- Art enthusiast Alexandra Gardyne is the subject of exceptional pieces by well-known Scottish artist Damian Callan, which will be displayed at the fundraiser at the Scottish National Portrait Gallery
- Alexandra lives with Facioscapulohumeral muscular dystrophy, a condition that gradually weakens the muscles, and wants to change the perceptions that others may have when they see someone with muscular dystrophy
- Visitors can expect to view and purchase unique pieces reflecting many artists’ perception of muscular dystrophy and a full range of the artists’ own portfolio of work
- Artists include: Damian Callan, Jennifer Illustrated Lab, Ritchie Collins, Eleanor Cunningham, David Schofield, Lucy Campbell. Photographer Maxine Ragni
Alexandra is hosting the fundraiser to raise money for Muscular Dystrophy UK
Art enthusiast Alexandra Gardyne, who lives with Facioscapulohumeral muscular dystrophy, is the subject of exceptional work by Damian Callan, one of Scotland’s well-known artists.
The work will be shown as part of a one-off exhibition on the evening of 21 May she has organised at the Scottish Portrait Gallery to fundraise for Muscular Dystrophy UK.
The evening will begin at the Scottish National Portrait Gallery’s Grand Hall. Drinks will be available from the Heritage Portfolio Company while visitors can meet Alexandra and attending artists.
Damian, a figurative artist whose work reflects that of Degas and Renoir, said he found an extraordinary determination in the way Alexandra deals with the challenges of her condition.
“For many years I have worked on depicting the characteristic movements of sports figures and dancers. Alexandra asked if I would consider working with her with a view to capturing the particular ways in which she moves and thus possibly offering an insight into the experience of living with muscular dystrophy.
“Through a process of drawing her in the studio and photographing her walking in the Botanic Gardens, I began with a series of charcoal and pastel studies and developed these into paintings. I have attempted to produce positive and uplifting images that recognise an extraordinary dignity and determination in the way Alexandra deals with the challenges of this condition.”
Register to attend the event: https://www.eventbrite.co.uk/e/perceptions-life-with-muscular-dystrophy-tickets-221911462157
Get to know Alexandra and view some of the artwork: Instagram.com/ali.artspoken
Alexandra – a 35-year-old mum from Edinburgh – said: “This is a fantastic opportunity to raise awareness and educate about muscular dystrophy through art. I am delighted that so many artists have jumped on board.
“There will be a good range of pieces, with and without attachment to muscular dystrophy, so the mix is eclectic enough to suit people’s style and pockets.
“I have always found art stimulating and exciting, and enjoyed galleries and local shows. I used to do a lot of arts and environmental workshops in my 20s. I love creating space for other people’s creativity to flourish and be appreciated.”
Alexandra was diagnosed with Facioscapulohumeral muscular dystrophy when she was 22. “I was symptomatic since toddlerhood but only diagnosed in my twenties when I could no longer run, kept tripping on the stairs and always feeling exhausted.
“I find it very hard to live with my condition but I am passionate about connecting with people and making things happen. I am trying to change the perceptions that others may have when they see someone with muscular dystrophy.”
Ritchie said: “When I met Alexandra and she told me about the Muscular Dystrophy UK charity, I thought it was a great idea to host an evening of art in the magical setting of the National Portrait Gallery.
“It’s an honour to be able to draw awareness and raise funds for such a great charity through my work.”
Julia Smith, senior manager, regional development at Muscular Dystrophy UK said: “Alexandra has put a lot of time and effort into this fundraiser and we are so grateful.
“We look forward to seeing photos from the event and expect it will be a fun and relaxed evening. Any funds raised will go towards Alexandra’s family fund to to raise essential funds for research into Facioscapulohumeral muscular dystrophy.”
Alexandra added: “Muscular Dystrophy UK is a charity with a great level of experience and determination in their mission and the staff, and that always comes across. They have created many opportunities for people with the conditions.”
The venue is fully wheelchair accessible.
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