to meet a course deadline. I remember my housemate leaving for her boyfriend’s house at 8pm at which stage I started feeling really tired, achy and a bit nauseous – earlier in the week I had met a friend, who was recovering from flu for a drink so I was hoping I hadn’t caught his flu.

“I also wondered if it might be food poisoning but as I knew nothing about meningitis, other than seeing photos in doctor’s waiting rooms, it never crossed my mind it could be that – especially as I thought it was only young children who contracted meningitis.

“I went to bed about midnight feeling very sick and by 3am I was starting to get really worried that I was not very well, my arms and legs had gone very heavy and I felt as though I had a temperature. I rang my mum who was at home in Scotland, she suggested I called an ambulance but living on one of the most popular streets for students and having previously been called a bit of a drama queen I refused, too embarrassed I was causing a scene over the flu.

“Very quickly after that the sickness became worse and my head and neck began to ache. I contacted NHS direct and as instructed by them, I checked myself for a rash but didn’t find anything.

“However, I realised I needed to go to hospital and that being called a drama queen really was not that bad compared to how I was feeling.

“I have very little memory from there on but woke from a coma a day later so grateful to hear that I would be okay and discovering how lucky I had been as a couple of more hours without treatment could have made the outcome very different. After a few weeks I made a full recovery but I know that many university students have sadly not been so lucky.”

Meningitis B vaccinations from 1 September

Meningitis B jag to be offered to all babies

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The meningitis B vaccine will be introduced to the routine childhood vaccination programme in Scotland from 1 September, the Scottish Government has announced. 

The vaccination will offer protection against the life-threatening strain of meningitis to all infants. The scheme, which was delayed by cost disputes, is the first national and publicly-funded programme against the deadly infection in the world.

The vaccination will be given in three doses at two, four and 12 months, with all infants in Scotland who are aged two months when the vaccine is introduced being eligible. The Joint Committee on Vaccination and Immunisation (JCVI) has also advised that when the programme starts there should be a one-off, catch-up programme for infants aged three and four months of age who will be attending for their routine vaccinations.

Additionally, in response to an increase in the number of cases of meningitis W, and based on advice from the Joint Committee for Vaccination and Immunisation, a MenACWY vaccine will be introduced to replace the MenC vaccine used in the adolescents and freshers vaccination programmes.

From 1 August that vaccine will be offered to students under the age of 25 attending university for the first time this Autumn, along with a catch-up programme for all 14 to 18 year olds.

Health Secretary Shona Robison said: “These two new vaccination programmes will offer families in Scotland extra peace of mind.

“We’re delighted to be one of the first countries in the world to introduce a nationwide MenB vaccination programme to help tackle the effects of this disease, which can be devastating for children and their families.

“The Scottish Government has been consistent in its support for the introduction of this vaccine and today’s announcement underlines our commitment to ensuring the health and wellbeing of our children.

“Around 1,200 people – mainly babies and children – get meningitis B each year in the UK, and around one in 10 die from the infection.

“I am also very pleased to see the expedited launch of the MenW vaccine prevention programme for teenagers. This vaccine also protects against MenA, MenC and MenY, making sure young people are protected at such an important time in their academic lives.”

Chief Executive of Meningitis Now, Sue Davie said: “We’re delighted to see these vaccination programmes moving forward and offering protection to new babies and young people across Scotland. Today’s announcement is a tribute to the tireless and selfless efforts of our supporters, for many of whom sadly these vaccines come too late. We are ready to support the introductions in any way we can.”

Scotland Manager of Meningitis Research Foundation, Mary Millar said: “On behalf of our Scottish members of Meningitis Research Foundation who have been affected by this deadly disease, we are delighted to welcome the MenB vaccine for babies and MenACWY vaccine for teenagers and students. These two programmes are the culmination of years of research which will spare countless families the trauma of seeing a loved one die or left seriously disabled by meningitis and septicaemia.”

One mum remembers all too well the horror of her baby contracting meningitis, and Gemma Lessells from Inverkeithing has welcomed the announcement of the immunisation programme.

She said: “My son Matthew contracted meningitis B in 2010 when he was 13 months old. He was quiet and had a temperature at 4pm. He started being sick at 6 pm and by 10 pm he was in hospital fighting for his life. He had cannulas everywhere, they were taking his blood pressure every 15 minutes. His heart rate was 210 and his temperature on admission was 40.9.

“We were incredibly lucky – Matthew survived, though has delayed expressive speech and suffered night terrors following his hospital stay. We are also in the process of discussing possible behavioural side effects with his Health Visitor, but other than that we have a gorgeous healthy happy boy with a laugh that lights up a room.

“I would not want any parent or child to go through what we did, and welcome news of the implementation of these two new vaccines in Scotland.”