Tag: liver disease

Liver disease diagnosis in Scotland ‘is a postcode lottery’

New research published today in a leading GP journal shows that large parts of Scotland do not have an effective way of identifying people with liver disease, resulting in late diagnosis.

The research, produced from a survey undertaken by the British Liver Trust, used a Freedom of Information request, and shows for the first time how many areas across the country have little or no formal structures in place for detecting and managing liver disease and liver cancer.

The mapped survey results (see below) also show huge swathes of the UK (marked in red) do not have any effective patient pathway in place. This is in sharp contrast to other chronic conditions such as diabetes and heart disease, where patients receive standardised care.

Figure 1 Areas in red have no pathway in place. Amber denotes areas with a partial pathway or pathway in development. Green areas have a full pathway in place. Areas in black did not respond.

Three quarters of people in the UK are currently diagnosed when it is too late for effective intervention or treatment and one in four people diagnosed late in hospital sadly die within a couple of months.

The charity is now calling for earlier detection of liver disease and better patient care across all regions of the UK to be prioritized, and is working to influence healthcare commissioners.

Dr Helen Jarvis, Clinical Advisor for the British Liver Trust and lead author of the research, says: “Anyone who has liver disease, or is at risk of getting it, should get the medical care and advice they need no matter where in the country they live. 

“The publication of this new data shows that, unfortunately, in the UK this is not yet the case. There are pockets of good practice, but there are also many areas that do not have a consistent approach to testing for and diagnosing liver disease. It shouldn’t be a postcode lottery.

“GPs and other healthcare professionals in primary care are doing a fantastic job under a lot of pressure, but in many areas, they’re working within a system that doesn’t allow them to detect and treat liver disease effectively. 

“Unfortunately, many GPs also report a lack confidence and knowledge when it comes to managing the condition. Sadly, this means that in many cases, people with liver disease are diagnosed far too late when treatment options are limited. This had led to thousands of avoidable deaths.

“The liver is an incredibly resilient organ, but only up to a point. Symptoms of liver disease often only appear once damage has progressed and the liver is starting to fail. However, 90% of liver disease is preventable and, in many cases, it’s reversable if caught in time. That’s why early detection and prevention are key.”

Pamela Healy OBE, Chief Executive of the British Liver Trust, said: “Shockingly, deaths due to liver disease have more than doubled in the last 20 years and the condition is expected to overtake heart disease as the biggest cause of premature death in the UK in the next few years.

“Obesity, alcohol and viral hepatitis are the three main risk factors for preventable liver disease.

“We need to take urgent action to stop this silent killer in its tracks. Although the results of our research are very concerning, we do know that there are areas of good practice and that the changes we’re calling for are entirely possible and will save many lives. 

“We now need to take what’s working well in those areas with good liver patient care and apply them in others so that every person with liver disease gets the best possible care, no matter where in the UK they live.”

Over a quarter of people with liver disease say they were diagnosed too late, survey reveals

Over a quarter of people with liver disease in Scotland say they were diagnosed too late, survey reveals

26% of people with liver disease in Scotland said they were diagnosed late, by which time there were very few treatment options and the disease had progressed, a survey carried out by leading liver charity, the British Liver Trust, reveals.

The largest ever UK survey of over 2,000 liver patients also showed that in the region:

·         18% of people said their condition was dismissed as nothing to worry about when they were first seen by a medical professional.

·         15% of patients were very unsatisfied with the medical care they had received.

·         Over half of liver disease patients had no signs or symptoms of a liver problem before diagnosis.

The survey also shows that in the UK:

·         A third of patients were diagnosed after being tested for another condition

·         Tiredness, abdominal pain and itching were the most common symptoms experienced by half of respondents

·          More than half felt they were given not enough or no information upon diagnosis

·         22% of patients waited more than six months before being referred to a specialist

Experts are warning that late diagnosis of liver disease is causing a liver disease crisis across the UK, denying many of these people the chance of getting the best possible treatment.  Evidence shows the earlier a patient is diagnosed, the greater their chance of survival.

Professor Stephen Ryder, Consultant at Nottingham University NHS Trust said: “We need to be diagnosing people with liver disease at a much earlier stage in primary care. We have equipped GPs with a very poor test for diagnosing liver disease – Liver Function Tests (liver enzymes).

“Repeat testing of liver enzymes just wastes NHS money and does not provide early diagnosis. We now have excellent tests for liver scarring, the process which matters in the liver, and those tests should now be universal in primary care.”

Over 14,000 people will die from liver disease this year – more than 40 people a day.  It is the third biggest cause of premature mortality and it’s the only major disease increasing year on year.

Pamela Healy, Chief Executive, British Liver Trust said, “The UK is facing a liver disease crisis.  Liver problems often develop silently as patients do not tend to experience symptoms until the disease has progressed.  This survey highlights the shocking number of people who are diagnosed late and who do not feel they are receiving the care they need.

“The survey also highlights the need to help people understand how to reduce their risk of liver damage to address the increase in deaths from liver disease. Although the liver is remarkably resilient, if left too late damage is often irreversible.”

The British Liver Trust is the largest UK charity for all adults with liver disease. Their national awareness campaign, Love Your Liver, aims to raise awareness of the risk factors for liver disease and includes a roadshow that stops in locations across the UK offering free liver screening and scanning.

The Love Your Liver campaign focuses on three simple steps to Love Your Liver back to health:

·         Drink within recommended limits and have three consecutive days off alcohol every week

·         Maintain a healthy weight by eating well and taking more exercise

·         Know the risk factors for viral hepatitis and get tested or vaccinated if at risk

To find out if you are at risk visit www.britishlivertrust.org.uk/screener