Being everything you can be

Support for children with disabilities

Education, Children and Families Vice Convener Cllr Alison Dickie writes about support for children with disabilities:

Being everything you can be.

It’s a grand line, and actually one of the aims of our new children’s services plan.  In true Council style though, there are more words: ‘It is important to promote and support every child’s aspirations to ensure they can become everything they can be, now and in the future.’

Yip, that all sounds hunky dory but I’m wondering … does that truly include children with disabilities, particularly those with the most complex needs?

Let’s put it this way.  Have you ever watched a parent’s eyes well up as they plead for their young person to be given a purpose to get out of bed every morning?  Or for recognition of their worth, and their ability to contribute to society in some way? 

Or, as fears replace tears, hear them voice their deepest dread …what will happen to them when I am gone?

I have and it’s heart-breaking.

Despite the wide range of dedicated work going on across Edinburgh to deliver for children with disabilities and their families, parents have shared that it can sometimes feel that they’ve had to fight for the right of their child to be everything they can be.

I first questioned the message we send out to young people with disabilities whilst on a tour of St Crispin’s school in my ward.  I was appalled at its condition, its failure to reflect the fantastic work of the staff and pupils within, and the story of our value of them.  Thankfully, a new chapter has been written and they will, this year, move into their wonderful and much deserved new school at Burdiehouse.

How do you solve a ‘problem’ like … the holiday support programme? 

I’m asked this every year, and the education committee discussed it just last week.  In the past, it’s been cited as a non-statutory service, even a luxury not afforded by other Councils.  But, listen to the stories of families at breaking point, who cry out for this need, and you’re convinced this is vital respite for the whole family and to help young people thrive.

So, whilst there are big issues to be addressed, such as safety and staffing, we aim to return to the pre-covid provision in the summer, and through engagement with parents, look to how we can further improve this service.

And what of those positive destinations…more so, the lack of them, for young adults with the most complex needs? 

Here, communication about what is available, earlier and stronger transitional support, an understanding that one size doesn’t fit all, and a more flexible and collaborative approach are all being considered as we explore with parents how to grow these opportunities and give every young person a future. 

Some of this will have budgetary implications, and some the need for more innovative thinking, but one thing’s for sure…every young person has strengths, interests and potential to use in their unique way.

Lockdown has been difficult for everyone, but it’s been particularly challenging for these children and their families. As part of the recovery process, let’s push for progress and help all young people to be what they can be.

This article first appeared in the Edinburgh Evening News