Tragic choice two thirds of “forgotten disabled people” have been forced to make during pandemic
· For ten months UK Government has refused emergency funding to over 2.2 million people on legacy benefits to support them through the COVID-19 crisis
· New evidence sent to Chancellor Rishi Sunak shows disabled people now facing immense hardship
· Coalition of over 100 organisations working with disabled people fear ‘terrible consequences’ if Government fails to announce financial support for legacy benefits claimants in March Budget
Denying disabled people on legacy benefits, including Employment and Support Allowance (ESA) and Jobseeker’s Allowance, financial help to survive the COVID-19 crisis has left growing numbers unable to pay for rent, food and heating, new research shows.
The Disability Benefits Consortium (DBC), a network of over 100 organisations including the MS Society, Z2K, Disability Rights UK and Inclusion London, asked 1,126 legacy benefits claimants what difficulties they have been facing since the start of the pandemic.
The findings – which are included in the ‘Pandemic Poverty: Stark choices facing disabled people on legacy benefits’ report – reveal:
· The majority (82%) said they had spent more than they normally would – due to greater food shopping and utility bills, as well as having to pay for taxis to attend essential appointments – since the COVID-19 crisis began.
· Two thirds (66%) said they had to go without essentials like food, heating or medication as a result of increased costs since the pandemic started.
· Nearly half (44%) said they had fallen behind on financial commitments like rent, mortgage payments, or household bills.
The devastating impact shown in the report comes ten months after over 2.2 million people on legacy benefits were originally refused a £20 per week lifeline to support them through the pandemic – something people on Universal Credit have been getting since last March. The Universal Credit uplift will expire in April and no announcement has been made on whether it will be extended.
Excuses as to why legacy benefit claimants have been left behind include ‘technical difficulties’ and ‘they are getting a 37p annual increase from April’. The latest is that people on legacy benefits have the option to switch to Universal Credit, ignoring the fact that wider adjustments could leave people worse off, as well as serious flaws in the assessment and monitoring process of Universal Credit.2
Deborah, 53, from Cleckheaton in West Yorkshire lives with fibromyalgia. She cares for her partner, Steve, who has a congenital heart condition, and has just been diagnosed with diabetes. The couple rely on Deborah’s overdraft to pay for their food deliveries and heating, but now she is £800 overdrawn and having to make the choice between the two.
She says: “Being overdrawn makes me really stressed out because I’m thinking ‘how am I going to get this all back down?’ We’re already having to cut back on things like food, but the worst is not being able to have the heating on.
“We both feel like we’re undervalued…as if we don’t matter to the Government, whereas people on Universal Credit are better looked after. That extra £20 would be a godsend, and would mean we could put the money towards things we desperately need.”
David Allen, 62, was diagnosed with primary progressive multiple sclerosis (MS) in 1996 and lives alone in Luton. He has been receiving legacy benefits for over 10 years. David was bedbound with COVID-19 in March, and, as he is clinically vulnerable, has no choice but to have food delivered.
He says: “My shopping bill usually comes to £20 to 35 per week, but as I don’t feel safe going to the supermarket I’m having to rely on deliveries. The minimum order is £25, but if your order is less than £40 you get hit with by a delivery charge. On top of this, a tremor caused by my MS means it’s dangerous for me to use a knife or carry pans with hot water in, so I have to buy ready meals and prepared vegetables that I can put in the microware. These all come at a premium.
“I’m constantly worrying about other costs – I find myself sitting in the dark more than I should so as not to turn the lights on for too long, as well as only switching the TV on when I’m watching a programme. I live on my own so it’s hard not to think your world is closing in around you. The harsh reality is that the pandemic has meant our bills are going up quicker than our income, and there’s just nowhere to go to make up for that. It’s meant we feel abandoned and left to sink.”
Over 120,000 people have signed the ‘Don’t Leave Disabled People Behind’ petition, and 98% of MPs in the UK have heard from their constituents about the issue.
In addition, The Work and Pensions Select Committee, Social Security Advisory Committee, MPs from all parties, countless other charities and coalitions, the Lords Economic Affairs Committee and, most recently, the APPG on Poverty have all supported the DBC’s call to immediately give all out of work benefits the same COVID-19 emergency £20 increase that Universal Credit has seen.
Anastasia Berry, Policy Manager at the MS Society and Policy Co-Chair of the DBC, says: “An unforgivable number of disabled people have been put in danger of falling into poverty because of the extra costs of the pandemic – and the Government continues to ignore them.
“For nearly a year over 2.2 million people on legacy benefits have been given little more than a promise from the Prime Minister that he would “wrap his arms around the country” – but platitudes don’t keep people warm. Many have been forced to make awful choices to help them survive – from choosing between heating and eating to racking up debt to pay for rent.
“We have heard every excuse for why disabled people are being discriminated against, but the latest – that they can ‘move to Universal Credit’ – is the most misleading yet. The Government’s disregard of the facts could result in people being even worse off financially. The upcoming budget is a chance for the Chancellor to finally show the forgotten disabled people they matter, and they’re as important as those in receipt of Universal Credit. Without the £20 lifeline more people will be pushed into poverty and face terrible consequences.”
Ella Abraham, Z2K’s Policy and Campaigns Officer and Campaigns Co-Chair of the DBC, says: “2.2 million people on legacy benefits, the majority of whom are disabled, have now been excluded from the £20 per week financial lifeline for 10 months. The Chancellor’s inaction on this has created a two-tier discriminatory welfare state which has pushed a huge number of people into poverty.
“Forcing people onto Universal Credit where many will not be better off isn’t a solution, what we need is a social security system that ensures people are not having to survive on the bare minimum but have the income they need to live a stable and dignified life. The Government must increase legacy benefits now.”
DBC’s letter to Rishi Sunak:
Dear Mr Sunak,
Re: Increase Disability Benefits campaign reaches over 119,000 signatures.
You will no doubt remember that we wrote to you back in June. Then, as now, we called on you to give parity to disabled people claiming legacy benefits, such as Employment and Support Allowance, Job Seekers Allowance and Income Support by extending the £20 uplift afforded to those claiming Universal Credit since Spring.
Since we last wrote, thousands more have signed our petition urging you to do justice to those on legacy benefits by extending the uplift. And today, in anticipation of your Spending Review announcement, we deliver these tens of thousands of calls to action to you.
Just as you no doubt do, those who have signed our petition recognise that disability costs. People living with a disability and those with long-term health conditions tend to have lower real incomes and higher costs than the general population. This has been compounded during the pandemic, with many disabled people facing extra costs. Costs such as paying for taxis, to avoid the risk of public transport; paying for supermarket deliveries to avoid the risk of going to shops; paying for higher call and data charges to avoid loneliness and isolation.
Both the Social Security Advisory Committee and the Work and Pensions Select Committee as well as a number of MPs have called for the uplift to be introduced. The Secretary of State cited the inability of the IT systems as a reason not to implement an immediate change. However, with the Spending Review imminent where the benefit rates will be decided, this is your opportunity to do the right thing.
We believe that it cannot be the deliberate intent of Government to abandon some of the most severely and chronically disadvantaged citizens to heightened financial struggle in the midst of the destabilising, frightening and isolating experience of living with disability in the context of a global pandemic. With no immediate end in sight to this pandemic, it is only fair and reasonable to provide the same boost to those on Job Seekers Allowance, Employment and Support Allowance or Income Support as has been provided to those claiming Universal Credit.
Disabled people are likely to feel the impact of this crisis for a long time to come. Please don’t leave them behind!
Should you have any questions please contact me at matthew.harrison@mencap.org.uk.
Yours sincerely,
Matt Harrison
On behalf of the DBC Steering Group (Parliamentary Co-chair, Disability Benefits Consortium)